fighting with my water bottle so hard i heard my elbow audibly crack????????
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fighting with my water bottle so hard i heard my elbow audibly crack????????

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goes to scratch my eyeball: my shoulder and elbow joints: loudest cracking sounds *immagionable*
being hypermobile is just constantly finding out that things you've been doing your whole life are actually impossible for 80%-90% of the population
Just wanna give some tips for anyone dealing with subluxations particularly patella ones since mine are being real pricks lately
When it comes to the Patella, you're gonna wanna keep bending it to a minimum. Keeping your fully straight will hurt it but a full 90° will do the same, what you need is a slight bend when you're resting. It can be hard to achieve out & about, so I find it easier if say I have my round pencil case or at home one of my small plushies under my bad knee to give that gentle bend for my knee.
Keep walking to a minimum as possible, same goes for carrying anything, particularly in your hands or shoulders since that'll alter your gait as well & make it harder to walk less painfully due to the weight of it. When it comes to going up & down stairs, lead with your good leg upstairs & with your bad one when going downstairs.
& remember to not rush yourself unless actually necessary & even then keep it as minimal as possible! Icing your knee before & after activity can also really help reduce any pain too!!
For shoulders, you're gonna wanna keep any movement of your arms to a minimum, which ofc is difficult since you can barely do anything then but very necessary, get a body puffer or something of that sort for showers if you don't already have one or you might risk a reinjury or worser one trying to clean yourself.
If you're resting, I find it's best to have my shoulders completely level with minimal weight on them, which I found the easiest to do with a giant pillow under each of my armpits. It'll feel weird, but if you try pretty much any other position, it's probably gonna hurt.
For ankles, I found it easiest to walk with 2 forearm crutches with a 2 point gait for long distances or just my ankle supports + frequent breaks for short ones, but ofc I know not everyone has access to those supports. Outside of that, bringing anything to grab height, taking a seat wherever possible, a shower chair, etc are gonna be your best bet.
I found it less painful to walk strangely with my sandals on than barefoot I found too, I'm guessing due to the flatter sole compared to the floor. I've heard platform boots can actually be pretty good for keeping ankles properly supported as well, course that'll depend on the person & boot
If anyone else has any other tips for dealing with subluxations, please do add them!!
At this point, "Ow, m'knees!" is becoming my catchphrase.

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Seriously at what point should one employ a mobility aid?
I now have physio exercises that really really help with my hypermobility, they've made a HUGE difference. But I very much have a very obvious point where the capabilities of the physio drop off.
I just walked 1.7 miles through town and I had my legs tensed up so hard, and I was concentrating so hard, to just walk straight and pick my feet up properly. Idk how to describe it, it felt like I had to tense my leg muscles to keep myself together and take each step. I'm so sore now :( Ive immediately crashed on my bed and am dreading going back out and walking anymore.
I do my physio frequently, but I couldn't go on a hike anymore like I used to :( the physio won't take me that far. My left leg is especially bad, much worse than my right.
I'm wondering if a mobility aid of some sort would help in certain situations like walking round a museum, around a city, or a pride parade. I wonder if it'd help just take some of the stress off especially my left leg. But my physio said he "doesn't believe in physical aids" so how am I supposed to know when an aid would be helpful to me? Will it do more damage? But at the moment, even with good physio, I can't spend a day in a flat city wandering about, I can't go on a walk that's considered easy, walking around a flat museum *hurts*, I feel really limited in what I can do :(
My parents want to do a 6 miles walk next week and I'm, fucking hell, I can't do that. It'll cause so much pain. The recovery will be endless. I'm absolutely dreading it.
I reiterate, I was meant to be a mermaid
Any one else have their Dysautonomia act up in a way that make you feel kind of like your having a panic attack?
(Im drinking a lot of water and had some
electrolytes so its a bit better now)