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@chronic-chronic

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but i stay silly! *←said in the most world-weary voice you ever did hear*
“but I stay silly!”
Reblog you stay silly
on it boss
it’s funny when abled people make chronically ill + disabled pain about themselves. “you keep cancelling, you’re inconveniencing me with your pain, your triggers and symptoms are too much for me, you never talk about anything else” oh, am I not performing to your satisfaction? is my pain supposed to be about you? am I supposed to be “healed” and feeling better because I got a diagnosis? oh, am I supposed to accommodate my pain and suffering on your schedule? should I reschedule vomiting, passing out, and having excruciating pain? believe it or not ableists, the unimaginable pain I endure and suffer with actually happens in my body. it’s about me. how shocking, right? it is about me, it doesn’t have a schedule, and im not apologizing for being in pain. I’m not going above and beyond to prove that im sick. I’m not tolerating unsolicited advice. hope this helps
I wish bodies had removable batteries like phones or laptops, so you could take them out and replace them when they didn't hold charge anymore.
Feeling like going insane with having to explain my disability and chronic illnesses to same carers (i live in supportive housing) every week exactly the same way and them not getting it and asking the same questions as if something changes?
And hearing the platitudes of "well movement won't hurt" WHEN IT LITERALLY HURTS 🤕

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when some abled people say, “well what did you do to bring pain? you must have done something. maybe you shouldn’t do that if you don’t want to bring pain in” it invalidates us because we don’t have to do anything. we can wake up and be in excruciating, unimaginable pain. our bodies can feel heavy, we can feel so nauseous we will never stop vomiting, we could be on our way to pass out. what do you mean “what did we do” WE ARE LITERALLY JUST TRYING TO BREATHE AND SOMEWHAT FUNCTION. I didn’t invite the pain in. it just fucking invaded me and has never left
when will they invent doctors appointments that dont feel like psychological torture
Showering shouldn't take so much energy.
I think the most common casual ableism that I experience is people not slowing down when I’m walking with them. These people know I’m disabled, sometimes I’m actively telling them about how it’s difficult for me to walk, and yet they still walk two to three feet ahead and look back at me in annoyance that I’m walking slow. What’s the point of walking faster until you’re a few feet ahead and then slowing down and then speeding up again? Just walk at my speed it’s not that hard!
disabled people are often in permacrisis
there's never enough money each month. there's always an unexpected illness. new symptoms pop up or old symptoms flare up. meds have to be managed always and refilled constantly and any refill has the opportunity to go wrong. any regular care has the opportunity to go wrong. any mistake can send your health spiralling. it's always "i just need to get through this bad patch" but as soon as one ends another begins. another crisis begins in the middle of the last crisis. managing one thing leaves another thing to be neglected until that becomes a major issue and has to be managed asap and the cycle starts anew over and over and over
I got told by someone who manages a mutual aid resource that I was getting suspended for asking constantly for help.
I know she meant well, she wants this resource to flourish and help many people in the years to come.
But I still got suspended for 12 weeks.
The reason was donors fatigue. Like genuinely, look it up, it's apparently a real thing.
People got tired of seeing me weekly ask for help to afford groceries, medication, my healthcare monthly renewal, rent, house repairs to deal with the humidity, black mold, rust, falling roof, falling ceiling, falling wall or the water leak in the lightbulb and many other things.
The thing is I am chronically ill, I have no degree or higher education than my high school certificate, my partner is the same except for some english certificates that he has an advanced language.
We take care of our kids, the cats we've rescued from the streets and his parents and sister after they lost everything in a house fire.
We are always struggling to stay afloat paying the bills, keeping a roof on our heads and feeding our family while chronically ill, with chronic pain, dare I say some of us are disabled.
And people got tired of us. I got told because I keep changing what our main need/goal is I look like a scammer.
And ok, I get it, it must be really hard to see people struggle all the time to stay alive when all you want is to share a funny meme, cat pics, fanart and fan fiction.
But what about begging fatigue? What about poor fatigue?
Having to shake our can and beg for a kofi every day is exhausting. And no amount seems to fix our struggles and get us out of the red because by the time we get some help our bills are already overdue, we've got extra charges, we no longer need only the groceries and regular medication, now we need to run to the hospital or we already did and all that stacks up.
And every day, every week, month after month, year after year it just gets worse.
Chronic illness and disability are disabling in more than the physical way, we are shunned from every place for being considered a burden.
Show more compassion, you have no idea how hard it is.

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its actually super homophobic and transphobic that im still disabled during pride month wtf
Fuck heat intolerance and exercise intolerance. I cant fucking sit without sweating my ass off and having a high heart rate, and when I just walk i end up dripping and with an extremely high heart rate. The fuck is up with that shit.
They're sending my blood to Finland,( as i live there)
So i have like 20 things to look at in a blood test. They're gonna draw everything out of me tomorrow and also an ekg
PSA:
Acetaminophen/paracetamol has a hard stop upper dose limit, above which it becomes extremely toxic.
That limit is 4g (8 “extra strength” (500mg) tablets) in 24 hours (about 2 tablets every 6 hours).
A single dose of 22 extra strength tablets can kill you.
Taking 12 or more tablets per day for more than a week can also kill you (this is about 3 tablets every 6 hours).
Symptoms of overdose take up to 24 hours to manifest, and are fairly difficult to distinguish from other problems. They include abdominal pain (especially right upper quadrant), nausea, malaise, and confusion.
The antidote (n-acetylcystine) must be given within 8hours of ingestion in order to be useful.
After 10 hours the only thing that will work is a liver transplant.
You might think “why would I ever accidentally take so much?”
Well, acetaminophen is in almost everything in the cold/flu/pain aisle. Migraine combos like Excedrin, cold and flu combos like NyQuil, basically anything that says “non-aspirin pain relief”, and anything that’s branded as a fever reducer. It’s all probably acetaminophen/paracetamol.
So the goal of this post is to get you to read the labels on your medications. Because taking taking Tylenol and NyQuil together for a week (like you might if you had the flu) could kill you.
Please don't forget this shit, after it happened to a family member, he died 8 years later because of the continuing health complications even though he survived the initial overdose
I didn't know this for years, and I took so many pills, sometimes 4 at one go, every four hours, like 16 a day, because of endometriosis and migraines. It took a migraine specialist to explain rebound headaches and overdoses when I was in my 40s. Then I went cold turkey on all OTC drugs to get off the cycle. Please, please, if a couple tylenol aren't working for you, talk to your doctor or find one who will listen to you if you can.
and OP mentioned both names, but I'm highlighting it again: when you travel internationally, this compound has different names. in the US it is called acetaminophen, while in Europe and elsewhere it is called paracetamol. Pharmacists often use the abbreviation "APAP" which is short for its IUPAC name, N-acetyl-p-aminophenol. They are the same compound. If a product says "do not take with products containing paracetamol," check the labels of other products not just for "paracetamol" but also for "acetaminophen."

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Me, a chronic pain sufferer when pain: Unfortunate but I will prevail
Me, a chronic pain sufferer when fatigue:
rb to relieve the back pain of the person u reblogged this from