Top Posts Tagged with #dynamic disability

Yes, some disabilities are dynamic, and most of us in the disability community know this. However many people aren’t aware of just how dynamic some conditions can be.

A person can go from no symptoms at all to being profoundly debilitated all in one day.

Some have baseline symptoms so low and flares so high, that things can go from 1 to 10 very quickly.

I know it can seem impossible that some people’s disabilities fluctuate with such extreme variability, but this is a real phenomenon that people deal with.

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Having a dynamic disability is like:

I’m feeling great! I’m feeling like myself again yippeee!!!

* pushes it too hard *

I am now on the ground. :D

#chronic illness #dynamic disability #idk wtf it is don’t ask #it acts a lot like POTS as of late- dizziness / nausea / brain fog & confusion to the point of dissociation #but I’m working with my PCP & a cardiologist soon to figure out wtf it is #I ended up on the floor of my office for an hour bc of whatever tf this is #bc I decided to become Icarus and fly too close to the sun #(I also gaslit the shit out of me thinking that it was all in my head… It was In Fact Not All In My Head #anyway here’s wonderwall #anyway here’s a text post #forgot to add- presyncope / stumbling or loss of balance #yeah

Ah yes, chronic illness, when you want to be productive but can’t because your body decides to be a little bitch about it.

#chronic illness #chronically ill #dynamic disability #me/cfs #myalgic encephalomyelitis #pcos #chronically ill things

(ft: 1/3 wrist braces)

#me #disability devices #dynamic disability #litmus test to see who’s gonna behave in my inbox lol #also the current earworm #Spotify

I finally got my diagnosis of Elhers danlos!! Its been like... 4-6 years of trying desperately to get a doctor to look at me and diagnose me. In my twenties a physical therapist told me I had Hyper mobility, something no one else had ever mentioned. And since then I've tried to find a doctor to actually diagnose and treat me, but most take a look say they dont know and send me on my way.

But a friend with the same condition suggested I switch my PCP to a clinic they recommended and today was my second appointment. He did more tests and checks before letting me know he feels comfortable officially diagnosing me with Elhers danlos. I feel so validated and it feels like I'm dreaming I've known for a while I have this disability, but being able to say it's diagnosed feels so good like people can't deny my disability anymore.

My pain is real. I am not crazy, all the gaslighting if my pain being taken lightly was wrong and my pain is real. I'm so relieved to find a place that ACTUALLY cares. My new PCP is also going to run tests on my heart because of a very irregular beat thats been ignored for years aswell. So I feel im finally in good hands, and tentatively feeling hope 🩷 Im so thankful im so happy, he even said we can discuss autism assessments next time I see him because I asked if he knew anyone who did them and HE does them? I feel so lucky I'm just hoping insurance somehow will cover it which probably is a no, but I have to at least try.

Anyways I feel so happy to be diagnosed I feel very validated thank you for anyone who reads this I'm just so happy 🫶🏼

#disability #disabled #invisible disability #dynamic disability #connective tissue disorder #hEDS #Hypermobility #hyperbole Elhers danlos #Elhers danlos #diagnosis #medical

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Having a dynamic disability will have you going from "maybe I was never even sick and it was all in my head" to "what if I never feel happiness again" in the span of like 2 days

#disability #actually disabled #chronic illness #dynamic disability #my posts

did 1 exercise 2 days ago. finished thinking it was not enough exertion to be meaningful.... was Regular Sore in Appropriate Muscles yesterday... today: cannot feel my legs or engage most of their muscles.... jaw & hands also Sore & Semi-Mobile? ..... frinking neat, body, that is very kewl & creative of u. Thanx !

#me/cfs #cfs/me #cfs #dynamic disability #chronic illness #fnd #functional neurological disorder #neurological condition #neurological disability #chronic pain #dynamic paralysis #temporary paralysis #paralysis

found a wheelchair we sorta like / can afford. now just gotta raise like $350. love the american healthcare system /s

[PT: found a wheelchair we sorta like / can afford. now just gotta raise like $350. love the american healthcare system /s]

#currently using crutches or a rollator #why must it be so expensive to get around without pain / fainting #dynamic disability #disablility stuff #disability things #systemic lupus erythematosus #lupus #pots #potsie #chronically ill struggles #chronically ill #chronic illness #chronic pain #chronic fatigue

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