they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
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they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me

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Chronic illness sucks because you’ll catch yourself thinking shit like ‘I wish it was possible to bathe regularly’ or ‘they should invent a digestive system that doesn’t hurt’ and then realise… that’s actually the case for most people. That’s the norm. Not only do most people have that, they don’t even think about it
They should invent a sleeping for people with chronic fatigue that actually works.
Being chronically ill is like having a curse where every 4 hours you get a random status effect, and most of which are debuffs.
Also you only have 1 action per day and long rests heal 2 hp. You're cooked.
I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
How to have a great, disabled life.
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!

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Do any other chronically ill or disabled people feel like they're watching themselves rot away due to how little they can do as a result of their conditions
When someone has a chronic illness or is disabled and can't work, they say a few common things.
It must be nice to sit around all day/sleep all day.
I wish I could sit around all day and not work.
I wish I could sleep all the time.
They don't want to sleep as much as we have to. They'd feel sick and sluggish.
They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.
It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.
They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.
In reality, it should be likened to an extended hospital stay. You can't do anything and you feel like shit.