Dysautonomia
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Dysautonomia

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Reminder to myself: it takes a lot of fucking energy to be in pain
what to do if someone faints ✿
fainting can be extremely scary. if you don’t know what to do, that can make it even scarier. luckily for you (though not for me), I’ve been fainting since I was 13 years old, so I’ve got quite a bit of experience in dealing with these things, and educating the people around me about how to deal with these things. so here is my guide on what to do if someone faints!
I did my laundry today
It wasn’t a good day
But I was there
I existed
And isn’t that a fuck you to the world
I was there.
I don’t see many post on inappropriate sinus tachycardia so i’m gonna make some starting with an explanation of it
inappropriate sinus tachycardia (IST) is a form of dysautonomia causing someone to experience sinus tachycardia, this makes the heart rate 100+ bpm at rest and and 90+ bpm over a 24 hour period without an identifiable cause. IST can be asymptomatic but many with it experience symptoms
Before i go on i will explain some of these terms
Dysautonomia is an umbrella term for conditions causing dysfunction of the autonomic nervous system, which is part of the nervous system that controls functions that we don’t think about or control. Things like heart rate, sweat production, pupil size, and much more
Sinus tachycardia is when the sinoartiral node of the heart send signals to make the heart beat fast. Causing tachycardia which is a faster than normal heart rate, normal heart rate is 60-100 bpm, 100+ bpm is tachycardia
IST is defined as a heart rate of 100+ bpm while at rest and a heart rate of 90+ bpm over a 24 hour period. There is no identifiable cause and IST is a diagnosis of exclusion and other things must be ruled out.
IST can be asymptomatic but many people with it experience distressing symptoms like (not a full list)
Palpitations (uncomfortable feelings in chest from fast heart rate)
Chest pain
Shortness of breath
Issues with exercise
Presyncope (feeling like you’re going to pass out
Syncope (passing out
Some with inappropriate sinus tachycardia will also have jumps in their heart rate from mild exertion
Treatment for IST may include certain medications such as beta blockers, calcium channel blockers
ivabradine is shown to be effective but is not yet approved for treatment of IST
People may also use other forms of treatment like exercise training and lifestyle changes
Sinus node ablation is a surgery some get for IST which is seen to be effective at first but a lot of people with it notice that it reoccurs in a few months
Lowering heart rate in those with IST may not always improve symptoms
Sources and more information
Inappropriate sinus tachycardia (IST) is a syndrome in which the sinus heart rate is inexplicably faster than expected and associated sympto
https://www.dysautonomiainternational.org/page.php?ID=228
Inappropriate Sinus Tachycardia
Your autonomic nervous system is a network of nerves that handle unconscious tasks like heartbeat and breathing. It’s a key part of your bod

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Startle reflex and sensory reactivity are core parts of autism. It’s one of the most documented neurophysiological traits in autistic people:
heightened startle response
exaggerated reaction to sudden noise
difficulty filtering unpredictable sensory input
nervous system that “jumps” faster than it can down-regulate
sensitivity to storm sounds, fireworks, slamming doors, sudden claps, etc
It’s neurology, an autonomic reflex.
Is there any way to communicate “my chronic illness is so severely flared up today that even getting up for just a second is too much” in a way that the people in my life will actually understand and take seriously?
Besides pushing myself to the point where I literally fall over in front of them or start throwing up.
I had a really, really bad and painful episode today.
So I went to physical therapy and they have me doing this thing called circuit training which is basically doing a lot of workouts with no break. They give you a little break like a minute or 30 seconds but after that you continue. It’s supposed to help build your endurance.
They had me doing squats, walking up stairs, marching in place, swing this dumbbell to and fro, do bridges… I swear each time I thought it would truly be the time I kissed the floor. I know this sounds stupid and silly but I was too nervous to tell them it was too much.
Near the end my muscles actually started to give out and i was failing at doing them so she let me stop but by that point it was too late. I had gotten to my car and felt so nauseous even though I hadn’t ate. I was in just pain too: and not in a specific spot or anything. It just felt like I was so exhausted and drained that it was geniunely painful.
I felt horrible like so bad. Worst pain in my life and it wasn’t even something I could describe. My grandma of course didn’t believe me. I was just crying and i don’t even know why I just couldn’t help it. I searched it up and apparently it was my autonomic nervous system shutting down.
Has anyone else ever experienced this?