urgent care ward

ive had so much improvement to my ME im wondering if I should start calling myself moderate-severe instead of severe. maybe I should wait to see if this improvement sticks first but god im excited at the thought that it might

went camping this week which was nuts. didn’t think i’d be able to do that again after my last decline but I’ve improved enough that’s it’s become possible. i did spend most of my time on the airbed and now im crashing but stilllll for a brief beautiful time i was in a field connected with nature meeting wonderful people

you’re not a bad person if you struggle with hygiene because of disability or mental illness. hygiene is not morality.

when i use the word ‘disabled’ in my posts i’m always including people disabled by autism, mental illness, adhd, or any kind of invisible condition btw. recently had a couple people rb my posts and say “im not disabled but i relate to this bc…” then describe down to a tee being disabled by their condition. if you feel kinship with disabled people due to a condition that makes it hard for you to get by, there may be a reason for that

said it before and i’ll say it again. deconditioning is a side effect of ME, not a cause. and deconditioning is way less harmful to an ME patient’s prognosis than repeated overexertion.

there are hate campaigns happening against creators with ME on tiktok rn and it’s making my heart sink i feel terrible for the people affected. there are numerous huge videos getting like millions of views just purely making vitriolic fun of a person with ME talking about how they can’t work. the trend of these vids has made ME into a buzzword thing to mock and now random creators with ME are getting tons of hate comments. please send kindness to anyone you know with ME especially if they’re active on tiktok

rest isn’t something you should have to earn or suffer for or feel guilty for. rest is free. rest is morally neutral. you don’t have to have been productive or busy in order to ‘deserve’ rest. you can cram in a quick rest anytime you have time for it, free of charge, without having pushed yourself to the brink of death first. you can rest when you feel normal to build up energy for later. you can rest when you already feel awesome, to maximise the awesomeness. you can rest after a day where you achieved nothing. there’s no need to feel shame for wanting to rest. in case you need any more convincing, here’s a coupon for 4 million guilt free rests