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I was 13 when I woke up one day feeling possessed with severe onset OCD, anxiety, and derealization following a Strep A infection. It has been 12 years, and as of Friday I finally have PANS/PANDAS in my chart notes. 4,242 days too late for recognition of the most horrific disease I've ever endured, I was failed as a child by the medical system and everyone around me, but I've finally saved myself.
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Is there any way i can be more helpful to my chronicallt ill wife?
My wife is chronically ill with no specific diagnoses on paper yet but we have a lot of suspicions about endo and IBS just for the abdominal pain alone. She experiences these issues almost every day and I wanted to know what you guys think the best things I can do to be supportive would be.
I already listen to her vent and offer comfort and reassurance, drive her to appointments, keep track of appointments, remind her about meds, bring her various items on days she's in too much pain to move, offer solutions when she's open to them, and research what I can.
i was supposed to go rock climbing today but my friend cancelled on Monday for financial reasons. I was a bit disappointed at the time but i’m actually kind of glad now because my legs have decided it’s time to pain and i’m not sure i would have made it there never mind managed to climb
it gets me down sometimes and feel i don’t handle it well. some days i can do (almost) anything. granted there is an increased chance i get hurt but i can do it. and other days i am in bed taking pain meds as soon as I am able to wishing for the day to be over and to try again tomorrow.
but then i wonder what is handling it well? it shouldn’t be viewed as an achievement to express pain gracefully. bury it in “i’m fine” or “im just tired”. but track record shows if i constantly complain i’m in pain i will not have friends because for some reason they take it personally?? like it is a personal failure on their part that i am in pain?? and then they feel bad every time they are around me so eventually they slowly move away.
There's no compensation for ibs in most of the countries including Poland it's literally a chronical illness ruining my life I cannot do anything because it hurts so much in mornings for hours, sometimes starts later too. I am prescribed meds and I'm taking them but they don't do shit
I am one more "good news your labs came back normal!" away from ending up on the national news
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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my symptoms started at 3 years old 💔 no i didn’t have a life before being chronically sick
i get a weird feeling whenever i see other girls grief their life before đź’” i wish i could grief that
#tourettesawarenessmonth🦄
Being chronically ill seems like such a fun time for people, especially when you see it online. Chronically online people get extra attention and people love them right?
Fucking wrong.
I just projectile vomited in front of a restaurant while trying to move all my things I’ll need for the next 3 weeks into my job. Yes. That’s right.
Projectile vomited everywhere. Unable to stop because I moved too much.
If you romanticize bring chronically ill, I hope this happens to you 20x times worse.
There's a surgery, that if I got it, I could stop taking a medication that is actively harming me. If I got this surgery, I would still be terminally ill, but it would buy me 15-20 more years. I've never been able to access this surgery. It's extremely invasive, requiring a reconfiguring of muscles in both my legs. I would be completely unable to bear any weight for at least several months, and full rehab lasts several years. That's several years of being unable to work or earn income. The surgery itself costs upwards of 40k without counting hospital or rehab bills. I was born with my illness, I grew up knowing that I was dying. I grew up knowing that my miracle pill exists. It just exists behind a paywall.
