It would help so much if there seemed to be some kind of ryhm or reason to flare-ups. Like, sometimes you know they're happening because you overdid it, but often you just wake up and your body is having a bad day for no apparent reason.

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@insidestory1
It would help so much if there seemed to be some kind of ryhm or reason to flare-ups. Like, sometimes you know they're happening because you overdid it, but often you just wake up and your body is having a bad day for no apparent reason.

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Autism Meltdown vs. ADHD Meltdown
Ascent Autism
I understand people lacking knowledge about disabilities/health conditions. I understand people having misconceptions about disabilities/health conditions that they've absorbed from the extremely ableist society we live in. What I completely fail to understand is people who spout damaging misconceptions about your disability/health condition, and then when you point it out and correct them they continue to insist that no, no, THEY ARE RIGHT AND THEY KNOW MORE ABOUT YOUR DISABILITY THAN YOU DO.
Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!
Forgive me if this is inappropriate but
So are
colostomy bags
Diapers
insulin pumps
Oxygen systems
Braces
catheters
rollators
hearing aids
compression garments
prosthetics
FREEDOM AIDS
- canes
- service animals
- noise cancelling headphones/ear defenders
- wheelchair attachments
- fidgets
IT’S DISABILITY PRIDE MONTH YALL
BE UNAPOLOGETICALLY DISABLED AND TAKE UP ALL THE SPACE AND TIME YOU NEED!!!!!

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Trigger warning! This post is about very bad mental health.
It's horrible that somehow the worse your mental health is, the harder it is to ask for help. It's easy to talk to someone about a minor anxiety and get some reassurance. But if you're feeling like you want to end your life, reaching out and telling somebody, and asking them to help you can feel like an insurmountable hurdle, even though you need that help so much more.
In hindsight being a “gifted kid” is so funny. You have substantial difficulties with socializing and fine motor skills, but we’re going to ignore that because you’re really good at reading chapter books
I cannot express how much it hacks me off that teachers see you being bullied and socially isolated, but act like it's fine because you're doing great in their class and you never cause problems. On the other hand, kids can be doing great socially, with a really solid group of friends, but if they aren't up to scratch with their homework or are loud in class teachers act like it's the end of the world.
What I feel people frequently forget about autistic special interests is that they aren't always information based. They may simply be visual or mental
Someone may have a special interest in a show, but instead of that meaning that they will talk about that show often, it may mean they watch that show extremely frequently.
Special interests are ways of regulating, not simply encyclopedias we have in our heads. Sometimes it's watching something frequently. Maybe only listening to one genre of music, maybe it's a collection, maybe it's an action. I'm tired of it only being seen as autistic people's personal encyclopedias
Until you end up with a chronic illness or disability, you don't realise how much energy it takes just to survive.
Oh man.
“Let’s just google around for a few title ideas… or have a look at that link your phone just reminded you of last week…”
The 90% chapter takes another week to be posted because… life finds a way.

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Being kind to yourself is the most important skill for living with chronic illness.
This may seem like a really trivial thing compared to most disability struggles but: maintaining long hair is so hard is you are chronically ill. Have you ever tried brushing long hair after you haven't had the energy to deal with it and have just left it to its own devices for a week? 😬😬
I remember one time I was doing an ADHD evaluation with a kid who had asked to go to the bathroom like 3 times during the 30-ish minute part of the interview where we asked his mom questions, so I knew that was his go-to excuse when bored. We get started on the WISC-V after the interview and within 30 seconds of vocab starting he asks if he can go to the bathroom, and I say:
“No.”
And this kid rolls his eyes because DUH and he says “Why not?” all cranky-styles, so I said
“Because you don’t need to go to the bathroom, you’re bored and you need to move. If you need to move, tell me and I’ll let you know if we’re at a part of the test where we can pause. Like, for example, we can pause right now if you wanna race me around the building.”
And this kids face fucken LIT up. We did three laps around the outside of the building and came back in and he finished like 3 subtests and asked if he could move so we got up and tried to see how high we could jump for 3 minutes and the finished the rest of the assessment with one bathroom break. And that was all it took tbh, this kid was SO capable he just needed to move and hadn’t been allowed to do so before. I also like making people mad by pointing out that I know what they’re up to, then just giving them permission to do the thing they were sneakily trying to do in the first place. It’s like being affectionately annoying and it’s part of how I connect to others.
Reading this, I really feel how happy that kid must have been. It's so nice to be told your "unusual" needs as a neurodiverse person are okay instead of being told they're a problem, or having someone deny that you need that thing at all because they just don't understand.
This is the reason why all my doctor's appointment run over the assigned 10 minutes.
Living with a chronic illness means never having enough energy to get through all the basic, practical tasks you have to do in a day. Which means that every day there are more and more tasks which didn't get done and have to be carried over to the next day. Eventually the list becomes so long that you have to accept that many of the things on it will never get done, and you end up living with a kind of graveyard of undone tasks which you go through life trying to ignore because you're just not able to do anything about them.

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This basically sums up everyday when you are chronically ill.
the other thing about ableism in academia is that the way that most institutions are structured inherently makes it hostile to disabled students, so fewer of us graduate and even less of us manage to make it to a graduate degree, then to a post doc and then faculty position and so on. so naturally we comprise only the smallest sliver of academic faculty, like it’s no wonder we experience so much ableism, because none of the people in higher positions know shit about disability! we are so sorely, thoroughly underrepresented, we are an afterthought and none of these abled people have any clue what it’s like to be a disabled student and what kinds of barriers we have to face just to hit the bare minimum marks that abled students can unimpeded. “i’m not equipped to handle your disability” yeah i know, none of you are
The only answer to "we're not equipped to handle your disability" coming from an institution is "well you should be". If you're going to run an institution that's for people then it needs to be for everyone.