Chronically Icky Sicky

you can call me Icky (Sicky) if it gives you a tickle or you can call me Charlie. I don’t mind either i could probably do with a giggle.

I’m an ‘02 baby (i’d write my actual age but that would mean having to remember to come back and change it every year). Outside of being a sick dog i have too other blogs :

@zenowitchstuff - on being HellPol

@stars-and-sundays (main) - my poetry

I plan for this blog to be practically a journal and a scrapbook. It’s a personal project to document my reality of being chronically ill and, a 24/7 carer for another chronically ill person.

I would like to give you a heads up on the type of content that will be here:

#ickysickyaffirmations : positive reblogs that i need to tell myself, and hope other chronically ill people tell themselves, more.

#ickysickyrelates : reblogs of things i related to. this could be positive, neutral or negative. (like a said it’s a journal and life it not always rainbows and butterflies yknow?)

#ickysickycrosspost : i run other blogs that i may reblog if it is relevant eg my poetry ( @stars-and-sundays -it is also my main so you’ll likely see it popping up :))

#ickysickyawareness : original posts or reblogs of information relating to either disability, chronic illness or being a carer

#ickysickyspeaks : original posts talking about myself. this could include appointment outcomes, thoughts and feelings regarding chronic illness so also has the potential to be negative or upsetting

#ickysickycaring : original posts talking about myself in regards to caring for others. again has the potential to be more negative.

id love for people to stay especially if you are:

- chronically ill (bonus points if you are looking for chronically ill friends!!!)

- a carer to someone chronically ill

- wanting to learn more to support a friend or family member

my fellow chronically ill people will know this but we don’t and probably won’t tell you the extent we are struggling because otherwise it would be pretty much all you hear.

my fellow carers will know this but we do so much for others sometimes at the expense of ourselves and can feel so much responsibility and guilt when things are not so good for our caree.

i hope i find some people to share the load with who can share the load with me too.

with a side of back pain

locations blacked out- not that i think anyone would show up to a hospital lmaoooo

though i do have an appointment tomorrow afternoon which i dont even know what it is about 😭 the receptionist just told me the doctor wanted to see me. I assume they think i know why? but i have been in that blokes office for so many different things 😭😭

list of things it could be about:

- news from neurology (hopefully not that they’ve kicked me off the wait list again because i will loose my mind if they try to put me through the migraine pathway for my brain falling out again)

- updated review since PCOS became PMOS

- news from cardiology in relation to the bloody TBD tilt table test

- news from cardiology about my echo result which they are too late to give me because my pain management team already told me all good structurally

- pain medication review

- some other bullshit they’ve decided eg the appointment i had about getting my pain meds on repeat that they told me to try to not take them 🙃

i will update tomorrow when the mystery is uncovered and what happened ❤️

yes i still need an appointment neurology. my brain hasn’t stopped falling into my spinal canal and just sucked itself back up the year i’ve been waiting on you to even just talk to me never mind get a follow up scan and actual care, the numbness and loss of limb control and the pain hasn’t just fucking stopped. what the fuck man

but i can’t just ignore the text because it could be something they need from me