urgent care ward

many visibly disabled people also have invisible disabilities and symptoms btw. having a visible disability does not mean that 100% of a person’s symptoms are evident from looking, just that something is visible, and who’s to say the part that’s visible isn’t the least bothersome part? there is often a great deal of suffering behind the scenes.

awful pain today so im coasting on the moments between waves of pain where things feel slightly better. living off those moments. looking forward to them and savouring them when they come

2016 tumblr was amazing i remember an actual adult once told me i couldn’t kin bucky barnes bc he was an amputee and it would be ableist. meanwhile i was a real live disabled bedbound person

extrapyramidal side effects are no joke btw i had akathisia for 3 months and nearly became evil from it

as much as i love raising awareness ive found it so freeing lately to be super vague about my health issues when people ask. my condition has been in the news the last couple years bc of widespread patient neglect so any mention of my diagnosis opens up a miserable convo and im not always emotionally ready for that. was at a coffee morning recently and an acquaintance asked what happened to me (wheelchair) and i said “bear attack”. no follow up questions, no trauma talk. amazing.

reminder to all disabled people that you’re allowed to tell people “i can’t do that” about stuff you can ‘technically’ do but which harms you or requires a period of recovery or preparatory rest etc. you don’t have to explain the complex nuances of your condition to anybody who demands it. i’ve found it’s honestly better to give the least amount of info about your symptoms unless you trust a person a lot. you hold the power over your health information. you choose whether or not to share the details of your condition with people who might not understand.

this disability pride month (and for the rest of time), cherish your disabled friends, family, people in your community, in your online circles. so many of us have been made to feel like our presence is a burden. like our reality is a dirty word. like we don’t deserve real love. reach out to us if you can. share a meal with a disabled friend, have a long chat with a disabled family member, send your disabled mutual a friendly ask. it can make a big difference. we’re already physically isolated, barred from so many places, stuck in our rooms or beds or hospitals, and often ignored even when we do manage to reach out. don’t let us be socially isolated too

so many people ive known have pushed themselves to burnout trying to deny their disabled reality, skipping accommodations, skipping rests etc. and the world convinces them that the solution to their burnout is to push even harder. it’s a huge tragedy. i know social pressures make it tough but i want more disabled people to make things easier for themselves where possible, to opt out of things that harm them when possible, to quit while they’re ahead. be that person today! protect yourself where you can! take micro breaks while doing your hobby. get that shower chair. sit to brush your teeth. lie down in the middle of the day, even if only for 5 mins. these things add up and it’s so worth it.