Top Posts Tagged with #chronically sick

I would not wish POTs on my worst enemy, not as I experience it anyway. I'll preface by saying I have been told that I have one of the most severe cases the doctors at my local hospital have ever seen, and that I was turned away from the Mayo Clinic because they determined that there was 'nothing more than what my doctors were already doing for them to do'. Which leads me neatly to my point: Living with POTs is living a half-life. Half energy. Half stability. Half brain power. Half the days I can't walk, can't string words together without sounding drunk. I have neuropathy throughout my entire body that makes it near impossible to perform normal activities of living. Where is my quality of life? Why do I have to live like this? I just want to LIVE. And I can barely, BARELY do that.

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filling in forms for DSA is so annoying they used to post me only the bits of the form i have to fill in and it was like 6 pages now i have to download it and sort through 40 pages to find what bits i need to fill in. like im glad that is online now so that i dont need to post it but man 40 pages of questions most of which aren’t for me means i cant just mindlessly fill it in i have to pay really close attention to all of the directions and it is zapping all my energy

#chronically disabled #chronic illness #chronically ill #chronically sick #chronic fatigue #chronic pain #chronically tired #disability #disabilties #chronically fatigued #chronic disability #invisible disability #disabled #actually disabled #ickysickyspeaks

ended up in urgent care this week and i feel like ive missed must the week being off my face on the pain killers they prescribed me though it is almost impressive how quickly you get through the hospital when you go in with 9/10 chest and back pain

#chronically disabled #chronic illness #chronically ill #chronically sick #chronic pain #disability #disabilties #chronically fatigued #ickysickyspeaks #chronically in pain

The amount of physical problems I have equal the number of mental ones

Reminder that it’s okay to not be morally perfect all the time. It’s okay to suspend your values to protect yourself from time to time.

Here’s an example:

You are generally good at donating, reselling, recycling, etc. in your daily life, but now you’re moving and very overwhelmed and tired.

It’s okay to just toss things you aren’t taking for this one life event if it means you aren’t going to stress yourself into sickness by adding a million extra steps and things to manage.

You aren’t Bad for not being Perfect when you need Accommodations.

Suspending your morals is not abandoning them. You aren’t going to single-handedly expedite our landfill problems with one move, but you could make yourself ill if you push past your limits.

This is especially important to understand if you are disabled.

#chronic illness #chronic pain #chronically ill #chronically sick #disabled #disability #disabilties #health and wellness #personal development #life lessons

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I was 13 when I woke up one day feeling possessed with severe onset OCD, anxiety, and derealization following a Strep A infection. It has been 12 years, and as of Friday I finally have PANS/PANDAS in my chart notes. 4,242 days too late for recognition of the most horrific disease I've ever endured, I was failed as a child by the medical system and everyone around me, but I've finally saved myself.

#pans/pandas #brain damage #disability grief #brain inflammation #chronically sick #chronically ill #disability rant #obsessive compulsive disorder #ocd #disabled rage #FinsArt

i was supposed to go rock climbing today but my friend cancelled on Monday for financial reasons. I was a bit disappointed at the time but i’m actually kind of glad now because my legs have decided it’s time to pain and i’m not sure i would have made it there never mind managed to climb

it gets me down sometimes and feel i don’t handle it well. some days i can do (almost) anything. granted there is an increased chance i get hurt but i can do it. and other days i am in bed taking pain meds as soon as I am able to wishing for the day to be over and to try again tomorrow.

but then i wonder what is handling it well? it shouldn’t be viewed as an achievement to express pain gracefully. bury it in “i’m fine” or “im just tired”. but track record shows if i constantly complain i’m in pain i will not have friends because for some reason they take it personally?? like it is a personal failure on their part that i am in pain?? and then they feel bad every time they are around me so eventually they slowly move away.

There's no compensation for ibs in most of the countries including Poland it's literally a chronical illness ruining my life I cannot do anything because it hurts so much in mornings for hours, sometimes starts later too. I am prescribed meds and I'm taking them but they don't do shit

#irritable bowel syndrome #ibs symptoms #chronically ill #chronically sick #chronic pain #chronic illness

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