Heyyo,
I’m new to this side of the internet- but I do have a question for others who are chronically I’ll with some form of Orthostatic intolerance:
- have you faced a misdiagnosis regarding your specified OI (ex: possibly misdiagnosed with Ortho. hypotension, but really have POTS, visa versa), if so- how were you able to obtain a correct diagnosis, and what was the process of receiving that diagnosis?
When I was diagnosed with chronic Orthostatic hypotension, my doctors ran EKGs, ultrasounds, and tracked my heart rate. BUT, when I would have a heightened bpm (especially during episodes), they ignored that. **note: the last flare that I had with my watch on, I had a resting rate of 140bpm(I had been sitting for about 10 minutes at a time**
I’ve tried to have them reevaluate me- but they feel content with the answers and say that regardless there is nothing I can do other than up my sodium and iron intake.
I feel discontent and wish that they would at least help me understand where the discrepancies between my symptoms and varying conditions are. But maybe I just need to cool it?



















