Woke up this morning and immediately had to play a game of "is it overworked, dislocated, or injured/damaged" with my shoulder.
Still not sure which, but I have at least figured out why. I used my cane when I really should have been in the chair.
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Woke up this morning and immediately had to play a game of "is it overworked, dislocated, or injured/damaged" with my shoulder.
Still not sure which, but I have at least figured out why. I used my cane when I really should have been in the chair.

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Most times I hate being chronically ill and disabled. I hate needing more rest. I hate needing mobility aids. I hate needing special treatment
But then Loena, my queer platonic girlfriend, and I are doing groceries and she's pushing my chair with her motor on and it's like "cho cho we're a train"
It comes with so much grief but also silly little joyful moments we create ourselves
Me explaining my grandma and mom that all the health problems since childhood were not “early-onset arthritis,” “carpel tunnel,” “just recurrent hernias,” “diverticulitis” or “crooked teeth” but instead all part of a genetically inherited disease like:
for any hypermobile folk thinking about using a mobility aid: I've been using a cane occasionally for the past few months and I've had to replace it.
So my two tips if you're also hypermobile and needing a cane:
Get one that has a height option shorter than you need based on your height. This is most relevant if your wingspan is more than your height.
Pay attention to handles! Offset has been best for me, but there are also options designed for Carpal Tunnel that are also good for hypermobility (though more expensive)
it's been several weeks since I read Fourth Wing for the first time and I still randomly have giggle-thoughts about Violet being told that first-year cadets die at alarming rates and no one is going to be rooting for her to survive and she's going to be in pain during all the months of grueling training -
and Violet - who grew up as the only disabled/chronically ill child in a set of healthy, able-bodied siblings, who lives in a world that's already dismissive of her/not designed for her to live comfortably/actively rooting for her to fail - is just like

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Let disabled people make their own calls on what activities are worth it.
For example- I went to comic con this weekend. I stood for a long time in a hot, crowded environment. A situation that I know will aggravate my POTS and cause my joint pain to worsen. As well as being overstimulating. I will need at least one recovery day if not more. BUT I loved it. For me it’s worth the price that I will have to pay.
I have to pay a price for every activity that I do. And only I can decide which of those activities are actually worth it.
When Luffy hyperextends his joints and stretches his skin hes a “hero” and “gonna be king of the pirates”
But WHEN I do it i “need to go to the hospital “ and “need physical therapy.”