I used to be like wow I can't imagine actually using a cane or other mobility aid for my issues I can't imagine it helping and now I go out and I'm like wow could really use a mobility aid about 60% of the time
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I used to be like wow I can't imagine actually using a cane or other mobility aid for my issues I can't imagine it helping and now I go out and I'm like wow could really use a mobility aid about 60% of the time

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how often are you getting a headache
daily
weekly
monthly
couple times a year
yearly or less
how often are you getting a tummy ache
daily
weekly
monthly
every couple months
yearly or less
Ok so thanks for voting on this but i need you to reblog it too
folks i'm worried for us
Every day I rediscover that I'm disabled and am shocked
Constantly feeling like my symptoms aren't that bad and I'm functional most days and I have a full time job that I'm high performing at and I live on my own and take care of myself and my cat so I'm not really that disabled and simultaneously sooooo shitty and horrible all the time but like clearly not shitty and horrible enough for it to matter
never forget the universal rule of the order of things: People Will Not Read It
signs at stores? émail? menu ?? instruction ? post online ? caption with andswer to question ? group hand outs ??? street sign ??? no. The Written Word Is The Enemy
#The number of compliments i have gotten for reading a thing
The ability to occasionally Read A Thing will make you a hero in your workplace, especially if it is for example an error message that tells you what you need to do differently, or instructions on unjamming a printer.
how dare you say we put jam in the printer
Ok reblogging this again because story time.
I work in tech, and much of what I do is support sales reps within the company by resolving errors with the software they use.
There is one sales rep who, every single time I send her a message or email with extremely specific instructions that will resolve her issue, does something completely different from what I tell her. Every time. Without fail. It is so glaringly obvious that she has never read even a single word that I have written to her.
So one day, she sends me a message that says little more than "(software) is broken, help"
So I do my standard song and dance of asking her what she's trying to accomplish, and what specifically is stopping her from doing that. And eventually, after much unnecessary back and forth, she tells me there's an error message. I ask her to send me a screenshot of the error message. She does.
The error message basically says, "these two required fields are blank. To resolve this, please fill in these two specific fields, and then click save."
So I take a few deep breaths.
Then I lie to her.
I message her back, saying "hey yeah, for some reason it's not loading that screenshot on my end. Could you type out the full text of the error message for me?"
She does.
I ask her if she still needs help.
She does not respond.
I have similar story from tech support.
Client is reporting that Some Thing Program doesn't work. I ask if there's an error message with further information about what's not working. Client says "no". I go over and ask Client to open Some Thing. Client double-clicks on the icon for Some Thing, it starts to boot, an error message dialog flashes up on screen, Client closes error message before I can read it, Thing closes after the error.
"What did that error message say?" I ask.
"What error message?" asks Client.
I tell Client to open the Some Thing again and then not click anything else. Client opens Some Thing, error message appears, Client clicks it away again.
I tell Client to stand up, step away, and give me physical control of the computer. I open Some Thing, start looking at the error message without closing it, and Client says "You should close that." I tell Client that I am reading the error message. Client is apparently accustomed to treating error messages as a kind of spam email that should be deleted as fast as possible, and gets agitated that I'm reading it.
I read the error message. It tells me what the problem is. I fix the problem. Some Thing works now.
---
Later, I start thinking about how such an error message might perhaps be engineered to be more attention-grabbing and close-resistant as a way of making people read it. It's not important for some random program here, but there are more important systems (medical, etc) where it would be reasonable to demand the user's attention because people's lives depend on paying attention to the error message.
But then people with a perverted intellect would still be thinking about ways to avoid reading the message, like dragging it off edge of screen or hiding it behind another window. So maybe the dialog box could have an always-in-front feature to override other windows, and the alert could use the computer's hardware "beep" functionality that can't be switched off by muting the regular sound system, and keep beeping... shit, I realize I'm reinventing pain, and get philosophical about it.
Story from The Past about My Mum:
She was a computer programmer / analyst, a... Long Time Ago. Called in for a system she'd installed before, the office folk said they kept having problems where it Didn't Work Right (no error, a malfunction)
She investigated, and told them that could only happen if they did 3 specific things in a specific order, which they should not ever do.
So, she asked, did they ever do that?
No! Of course not, was the answer.
So she made a couple of small changes, packed up and said that should be fine, but they should call her if there were problems.
The next week
She had a call saying "We're getting a strange error message on the system, can you help?"
She said, of course, can they tell her the error?
And the message was:
"You Said You Didn't Do This"
that story about people clicking away the error message before you can read it was EXACTLY my experience tutoring sometimes. We used an online homework program for some classes at my university and when you put in the wrong answer it would pop up with a box giving you a hint about how to solve it. SO MANY STUDENTS WOULD CLOSE IT IMMEDIATELY it pissed me off SO MUCH and then people would get mad at ME when id get frustrated with them for not even letting ME read the hint about how to solve the problem. I WASNT EVEN ASKING THEM TO READ IT. Someone I knew flat out told me they werent comfortable being tutored by me anymore because I was insistent they NOT CLOSE THE POPUP

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Had my first like full autistic meltdown in a while yesterday (my environment is a lot better and im better at coping) do not recommend
Crazy how every time I experience even a mild new thing in my body I google "x dysautonomia" and find 7 reddit threads and 2 research articles being like yeah dysautonomia is associated with x
You have to read all the books in your bedroom before you can leave. How long will you be trapped?
There's no books in there, I can leave immediately
Less than a day
1-3 days
4-6 days
1-3 weeks
4-7 weeks
2-3 months
4-6 months
7-11 months
1-2 years
3 years or more
Results
You can't die from hunger or thirst or lack of medication etc.
It doesn't matter which books you've already read. You have to read them all, starting from now.
Physical books only - if you have an e-reader in there you don't have to read your entire digital library.
Every time my gf complains abt her living situation (with her family) I cant help but just think like yeah if only you had a gf who actually actively wanted you to come live with them and had a whole apartment all of their own
Autistic social anxiety is not "social anxiety" in the typical sense. An anxiety disorder is defined as an "irrational fear". So for example, imagine someone who is afraid to speak in case everyone looks at them and goes "what the heck are you saying you wierdo." If that person is neurotypical, then the chances are that they're very unlikely to get that response. Therefore their fears are irrational, and that is true "social anxiety". If you put an autistic person in that scenario, on the other hand, then probably the reason they're afraid of that response is because they've received it many times before. They're fear is based on repeated past experiences, therefore it is not irrational and not the simply an anxiety disorder. That's why people giving the classic social anxiety responses to autistic people is so unhelpful. "Just go out there and talk to people, it'll be fine," or "keep pushing yourself out of your comfort zone and you'll get more confident," don't work if the problem is real and not just in your head.

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Worst part of dysautonomia is when I get upset or emotional or excited my entire body turns red so if I say for example cry in the gender neutral bathroom at work for 15 minutes then I get really red and everyone can tell I was upset and I have to wait until I return to normal but if I start crying again ill just get so red again
Tumblr is such a fascinating place because its ABSOLUTELY FULL of posts like "xyz thing isnt true they are lying!!!" except there's no sources whatsoever and this website is kind of by definition anonymous so you dont even know who posted it. Like do you see what im getting at
How do you feel about driving?
I can drive, I am good at driving, I enjoy driving.
I can drive, I am good at driving, I do not enjoy driving.
I can drive, I am bad at driving, I enjoy driving.
I can drive, I am bad at driving, I do not enjoy driving.
I haven't learned to drive, I think I would enjoy driving.
I haven't learned to drive, I do not think I would enjoy driving.
I can't drive anymore, I was good at it, I enjoyed driving.
I can't drive anymore, I was good at it, I didn't enjoy it.
I can't drive anymore, I was bad at it, I enjoyed it.
I can't drive anymore, I was bad at it, I didn't enjoy it.
there should be a such thing as a medical detective. you should be able to hire a doctor to figure out what the fuck is going on with you come hell or high water by consulting whatever specialists they can get their hands on, connecting your constellation of symptoms, etc, instead of 10000 different doctors for every distinct bone in ur body that all just kinda go "dang that sucks idk" when you present with more than one fucking symptom
Crazy how I stand for 20 minutes or whatever and then feel so horrible its so frustrating and everyone acts like I should do it anyways

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Saw a post from someone being like im new to the phandom what videos should I watch first and MULTIPLE people were like you have to watch the tour videos which is so funny to me bc ive been in the fandom for. Idk almost 10 years ? And I have literally never watched any of the tour videos
Alan Turing and Ada of Lovelace did not invent computer science for the girls and the gays to claim they can't do math