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@chronically-wonky

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Y'all have any suggestions for a knee that keeps buckling/wobbling? It hasn't ever like,,, fully buckled and made me fall down yet, partially because I'm always using a crutch when I'm out.
I also have trouble with both knees getting tremors when I put pressure on them, and both problems are getting worse š
The last time I tried PT (beyond a couple basic exercises I mean, like full workout type of shit) it accomplished nothing beyond taking more spoons than I had to spare so please anything else š exercise, braces, etc
(Smugly after failing at a task) and they said it could be done.
they should make a sleep that feels like youāve slept

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They should invent a sleeping for people with chronic fatigue that actually works.
body positivity can be so hard when ur chronically ill like āyour body loves you and is doing its best to care for you ā¤ļøā NO THE FUCK IT IS NOT
Brain fog is not an adequate descriptor, actually. Fog can be kinda nice and beautiful and ethereal and refreshing. The thing weāre describing is more like a brain BOG; everything moves slow like youāre wading through water, itās clunky and heavy and you keep getting stuck in the mud. Itās uncomfortable and inconvenient and everything takes so much effort. You lost a shoe, probably.
having chronic pain is just like. ur sitting perfectly still doing nothing meanwhile the space above your head keeps flashing -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp
I love gi issues
Will I make it home and get my meds before I throw up in this Uber? We shall see

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Results of decorating my crutches! Pardon the unaesthetic towel on the table in the background
Spikes and chains <3
Might do more, might not! We shall see :D
having chronic pain is just like. ur sitting perfectly still doing nothing meanwhile the space above your head keeps flashing -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp
I swear to god if a trans cripple man sees this post today and does not immediately go get the treat he deserves right now for being fucking alive im gonna find you and hug you so hard you will feel loved for at least a week
Brain fog is not an adequate descriptor, actually. Fog can be kinda nice and beautiful and ethereal and refreshing. The thing weāre describing is more like a brain BOG; everything moves slow like youāre wading through water, itās clunky and heavy and you keep getting stuck in the mud. Itās uncomfortable and inconvenient and everything takes so much effort. You lost a shoe, probably.
This whole obsession with wheelchair users struggling on foot down the aisle at their wedding or across the stage for graduation is 100% powered by ableism.
āThe heartwarming story of how one woman worked for 8 months straight so she could escape the horror that is being in wheelchair for a few short minutes to struggle slowly and painfully down the aisle on her special day.ā
āthe horror that is being in a wheelchairā bitch itās hella better than struggling slowly & painfully down the aisle ffs
āDespite being permanently paralyzed, her one goal since her accident has been to walk across the stage for graduation. The whole crowd gave her a standing ovation and broke into tears when she dragged her paralyzed legs across the stage with the help of leg braces and a walker to collect her diploma, after which she immediately sat back down in her wheelchair, which she will use to move around for the rest of her life.ā
How the hell is this an inspirational story? This person needs better goals. And a therapist.
Theyāre toxic in an even greater way because as a disabled person, I didnāt realise till I was reading this how much I had internalised that. I genuinely have had feelings of fear and shame about using a chair or a walker if I get married. And why? Because Iām constantly seeing āheartwarmingā stories about disabled people who shed their mobility aids for that moment. Why the hell am I afraid of using them to get married? Anyone who marries me or attends the wedding will know I need them and love me regardless.
Bless this post for making me realise Iād internalised that shit.
These types of stories teach people, both abled and disabled, that using mobility aids, especially wheelchairs, is inferior.
here are some beautiful brides in chairs with dresses they ROCK. I know a lot of disabled ppl with internalized ableism think they āwonāt look goodā if they use their chair, but hereās some literally gorgeous gals for ur consideration
(that last ones cute as fuck and i teared up at it)
Who needs a bouquet when you can be a bouquet?
I made my addition to this post in June 2019. Its now January 2020 and I no longer feel guilty about the idea of going down the aisle one day with mobility aids.
God bless the disabled community, y'all saved me from some internalised bullshit
This post floated by a few months ago, and I remember something to effect of thereās a difference between recovery and refusal. That is, like, I have a friend that suffered an incomplete spinal cord injury. He can walk again now, and I donāt think Iāve seen him use his chair in a few years. When he walked at his graduation, it was to show off his recovery. That he wasnāt quite ready to go through a full day upright, but he could walk across a stage, unassisted, and soon he would be able to do that every day. Thereās also a difference in someone like me choosing to not use a mobility aid. My mobility is intensely fluid, especially seasonally. So, I would plan a summer wedding. And while I love my cane it can also be the biggest pain in my ass, so Iād want to just go unassisted. But thatās normal for me, at least right now. I can walk without an aid during about half of the year. Itās reasonable to assume I can make it through one day without it. All of that is different than someone that is fully and permanently paralyzed, that will never walk again, dragging themselves along because they feel thatās somehow better. Overall though, my biggest takeaway is fuck the media. Because disabled people should be able to make whatever decision they want without the media turning it into this grand inspirational story.
Disabled people should be able to make whatever decision they want without the media turning it into this grand inspirational story.
THIS.
Couldnāt pass up the opportunity to add my disabled joy to this post. Look at this love!
Taking the opportunity to add these photos of Jessica Kellgren-Fozard and her wife Claudia, from this twitter post. JessicaĀ also has a youtube channel thatās primarily about disability and chronic illness and LGBT stuff (itās amazing!)Ā
I would also like to personally share, Annika Victoria who ALSO has a youtube channel. This photo was taken from her instagram - she made her wedding dress dress herself, BY HAND. Her youtube channel is mostly DIY fashion and sewing tutorials. I love her so much, sheās so unapologetically herself and informative
I also wanna add these pictures of Ade Adepitan fucking rocking this badass suit at his wedding! Give my fellow disabled mascs some love too
look how much fun theyāre both having! yes!
and also this couple, who are both wheelchair users
this is from their beautifully coordinated wedding!
@this-is-ableism it starts off talking about ableism and turns into a wonderful celebration of disabled people that I thought you may enjoy.
this is discussion of ableism and solidarity.

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I have such a bone to pick with whatever jackass decided that average bathtubs should be built for people that are like 3 feet tall
My bones are ouch I need to Submerge
Bro I'm 5'3" this should definitely not be a problem šš
I found a guide for a no tape, easy to unwrap wrapping tutorial to make Christmas a little more accessible, wish I just found it sooner
Could i not have seen that before Christmas? Anyway, queueing this for next december to save a life.
This is how they wrap surgical sets before sterilizing them (in a cloth not paper...god I wosh the cloth is a pain in the ass) except when they tuck the last bit in, they fold it over so the end is poking out of the box (like a pull tab).