Chronic Illness Memes

I can’t do that without negative consequences

I can’t do that unless I have support for it

I can’t do that

There is no victory in skipping dinner, or lunch, or breakfast, or morning coffee, or dessert.

There is no victory in refusing heaters and air conditioners and fans and heated blankets.

There is no victory in denying yourself sleep, or showers, or movement, or water, or a comfortable bed, or taking the elevator vs. the stairs.

There is no victory in refusing pain meds and heating pads and ice packs and medical help.

There is no victory in punishing yourself needlessly, in telling yourself that this pain you feel is because you are bad to the core and deserve it.

There is no victory in choking back your laughter and your tears, to keep an imagined equilibrium of safety that is really just a dry, cracked, empty, endless emotional desert.

You are here. You are in this body, and this body is yours. You deserve good things. You are alive, and that is messy and loud, and messy and loud are okay.

- Hiring sign language interpreters

- Ensuring venues are step free

- Making dedicated sensory safe spaces

- Providing free masks

- Including braille or audio described signage

- Using plain language in speeches

When I first moved out most my meals were instant ramen. Then I started adding 1 egg to that ramen to get a little protein in. In a couple months, 1 egg became two. Then it was 2 eggs and 1 chopped green onion. Then a couple months later I was adding carrots and other vegetables. In about two years I was able to skip the instant ramen part altogether and now use chicken broth and noodles and I’m basically making a ramenesque soup from scratch when I’m craving ramen. It took 2+ years total of just gradually, one at a time, adding one ingredient. Over a period of months/weeks.

Start with where you’re able. If a sandwich is too much, maybe try just a piece of bread and some meat or cheese. Focus on where you can be gradually introducing more nutrients into your body. 1 slice of deli meat. A couple weeks later, that plus 1 slice of cheese. Then 1 vegetable. Maybe they don’t all make it into sandwich form and that’s ok. But if you keep what’s the most basic and simple for yourself and slowly add 1 thing that’s not too much of a hassle, over a couple months you might start toasting the bread before putting cheese and meat on it. Then one day there’s more vegetables. Years down the line you might find yourself owning a panini press or slicing your own bread.

Most of us will never be gourmet chefs and that shouldn’t be the goal. You might not ever get to the point where you own a panini press. But the more important thing is that you’re finding ways that work, for you, gradually, in order to make your meals more nutritious. The expectation to cook a full, unique meal every night for dinner is a relatively new phenomenon and completely unrealistic for most people. Having the same 3 things you can make consistently and keep on rotation is plenty fine, especially if you get to the point where you can mix it up a little bit by adding ingredients in the method stated above. Feeding yourself should be the #1 goal, getting more nutrients in #2, and stepping it up to the next level #3 when you have the capacity to. Like with a lot of things, it’s really just about consistency. Start with where you can be consistent. If that’s 1 meal a week you cook yourself and the rest is hot pockets, but you can do that 1 meal consistently, then that’s where you start. Then when you have that down, maybe try two (of the same) meals a week, or ask what you can add to your hot pocket to make it a little better for you. (Some vegetables on the side for instance).

The kid was picked up by an ambulance 30 minutes later.

Now as an adult working in security I get SO MANY folks- upper-middle aged mostly- coming to me to 'rat out' people they think are faking it.

I was once sent into a bathroom because a client demanded that the "fucker won't get out, so go drag them out"- I was NEVER going to do that, so I did a wellness check instead. You know who it was? A person recently released from the hospital after a car accident. They had a hole in their skull and major hearing loss. They couldn't answer the owner because they couldn't HEAR the owner.

Another time about a homeless man who got around town by kicking the ground from his wheelchair. "You know he doesn't actually need that thing, his legs work fine, it's just for pity points"- Oh, so he's not paralyzed, his wheelchair is performative? Funny story Dale, I actually know that guy, he was backed over by a truck and has chronic pain from his shattered pelvis. But sure, let's make him stand up and walk everywhere so nobody feels too bad for him and tries to help him or something.

"She doesn't need that scooter, I've seen her get out of it."

"Look how fat he is, because he just rides around and refuses to get up."

"She doesn't really need that cane- she comes here without it all the time"

push in your chairs when you get up from tables.

when people don't push in their chairs, people with bulky aids like wheelchairs and rollators can't get through. also a lot of people who use canes have wider gaits than able bodied people, and having a chair in the middle of their walking path is a real obstruction. while some of us are able to push chairs out of our way, a lot of us are not, and wind up boxed in/out because somebody didn't push in their chair.