EDS struggles

“You’re too young to be using a mobility aid!”

“Why do you rest so much? You’re so young!”

*loud crack* I don't even know what just popped

alternatively: I don't even know what just popped and OW

wow my joints hurt that's weird

*forgets I have a connective tissue disorder* *forgets I have a connective tissue disorder* *forgets I--

me: *goes on a 2 hour walk* *is fine* also me: *exists* *ASTHMA TIME*

speaking of which What If You Just Didn't Breathe While You Were Sleeping.

haha jk

unless.

let's try to figure out what causes my headache today!

the answer is.... absolutely nothing! no reason whatsoever!

what do you mean you don't get bruises without knowing why

WHAT DO YOU MEAN YOU DON'T ALMOST PASS OUT STANDING UP

(talking to friends)

hey haha chronic illness things amirite "that one's actually just a normal experience" oh

OR

hey haha chronic illness things amirite "hey what the fuck are you ok do you need a doctor" /sigh

alright im fed up who wants a free spine

I've cracked the code! ok, so, I become my own surgeon right, and sell my organs on the black market--

FUCK I'm TIRED ive exerted so much energy by Being Awake sitting in bed 💔

fun fact I'm actually an 80 year old man in a 17 year old body

my rib....... what is she doing....... honey i feel you moving around you ain't slick what is going ON

“ADHD tip! i use this one more than any other one by far. (except, for white board of course)” [smiles and there is a heart emoji on the screen]

“if there’s something you have to do but you’ve avoided starting doing it, think of the smallest amount of time that you know you can force yourself to do, and set a timer for that amount, and do it for that amount of time. and then once the timer’s up, you can stop.”

“now you might be thinking, [higher-pitched voice] hey eric i have ADHD i’m supposed to be wanting to complete stuff and stuff, why would i want to quit in the middle of a task?! well i would say not starting a task at all is a much bigger problem than not completing it. and, once you’ve started it it’s much easier to keep going.”

“for example, i needed to clean my kitchen yesterday, and i could not get myself to start doing it. but i thought, i can definitely clean my kitchen for three minutes. so i started a timer for three minutes and started doing the stuff. and when the timer was up, i thought well, i… i can do another three minutes. and so i did. and then when that was up, i was like, goin’. and if you stop after the initial timer goes off, you succeeded in your goal of doing the thing for that amount of time!”

[yelling] “use those timers!!!”

[username @heygude appears on screen.]

1) I am chronically ill. My body hates me and actively fights me and has been doing so forever and my doctors don’t necessarily think it will get any better or stay the same so… politely fuck off. 

and 

2) The only way for me to make a decision to not get old is to aliven’t myself and I’ve been told that isn’t a good option. Took me a minute for depressed, angry me to get there, but I have to agree. Getting older is the best option. It is a really great option. 

i’m tired of strangers demanding that i prove that i’m “disabled enough” for them