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Body awareness is absolute shit for chronic illness. “Become aware of your body. Pay attention to how your body feels” great now I’m noticing the bone aching soreness that is permeating my entire body, thanks for that. My mind was automatically filtering that out for my but I sure am aware of it now!
I need like the opposite. I need “leave your body entirely and forget it exists” meditation.
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abled ppl who insist they aren't ableist are actually so chill with eugenics until you call it eugenics
"well offering euthanasia to people with disabilities who can't afford to live is–" eugenics. it's eugenics.
"why do disabled people have children? I mean they're just consigning them to this painful life–" eugenics <3
"but their quality of life is so reduced how can they justify bringing kids into–" ✨eugenics✨
"maybe medicine has advanced too far. I mean why are we keeping people with [insert condition here] alive when their quality of life–" EUGENICS
idc if you're ✨concerned✨ for my ✨quality of life✨ that's a) not your problem and b) something which could be improved by providing better accommodations for disabled ppl and making sure we have to deal with less ableist bullshit and ableist assholes like yourself.
"Doing your best" (with chronic illness)
My doctor (bless him) straight up went "don't" when I said "I'll do my best"
Because what I think "my best" is, is completely draining myself for this One Thing and going above and beyond
I guess this goes for people w/o chronic illness as well, but "your best" shouldn't mean you end up hurting yourself in the long run. "Your best" is as much as you are willing to devote to something proportional to how much you care about it within the confines of what is healthy for you AND considering all the other stuff you have to do
Please just- holy heck we're already struggling so much please don't devote your precious energy to something that doesn't deserve it
don't do your best, do whats best for you
I’m gutted by how many people I’ve watched turn disability into a punchline and how easily they mock the tools we use to move through a world that wasn’t built for us.
If you don’t need something, that doesn’t make it “lazy”. It makes you lucky.
If you don’t see the point in it, that doesn’t make it pointless. It means you’ve never had to fight for basic access like it’s a privilege you have to earn.
And now? Now they want to erase us. Erase our resources. Erase the very things that let us function in society because apparently it’s “woke” to help people. Like giving disabled people equal footing is some trendy moral offense. Like compassion is a sin and accessibility is a joke.
That’s not just sad. It’s DISGUSTING.
And the way people are trying to strip the disabled of the resources that let us get even close to “normal”? It’s not ignorance anymore. It’s erasure even when it’s quiet, calculated, and dressed up as “an opinion.” They want us smaller. Invisible. Manageable. Gone.
Listen: disability isn’t a moral failure. It’s not a character flaw. It’s not something you can bully out of a body.
So hear me clearly: I’m done playing polite about this. I’m done swallowing rage so other people can stay comfortable. The next person who spits something cruel about disability… or mocks the tools that keep us alive and upright and present, should expect to be met. Not with silence. Not with a forced little smile. With more than just my voice, even if it’s sharp enough to leave a mark. And more than the truth, even when it doesn’t flinch.
And if you think this will never be you, you’re gambling with a future that doesn’t care about your confidence. It just takes one. One accident. One diagnosis. One virus. One bad day that for some reason doesn’t seem to end. And suddenly you’re the one reaching for the very tools you used to sneer at… just to find out they’re gone.
Because when they come for ours, they’re rehearsing for yours.
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It almost seems like non-disabled people have a harder time accepting when a chronically disabled person will never get better - and maybe even deteriorate over time, than the affected person has.
"Aww don't lose hope"
There is no hope to be had? Stop pushing your toxic positivity down my throat when I have come to terms with my situation and am grieving already.
Losing hope is what has given me an ounce of peace of mind. This is what life is now. It's not your grief, it's mine.
This is a rant about abled-bodied people. I've been trying to get a wheelchair for months and I had to CONVINCE my mother, an able bodied person that I needed one. First of all, why the hell do I, someone who is DISABLED need to convince you that I need a wheelchair? She’d been pushing it off “you’re going to be in physical therapy soon and after a couple months you won’t need it anymore” yes and? I still need to get into physical therapy, find someone who will actually take our insurance, and then do physical therapy for MONTHS. What the hell am I supposed to do in the meantime huh? “Oh but it’ll make you lazy?” As opposed to what? Staying at home all day because I can’t walk? A wheelchair will not “make me lazy” it will allow me to actually leave our house. Now I’m in such a bad flare that I can't even sit up or stand without being debilitated by waves of dizziness, vertigo and lightheadedness. I'm in pre-syncope multiple times a day and passed out nearly seven times this week. I haven't been able to leave my house because I can barley make it to the bathroom without falling over. Times like this is why I need a wheelchair, my cane is useless to me right now it cannot support me or my needs and she’s still putting it off. It’s as though able bodied people would rather you be miserable than accept the fact that you need extra help. Getting a wheelchair is not giving up, it’s improving my quality of life, why can’t they just understand that?
