Anxie-teeeeeeeea

Ever since she was six, she's had pain in her legs, which turns into pain in her hips and back for stretches of time. She's tried for years to get a diagnosis, with absolutely no joy. As a kid they thought she had collapsed arches in her feet; then it became clear her feet were fine, but something was wrong with her tendons; and then in her 20s they just shrugged it off with a "We'll never know probably" and that was that. She keeps on top of it with daily yoga, generally, though flare ups happen periodically. If she has to pause the yoga for some reason, she fairly rapidly regresses. Currently she has plantar fascitis again, which has halted everything once more, so right now she's back into a pain slump.

Anyway, she called me today while going from Doctors to pharmacy to get the codeine they've prescribed her for it.

"I think one of my yoga moves to help the fascitis might have exacerbated the legs," she said. "Trouble is, there's never been a diagnosis. I just have to trial and error what might help."

... And I had one of those lightbulb moments, you know? My brain suddenly went "Wait hang on, this is very familiar isn't it?" and rang the bells of memory.

"Did they ever test you for fibromyalgia?" I said.

They had not. It's never been suggested, even. My sister said she'd look up the symptoms and see if it chimed, and rang off.

Fifteen minutes later, she calls back.

Turns out she got to the pharmacy and gave them the prescription. While waiting, she googled fibromyalgia symptoms and found the NHS website.

"It was like someone had written a profile of me," she tells me on the phone. "Like, spookily, scarily accurate to me, right down to the temperature regulation bit. It felt like a practical joke."

And of course, as she stood there in the pharmacy, suddenly staring at the age of forty at the apparent answer she's been trying to get since she was six years old, she burst into tears.

"Oh no!" Said the pharmacist, hurdling the counter in a single leap and scattering the queue (I am exaggerating for humorous affectation.) "Quickly! Come into our little exam room, we'll get you tissues and water!"

My sister was duly ensconced into a Safe Place, and encouraged to cry it out. It took several hiccuping minutes, but finally, she managed to calm down and get back to an Extremely Watery Smile.

"Do you want to talk about it?" the pharmacist asked sympathetically.

"It's just..." my sister said, overwhelmed and searching for words. "My whole life I've been in pain, and they've never found why..."

"Ah," said the pharmacist thoughtfully. "Have you explored fibromyalgia?"

...

"TWICE IN ONE DAY," my sister yells on the phone to me later. "HOW THE HELL HAVE TWO SEPARATE PEOPLE ON THE SAME DAY FINALLY GIVEN ME THE ANSWER, AND NEITHER OF YOU IS A DOCTOR"

Executive dysfunction comes from a lack of available dopamine. Common advice is wrong. You need to provide your own dopamine before you can start. Otherwise you're trying to run your car on empty.

"But what if I still don't do it" well you already weren't getting it done anyway. Now you have a little treat. Try again later.

You deserve kindness and care even when you aren't being productive.

I usually suggest this technique as a "Reverse Pomodoro." In the original Pomodoro, you work for 25 minutes and then take a break for 5 minutes (the times vary, but that's the essential ratio). People with executive dysfunction often find this insurmountable, and they get even more frustrated, and then the task seems even more difficult. So instead, flip those times.

FIRST, spend 25 minutes doing something energizing and engaging that you like to do. Not scrolling social media passively, not watching tv, not napping. Try something like colouring, doing yoga, running/walking around the block, talking about your favourite tv show with someone in real time, playing with the dog or cat, making and eating a lovely sandwich, hula hooping, something active. Having a little treat absolutely falls in this category!

(on the subject of little treats: refusing yourself food until you do work is for fucking Puritans and you can be kinder to yourself)

Then, after 25 minutes (or however long it takes to eat the sandwich or finish the yoga routine, it doesn't have to be exact), spend 5 minutes writing (or doing whatever you're struggling to start). Most people can coax themselves into doing something they find difficult for five minutes, if they have already filled up the joy/energy/engagement bucket. You can put a timer on for the 5 minutes if you want, or if you find that annoying, just work for as long as you like.

The other key is: don't push yourself to keep going when you're frustrated or tired—that will just reinforce the negative belief that you already have, which tells you that this task is painful to do, and needs to be avoided. If you've commonly had to force yourself to do this kind of task, that's likely part of why you think of it as painful and have trouble starting it now. Also, you should just, at a basic level, try not to put yourself in pain for the sake of productivity. So just do it till the good feelings run out. Then start hula hooping or colouring again for another 25 minutes. When the tank's refilled, try another 5 minutes of work, if you can. Adjust times to taste.

So, today, one of my terrible awful tasks was scrubbing a piece of the flooded basement floor. Not fun. Drank tea first, and played on Tumblr after.

But another task was researching the history of familial terms - aunt, uncle, niece, nephew, etc. - so I could make a fun post about omegaverse alternatives. I WANTED to do this. I LOVE linguistic research! But I was doing it to answer someone's question, so it was work that was benefiting others. Painted my nails first, made myself an electrolyte drink after.

This teaches your brain that work doesn't HAVE to be terrible! Slowly, my brain is learning to stop dreading things just because they were classified as work, and instead dread only the things that ACTUALLY suck.

- People who exercise a lot get knee injuries from overdoing it

- People who only exercise occasionally get knee injuries from being unprepared for the exertion

- People who don’t exercise get knee injuries from being out of shape

No shirt, no bra, completely bare torso, just like cis men are allowed to

It's about desexualizing breasts and "female presenting nipples" and not being criminalized for our bodies if we want to go topless because it's a million damn degrees out. This was a popular growing movement that was still widely known a decade ago!

At the start of my employment, my boss showed me videos of people stealing, and we both had a chuckle about it. How silly they were! There was a camera overhead, and it’s not to watch the shoppers. See, we can’t actually stop shoplifters. They get away with it maybe nine out of ten times. But we, who are watched and tallied and witnessed? We are always caught.

At first it was hard to hold one hundred dollars bills. An amount I had never seen before. An amount that didn’t exist in my household. It’s normal now. Here is something that is not for me.

“What the hell, I’ll take another,” says the man, pondering our 200 dollar watches. What the hell. Total comes to 580 and not even a flinch in his face. I have been working for 11 hours today and made only 110 dollars. It will go to my rent. Today I work for free, it feels. When I get my check, I will have 35 dollars left for food and saving.

The six hundreds he hands me go into the cash register. For a moment, I imagine having money. Then I put it away, counting out his change.

I know for a fact we sell our products for double what they are worth. That I could be making commission. That they could hand me those 580 dollars and change my life and not even mark the difference in their checkbooks. He’s not the only sale they make today, but I am the reason they made it. He’s not the only one spending 600 dollars, but if I hadn’t spent two hours with him telling me about his life, he wouldn’t have spent any. I go home. I don’t own a watch.

I have watched and rewatched a video on how to make salmon four ways. My shopping list is always the same. Pasta. Rice. Tuna. If I can afford butter it was a good week. I dream of the world I will never walk in, where I can throw the best fish fillet in the cart with a shrug. I hold hundreds in my hand and look up at the camera. I put them under the cash drawer.

I go to work. I scrap together my savings. I eat my bowl of rice slowly. My manager takes a paid week off from work just for his birthday. He owns a yacht. 

i was part of their college program. i moved to the state for it. they legally owned the building i was living in and still charged me rent. i ostensibly was being charged to work for them. it was a 2 bedroom apartment and they placed 6 adult women in it in forced triples.

as many as one in ten disney employees have experienced homelessness while working for the company. despite huge efforts to unionize, strike, or otherwise demand fair treatment; disney has refused to increase employee quality of life.

disney admits publicly that a good portion of their success is because the employees (“cast members”) are dedicated, passionate, and selfless. this is never reflected in pay. even “face” characters (ie those that are princesses etc) make barely above a minimum wage.

at the time that i worked there, i made $8.50 an hour. at one point i was asked to create a human shield around a bag because a bomb dog had alerted to it. for eight fucking dollars an hour.

i now work a very cushy office job. i have bought the salmon and cooked it all four ways.

i go to the store. i am nice to the person behind the counter. she looks up at the camera while she counts out my change. there is nothing fundamentally different about her and i.