Where Spoonies Meet

Sorry for such a late response to post this, Tumblr took my page down for a long time. 

I do have my main tumblr which is 

it-is-ok-i-am-ok.tumblr.com

I do have an anonymous facebook that I’d give out probably if I was chatting with someone for a bit. I do have an instagram and snapchat that shows my full identity so again that’d be given if talking with people for a bit. 

I do have an anonymous twitter: spooniefide

Age: 22

Location: Ohio, USA

Illnesses: Bipolar I disorder, asthma, IBS, anxiety, hidradenitis suppurativa, chronic headaches and migraines, and homozygous MTHFR C677T gene mutation.

23 (24 soon)

Sacramento, California

I have gastroparesis, Barrett’s Esophagus, chronic migraines, and sciatica. I also have bipolar 2, GAD, panic disorder, insomnia, and some OCD stuff (mostly misophonia and dermatilomania). I have an undiagnosed learning disability and auditory processing disorder.

I like to sing, but anxiety prevents me from exploring or expressing that more. I say that I write poetry but tbh I haven’t in a long time. I love animals, especially my cat, and I’m hopefully getting a new baby kitten soon. I identify as either bisexual or queer.

Even though I’ll be 24 in February, this next semester is only just now my last semester of community college. Next fall I transfer over to a CSU where I can finally pursue my passion of teaching special education. I’m lucky enough to work in that field already. I’m passionate about feminism and LGBT+ rights and social justice in general.

I take a lot of medications and I use cannabis medicinally and recreationally. I’ve struggled with addiction to pills in the past. I struggle with a few addictions tbh. I’m going to therapy and it’s helping a lot but I’m still learning how to cope with everything that happens in my head.

I have a lot of empathy and patience, and I’m pretty self aware. I value my friends a lot but I have a hard time making friends, but the friends I do have, I’ve had for a long time. I’m picky about who I associate with and I have a hard time bonding with people who don’t understand mental illness. I don’t like casual, superficial relationships. So I’m kinda trying to branch out to people who might understand me a little better.

Age: 20/21 (I’m close)

Location: Wyoming, USA

Illnesses: Depression, Anxiety, ADHD, Panic Disorder, some sort of thyroid disorder, Arthritis, chronic migraines, insomnia, and we are close to a final diagnosis of Fibromyalgia.

What I’m looking for: Mostly support, I’m really struggling in life right now and I’m sure everyone here knows that stress doesn’t help. I have braces for my ankles, knees, and back. I also walk with a cane, and I’m still working on figuring out my cocktail of meds. I’m very lost and confused, and very shy. However, I don’t have anywhere else to go anymore. If anyone is willing to provide advice/support, it would be really appreciated.

My name is Megan.

I’m 32 years young and live in Kentucky, US.

I have fibromyalgia, me/cfs, pmdd, Vaginismus, GERD, panic disorder, general anxiety, clinical depression. Hypothyroidism, IBS, etc etc.

I am into reading (a lot), spirituality (Buddhism, witchcraft, any anything else, really), writing, volunteering, and knitting. I also love art & art history. Igraduated from UK with a BA in art history.

I am non-binary and queer, so if that is a problem, please don’t respond. ❤️

I am looking for friends who “get it,” and maybe people to harmlessly flirt with. Preferably someone closer to my age, who is also a teenager at heart.

Tumblr: gardeninmyface

Age: 21, almost 22

Where you’re from: I go to school in North Carolina but I’m from Miami, Fl

Illnesses: As of right now, the list is Hashimoto’s thyroiditis, hypothyroidism, PCOS, severe generalized anxiety disorder, agoraphobia, depression, GERD, gastritis, and Barrett’s esophagus


What you’re looking for (friendship, pen pal, support, text buddies): anything! I love the idea of snail mail and a pen pal but I know its easier to email or text so I’m open to whatever. I mostly just really want to find more people who understand what being chronically ill is like. I have close friends but I feel like all I ever do is complain about my health and while they try to understand it’s hard for them since they’ve never been in this situation themselves.

About me: I love to read, paint, make all sorts of crafts (mostly soap and candles right now). I’m currently attempting to finish my last year of college and am hoping to open an online bath/body shop sometime soon. I have a cat who’s a giant sweetheart and I also have a service dog.

Contact info:

my tumblr is finnsvalentine

29

Michigan, US

Illness: fibromyalgia, IBS, migraines

I hope to find someone who can be a text buddy. It’s hard to tell my husband everything about my illness cause he doesn’t understand it fully. I’m a Christian, so I like spiritual support.

Age: 21

Where you live: Friendship (yes it’s a real place), Maine, USA

Illnesses: Lyme disease, bartonellosis, babesiosis, hypothyroidism, diabetes insipidus, (probably have PCOS and possibly mast cell activation disorder, but unconfirmed as of now)

What you’re looking for: Friendship, support, someone who understands the ins and outs of tick-borne illness.

Well to start it off, I’m Robert age 46, got diagnosed with Ankylosing Spondyltis. At least I think it’s how it’s spelled. When I first got diagnosed, I was told I should have been diagnosed at least 10 years before. He also told me that I had fusion in my lower back along with at the bottom of my neck. So here we are about 5 years later, and I find myself in the hospital for a heart attack and stroke. And I think it was because I got jumped, because I don’t remember anything from that day, and I also had partial memory loss.

Age: 31

Where I live: Northern Missouri, USA.

Illnesses I have: Hypothyroidism, idiopathic gastroparesis, GERD, endmometriosis (just had a hysterectomy a few days ago, actually), anxiety, IBS-C, fibromyalgia, and mixed connective tissue disease… And that’s just what we know for sure haha!

What I’m looking for: friends, support… Laughter and caring. I am married with two young kids but I don’t need my friends to be, only to understand that that is where I am in life. I read a lot and watch a lot of TV. I could probably roll with a lot of fandoms - too many to list! I’m a great listener and I just want to build my network of caring people in my life.

Contact info: I’m here in Tumblr as spoonie-mom though I don’t post a ton (mostly I read). Message me here and if we hit it off we can exchange more effective communication methods!