May 28, 2025
they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
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they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
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“It just means you have to work double as hard as most people!”
Well maybe I don’t WANT to work double as hard as abled people!! Maybe I deserve a BREAK!! Maybe I’ve been working MORE THAN double as hard for MY WHOLE LIFE and it’s led me to immense burnout & caused me to develop several MORE disabilities!! Maybe I should be ACCOMMODATED so I don’t have to KILL MY BODY AND BRAIN over trying to do what abled people can do!! Maybe I DON’T have to work double as hard!! Maybe if there’s the option to let me NOT work double as hard, I should have it, because I’m already working double as hard JUST TO SURVIVE!!
Why do you think disabled people deserve less rest than mentally & physically abled people?
I find it very offensive that the more unwell you are, the more things you have to do to maintain your health. Things like following special diets, going to medical appointments, making big and important decisions about what treatments to use. At the same time, the more unwell you are the less energy you have to do all of these extra things. It seems grossly unfair.
It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.
I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.
Hey if you have chronic pain, you gotta remember that the cognitive load of dealing with that is exhausting. Just that alone. Never mind what else you've got going on.
You're not lazy or being dramatic; you're overloaded.
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Brain fog is not an adequate descriptor, actually. Fog can be kinda nice and beautiful and ethereal and refreshing. The thing we’re describing is more like a brain BOG; everything moves slow like you’re wading through water, it’s clunky and heavy and you keep getting stuck in the mud. It’s uncomfortable and inconvenient and everything takes so much effort. You lost a shoe, probably.