Zebra Life : Living with CVID

What music is getting you through this shit??

Gosh - I’ve been compiling music so it really depends on the mood, but “Unity” by Shinedown is just 👌👌👌

Why the fuck is my body so hell bent on deteriorating itself fuck

As someone with an invisible illness I feel relieved whenever I have a test come back as abnormal. It’s proof that I am ill. No one can deny it or tell me it’s in my head

Sometimes “I’m not available” means “I’m not mentally/emotionally available” instead of “I’m not physically available” which is ok! Both of those are equally important.

Well, it isn’t gone, but it did quiet down noticeably???

holy shit

“wow, you seem to be sick a lot!” Hence the Chronic part of Chronic Illness, Brenda.

The other day I saw a family with a toddler who was walking, a little unsteadily, while (presumably) the child’s mother pushed an empty stroller. And I started thinking how normalized this is, the idea that a little kid can *walk* but can’t walk *long distances,* and so we accommodate for them. Yet so many of the same people want to start yelling accusations at ambulatory/part-time wheelchair users for having the exact same problem.

self care is just going the hell to bed