my experience with lupron/”puberty blockers”
i have severe endometriosis. i was diagnosed at 16 and had three major surgeries for it before i turned 19. i started birth control for my six weeks long, heavy, debilitating periods when i started having them at 12. by 19, i had tried every birth control under the sun (with no success) – except lupron. lupron, a gnrh agonist commonly used on males as a treatment for prostate cancer, on women in fertility treatments, on women with endometriosis, aaaaand yup, this is the exact same drug parents let be injected into girls with the euphemistic title of a “puberty blocker.” (i promise we’ll circle back to this hold on)
luckily, i live two hours away from one of the most accomplished endometriosis specialists/surgeon in the world, and he is so passionate about finding a cure or at least better treatments for women with endometriosis. he’s an obgyn but he literally doesn’t do the obstetrics part, he purely focuses on helping each woman find their best treatment for this disease. he has such a vast amount of knowledge on surgery techniques and surgical robots and different treatment options, and he is incredibly thorough when it comes to informed consent. if something could happen or has happened– positive, negative, or neutral– he will tell you about it. in detail. now this is important, because after decades of observing treatment effects and listening to women and researching side effects, his personal philosophy is that the lupron injection should be a last resort. like, after major surgery last resort. if a woman wants to try it first thing, he won’t stop her, buuuut after he gives her all the possible short and long term side effects, she usually is eager to explore other options.
(enter me) 19, three surgeries, dependent on opioid painkillers just to be able to get out of bed in the morning, and now, a fun new symptom! every time i begin to bleed, my heart develops an arrhythmia and i experience constant, burning chest pain. i begin to violently cough up blood. so, my endometriosis has spread to my lungs, may randomly cause my lungs to collapse at literally any moment, and i’ve exhausted all treatment options. except! lupron. the devil drug. the horror stories i heard from other women were insane, and that was just the short-term side effects. my doctor had to go through the process of explaining both short and long term side effects as i cried in the office chair because i knew that i had to take this drug. there was nothing else left for me, and things were getting worse. so i did. i was on it for a year. you want to know what that year was like?
i was suicidal, homicidal, and fell headfirst into the most severe and detrimental manic episode of my life. i experienced psychotic symptoms, and that along with the aforementioned symptoms led me to a week long stay at the psych ward. i did not have one day without severe joint and bone pain. i broke three bones, all while running or walking, when i had never broken a bone before. i’m already epileptic, but i had two hospital stays for uncontrollable tonic-clonic seizures while i was on it. i couldn’t sleep. i got night sweats and night terrors. i either couldn’t eat a thing or felt absolutely insatiable. regardless, i was always nauseous and got sick a lot. now, six years later, i still deal with worsening osteopenia, making me at high risk to develop osteoporosis. at 25. and the kicker is, it did shit-all for my endometriosis. it made me sick on top of sick on top of sick etc etc. and i’m not a rarity. men and women from all ages and all walks of life have experienced this and worse, and many people, like me, are still dealing with the fallout of it, years or even decades later. i do not believe this drug should be on the market for literally anything at all.
i was an adult and lupron gave me the worst fucking year of my life. and there are parents letting their HEALTHY children be injected with this at age 12, instead of realizing that if their child is so deeply afraid of puberty that they would rather take a decidedly harmful drug that essentially chemically castrates men and puts women in pseudo-menopause for years, let’s maybe try to work out the cause of that fear in some therapy sessions and group art classes and getting involved in sports or something. i can imagine that it’s pushed at gender clinics without touching on the negative effects too much because, well, lupron drugmakers and salespeople have a history of bribing prescribing doctors with trips, fancy dinners, resorts, or straight up telling a doctor they could earn $100K extra a year just by prescribing lupron to their patients. they went to court and were fined $875,000,000 for it, although i’m sure that’s pocket change for a company who profited $826,000,000 off the drug in 2015 alone, and i doubt they cleaned up their act. if a doctor is willing to give a female child lupron simply because she doesn’t “feel like a girl,” while being completely or even just half-way aware of all the negative side effects of it and backlash it’s received in the medical community, they might as well smear their own shit on the hippocratic oath they swore on, and they should probably give up their license while they’re at it.
Bullshit.
what part is bullshit? my diagnosis? the detailed description of my medical history and surgeries and treatments that i provided for context, hoping people like you could sympathize with a person undergoing what should be known as medical malpractice? or was it the part about my endometriosis spreading to my lungs with the ever-lingering possibility of lung collapse that gives me constant health paranoia?
or was the story of my side effects bullshit? the story about how i had a year of my life taken from me with side effects that have literally been noted by people who research and thousands of people who’ve been given this drug?
because if so, it’s REALLY, REALLY fucked up for ANYONE to dismiss a black woman’s healthcare and issues and concerns, especially when they’re reproductive health issues! do you have any idea of the relationship between sadistic white male “gynecologists” and the slave women, my literal ancestors, that they’d use as “test subjects” for things like, oh i dunno, having to receive random ass major surgeries with no anesthetic while completely nude on the stage of an observatory theatre? are you familiar with the concept of epigenetic trauma? do you understand that the dehumanization and torture of black women in the founding days of modern gynecology STILL shapes racial biases in healthcare that literally cause preventable injuries, complications, and deaths of black women to happen? you must be out ya goddamned mind to read a black woman’s traumatic female healthcare experience and muster up all that fucking nerve, gall, and audacity to make a useless piece of shit garbage comment like that. all that vulnerability, all that sharing, and you are such a fucking sociopath that you cannot even muster up fake sympathy, or better yet, leave me the fuck alone like i told you before.
see, you may have hit a fucking nerve with yr “bullshit” comment, but yr not fucking special. yr dismissiveness of my lived, real, documented, diagnosed aligns perfectly with the attitude of nearly every white male doctor i’ve encountered. from 12 years old, my serious physical health symptoms were essentially given the “bullshit” response. and it’s continued on since. but im not 12 anymore. i am a grown ass woman who knows and has meticulous documents of every treatment and surgery i’ve ever received along with personal dated journals describing its effects, which is actually what i referenced when talking about my experience with lupron, and some dummy on the internet isn’t going to trigger me into a spiral of traumatic healthcare-based memories and experiences.
and the funniest thing is even if this was bullshit (for whatever reason… i have nothing to gain being vehemently against a multi billion dollar big pharma bigwig lmfao), even if you were right, it wouldn’t fucking matter! because if you google around to find places where both men and women share their experiences with lupron, most of it looks eerily similar to this, including similar long term effects. it’s almost like, having being given the drug is the one common factor that ties together the hundreds of thousands of people reporting the same or similar torturous health issues. fuckin crazy how that works.
Yeah all of it.
That a deck of stacked fucking fiction to take a swing at blockers.
You’re a transphobe and no other part of you changes the fact you’ll do anything to push a narrative that hurts trans people and kids.
Big pharma…. fucking terfs require conspiracy theory.
I hit a nerve because you’re fake as fuck your story reads like a 14 year old writing a horror story based on two wikipedia entries.
“Hundreds of thousands.”
^ BULLSHIT show me the count on the reports.
No one’s trying to”Trigger” you no one knows you, JFC you’re pathetic as fuck.
You’re a dishonest unethical lying fucker and that’s likely your good points.
you are literally so fucking self-absorbed that you can’t imagine someone with radically different experiences than you. i honestly would feel bad for you if any part of you even deserved my pity. and i don’t owe you, a sociopathic internet stranger, shit.
the whole point of this post is that i value trans identifying kids’ lifelong health and safety and don’t think a drug that has one of the worst reputations in medical history for on and off label usage being the first line of dealing with feelings of dysphoria is so fucking short sighted and that’s what’s actually, literally damaging to children. i do not think this drug is suitable for usage on any human beings regardless of their condition.
i would call you a literal fucking demon but that’s an insult to demons.



















