Im so tired. Im so tired of being tired. Im tired of sounding like a broken record when pp lask how im feeling ("tired") or what im doing this/last weekend ("mostly nothing. Bc im so tired"). I just want to not be tired 24/7!!!!!!
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@cannabisbutch
Im so tired. Im so tired of being tired. Im tired of sounding like a broken record when pp lask how im feeling ("tired") or what im doing this/last weekend ("mostly nothing. Bc im so tired"). I just want to not be tired 24/7!!!!!!

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facts about myalgic encephalomyelitis (ME/CFS) to combat the disinformation campaigns going on:
what does the name mean? my = muscle. algic = pain. encephalo = brain. myel = spinal cord. itis = inflammation.
ME is classed by the WHO as a neurological disease. the Decode ME study found immune and neurological genetic markers in its analysis of 15,000 subjects.
ME is more complex than just fatigue. many experts and patients dislike the old name âchronic fatigue syndromeâ because fatigue is only one part of the condition, and itâs the least unique trait.
the most unique trait is post exertional malaise, where, 24-72 hours after any exertion outside the patientâs limits, thereâs a peak of worsening and new symptoms affecting multiple bodily systems. PEM often involves immune activation, such as sore throat and a low fever, and a loss of muscle recovery after exertion, measurable through CPET testing. (normal muscle recovery takes 200 mins, but muscle recovery in ME takes days, with some patients taking longer than a year to recover from a single exertion.)
ME can range from mild to profoundly severe. these severity levels are only within the context of ME, not general illness; âmildâ ME is still a severe illness as it includes a 50% loss of functioning. âmildâ ME can feature debilitating pain and complex symptoms and can turn basic activities of daily living into a marathon.
severe ME is (naturally) even more physically limiting than mild ME. people with severe ME are largely bedbound and only rarely able to leave their room in a wheelchair, and usually canât perform their own care tasks, needing help dressing, washing, and eating.
in very severe ME, the person may be unable to leave bed at all and may not be able to speak, swallow, roll over, sit up, read, or be exposed to light or noise, for years or decades.
ME has a measurably lower quality of life than any other illness studied, including cancer and stroke.
finally, many of us can attest that exertion can cause years of deterioration and loss of functioning in ME patients. ive been 95% bedbound for the last decade bc of ONE WEEKEND where i walked too much when i was 15. im 26 now. and ive known so many people who went through something similar. do with this info what you will.
today, 8th august, is severe & very severe ME awareness day. it was chosen to honour sophia mirza who died of severe ME. please consider and remember us today đ
The same people who cry out catchy slogans like âDeath before Detransition!â are the same people who tell trans men itâs actually a privilege to be forcibly detransitioned (a fate formerly acknowledged as being worse than death) rather than being killed
These things exist in the abstract for them and arenât a real concern
Oat milk was discovered much more recently than you may have known. Like many now-familiar technologies, it was discovered by accident during the Apollo program when NASA discovered what a zero-g environment does to goat milk.
dream of escholzia californica

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substance âabuseâ? that canât be rightâŚâŚ every substance I use was cherished
shoutout to disabled people who arenât exactly sure what their disability is, disabled people who arenât diagnosed yet but know somethingâs off, and disabled people who are struggling but canât get any help because of a lack of diagnosis, access to resources, or anything else. shoutout to disabled people who are silently and invisibly disabled and have a hard time getting people to believe them, and who have difficulty managing their symptoms because theyâre not sure what the problem is stemming from. itâs hard, but i see you, and im so glad youâre here. itâs over-said but your experience is valid. you deserve support and to be believed.
Shout out to the people who are misdiagnosed. Shout out to the people who spent years getting the wrong treatments. The people who spent so much time trying to find an accurate diagnosis with countless doctors and tests.
âour age of bronze is collapsingâ is this beautiful random burst of monty python dialogue amidst the drudgery of nolanâs vision and i think it should win the first-ever oscar for best solitary line
THANK YOU
Friendly unfriendly reminder that "Ovulation is like an animal being in heat and makes you stupid" has been a keystone of western misogyny pretty much since Europe worked out what periods are.
not my pee (game changer: noise some makes bonus BTS đŹ)

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nobody wants to be friends with somebody who stalks and doxxes trans ppl who are hospitalized with sepsis and who fake claim documented spinal cord injuries. yes really. yes no matter how many pictures of your secondhand rollator you post.
I also think itâs disgustingly ironic that Iâve never been able to post a picture of my wheelchair on here and Iâve completely stopped showing my face specifically because these individuals wouldnât stop compromising my safety and doxxing me
I would love to show you my wheelchair and flaunt it as proof Iâm a real #valid #sexy cripple too! but I donât want any of you to recognize me in real life as it has very unique colors and I donât want to be the target of more stalking and violence.
your rollator is a symbol and an expression and a part of your online identity and I literally canât even post an image of myself in my wheelchair at ALL to protect my real life safety. because of you. isnât that just funny
youâre right Arby this is sooooo totally about me and my uniqueness and my victimhood and not about you doxxing paralyzed trans people and then posting selfies of your secondhand rollator to deflect guilt and accountability away from your vile and dangerous behavior towards people who are significantly more vulnerable and at risk than youâre ever been. you can put those words in that order if you want to.
write that fanfic about me cunt. youâre still irredeemable dog shit nobody should tolerate the presence of
arby itâs well past time to stop. no amount of waxing badly poetic is going to justify your stalking and harassment campaign. itâs extremely clear youâre only doing this because you feel insecure when somebody more disabled than you is in the room and it would be sad if you werenât literally trying to get somebody killed
BTS deciding not to summit their work for the Grammys after knowing theyâd most likely win next year is precisely what integrity looks like and I wish a lot of Latin artists would do the same thing.
The Grammys didnât create that âBest Asian Musicâ category this year to be diverse. They did it to continue boxing non English speaking artists but especially BTS, so they wonât have to nominate them in the main categories with the rest of their peers. This was the Grammys telling BTS theyâll give them a Grammy win but under their own boxed category. We give you the scraps and you are supposed to take them. They said no.
Theyâve been doing this for years under the disguise of diversity. âBest Traditional Country Albumâ a new category introduced after BeyoncĂŠ won in the Best Country Album category because they couldnât stand a non white artist redefining that genre. âBest African Musicâ being introduced in 2024 to keep Tyla away from other pop girls. And âBest Latin Songâ being introduced for this year along with Best Asian Music after Bad Bunny right fully dominated all of the charts last year.
It was never about diversity. Itâs about boxing and categorizing these artists when global music (or more like non English music) is becoming bigger each year and this is the only way they can keep their American/British peers save in their space.
#not to derail but âbest FOREIGN movieâ categories also exist for this purpose
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Rheumatologists staff keep bugging me to reschedule even tho ive reported her to the practice twice for abusive practices so i finally sent a message like hey i Will Not Be seeing her bc she abused me and belittles my pain!! And now im nervous im gonna get a call abt it bc i dont feel like getting into all that rn
Rheumatologists staff keep bugging me to reschedule even tho ive reported her to the practice twice for abusive practices so i finally sent a message like hey i Will Not Be seeing her bc she abused me and belittles my pain!! And now im nervous im gonna get a call abt it bc i dont feel like getting into all that rn

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Skwisgaar Skwigelf from Metalocalypse is intersex using she/he pronouns, and her variation is Klinefelter Syndrome (Trisomy XXY)!
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new mychart message! aw damn....doc says my reality and existence lab work was wayyy off so she's referring me to an Ontologist