Chronic Illness Memes

it's so exhausting. it's lonely. it's scary. it's depressing. it feels like the suffering is just endless without a person physically there to remind you that you exist outside your body and help you where they can.

and i just want anyone else stuck in this boat to know that you are cared about still. people remember you. people fight for your rights. it's not the same as having someone you love with you, and im sorry that we can't replace that.

but we can commiserate together about the horrors of it all and maybe make a few long distance friends who understand us and care.

“So…you arent disabled anymore?” No. My disabilities are still there. I still struggle. It’s just better.

when you have big professional companies like bon appetit, or geek & sundry, or microjig, or americas test kitchen, and theyre producing content to put on youtube and other sites, they shouldnt be allowed to rely on auto captioning, or fans captioning it for them

closed captioning regulations had to be implemented for tv and film because otherwise, we just…. didnt get any

and now that they can get away with not doing it on the internet, theyve gone right back to not captioning anything because nobody is making them

those regulations really need to catch up

if your conditions make it hard for you to follow through with plans, you deserve friendship anyways.

if you use equipment like mobility aids, aac, ventilators and oxygen, feeding tubes, insulin pumps, etc, you deserve friendship anyways.

if your conditions make you have to cancel last minute a lot, you deserve friendship anyways. if your conditions make you have to leave early a lot, you deserve friendship anyways.

if you're housebound/bedbound, you deserve friendship anyways.

if you need caregiver support to hang out with friends, you deserve friendship anyways AND you deserve the caregiver support you need to enjoy time with them.

if you have a service dog, you deserve friendship anyways.

if your conditions cause "scary" medical episodes like seizures, fainting, meltdowns and shutdowns, etc, you deserve friendship anyways.

So are

colostomy bags

Diapers

insulin pumps

Oxygen systems

rollators

hearing aids

compression garments

prosthetics

FREEDOM AIDS

- service animals

- noise cancelling headphones/ear defenders

- wheelchair attachments

- fidgets

IT’S DISABILITY PRIDE MONTH YALL

My nephew is very allergic to eggs, peanuts, tree nuts, and sesame. Last year my sister discovered all hot dogs and hamburger buns now contain sesame. Not "may contain", but listed in the ingredients. This year basically every brand of sliced bread also now contains sesame, making it very difficult to find bread items he can eat.

They're just adding it to their products, so they can just list it as an ingredient and not bother with worrying about cross contamination. And they aren't even bothering with telling anyone. Capitalism is going to kill us all.

"Which brings us back to Kellogg’s. Back in 2016, the company found a way around the added burden and expense of complying with the FSMA: they simply began adding trace amounts of peanut flour to their cracker products. Doing so allowed them to list peanuts as an ingredient of the product, freeing them from having to prevent cross-contact.

This goes for other symptoms as well: although pain can definitely contribute to people’s experiences of these symptoms, fatigue and brain fog are actual migraine symptoms, not just pain symptoms.

if you get a new adderall prescription i am medically advising you to start your first dose at 5mg or below, same for ritalin. the entire idea of medication of this type is to titrate up slowly until you hit the homeostasis of your own tolerance, genetic metabolic factors, and use case. titrating DOWN from a dose thats too high is wasteful and unpleasant and puts you at higher risk of psychosis

i posted on here a few days ago the idle thought that i wondered if prescribing physicians are all on long term adderall tolerance anyway (based on the adderall usage stats in med schools) so they think their patients should be started at higher doses and one of my pharmacy industry mutuals replied to me privately and just said “yep” so keep in mind the entire field of western medicine as it exists today is practiced by functional speed freaks and adjust your expectations