Karly

I cannot imagine placing judgement on someone with an illness I don’t have. I just couldn’t do it. I don’t think it’s fair. We lack so much empathy and understanding in this world, I can’t contribute to that sh*t. Be a fu**ing human being and put yourself in others shoes for a minute! I promise it won’t kill you! . . . .Follow me @khronikallykarly . . . #khronikallykarly #qotd #lifequotes #lifelessons #quoteoftheday #typography #thoughtoftheday #wordsofwisdom #instaquote #quotes #spilledink #writerslife #writersociety #understandingchronicillness #potsawareness #chronicfatigue #chronicallyill #spoonielife #mentalhealthadvocate #ankylosingspondylitiswarrior #endthestigma #nojudgementhere #empathy #empathlife #learnempathy #chronicillnessquotes #spoonies #spooniequotes # #invisibledisease (at Houston, Texas) https://www.instagram.com/p/B7XWVTBg8mW/?igshid=zwd3kad3xif2

It’s very hard to look at pictures of myself. I don’t even look the same. Chronic illness has sucked the color and life out of my face. I used to get up and put makeup on, but I no longer have the strength to do that. Even showering has become a huge event because I cannot stand long without feeling dizzy from #tachycardia. It’s so hard to be positive when your life is changing without your consent, and not for the better. I feel like I have nothing to look forward to. I have no children due to my disabilities, and my longtime boyfriend @sonofahick and I cannot get married because if we do I’ll lose my disability benefits. Looking at these photos, I guess I just have to be grateful that I was happy and somewhat healthy once? Is that how I’m supposed to feel? Because that’s not how this feels. This feels like the death of who I was, without offering any hope of who I could be. So I will exist here until I’m numb to all of this, which may or may not happen. Grief is a bitch. Ive grieved the sudden death of my husband and the death of my best friend, just to name a few. I think this grief hurts the worst because I no longer recognize the person in the mirror. . . . .Follow me @khronikallykarly . . . #khronikallykarly #grievingmyself #grievingmyhealth #chronicillnessawareness #mentalhealth #mentalhealthawareness #potsawareness #chronicallyill #mentalwellness #mentalhealthadvocate #nostigma #mentalhealthblog #chronicfatigue #spoonielife #invisibledisease #spoonielove #bloggerbabe #bloggergirl #chronicillness #bloggersofinstagram #ankylosingspondylitis #potssyndrome #traumasurvivor #asawareness #depression #chronicpain #youngwidow #youngwidowsclub #invisibleillness (at Houston, Texas) https://www.instagram.com/p/B7W6RS7gaJD/?igshid=1mljhorbql1d2

I woke up feeling horrible today. Physically, mentally and spiritually. I just don’t have the energy today to pretend like I’m not devastated by these health conditions. The hardest part is that I’m being attacked by all angles. Physically by the #ankylosingspondylitis and #potssyndrome and mentally by the #ptsd. I’m grieving the person I was before getting sick. I’m grieving the fact I’m not physically able to do much of anything. I’m grieving the loss of all of it. Besides being a #youngwidow this is the hardest challenge of my life. I had so much hope for my life, now I’m faking smiles and faking being interested in the things that used to interest me before my world crashed. I do realize everyone has bad days and that I get another chance tomorrow to have a good day, but that doesn’t mean this isn’t killing me to the core. Thank you to @positively_chronic for the words to explain how I’m feeling today. Tomorrow I will try again, and in that lies my strength, but I’m honoring my feelings for today. . . Follow me @khronikallykarly . . . . #khronikallykarly #grief #thegrievingprocess #fightingformylife #fightingformyhealth #chronicallyill #chronicillness #chronicillnesswarrior #chronicpainawareness #ptsd #ptsdsurvivor #potssyndrome #potssyndromeawareness #ankylosingspondylitiswarrior #ankylosingspondylitisawareness #positivelychronic #grievingmyhealth #youngwidowsclub #chronicillnessmemes #depressionkills #feelingalone #posturalorthostatictachycardiasyndrome #tachycardiaproblems #fakeittillyoumakeit #lifequotes #chronicpainsucks #depressionawareness #chronicallyillwarrior (at Alvin, Texas) https://www.instagram.com/p/B7UShxKgR2Z/?igshid=ra1xte5iu0jv

There is absolutely nothing wrong with being sensitive. Anyone who thinks your sensitivity is a weakness is obviously intimidated by your ability to connect with those around you, or they don’t like themselves. Don’t let those people make you feel any type of way. . . Follow me @khronikallykarly . . . #khronikallykarly #selflove #selfacceptance #inspiringquotes #instaquote #dailyquotes #lifelessons #qotd #selfgrowth #selfdevelopment #selfawareness #personalgrowth #selfconfidence #selfimprovement #strongmindset #selfmotivation #confidenceiskey #thoughtoftheday #quotes #wordsofwisdom #sensitivityiscool #sensitivityrules #kindnessisthenewblack #bekind #kindnessrules #kindnessquotes #selfrealization #embracethechaos #lgbtqcommunity #loveisking (at Houston, Texas) https://www.instagram.com/p/B7Rp3b7gbkM/?igshid=151ysb021ya0n

If my story of chronic illness and trauma makes you uncomfortable, then your a fucking asshole! Truth Bomb! - Khronikally Karly . . . #khronikallykarly #lifetruths #mentalwellness #mentalhealth #mentalhealthadvocate #mentalhealthsupport #mentalhealthawareness #mentalwellbeing #nostigma #mentalhealthwarrior #mentalhealthblog #mentalhealthblogger #mentalhealthhelp #ptsd #traumasurvivor # #mentalhealthmatters #depression #personalgrowth #mentalhealthisimportant #youngwidow #youngwidowsclub #ptsdawareness #trauma #traumaisagatewaydrug #endthestigma #beherenow #lifequotes #mybeautifulmess #lifelessons (at Houston, Texas) https://www.instagram.com/p/B7Q9k33g6WM/?igshid=1e1xgz2dua2j7

PTSD is tricky. There are nights when I go to bed, and I think I’m fine. Then BOOM, the hyper vigilance kicks in, I can feel the tears welling up in my eyes, and by then I’m angry at myself for being emotional...again. I don’t know how many nights I was up from insomnia and sobbed quietly while Jim slept. That’s probably when I feel the most alone is late at night when I can’t sleep. The pain from Ankylosing Spondylitis can be unreal, but couple that with some serious trauma, PTSD and dysautonomia, you’ve got a whole lot of pain happening there. That pain has to come out sometime and with me it’s usually late at night. Sadly, I’ve gotten really good at crying really quietly so nobody hears. When I think about it, it makes me sad because I’m shoving pain down just to avoid waking up someone. Jim is nothing but kind to me and I know he wouldn’t mind getting up to comfort me, but I don’t always feel like talking about it. Im not sharing this for attention, but to bring light to the rawness and realness of PTSD. It’s really ugly and not enough people know how to recognize it in another person. So therefore it’s just not discussed until it becomes an issue in YOUR life. People take their lives every day because of the horrific mental torture that happens during a depressive episode of PTSD. Unless you’ve experienced it, you can’t even fathom the hopelessness during the experience. If you’re struggling right now, get help, talk to someone, shit you can reach out to me if that’s cool to you. I’m a widow, trauma survivor, chronic illness warrior, and mental health advocate/PTSD patient so chances are you’ll relate to me about SOMETHING. Just don’t stay quiet about it. We’d rather hear about your PTSD and how it’s affecting you than to bury you. Just make me one promise....that you’ll be there for me when it’s my turn. . . . #khronikallykarly #ptsd #ptsdawareness #ptsdadvocate #trauma #traumasurvivor #traumaisagatewaydrug #mentalhealth #mentalhealthawareness #endthestigma #depression #depressionisnotachoice #mentalwellness #nostigma #mentalhealthwarrior #mentalhealthblog #mentalhealthblogger #youngwidow #youngwidowsclub #traumaticdeaths #mentalhealthisimportant (at Houston, Texas) https://www.instagram.com/p/B7QHbN5govX/?igshid=snylvpn12vgm

PTSD is tricky. There are nights when I go to bed, and I think I’m fine. Then BOOM, the hyper vigilance kicks in, I can feel the tears welling up in my eyes, and by then I’m angry at myself for being emotional...again. I don’t know how many nights I was up from insomnia and sobbed quietly while Jim slept. That’s probably when I feel the most alone is late at night when I can’t sleep. The pain from Ankylosing Spondylitis can be unreal, but couple that with some serious trauma, PTSD and dysautonomia, you’ve got a whole lot of pain happening there. That pain has to come out sometime and with me it’s usually late at night. Sadly, I’ve gotten really good at crying really quietly so nobody hears. When I think about it, it makes me sad because I’m shoving pain down just to avoid waking up someone. Jim is nothing but kind to me and I know he wouldn’t mind getting up to comfort me, but I don’t always feel like talking about it. Im not sharing this for attention, but to bring light to the rawness and realness of PTSD. It’s really ugly and not enough people know how to recognize it in another person. So therefore it’s just not discussed until it becomes an issue in YOUR life. People take their lives every day because of the horrific mental torture that happens during a depressive episode of PTSD. Unless you’ve experienced it, you can’t even fathom the hopelessness during the experience. If you’re struggling right now, get help, talk to someone, shit you can reach out to me if that’s cool to you. I’m a widow, trauma survivor, chronic illness warrior, and mental health advocate/PTSD patient so chances are you’ll relate to me about SOMETHING. Just don’t stay quiet about it. We’d rather hear about your PTSD and how it’s affecting you than to bury you. Just make me one promise....that you’ll be there for me when it’s my turn. . . . #khronikallykarly #ptsd #ptsdawareness #ptsdadvocate #trauma #traumasurvivor #traumaisagatewaydrug #mentalhealth #mentalhealthawareness #endthestigma #depression #depressionisnotachoice #mentalwellness #nostigma #mentalhealthwarrior #mentalhealthblog #mentalhealthblogger #youngwidow #youngwidowsclub #traumaticdeaths #mentalhealthisimportant (at Houston, Texas) https://www.instagram.com/p/B7QHbN5govX/?igshid=1qgsrbxrikmwt

Today is one of those days guys. I’m exhausted and everything hurts. I haven’t gotten much sleep lately due to painsomnia and I can feel myself crashing. It’s time for some self care! Which for me means resting and rehydrating! I’m glad that I’m learning to listen to my body. You’d think by age 38 I would have learned that already but for a long time I didn’t listen until I would physically crash. I guess that’s just part of being in denial with chronic illness. I hope everyone has a great Sunday whether your resting or not. . . . If you have time today, and you haven’t read my first blog entry post, please do! The link is in my bio! . . .Follow me @khronikallykarly . . . . #khronikallykarly #relaxday #chronicillnessawareness #chronicpainwarrior #dysautonomia #pots #potssyndrome #potsawareness #ankylosingspondylitis #asawareness #disabledandcute #selfcare #selfcareday #selfcareisntselfish #teamnosleep #chronicfatigue #chronicfatiguesyndrome #cfs #cfssucks #meawareness #imnotlazyimsick #disabilityadvocate #chronicillnessadvocate #chronicillnessblog #ptsdawareness #ptsd #ptsdsurvivor #traumasurvivor #rechargeyoursoul (at Houston, Texas) https://www.instagram.com/p/B7PLceRAezg/?igshid=ks2vgnz8otje

I don’t know if I agree with this one. As someone who has lost her husband and recently my lifelong best friend, I don’t necessarily agree that there was greater healing afterwards because both of their deaths were tragic. Deliver healing to who I wonder? I’m going to have to think about this one, what do you think? Do you agree? . . . Follow me @khronikallykarly . . . . #khronikallykarly #youngwidow #youngwidowsclub #dailydoseofcolor #energyhealing #traumaticdeaths #vibrationalhealing #chakrabalancing #healingvibrations #spiritualgrowth #mentalhealthblog #mentalhealthblogger #mentalwellness #mentalhealth #nostigma #mentalhealthwarrior #mybeautifulmess #lifequotes #lifelessons #healingfromtrauma #healing #healthymindset #trusttheuniverse #instasunsets #all_sunsets #incrediblesunsets #skyporn #traumasurvivor #grief #thegrievingprocess (at Houston, Texas) https://www.instagram.com/p/B7O2GgLA0zF/?igshid=1pt6edndfhfis

There is one thing you can always bet on, tomorrow will come and it will go just like any other day. This quote reminds me of hope. Hope for a better tomorrow. Smiling with hope that tomorrow’s pain will be less than today’s. That’s really all we want, isn’t it? . . . Follow me @khronikallykarly . . . . #khronikallykarly #chronicpain #chronicpainwarrior #chronicillness #invisibleillnessawareness #invisibleillnessadvocate #bloggerbabe #bloggervibes #bloggerlove #bloglovin #mentalhealthtips #mentalhealthblog #mentalhealth #mentalhealthhelp #mentalhealthawareness #writersnetwork #artofpoets #madewords #poemsociety #thinkpositive #positivevibesonly #positivemind #lifequotes #qotd #quotestagram #dailyquotes #happiness #instaquote #liveinspired #writerslife (at Texas) https://www.instagram.com/p/B7NNqjAAjSP/?igshid=o11806g56q3a

Sadly, there are so many disabled people out there that don’t have access to pain medication because of societies black or white thinking. The thought that every single person who needs to take pain medication for physical reasons is abusing them is ridiculous. This is one reason I support marijuana legalization. If they won’t allow us pain relief through big pharma, we WILL substitute it with something! I honestly don’t worry about being judged anymore for having a chronic illness that severely affects my life. I will not make any apologies for my disabilities. . . . Follow me @khronikallykarly . . . . #khronikallykarly #noapologies #bloggergirl #bloggerlove #bloggersofinstagram #mentalhealth #mentalhealthawareness #mentalhealthhelp #mentalwellness #mentalhealthadvocate #mentalhealthblog #mentalwellbeing #mindshift #selfawareness #selfgrowth #inspiredaction ##fibromyalgia #chronicfatigue #invisibledisease #spoonielife #painmanagement #fibrowarrior #ankylosingspondylitiswarrior #pots #dysautonomia #spooniegirl #potsawareness #asawareness #epsteinbarrvirus (at Alvin, Texas) https://www.instagram.com/p/B7MuSeUgcoa/?igshid=bod98xbzxpcl

This is Squirt, my only fur baby. I truly believe people with chronic illnesses connect to animals so much because of the empathy it requires to care for a pet. I know that he can tell when I’m having a bad day, and he comforts me so much. What do you think? If you have a pet, what does he/she bring to your life? . . . Follow me @khronikallykarly . . . #barkpost #buzzfeeddogs #doggoals #cutedogs #doggylove #dogmomlife #dogmom #dogmomaf #dogparents #khronikallykarly #ankylosingspondylitis #potsawareness #mentalhealth #mentalhealthadvocate #mentalhealthawareness #chronicfatigue #chronicallyill #spoonielife #spoonielove #mytinytribe #nostigma #adorablepets #animaladdicts #animalsofinstagram #buzzfeedpets #petofinstagram #dailydoseofcute #animalsco #empathy #empathlife (at Alvin, Texas) https://www.instagram.com/p/B7MRpZdA-_N/?igshid=1t6klr4rs0tn1

Just a daily dose of art here! If we all thought of our body parts as works of art, we would be much kinder to them! Food for thought.... . . . Follow me @khronikallykarly . . . #khronikallykarly ⠀⠀ ⠀⠀ I wish I knew who the artist is to give him credit but I have no idea! #art_dailydose #art_we_inspire #artistoftheday #artoftheday #artlovers #positivebodyimage #creativeminds #dogmomlife #dogmom #crazydogmom #colordrawing #artdrawing #art_insanely #awesome_florals #flowerart #florallove #moodforfloral #capturingcolour #flowerlover #allthingsbotanical #blooms #mentalhealthawareness #mentalhealthsupport #mentalhealthadvocate #mentalhealth #anatomicalheart #ankylosingspondylitis #potsawareness #pots (at Alvin, Texas) https://www.instagram.com/p/B7LwhOnAWAb/?igshid=irqotgtx8750

The worst feeling to me is to disappoint someone I love. Unfortunately, with chronic illness you learn that you might disappoint people unintentionally. Sometimes I can’t stay long with a friend etc because I never know when I’m not going to feel well. I’m very lucky I do have a friend who will come and hang out with me at my house instead of going out @deannimal90 and I appreciate that so much. When I was growing up, I didn’t talk to my father about my feelings at all, including when I was sick. Talking about your emotions or symptoms wasn’t encouraged by him. My mom always encouraged me to talk about it luckily or I would have been a lonely kid. I’ve come along way with learning communication and I’m more honest now than I’ve ever been. I think I need to worry less about disappointing people and commit to being more honest with others about how bad my chronic illnesses get. Being honest is the only way understanding can happen. . . . . . #khronikallykarly #chronicillness #pots #potssyndrome #dysautonomia #dysautonomiaawareness #chronicallyill #ankylosingspondylitis #ankylosingspondylitisawareness #ankylosingspondylitiswarrior #asawareness #blogger #alvintx #sickandtiredofbeingsickandtired #spoonie #spoonielife #spooniewarrior #thespoontheory #disabledlife #disabilityawareness #disability #disabilityadvocate #disabledgirl #alvintexas #chronicillnessmemes #chronicillnessblogger #houstontx #houstontexas #houston (at Alvin, Texas) https://www.instagram.com/p/B7K3EAZgREO/?igshid=88nqqmcto8ds

I’m fighting with myself tonight. Do you ever come across a photo of you before you were REALLY sick and wonder where that person went? Watching my health deteriorate from Ankylosing Spondylitis and POTS is so painful and exhausting. It challenges my mental health in every way imaginable almost everyday. I feel like I’m in mourning over the person I used to be. I am trying my HARDEST not to let these illnesses destroy me mentally but I won’t deny I’m struggling hard. Having to rely on @sonofahick so much is quite the blow to my self esteem and self worth, but what do you do when you need help to function and accomplish anything. I am very grateful for him. I’m all about being positive, but I’m also a human being with emotions that have to be felt in order to process them and move on. That’s where I’m at right now. . . .Follow me @khronikallykarly . #khronikallykarly #chronicillness #ankylosingspondylitis #pots #potssyndrome #mentalhealthawareness #chronicpainwarrior #endthestigma #disabled #dysautonomia #depression #spoonie #spoonielife #spoonielifesucks #mindvsbody #chronicallyill #autoimmunedisease #disabilityawareness #disabilityadvocate #chronicillnessblogger #teamnosleep #cfs #chronicfatigue #chronicfatiguesyndrome #chronicmononucleosis #ebv #epsteinbarr #epsteinbarrvirus #autoimmunewarrior #imstillme (at Alvin, Texas) https://www.instagram.com/p/B7IIC9Hl1zc/?igshid=sfb9f1e7aof2

I will no longer argue with people that are committed to misunderstanding me. My body and mind will no longer allow it. Self care includes protecting my energy from negativity. Those that really know me know the challenges I face, and know my heart is always in the right place ✌🏻✌🏻✌🏻 . . Follow me @khronikallykarly . . . . #kindredspirits #noneedtoexplain #chronicillness #dysautonomia #potssyndrome #ankylosingspondylitis #spoonielife #asawareness #potsawareness #spooniewarrior #tachycardiaproblems (at Houston, Texas) https://www.instagram.com/p/B7FKO6HlOT-/?igshid=1ekwm94l9ulta