Iâm so tired but I canât fucking sleep because Iâm in PAIN i hate this
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@consider-your-potatoes-mashed
Iâm so tired but I canât fucking sleep because Iâm in PAIN i hate this

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I can barely handle doing chores Iâm terrified of getting a job⌠Iâm lucky Iâm still supported by family but it wonât last forever and I want to be independent but Iâm terrified I wonât be able to have a normal job. I have the energy to do like 4 chores on a good day. I used to have so many dreams about what Iâd do when I grew up and now all of those just seem impossible. My mobility aids like my knee braces and forearm crutches help some but they donât do a lot tbh. I start as a substitute teacher for my local school district in the fall and I think thatâll be okay, but Iâm still scared.
Why is vacuuming so fucking exhausting and painful????? Iâve been putting it off for weeks and just finished and holy fuckity fuck Iâm in pain, Iâm stiff, I feel like I can hardly stay up right, Iâm so exhausted. Why is it SO GODDAMN HARD???
Do any of my fellow physically disabled folks have any tips for how to make it easier/less painful/idk just less bad? Please help.
I'm so fucking tired of dealing with health care workers who fundamentally do not understand ME like ohhhhhhh my god you've got the wrong paradigm your framework is irrelevant your worldview is invalid your logic is inverted your swag is absent
HEAVY on the absence of swag
real exchange i overheard between two of my bosses. ????
why is this getting notes again everyone STOP talking about white collar & rich guy shit i am a BLUE COLLAR DYKE!!!! THIS IS A JANITORIAL COMPANY!!!! i will NOT let you make this about white collar businessmen the poors are funny too ok

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Feel free to ignore if you don't want questions, but I'm also hypemobile (hEDS) and was wondering how you knew you needed custom braces and what the process was like to get them? How do they help you? Thanks if you do answer this but no pressure to (:
Itâs been a really long process of me figuring out what kind of braces I needed. I was in and out of knee and ankle braces from the time I was like 7 or so. as Ive gotten older my body has just become more and more unstable and walking and standing and pretty much doing anything had become so painful that I knew something needed to change. Iâve also done a lot of physical therapy and they had suggested braces as something that might help with my stamina and ability to live my life. From there I went to an orthopedic doctor who also suggested it. First we started with off the shelf cloth with hinge braces which did approximately nothing other than have compression and my hyperextension would push right through any of the rigidity it tried to have. From there I tried off the shelf more ridged braces and I would still push through those and/or they just wouldnât fit my legs. At that point my orthotist said the best option would be custom rigid hinged braces. The process of getting my current pair took like a year and a half and a lot of fighting/dealing with insurance to get them covered. My current pair is made to my measurements by the brand thusane (honestly idk if thatâs how itâs spelled lol) and they donât have extension stops so my legs still push past 180 and hyperextend, less so than with out them but still more that ideal. Iâm currently trying to get new ones because these ones are literally falling apart (and have been since 2 months after I got them) and they slide A LOT and they arenât as solid as they should be (so me and my orthotist donât recommend this brand). Having my braces has made a huge difference in my life. I can walk a lot further with them than with out them and stand for a lot longer too. At the end of the day Iâm in less pain than I would be other wise. Unfortunately, they arenât currently doing enough for me but they are certainly better than nothing. I hope that helps. Iâm happy to answer more questions if you have them :) you can also feel free to DM me if you want :)
Iâm hopefully getting new knee braces soon!!!! My current ones are about 3(?) years old now and have been literally falling apart since 2 months after I got them. But now, hopefully at least, I will be able to get new better ones. My current pair are custom but holy shit man for being made to my measurements they sure donât do their job right. Donât get me wrong they help and itâs so much better with them but omg Iâm so hopeful. Legit went to the orthotist today and he was like âI hate that brandâ and âyou definitely need something more durable thatâs badâ I feel seen
I wish people didnât see my want for a wheelchair as laziness. Like I want to be able to do things and having to walk around in pain makes me not want to do them and makes it suck! But because Iâm fat everyoneâs like âyou just have to push through it, thatâs how it gets betterâ and Iâm like okay but why do I have to push through it every time to the point that Iâm miserable?? I know exercise is good for me and Iâm fucking doing it but SOMETIMES Iâd rather use my energy in other ways and not have to âpush through itâ and the day in so much god damn pain!
Also I fucking hate being told that âitâs good when it starts to get hard thatâs how you get strongerâ but itâs already been hard since we started at this point it just feels like Iâm hurting myself. Difficult/challenging is one thing hard and quite frankly painful is not what Iâm fucking looking for right now.
i love that we and cats share pareidolia (seeing patterns where they dont exist), but instead of seeing faces in everyday objects like us, they see snakes
that computer cord? snake. string? small snake. cucumber? short fat straight snake
snake pareidolia is one of the strongest things in human minds too! people report freezing mid-stride before being consciously aware of a snake in front of them, and the same happens with coiled rope, etc. in humans and other primates. itâs even been proposed that the need to detect snakes was a factor in the development of primatesâ insanely good color eyesight
Itâs because snakes are wonderful and we must stop and admire them at any cost
quarterly reminder that if i reblog something ai-generated it is 110% and always an accident and for the love of god please tell me so i can delete it from my blog
I actually lost one really nice follower because of this and Iâm still sad.

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If you're ever worried about whether your writing is too self indulgent, I just want you to remember that Sharknado had 5 sequels. I'm only partway through watching Sharknado 6: It's About Time, but already they've traveled through time and ridden a pteronadon into a Sharknado so they could use the magic teleportation portal inside of it to travel forward in time to King Arthur's time, where they are currently battling a Sharknado full of fire-breathing dragon sharks with Excalibur, which is a chainsaw sword that calls lightning. You're fine. In fact, be a little more self indulgent if anything.
Is this a hallucination? Are you ok?
Its absolutely real.
Theres this thing that happens with a few too many franchises, where the constant need to one-up and raise stakes makes each entry slightly more unhinged than the last. Until you reach a point where what started as a fairly simple/grounded concept has become completely ridiculous(see Dragonball, Fast and Furious).
Sharknado is what happens when you have that tendency of escalation, but your starting premise is 'a tornado full of sharks'
I'm very taken with this metal vocalist that has a parrot who wants to participate
original by reebz_uk
Hold my hand please
look at this wonderful gif of scallops getting scared and scattering like a flock pigeons
whatever. go my scallops
last night I had the experience of "referencing a tumblr post that you think is widely known but turns out to not be as widely known as you thought it was" last night and it was this post. whatever. go my scallops

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one of the hardest things to learn as a depressed former Gifted Kid⢠is that half-assed is better than nothing. take the 50%, 40%, even 20% job. scrubbing your face is better than not taking a shower at all. picking up your clothes is better than never cleaning. nibbling on some bread is better than starving.
DO THINGS HALFWAY. NOW YOUâRE 100% BETTER OFF THAN YOU WERE BEFORE.
One of my college professors used to say âanything worth doing is worth doing poorly.â I didnât understand that for years because I didnât do anything poorly, I couldnât do anything poorly, I had to Do Everything Perfectly.
But brushing your teeth for 30 seconds is better than not brushing them at all when that 2 minutes seems exhausting. Doing ten minutes of yoga is better than 10 minutes of sitting when 30 minutes of cardio sounds impossible. Changing my clothes is good when a whole shower is impossible. Standing on the porch for a few minutes is worth it after being in the house for three straight days because I donât have the energy to go anywhere.
Anything worth doing is worth doing poorly⌠because doing it poorly is better than not doing it.
someone please hit me over the head with this post every day for like the next week thanks. a mention, a reblog with text, a message, something.
You must understand that perfectionism isnât striving for excellence, itâs a crippling fear of being flawed and therefore worth abandonment or punishment. Itâs a kind of psychological avoidance. Youâre avoiding fear and failure , not embracing the thing you want to do bc if it was about the thing you want to do youâd be fine with partial victory.
Itâs an on going battle for me but Iâm getting better! Finding little things to help, especially with showers and brushing my teeth, makes a huge difference. Like those little disposable tooth brushes that you donât need water or to rinse and those no rinse shower cloth things that suds up and you just have to pay off after have made a big difference for me. But sometimes even thatâs hard and thatâs okay too. What matters is doing your best.
do not underestimate my ability to overthink & make myself physically ill