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I find it very offensive that the more unwell you are, the more things you have to do to maintain your health. Things like following special diets, going to medical appointments, making big and important decisions about what treatments to use. At the same time, the more unwell you are the less energy you have to do all of these extra things. It seems grossly unfair.
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
I promise I'm really smart it's just all my best thoughts get lost in The Fog
Fibromyalgia is so ridiculous.
What do you mean the name just means "muscle hurt"
What do you mean the pain is worse when it rains
What do you mean its a whole body systematic thing that half of doctors think is make believe.
What do you mean my body is so tired I could sleep for ten years.
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try to find a comfortable sitting position that doesn’t hurt any part of my body challenge (it’s impossible)
@spoonie-living
Hey everyone, guess what? We need a wheelchair. Except, we can't afford a wheelchair.
Yay!
If you've not been kept in the loop recently, we'll, we've almost completely lost the ability to stand up, have been falling regularly, and basically live between lying in bed, and lying in the sofa.
This life doesn't afford us the levels of enrichment we so desp.erately crave, because well, we can't really leave the house. We especially miss being able to do zoomies.
To this end, we've been looking at lightweight, active wheelchairs, specifically the quickie argon 2, which is the lightest chair we can reasonably expect to afford. Sadly that "reasonable expectation of affordability" still means finding £2500 that we don't have.
To this end we've started a fund raiser on our ko-fi. Obviously it's a lot of money, but we're fucken tired of how limited our life is rn, and we want to take part more in the world.
Please donate if you're able, share and boost, because this will literally be life changing for us
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