Nectar-rich Boringness

“And we loved it, we were all having a great time, but then he saw my sister and I, and he just got this - this look in his eyes, and then-”

She hesitated, worrying the coarse material between her fingers. “Things got pretty bad after that,” she muttered. “I know it’s silly, but I try to keep - her - comfortable. We don’t know if she can still hear us, or see us, or if she’s even still in here, but I like to think she is. I talk to her when I can, I leave music on when I’m out of the house. I tried to convince my parents to bring her with us when we went to Disneyland, but they didn’t - didn’t really take that well.”

if you are in pain within minutes or seconds, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

if you are in extreme pain, not just "ugh my feet ache" pain but "i am going to pass out" pain, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

I mean, I can walk just fine, but standing in one spot for like 15 to 20 minutes will leave me in pain for days.

So that didn’t help

Meanwhile document the actual effect the pain/etc has on your life. Document how it impacts your ability to cook; your ability to clean; your ability to clean yourself; your ability to sleep; your ability to work; document all attempts to be more active and how the pain interferes with them. If you have to do something other than just go stand in the kitchen for ~1hr to cook a meal, that's something to write down; if you have to choose not to have a shower because it'll hurt, write that down. If the pain prevents you from going for a walk, write that down.

Every single time you make a decision about what you're doing based on the pain, you document that; every time you have to endure the pain for a necessary activity which then impacts what ELSE you can do, write that down too, with a direct connection.

(Warning: this will probably be depressing as all fuck and you will probably hate it. You are almost certainly ignoring the impact of pain on you way more than you think you are, and having to face it will feel bad in the short run. Very bad.)

And then you bring it either to your new doctor or if you MUST, to your current doctor, and you say: this is how the pain currently affects my quality of life. This is what I would be doing if I weren't prevented from doing it because of the pain.

Say that you would like to find the reason for this pain and you would like them to order relevant diagnostic tests. If they refuse, or hem and haw, ask them to document clearly in your records that you requested this and both that they refuse and their reasons for refusing.

If you must deal with the same doctor, document the concerns you have with the weight-loss drugs, and ask your doctor to be explicit about why she thinks that these risks are worth something that does not directly address your actual concerns. Ask why this is their first line treatment for the rest of what you've described, and why they are more concerned with pushing an overprescribed treatment than actually investigating the cause of your pain and addressing it appropriately based on an evidence-based diagnosis.

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