man if you're disabled you've GOT to find some way to make your fuckass body a source of pleasure whenever you can. jacking off. eating good food. wearing soft clothes. kissing an animal on the head. whatever you can do
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man if you're disabled you've GOT to find some way to make your fuckass body a source of pleasure whenever you can. jacking off. eating good food. wearing soft clothes. kissing an animal on the head. whatever you can do

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I reblogged this last month, tagged it, and said “might as well see if it works.” I used this video as a reference to find all the forms that i needed (which is A LOT, especially if you’re a dependent) and sent them through the mail, not really allowing myself to hope.
dude.
$2,714 of medical debt from my top surgery - gone. im shaking this was such a weight on me for 2 years and it fucking worked. what the fuck.
This is huge. Sharing for my US friendos.
Hospitals like to hide these policies under a lot of successive links in obscure places, so if you don't see anything right away, keep looking! Get friends to help! Make it a scavenger hunt. A game where you're assassins sent to slit capitalism's throat
“There’s a cure?!” asked the girl that kills everything she touches. “Hey shut up we’re perf” replied the girl that makes clouds.
For real though. Storm has stopped an entire tsunami before. “Makes clouds my ass” she can conjure lightning and tornadoes and is revered as a god in her tribe. She literally changes atmospheric pressure and that’s how she flies. So fuck you. Storm is flawless.
I think you missed the part where the GIRL WHO KILLS EVERYTHING SHE TOUCHES wants to NOT KILL EVERYTHING SHE TOUCHES and everyone dismisses her incredible misfortune just because the lady who is the AVATAR OF THE STORM won the fucking SUPERPOWER LOTTERY
And here we see X-Men perfectly illustrating the disparity between the larger disability community (Storm) and the chronic illness community (Rogue). One wants society to accept & respect them & their various different needs, which is surely a noble cause, while the other would like to NOT BE IN PAIN EVERY FUCKING DAY, which is just as important but often gets shouted down by non-ill disabled people who only want to talk about disability as a social construct.
thing I am proud of: when the doctor started going on a weird rant about long covid not being real I paused and listened to his nonsense for a bit and then very calmly said, in a polite and curious tone, "you don't believe in post-viral illness?" and he like. stammered a bunch and was like OH WELL I'M NOT SAYING -- I DON'T...I just think ..! and backpedaled awkwardly while I just sat there like :3c interesting :3c thank you so much for clarifying your stance on this :3c
an important skill for chronically ill people to develop is the ability to treat the doctor as though they are simply a person you are interviewing to find out how much they know about your condition.
Holy shit op this is LITERALLY in the book 'Never Split The Difference: Negotiating as if Your Life Depends On It'. Written by a guy who did hostage negotiation and then tried doing business negotiation, and mopped the floor with industry experts.
I'm fortunate enough to have a primary care doctor who knows about hEDS, but it's occurring to me that the skills in this book could be medically life changing for chronically ill folks of all kinds. Like. Literally a matter of life and death, especially for BIPOC and/or fat and/or young people who are having their issues dismissed.
HMMM interesting!! will have to check this out

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disabled ppl we need to start lying to nosy people okay? you tell me i'm too young to need a cane and i will tell you point blank that maybe you should tell that to the guy who ran me over. you don't get an explanation of my health issues you get lies and depending on how much of an asshole i want to be that lie will be anything from a humble car crash to a 1 billion lions attack. mind yr business.
"i could never live like that" well maybe you'll have to because this happened overnight. yeah you heard me i was the most able bodied man in the world but then one morning bam i woke up disabled. yeah you could have that too. there's no cure either you'll just wake up one morning and now you have to live like me
"what happened" well have you ever seen looney tunes? yeah an anvil landed on me and squished me flat.
We have got to be more normal about the fact that disabilities literally disable people.
and by we I mean literally everyone.
The tumblr disability community is included in this.
The amount of ableism I see on here is astounding.
Also because I’m so passionate about it here’s an incomplete list of things I personally experience that I’m normalizing:
Bathing struggles
Struggles with teeth brushing
Hygiene reminder
Urinary incontinence/accidents
Bowel incontinence/accidents
Severe diarrhea
Mobility aids
Trouble standing/walking
Inability to manage finances
Needing support for appointments, paperwork, transportation
Inability to follow multi-steps
Forgetting meds
Needing supervision
Wandering
Severe emotional dysregulation
Meltdowns and shutdowns
Inability to communicate needs effectively
Sleep disorders
Fainting
Tics
Dystonia
Seizures
Migraines
Coordination problems
Stimming
Stuttering
Delayed processing
Reliance on communication devices
Needing help with shopping
Protective pads
Some of these are commonly talked about on here, others aren’t. Regardless, disabilities are not meant to be quirky.
the “sexy lamp test” but for disabled folks: if you can replace your disabled character with a beloved pet dog that needs an expensive surgery to survive then you have to throw out your manuscript
reblogging one of my most underrated posts: the dying dog test
I’m gonna make my medical school advisees do this on their application essays too I think.
Welcome to being an adult! Featuring such injury causing events as
- sneezed wrong
- turned your neck a little too fast
- slept weird
- took the trash out to the curb and stepped at a slightly different angle than usual
- breathed
- failed to breathe properly
- breathed in the wrong stuff. Allergy time
- looked too hard at something too far away
- knees

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body positivity can be so hard when ur chronically ill like ‘your body loves you and is doing its best to care for you ❤️’ NO THE FUCK IT IS NOT
my grandmother said something that’s resonated with me. she said “people don’t understand that when they’re ill, they go to sleep knowing they’ll wake one day soon feeling better. you have go to sleep every night hoping, and it never happens.”
That is a very powerful message. And hard for people without illnesses to comprehend.
something that made me sit down and stare at my wall for an hour
point of reference from an able-bodied person: standing in one place for an hour kinda makes my feet/legs hurt. longer than that is when it really hits but it takes an hour to get there.
if you are in pain within minutes or seconds, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.
if you are in extreme pain, not just "ugh my feet ache" pain but "i am going to pass out" pain, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.
I know some people try to rationalize as "well it's not excruciating compared to my baseline" and I am gently reminding you that the baseline is zero. zero is normal. this ^ is not. be kind to yourself.
AN HOUR???????
"walking for 15 minutes makes the bones in my calves hurt for 2 hours"
buddy... that's the Symptoms...
... Wait, what?
I mean, I can walk just fine, but standing in one spot for like 15 to 20 minutes will leave me in pain for days.
That is... not normal?
I love how everyone is still asking hey so my symptoms are actually symptoms? Even if I feel only x amount of pain after x amount of time? BUDDY THE NORM IS FEELING MILD DISCOMFORT AT MOST AFTER STANDING FOR AN HOUR AND THEY RECOVER WITHIN A FEW HOURS TO A DAY

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Hey everyone, remember that being sick or healing from injuries is a hard time for your body. You have to eat a lot and lay still and be kind to yourself! [large neon sign that says HYPOCRITE descends from the ceiling and points at me] Hey what the heck what's this who put that there
(Smugly after failing at a task) and they said it could be done.
sorry to everyone tagging this "malicious helplessness" "learned incompetence" "some straight girl's bf who sucks at doing the dishes on purpose" etc etc etc but this post was actually about disability.