May 13
It's ME/CFS awareness day. I'm stuck in bed after a meltdown at school. It made me so tired.
I can't make a good post right now.
Myalgic Encephalomyelitis ruins lives, and at its most severe, kills.
Wear a damn mask.
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It's ME/CFS awareness day. I'm stuck in bed after a meltdown at school. It made me so tired.
I can't make a good post right now.
Myalgic Encephalomyelitis ruins lives, and at its most severe, kills.
Wear a damn mask.
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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(chronic fatigue voice): yesssss i love my Naps. my Naps could never hurt me #MyNaps
In a similar way to how I wish people without chronic pain and fatigue understood that staying in bed all the time isn't fun, I wish they understood that getting takeout all the time isn't fun either. I would LOVE to be eating home cooked meals but I just can't most of the time so fast food it is because I can't afford anything better with disability benefits. The novelty of bed and takeaway wears off Real Fast when it's your only option.
too awake to sleep
too exhausted to do anything at all
one aspect of chronic fatigue that I don't see talked about is how much it sucks when you feel like crying but you know that crying would leave you completely and utterly physically exhausted, so instead you try not to dwell on the emotions even though the only way out is through and you really just need to let yourself feel them and have that cry. but you can't. because you don't have the fucking energy
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
Free to watch • No registration required • HD streaming
Actually we're talking about this
The medical neglect and abuse of chronically ill patients is absolutely absurd and only getting worse.
I have a multitude of different chronic conditions, many of them only being undiagnosed or partially diagnosed due to tests either being inaccessible, poorly done, or not ordered at all.
From those conditions, I mainly experience debilitating chronic pain (including inflammation and worsening of conditions), lethargy, migraines, vision loss, lightheadedness, skin damage, bowel and bladder issues, and possibly malabsorption. Just as main symptoms. I am housebound and slowly becoming bedbound.
But apparently the only treatments available are antidepressants, sunlight, exercise, and weight loss.
I've been getting more symptoms and more vocal about it, and they won't order anything other than the same blood test they always do, if that. I can't even see my results. No x-rays, no EKG, no MRI, no CT scan, sometimes I'll get a specialist referral... and then get denied. Because my doctor lists my issue as "depression."
No mobility aid, no injections, no physical therapy, no fucking help, not even a number to call. God forbid opioids (yes they do work, they're the gold standard of pain management, less than 5% of people abuse them when prescribed and also addicts deserve respect and compassion) but that's its own post.
So many patients are marked as noncompliant, over reporting, drug seeking, and plenty more things. It's common to bring an entire binder of information to an appointment, just to convince the medical professional to be professional about your medical issue. Half the time they don't even read a single page. For tons of people it's inaccessible in the first place. You literally cannot win.
It's not just this one doctor, it's a systemic issue. Doctors, nurses, psychiatrists, specialists, do not have your best interests in mind. I'm not the only one this is happening to. And it's targeted to the most marginalized groups.
This barely scratches the surface. I encourage people to share their experiences when reblogging.
(Fatphobic and healthist comments, including ones about exercise, get you an instant block.)
They say myalgic encephalomyelitis/chronic fatigue syndrome and fibromyalgia are rare diseases (not even recognised in my country) but then how come I know two people irl from my town and inside my narrow acquaintance circle that have had it for decades and several others online and none of them I met because of those. And I'm not even counting the irl peeps that have experienced long covid, but there are at least other two with official diagnosis. Okay. Seems fake but okay.
If the fibro could stop myalgia-ing, that would be neat