Fandom, fandom, and more fandom. If you're here because of my femme to masc photos, you should donate to oSTEM: https://ostem.org/donations/. Fuck you, I'm not linking a carrd. About the Blogger: Nova/20's/They, Them, Theirs/Author of Afterword/US/Hard of Hearing/ADHD/Panic Disorder (PanicHD)/Bi-Ace/Fellow in Astrophysics-PhD Candidate
An Archive of Our Own, a project of the Organization for Transformative Works
“You okay, Cheryl?”
She stared at me with an expression I couldn’t decipher, but it clearly wasn’t happy. “I’ve had a day, Ezekiel.” My sister laughed in Jimmy Jr.’s arms as she clapped at my name, looking at me to pick her up. I set down the groceries on the countertop before kissing her forehead and shaking my head at her while mouthing ‘food.’ I put what I could away and then went back to cooking.
Cheryl eventually lifted herself to sit normally in her chair, her joints creaking in exhaustion and age. She tilted her head this way and that to let go of a few pops underneath, and then she leaned onto her forearms while hunched over her knees. “Now, what’s this I’m hearin’ ‘bout edibles?”
Jimmy Jr and I froze as we stood there in the kitchen, him dancing around the floor with my sister in his arms and me holding a piece of steak over an oiled skillet.
“Oh,” Jimmy Jr. whispered as soon as he gained his composure, adjusting my sister on his hips. “We weren’t-I mean, we were only discussing…I think you might have misunderstood what we were saying. We weren’t saying edibles-”
“Can it, ginger,” Cheryl demanded. “Ezekial.”
She looked at me, narrowing her eyes before glancing between the two of us. I sheepishly tried to smile my way through this, but she wasn’t having it. She again sighed, in what seemed like a combination of exhaustion and exasperation. She rubbed the bridge of her nose with her forefinger and thumb before sighing again and looking back up at us. “I’ll help ya, but don’t ya dare let yer pa know. I’ll feckin’ kick yer ass.”
I looked at her confused, my brows furrowing in distrust of the situation. It didn’t make sense for Cheryl to want to help me, especially considering she was trying to “clean up” our family image. Plus, she hadn’t baked since she left her family back in the mountains. What exactly was she getting out of this? “What makes ya wanna help me?”
She rolled her eyes, crossing his legs over one another and folding her arms across her chest. “This here’s ‘bout gettin’ that Belcher gal back, ain't it?” She looked between the two of us while Jimmy Jr. nodded his head in response. Closing her eyes and taking a deep breath, she suddenly made full eye contact with me and a soft, sympathetic expression crossed her face. “Count me in. I can't handle another day of you moping ‘round this house ‘cause yer without her.”
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i do get pushing back on "mean girl nurse" being used in a lazy misogynistic way against a group of workers who are institutionally abused & their feminized labor underpaid.
that being said. can we not erase the fact the entire conversation began with disabled people talking about being medically abused pretty please. & also, iirc the post that first really blew up about "mean girl nurses" never said "ALL nurses are evil bitches who hate everyone and they deserve to be mistreated" it was saying "women who sought power over other people in high school go into careers where they can wield power over other people, same as men, and there are women who go into nursing and present themselves as kind and caring and maternal, who are motivated by a desire to have unquestioned authority over other people's bodies to make themselves feel powerful, again, same as men who do the same things in masculinized careers." & i just find it "interesting" how all that has been reduced down to "all nurses are mean girls")
i think nuance is always important & doctors and nurses do need better treatment and society frequently praises them while also supporting their abuse. and yet they are also universally recognized as vital important members of society & empowered to have immense control over the lives of people who are systemically vulnerable and seen as leeches who add nothing to society. and yet who has to deal with the impacts of their stress and their trauma and their anger and their burnout? the disabled people under their care.
again. Nuance! but i just cannot help but Side Eye In Cripple some things people say on this topic. it can both be true that nurses (& doctors) experience horrible working conditions and that, in my opinion, that any conversation about burnout and abuse of medical professionals needs to also criticize the authoritarianism of the medical field and how widespread medical neglect and abuse is, lest we simply fall back into "the poor beleagured doctor who is Jesus Christ On The Cross Himself, all-wise and all-knowing and forced to tolerate all these entitled know-it-all ungrateful patients!" which changes nothing for anyone.
like. look at this article. the actual context for the "mean girl to nurse pipeline" (that some women seek out power over people to control them and make themselves feel bigger, and women are likely to do this through caretaking in the role of nurse, teacher, mother, etc.) is not brought up at all. the fixation is entirely on "its mean to call nurses mean girls! they experience a lot of bullying! you don't REALLY know any mean nurses, just poor tired bullied ones!"
First, the phrase itself is unfair to women. Although nursing is a female-dominated field, this phrase focuses on women as being the “mean” ones to worry about.
like. do youuuu fucking see the erasure of medical abuse. the actual bullshit nurses do to real living human beings, which goes massively under-reported. & not just disabled people but people of color as well. god fucking forbid medical professionals are treated as anything but literal saints descended from heaven. god forbid white cisgender women are recognized to have the ability to be cruel and power-hungry and to hurt other people through traditionally feminine roles based on caretaking. like I genuinely do understand that nurses are subject to immense stress, bullying, and violence, and that providing better working conditions for nurses is vital to improving medical treatment for all patients.
but when the actual neglect and abuse nurses can do to their patients is ignored and drops out of the conversation entirely, in the name of complaining about nurses being called "mean"? sorry but it pisses me the fuck off.
(links to some sources on patient abuse under the cut since this is long enough as is)
Exclusive: Leaked internal document lays bare concerns of ‘toxic’ issues within watchdog that mean whistleblowers’ warnings are ignored — an
Nurses and midwives accused of serious sexual, physical and racial abuse are being allowed to keep working on wards because whistleblowers are being ignored, a damning new report has found.
Staff are too scared to report their concerns to the nursing regulator because of a “culture of fear” within the watchdog, documents seen by The Independent reveal.
One whistleblower, speaking to this publication, drew parallels with the Lucy Letby case, accusing the Nursing and Midwifery Council (NMC) of being defensive and trying to protect their own reputation.
They claim “deep-seated toxic conduct” within the NMC is leading to skewed and failed investigations.
A review of NMC guidelines was launched after The Independent highlighted concerns earlier this year by speaking to staff who complained that the NMC was leaving nurses accused of sexual assault and domestic violence free to work unchecked.
Incivility is one of the most prevalent forms of interpersonal mistreatment. Although studies have examined the full range of experiences of
Incivility is one of the most prevalent forms of interpersonal mistreatment. Although studies have examined the full range of experiences of incivility against nurses and other hospital personnel, very few studies examined the forms of incivility that patients face in a hospital. [...]
Participants most frequently reported experiencing insensitivity (38%) or affectively negative interactions. A majority explicitly used the word “rude” to describe their interaction. [...]
When the Doctor was a smart mouth and came in and said “congratulations you have a period” it ended up being a very serious infection. [Participant 290, 27 years old, Biracial, Woman].
Participant 290’s experience demonstrates some of the potential consequences of rudeness. In this case, the doctor was not only insensitive but gave an incorrect diagnosis. In addition, participants frequently indicated how insensitivity was also communicated through a “rough” touch when the doctor was examining them. The consensus was that insensitivity—verbal and physical forms—only made the participants feel worse when they are already in the hospital not feeling well.
Participants (15%) indicated experiencing rudeness because of their identities. Many individuals explained how their socioeconomic status (SES)—specifically lack of health insurance—was a significant factor in shaping the treatment they received:
I had a first time grand mal seizure and wrecked my vehicle. I do not have insurance, so the hospital I was taken to was so rude. I was brought in by an ambulance, they wouldn’t give me anything for the severe headache from the wreck and also from the seizure. They wouldn’t give me anything to keep me from throwing up. The only thing they did was give me an IV of Keppra to stop the seizures. After finding out I didn’t have insurance, they discharged me within 10 minutes. They took me to the bathroom to change clothes, they met me at the bathroom door, handed me my papers and pointed me to the door. I didn’t even get wheeled out after having a seizure and a wreck…[Participant 272: 28 years old, White, Woman]. [...]
…[I] was told in plain terms that those who don’t pay for their [insurance] have no right to complain about not receiving the best treatment [Participant 47: 34 years old, Latina/Hispanic, Woman]. [...]
Participants (26%) indicated what we categorized as containing elements similar to “gaslighting” or mistreatment in which participants’ experiences were minimized, doubted, questioned, second guessed, or denied by health-care professionals. [...]
…I was told I was lying about being sick. I was told that I had lost 45 pounds in 2 months because of a mild cold, and that I was wasting their time. They tried to make me feel like I was a burden, and I was taking away from other patients who they implied were sick. Turns out I was sick, and I needed surgery. Going to a hospital out of town, they diagnosed my problem within 1 visit. [Participant 275: 34 years old, White Man]
Patients adjust their behaviour based on what they experience in care relationships with nurses or the hospital care. It is crucial that pat
Most research on aggression in health care relates to staff experiences about patient aggression. Research on patients’ perceptions of aggressive and transgressive behaviour in care relationships with nurses is limited. [...]
When it comes to competent care, some patients told stories of how expertise of care providers was questioned. One patient described a nurse provided pain-relieving medication while he is allergic to that product. In response, the patient’s daughter attached a list to her father’s bed listing products he is allergic to. Despite this list, every time her father asked for pain relief, that same product he is allergic to was brought to him. Another patient described a nurse accompanied him for an examination. He asked where she was taking him to and when she said it was to Nuclear Magnetic Resonance, he said he was not allowed to because of his pacemaker. He indicated the nurse had not gone through his medical file and was putting him in danger [...]
Patients told stories of being ignored by nurses or not treated as human beings. One woman described the nurse criticized her for not having to have worked a day in her life because of her long-term illness. Another man described dinner was put in front of him without a single word, no ‘good afternoon’ or ‘enjoy’. Patients also provided examples of a lack of gen- uine involvement of nurses in the nurse–patient contact. Various patients mentioned they felt like a number:
. . .One thing that is very annoying is when two nurses are caring for you and they are conversing with each other over your head. That’s so annoying, you really feel like just a number. . .
Furthermore, various patients indicated nurses are more concerned about the way care is organized than they are about the patient’s request. Patients mentioned nurses stick to their routine and are reluctant to deviate from it. One nurse distributes medication while another checks parameters of all patients. Patients describe they cannot approach the nurse about matters that are not part of his/her task at that moment [...]
Various patients gave examples of situations where they were not acknowledged or heard with regard to their own appraisal or expertise concerning their illness and health. Patients stated they themselves felt what they could or could not do, but nurses kept emphasizing and imposing things, according to guidelines and protocols, they should be able to do at a certain point in time. Several patients felt they were not heard:
. . .I had two surgeries on my back. So the first day after the surgery, they said, ‘roll to the side and sit up’, of course that’s difficult. On the second day, they demand you get out of bed. But I felt worse, I couldn’t get out. And they didn’t believe me, the nurse didn’t believe it. ‘You’ve had surgery and according to the textbook, you should be able to get out of bed on the second day’. On the third day, they made a new scan and saw that those nerves had not been unblocked and on the fourth day I had another surgery. So they don’t listen, because that’s not possible, according to the ‘textbook’ you should be able to do this. . . [...]
When patients realize it is not self-evident to receive adequate care or do not feel in competent hands, they become more observant and vigilant. Patients describe they observe nurses carefully, check their medication and ask which examinations they are having and why. The care they receive is more outspokenly questioned:
. . .They came to collect me for my hip. Ah, you’ve got a scanner appointment. She says: ‘it’s an MR scan’. I say: ‘an MR scan? I can’t do that because I’ve got a pacemaker.’ And she says ‘And now you tell me?’ ‘Listen here, missy, you walk in here and tell me to come.’ You’d be in there if you wouldn’t have said something, wouldn’t you! The battery can generate voltage which could burn your heart, destroying your pacemaker. If you’re not paying attention, you’re done for. You constantly have to be on your guard. . .
You literally cannot find any information on abuse or racism perpetrated by nurses by searching up pretty basic terms, because the results are entirely full of abuse done to nurses. Which is important, but my god.
The rule could have heavy impacts towards trans people across society.
Last week, the Trump administration quietly released a sweeping new federal rule that would use funding threats to force institutions across the country to reject transgender people. The 400-page proposed regulation would codify the administration's anti-trans executive orders into binding federal policy, imposing a blanket prohibition on federal funds going toward "gender ideology"
The proposed rule, formally titled "Regulation for Federal Financial Assistance," rewrites the government-wide framework governing all federal grants across every agency. Among its most consequential provisions, it requires that before a federal grant recipient can receive money, the award must pass a "pre-issuance review" conducted by a political appointee—not a career expert or peer reviewer—to ensure it is "consistent with applicable law, Federal agency priorities, and the national interest." The regulation explicitly instructs these appointees to screen for "denial by the recipient of the sex binary in humans or the notion that sex is a chosen or mutable characteristic." [...] An institution that acknowledges transgender people exist—through its policies, its training, its healthcare, its bathroom access, its HR procedures, its name-change processes—could be deemed to "deny the sex binary" or to “support the notion that sex is mutable” and have its federal funding blocked.
Importantly, the gender ideology prohibition has no age limitation—hospitals could be targeted not just for providing care to minors but for providing gender-affirming care to adults, because prescribing hormone therapy to a transgender patient of any age could be deemed promoting the belief that "sex is a chosen or mutable characteristic."
This is all very bad and horrible, but I want to be clear that it’s worse and more sweeping than just eliminating trans research.
This torches everything. And I do mean everything.
A very abbreviated list of its ramifications include (but are not limited to):
ending funding for ALL DEI related initiatives
allowing the government to terminate grants at any point for any reason
preventing researchers from publishing, going to conferences, and being part of academic societies
requiring that topics must support the president’s agenda.
What this means, and if anything I’m under selling it, is the death of science and research in America. It allows the government to restrict any topic they please at a whims notice, putting officials who have no background in the topic in charge of deciding funding continuity. It controls what gets researched and if/how researchers are allowed to share their discoveries. There are no books to burn if the government never allows them to be written. This is fascism plain and simple.
Please, if you only ever write one public comment, this is the one to do.
Bringing back this guide to writing an effective public comment. This gives you the basics you need to know, what you need to include, a basic outline you can follow, etc.
Public comments are not a vote, it is a chance for you to say "here is an issue with this law I think you need to address" and provide justification for legal challenges if it goes forward:
"Comments raise the bar that agencies have to meet when making a rule; “if an agency fails to adequately respond to significant, relevant comments in a final rule, members of the public may seek to challenge the rule in court on that basis and claim it could be struck down.ˮ"
But also, if possible, don't stop at writing a comment. Don't stop at calling your representatives. You should ideally be talking to people in your community about this and organizing resistance on-the-ground; there is a good chance people are already doing that even if you aren't hearing about it.
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university of british columbia is (allegedly) one of the highest rated universities in canada and top 50 in the world and actually has a film production program so logically i should be planning to attend there instead but everything i have heard locally about that school is so awful i don't want to go there 😭😭 don't make me go to fucking ubc
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Can everyone who makes video content do a Deaf bitch a favor? Watch your shit with the captions on and the sound off, and then do another round of editing to fix things including but not limited to:
Captions cover the spot on the screen you put the information I need
The dialogue is captioned but not the song you have playing that the dialogue is responding to
You only captioned the person on the screen, not the person off screen who is also talking
No captioning of critical sound effects (alarms, bells, dogs barking, etc)
Speakers are not labelled at moments where it is not clear on the screen who is talking.
Captions cover the spot on the screen that you put the information I need!
Other d/Deaf people welcome to add.
This post brought to you by the fifth video tutorial I could not follow because the bad, auto-generated captions covered what I was trying to watch today.