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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
"The UN’s Office for the Coordination of Humanitarian Affairs (OCHA) said hundreds of thousands of Palestinians and dozens of humanitarian facilities had been affected by the Israeli military’s latest forced evacuations across north, central and southern Gaza. Between Saturday and Monday, evacuations orders were in place for several areas in the north of the Palestinian territory as well as areas in central Deir al-Balah and southern Khan Younis." (source)
People all over Gaza are being displaced for the nth time, forced into a small stretch of land from Mawasi to Deir-al-Balah, where already 1mil people are packed into. Several hospitals in the north have been ordered closed by the IOF. Both central & southern Gaza are being relentlessly attacked, and the remaining hospitals there have already been overloaded by the endless number of sick, injured and dying. There isn't enough food, water, or medicine (an avg. of 52 trucks made it into the strip in September 2024; in 2023, that number was 500). Disease is rampant and cold weather will only make things worse.
Mohammad Khalil (@/ahmed0khalil) is just 19 and already has to shoulder the burden of caring for his 5 siblings who are particularly vulnerable to the situation in Gaza right now:
His older brother deals with coronary artery disease and can't get proper care (he was taken to hospital earlier today due to a flare-up; he's stable, but without treatment things will get worse)
His two youngest brothers are only 6 & 11 and are both struggling with malnutrition & skin infections
Mohammad himself was severely injured in the leg, has been struggling with fever the last few days, and is worried about what will happen if he's no longer able to help provide for his family
They're all stuck in Deir-al-Balah, sheltering in a UN school—with hundreds of other displaced people—which are routinely targeted by the IOF (most recently on Saturday & Sunday). Mohammad needs to be able to evacuate his family and himself as soon as possible, but they're still very low on funds (€3,862/€50,000).
Please share and donate
(shared by 90-ghost & vetted by @/gazavetters here, #77)
sorry about this, tagging for reach but let me know if you'd like off
Yesterday's attack on yet another school-turned-shelter in Deir-al-Balah occurred close to where Mohammad & his family have been sheltering. His little brother, Ahmed, who's only 6, was reduced to tears out of terror. Mohammad went to the scene himself, and was warned by paramedics to look where he stepped because of the level of carnage. He's only 19, and this is only one incident of many he's been forced to experience...
Please share and donate, help him and his family get what they need to evacuate as soon as possible
Hello, among the hundreds of tragic stories, I am sharing my painful sto… Mohammed Khalil needs your support for Help Ahmed Khalil's family
sorry about this, tagging for reach but let me know if you'd like off (rb of this one would be greatly appreciated, still pretty low on funds & situation is bad)
[ID: article headline and subheadline say "At least 400,000 people trapped by Israel's latest Gaza offensive, says Unrwa / Raid centred on Jabaliya camp is worsening hunger and threatening polio vaccine campaign, says Philippe Lazzarini". End of ID.]
This campaign is shared by 90-ghost, #77 on the @/gazavetters vetted list!
Other than the constant danger, Mohammed and his family also dont have enough money to buy basic necessities. They have to borrow money to buy anything, that's how short on funds they are! And food is very expensive in Gaza right now! Mohammed himself is only 19 and he has 5 siblings, the youngest is only 6! These funds are literally a lifeline for them!
€8,330 raised of €50,000 goal!
If you need even more incentive to donate, I'm hosting a freshwater pearl phone strap raffle for people in the UK. Click here to enter after you donated.
Tagging for reach. Please message me if you want off the mailing list. We thank you in advance.
i just wanna say that even if you have degenerative diseases, life can still get better with age. i don't know how long i have left and i just seem to keep getting sicker, but im steadier and happier and more secure in myself than ever.
i started my 20s healthy and my 30s deathly ill and i'm much happier now. i wouldn't even trade health for everything else i've gained since.
contrary to the popular misconception, health isn't everything or even the most important thing. it's good to have! but you can make a happy life as a sick person, in whatever time you have
I was what I considered able bodied at 21 and now at 29 even though I'm losing my ability to get from bed to wheelchair and back independently, I'm still happier and live a fuller life than I did back then. My future holds a ventilator, but it also holds wheelchair hikes around national parks, trips to the ocean, seeing tide pools, tons and tons of art, new skills to learn and then forget in favor of learning even more new skills, bad choices, good choices, it still holds joy and happiness and that's what matters to me. Not what machines I'm hooked up to or other peoples definition of "a good life."
Yes, getting in a better place in life and with a better support system can make chronic illness and life better and it makes chronic illness easier to handle. Sometimes these things come in time and age. Being at a better place in life despite chronic illness getting worse helps a whole lot. It is a privilege to have these things of course and some aren’t as fortunate as us who has these things. Treasure your support system folks.
to be clear, I don't have a support system. I'm not in a better place in life. i'm actively being killed slowly and painfully by medical neglect and abuse. I can barely leave my home. my life doesn't include any of the lovely things I'm so glad to see briar describe above. I'm not what you might call happy, most of the time, and for good reasons.
but I'm happiER, in ways that you wouldn't expect given all of the above. I've come to a place of peace and steadiness in myself that defies my circumstances, a sense of purpose even if that purpose is thwarted maybe permanently by illness. i would rather know what I want out of life and be unable to attain it than wander lost again.
lord knows finding a support system and great network of loving relationships and filling your life with beautiful experiences is absolutely the way to go if you can. but life can improve even without those things.
also hey can we talk about violent psychosis for a sec. cause i really appreciate all the talk surrounding psychosis positivity and stuff but a lot of it is "we're not all violent! sometimes hallucinations can be positive!" like sorry mine are not. im scary psychotic.
im "cant have anything that even remotely could be used as a weapon in the house" psychotic. im "if i miss my meds one day i have to go to the hospital for homicidal and suicidal thoughts that literally aren't my own thoughts but theyre controlling my actions" psychotic. im "im seeing horrors you cant even imagine to the point where i dont exist in the same world as you anymore" psychotic.
im not going to hurt you, i just need help. when im rocking in the corner talking to myself at 3am, remember that i am in a state of terror. im afraid for my life. i either genuinely believe everything is trying to kill me, and i only know one way to deal with it; or something is telling me to be violent or else it will kill me; or i have dissociated so hard that i autopilot myself to violence to try and wake myself up.
some of us are violent, and that's okay, because it has to be, because it's the truth. just get us help.
I also get violent when I’m psychotic. It does bug me when people do say things like “people with x disorder aren’t all violent” because some people are.
My mom has nothing but 1 paring knife in the house that I have to ask to use and give back to her when I’m done.
I’ve had to be restrained by police and taken to a hospital because I was in acute psychosis and putting myself and others at risk (I can’t really elaborate cause I don’t remember the details much before waking up in the hospital).
I have physically hurt people while in psychosis. I’ve straight up attacked a nurse because I thought the food she brought me was poisoned. I was put in the isolation room and later felt fucking horrible once my meds started to kick in. The rest of my stay she was assigned to another ward and I was never able to apologize (understandably so).
Some of us people who experience psychosis do get violent. We genuinely have zero control over it. When I am in psychosis I am so disconnected from reality that it’s like I’ve been thrown into a horror world full of monsters and people who want to hurt me. I am in fight or flight mode for the majority of the episode and will act accordingly because what I am seeing, hearing, feeling, thinking, etc feels real.
Basically what I’m trying to say is, yes psychotic disorders and psychosis in general is not pretty. But regardless of how we act, we deserve support.
Solidarity to my fellow psychotic folks who have “scary” and “violent” symptoms 🤝
YUP. I stabbed a nurse with a pen once because she tried to touch me without asking, and once I stabbed a nurse with a syringe because she tried to give me antipsychs by grabbing me and not telling me what was in the syringe. We really have the "can't ask or receive help" disorder lmao. Great additon
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Overwhelmingly the entire institution had the opposite effect of what it says it’s for, but the purpose of a system is what it does. And medical ethics denies care for aesthetic reasons while inflicting violence on vulnerable populations “for their own good.”
There is no medical reason to deny hormones and surgery to trans people. There is no medical reason to deny people access to elective sterilization. There is no medical reason to force people to lose 1/3 of their body mass in order to receive medical care of any kind. There is no medical reason to periodically revoke access to stimulants for patients with ADHD. There is no medical reason for any of these things and yet they are disturbingly, blisteringly common. All stem from assigning moral weight to disgust, the idea that only the pure and good are worthy of help, that suffering proves one’s value. It is morally reprehensible.
My name is Siraj, and my family consists of 5 members, a father, a mother, and three children. We are currently living in a state of extreme danger amid the fierce war on the Gaza Strip.🥺
After the occupation fired shells and fire at our house, and we then saw death with our own eyes, we were displaced from the house and then to 5 places, the last of which was in the tents in which we currently live in tragic and complicated conditions.🥲
My children are lost. There is no education, no good food in the tents, the drinking water is polluted, and diseases and epidemics spread. 😭
In short, there are no minimum necessities for human life here. The situation is catastrophic and devastates humanity. Famine is intensifying, poverty is intensifying, goods are running out, and the danger of bombing is all around us.😟
I appeal to you and seek your help to share our story and our suffering through your pages, and to provide us with support and concern.
something i've noticed in my notes and more generally on disabled tumblr is the idea that disability - physical disability in particular - always comes with pain. as someone with chronic pain - in my joints and muscles, in my stomach after eating, in the migraines and headaches - i can understand that it can seem all encompassing. but the only key characteristic of disability is that it's disabling, not that it's painful. many disabilities do not come with pain either all or some of the time. for example being deaf/Deaf, blind, having limb differences, speech disabilities, cerebral palsy, MS, a number of neurological disorders including epilepsy, allergies, diabetes, sleep disorders, disorders that cause balance issues, conditions that reduce mobility, to name a few. i mean one of my most disabling conditions is my CFS and it doesn't cause me pain. although many disabilities also don't cause any fatigue either! overall i think it would be nice to the many disabled people who have no associated pain with their disabilities to disengage "disability" from "being in pain". i think it's also easier to understand, and easier for chronic pain havers to find the right posts. plus i think we've built up this notion that disability is only pain, suffering, and misery. which is disheartening by itself, but also alienating to people with a completely experience of disability.
The fact that the normal human pain level is 0 is such a foreign and weird concept to me. Like, what do you mean people just walk around without hip pain? What do you mean they stand up without having to fear that their knee might give way underneath them? What do you mean they open water bottles without pain in their fingers? What do you mean they can just run 3 miles without limping for the next week?
disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.
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Every second counts! Thanks to your incredible support, we've raised over €5,600 for Yusuf's campaign. But we need to raise more to help him and his family escape the war and get the care they need.
We urgently need to reach €10,000 to enable Yusuf and his mother to leave for immediate treatment.
Don't forget to share the campaign with your friends and family! Thank you for your support!
Any donation, no matter how small, will make a big difference.
Donate today and help Yusuf escape the war!
Thank you from the bottom of our hearts for your generous support of Yusuf and his family.
Your donations will made a real difference in their lives.
Yusuf, a mere 8-year-old boy from the Gaza Strip, is fighting… ahmed abubaker needs your support for Urgent Appeal: Save Little Yusuf and Hi
Migraines are crazy because you walk around thinking that just means when your head hurts really really bad but it's actually a whole neurological thing and it turns out the dull pressure/sensory overload/brain fog you get are migraines and once you start noticing it you realize you're having them like every other day and you think to yourself Hm! That's probably not good
solidarity between people who want to take psychiatric meds to function and those who don’t.
What’s important is that we both have autonomy, informed consent and safe access to treatments we want, and to not be forced, coerced or pressured into those we don’t.
anyway here's to disabled people who are not healing. disabled people who are not recovering, ever. people with disabilities that only get worse and worse over time. people who cannot access treatment for their disabilities or whose disabilities simply aren't treatable. people who know they'll only get more and more disabled as time goes on. people who know their disability will kill them sooner or later. you are seen, you are important, you are not dead weight, and you deserve support.
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i love you people who are congenitally physically disabled and visibly different and who also have intellectual, developmental, learning, and cognitive disabilities, all at the same time
especially if you were treated badly as a child or are treated badly now. especially if people tell you to "grow up"
i'm glad you're here i love you
you always have a place in this world, you don't have to "earn it", you don't have to make yourself small or isolate yourself or stay hidden, if you relate to that. you're alive and you're allowed to be alive and the space you're filling cannot be filled by anyone but you. there is no abled or disabled person who could be a better you because then they wouldn't be you. and i'm glad you're you
diagnosed with symptoms syndrome @problems-disorder - Tumblr Blog | Tumlook
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