Celiacposterboy

A Devastating Delay Celiac Pellagra and the Implementation Clinical Gap in recognizing one for over the other tumblr Which twin to choose/save  

I was inspired today for two reasons.    

1) my brother recently had an emergency that required hospitalization and two stents to be put in his heart.  Every Hour Counts/Every Person Counts  

2) this new research about Zika and the implementation gap/clinical delay in recognizing a disease in clinical setting.  

http://www.nejm.org/doi/full/10.1056/NEJMp1707273  

AS someone who has had BOTH Celiac and Pellagra.  I can tell you that it can be difficult to tell them apart sometimes (most times). In many respects they look like twin(s). 

Both have GI problems as a presenting symptom’s.  

Both have Skin Issues in their presentations (clinical appearance). Both can have dementia/neurology symptoms.

SO you can see how easily one can be confused for the other?  

And often one twin (disease) is picked over the other.  

What does this have to do with Zika.  Only this  

Quoting the New England Journal of Medicine from the article and applies here when contemplating any disease’s symptom’s.  

“Translational gaps are not unique to Zika; similar challenges exist throughout the health care system. According to several estimates,  

it takes an average of 17 years for research evidence to reach clinical practice. 2

One study showed that patients receive only about 55% of the recommended processes involved in medical care. 3”  

So let’s say.  Today they find a miraculous cure for Celiac disease or NCGS. . . it would take on average 17 years for doctor’s in Clinical settings  to apply these technique’s to eradicate new Celiac cases/disagnoses from occurring.

Now in this hypothetical case (which doesn’t exist yet) it would take another 17 years on average for doctors if they knew today that Pellagra  (which they don’t) can mimic Celiac disease in a Clinical setting. 

But one does exist (it is not hypothetical) – a cure for Pellagra exists today. 

It has in fact existed for 100+ years and still doctors don’t recognize it today.

Every hour/patient matters. 

And why I have tried diligently to educate other Celiac’s of this maddening fact.  In 2015 a medical association was established of Pellagra occurring in/with a Celiac diagnosis.

http://pubs.sciepub.com/ijcd/3/1/6/ 

Quoting from section 3.

Pellagra and Celiac disease in this ground breaking research. 

Pellagra and celiac disease  “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40].”

 So if their (NEJM) timeline is correct.  It will be 2032 at the earliest for the Clinical delay to catchup to research. 

As I mentioned earlier it has been 100+ years since doctors’ have seen Primary Pellagra in a Clinical setting.

 http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

 And it isn’t Primary Pellagra that is the problem here. 

It is a phenomen that is called Secondary Pellagra.  It didn’t know what it was either.  And I have studied the topic extensively.

See this link from the doctor’s healthy press (Yes doctors have to look things up too) that explains the difference very well.

https://www.doctorshealthpress.com/food-and-nutrition-articles/pellagra-vitamin-b3-deficiency-causes-symptoms-and-treatment/  

I will quote for reference.  

1. Primary Pellagra  

“This form of vitamin B3 deficiency is related to a lack of nutrition, such as not getting enough eggs, meat, seafood, or green vegetables in your diet.  

Alcoholism is often a factor with primary pellagra, for the reason highlighted above.  

2. Secondary Pellagra  

Those who regularly consume sufficient amounts of vitamin B3 may still deal with this condition. Secondary pellagra is the result of improper absorption  

of the nutrient, whether as a whole or partially. This is observed with gastrointestinal diseases that do not accept the niacin.” (Celiac disease)

 It is me again pellagra and celiac posterboy.  

So now we know what else it (Celiac disease) could be?

Now the question remains will it take another 17 years for the doctor’s to have you checked for it  or for you to believe a Vitamin might help you?

Now Pellagra (and other B-Vitamin diseases) can be tricky to diagnose.  

Because for some diseases there are not good/reliable “blood serum” test’s to confirm the clinical suspicions.  

A cause and effect method is often used.  If taken the B-Vitamin (NIACIANAMIDE) helps your GI problems then Pellagra or at least Secondary Pellagra was a contributing factor in your GI problems.

Dr. Prousky tested this theory. You guessed it almost 17 years ago.   Next year will be 17 years and still this modern research has not trickled down to a Clinical setting. 

http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm  

And why I have been inspired to share my Celiac story of the road not taken.    

The Pellaga road was not taken in my diagnosis either.  The doctor's did not know this could be a valid reaction to NCGS or Celiac Disease. 

Knowledge is power.  Now you have the knowledge to do different and probably better than you are doing now if Secondary or Rebound Pellagra is causing some of your same GI problems and this is making your original Celiac disease symptom's even worse.  

This is mostly for those still looking for answer's despite being gluten free for 2 or 3 years and are still having "control" issues or  

have become ultra sensitive to many more proteins (food allergens) like even Corn for example.  

Pellagra was first diagnosed with corn based food stuffs.  And promptly forgotten years ago.  

See this great newspaper summary of how "Pellagra in the South" presented itself 75+ years ago.  It is actually a fairly new article about this topic.  

Only a year old.  And found it amazing that others (though few) still talk about it today. 

http://www.timesfreepress.com/news/life/entertainment/story/2016/jul/12/clif-cleaveland-pellagrand-history-south/375065/  

But doctor's haven't yet figured out that Rebound/Secondary Pellagra is estimated to occur in 58% (majority) of first diagnosed NCGS or Celiac patients. 

If the normal clincal adoption curve applies here then it will be another 15 year before doctor's acknowledge that indeed the corn allergy occuring in Celiac's  

is really from Secondary Pellagra.  

You have probably heard this phrase there is a "generation gap" . . . well if the trend holds in clincial adoptation and bleeding/leading research then indeed it will be another "generation" before this "Clincial Gap" will be closed.

Then and only then will people begin to listen  and get better .  . .And I hate that for those still suffering . . . because every hour/patient/person matters.  

****this is not meant to bee medical advice only the path I took.  Yours might be different. But there is a 50/50 chance it might help.  

I don't know what else to say.  With my changing  life and farm responsibilities/realities I will not get to participate on this forum the way I once could  

so I wanted to say what happened to me with the hopes it might help those who might be still be suffering from rebound/Seconardary Pellagra  

triggerd by their NCGS/Celiac disease.  

You can rebound from Pellagra.  I have praise bee to God!  

The Celiac diagnosis might still be retained if Secondary or Primary Pellgra was not the cause but if it (Pellagra) was the primary cause  

then the Secondary Celiac diagnoses/symptom's will improve with Niacinamide supplementation taken 2 to 3 times a day for 6 months I truly believe.  

I have emphasized the NIACINAMIDE form on my blog posts/in my threads because it is the non-flushing form of Niacin.  

**** Again this in not medical advice.  One size does not fit all.  Some people do respond to supplementation.  Some do not.  You will only know if you try. . . . and sometimes you might have to try more than once to find the right form/Vitamin you need to take and why I have emphasized the Niacinamide form  

so you can learn from my mistakes!  

This is not the end of your journey. . . this is only beginning . . you will still want to supplement with the other (now) missing nutrients like Vitamin D (if you are low) or a good B-complex etc. and the Magnesium Citrate/Glycinate (mentioned in another blog post) But I must end for now.  I hope to update my celiac posterboy blog sometime in the future (about the supplementation question and what helped me) but can't do so now.  

This celiac posterboy blog is complete as I see it.  I will continue to post as I learn new things.  

Like how I learned two are two forms of Pellagra. Primary and Secondary Pellagra which type do you have?

After 250+ pages of blogging you will either be convinced or not.  I can’t change your mind.  You will either continue suffering or decide to try the Niacinamide.

If you have a GI problem of any kind like IBS, GERD, UC, Chron’s, NCGS or Celiac disease there is a good (better than 50/50) chance Pellagra is you Primary disease and the other GI acronyms are your Secondary disease.  And the(y) doctor(s) has chosen the wrong (identical/ twin) disease and a cure/remission is far from your eyes.  

But if they look beyond your Celiac/NCGS diagnosis to a valid differential diagnosis of Secondary/Rebound Pellagra – it can make all the difference.

https://celiacposterboy.wordpress.com/2016/02/16/look-beyond-celiac-to-pellagra-for-your-gi-issuesproblems/  

You can rebound from Pellagra and this Primary cause of GI problems should be eliminated first before a Celiac disease is proclaimed the proper/valid diagnosis.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my celiac posterboy blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

https://celiacposterboy.wordpress.com/2016/01/23/to-educate-is-to-free-part-two/  (A Physician’s Guide)

If you think your doctor is interested and would be willing to trial you on Niacinamide to see it could help your GI problems.

My doctor has and is better and his patients have rebounded from undiagnosed Secondary Pellagra!  Only if he/she/they would think of it as the Primary disease many Secondary Celiac disease symptoms/patients could/would get better! Because they have identified the wrong disease in the first place . . . people suffer unnecessarily.

Don’t suffer any longer.  Eliminate today Pellagra as a possible differential diagnosis and take Niacinamide 3/day for 6 months.

Don’t suffer another 17 years before the doctor’s clinical gap is closed before they recognize Celiac disease as Pellagra in the vast majority of their GERD/ NCGS/IBS/UC/Chron’s patient in/at its earliest Secondary stage before it’s the Primary presenting symptom’s.  Secondary (Primary) Pellagra is not as rare as doctor’s think it is!

See how many GI diseases can be eliminated when you get the Primary disease (Pellagra) treated FIRST! And not LAST!

See my celiac posterboy blog link that explains why this is today.

https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/

But if you don’t get the correct diagnosis/disease in the beginning then you don’t get better.

Oh you cope, manage, continue to have flares get more sensitive to other proteins lactose, soy, corn (there is that corn thing again) etc.

You are said to be a Celiac who is supersensitive?

There is no hope for you now?  The doctor’s don’t know why you continue to have problems.

You have removed gluten from your diet… you should get better.

But you never do . .. . you just get more sensitive and more sensitive to more food allergens (proteins) that your body can no longer digest (Corn anyone).

Stop the Madness!!!!! (Errors)

Get the right disease Pellagra and get better the way other Celiac’s have!

Pellagra was FIRST diagnosed in corn consuming patients 100+ years ago and yet this is lost on doctors’ today! But is often the LAST disease considered today long after you have received your NCGS/Celiac diagnosis despite having trouble with Corn. .  .  you are just a “super sensitive” Celiac.  

I will say it again!!!!  For Emphasis!!!  Maybe if I say it enough people will get it!

Stop the Madness!!!!! (Errors)

Get the right disease Pellagra and get better the way other NCGS/Celiac’s have!

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it often enough (2 to 3 times a day) long enough (6 months at a minimium).  It should as I have said elsewhere in this blog it should be taken UNTIL you are BURPING and I might add burping WITHOUT BLOATING and your stool begins to SINK where it probably floats now.  Most people will burp when taking Niacinamide in 4 to 6 months or less taking it 3/daily — ie with each meal. (Especially if you are not already taking an acid reducer like a – Proton Pump Inhibitor (PPI’s etc.)

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

By The Celiac Posterboy who writes/blogs about the digestive disorders that Pellagra causes today often presenting as other diseases such as GERD, IBS, UC, Chrons or other GI problems and even NCGS and in Time Celiac Disease.

For many Celiac diagnosis’ take 12+ years often. (There is that “Clinical Gap” again) a devastating delay in finding the Correct (Primary) diagnosis as Pellagra Undiagnosed!

It takes 4 to 6 months to overcome your dependency on this Vitamin for your mucus membranes (GI lining) to heal itself.   (These are meant to be conservative times you might experience relief before this time but do not stop taking the Vitamin for at least 6 months because you need a reserve against future stresses/trauma).  

2 Timothy 2: 7  “Consider what I say; and the Lord give thee understanding in all things” this included  

Researchers have been unable to explain why Celiac Disease develops at any age? UNTIL now; Epigenetics (STRESS) discovered as cause of Celiac Disease and/or Non-Celiac Gluten Sensitivity (NCGS) by the Celiac Posterboy

“According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which we’ve never understood…[t]here is an environmental trigger.“

https://celiacposterboy.wordpress.com/2014/07/16/is-it-ncgscd-or-low-stomach-acid-mis-diagnosed/

It should be noted here regarding Gut Bacteria that Ulcers (95%) develop when you get an overgrowth of H. Pylori (change in Gut Bacteria) which indicates low stomach acid see my wordpress blog entry “Is it NCGS/Celiac Disease or Low Stomach Acid Mis-diagnosed” affecting inflammation in your GI system allowing if this article is to be believed further inflammation due to dysbiosis (inbalance) of good to bad bacteria ratio.

https://celiacposterboy.wordpress.com/2014/07/16/is-it-ncgscd-or-low-stomach-acid-mis-diagnosed/

Read the whole article for your selves but what I want to emphasis here!!!!! Is “So far, researchers have been unable to explain why 30 per cent of people have genes that can cause Celiac disease, but only 2 to 5 per cent actually develop it. Also a mystery is why the disease develops at any age. Higher rates of celiac disease are being driven not just by better testing and awareness, but also by external triggers.” Ie there is … “an Environmental Trigger” STRESS aka Epigenetics.

Again “Researchers have known for some time that people with Celiac disease have different types of gut bacteria than those without Celiac disease, but they didn’t  know whether the changes in gut bacteria were caused by Celiac disease, or the other way around.” … . for emphasis researchers have known FOR SOME TIME that there are “external triggers” are as they say an environmental cause/trigger (STRESS) for at least the 2 to 5 percent that develop full blown Celiac Disease and maybe much higher since they are only tracking 30 percent of the population. Not to mention NCGS presenting as IBS in 84% of patients.

See my blog entryhttps://celiacposterboy.wordpress.com/2015/09/22/doctors-get-a-d-for-diagnosing-non-celiac-gluten-sensitivity/ a “F” really because they get wrong disease and steal your hope of ever getting better! but I didn’t want to sound too harsh!  But the time has  come to speak plainly so the other 2/3 of the population can learn that a Vitamin can help their GI problem before they receive a NCGS/Celiac diagnosis or worse only IBS or Chron’s not realizing Pellagra is a better differential diagnosis!

Those who’ve they have discriminately eliminated by genes the other 2/3 of the population but we find people in the other 2/3 (spouses) are at a higher risk even those who “forget” to get the right genes for Celiac Disease!

https://celiacposterboy.wordpress.com/2015/07/07/spouses-of-celiac-disease-at-higher-risk-new-research-shows-of-developing-celiac-disease-themselves-establishing-epigenetics-stress-as-possible-cause-of-celiacncgsibsgerd/ get Celiac at a higher rate.

Mind you these people don’t’ have the genetics for it.

Now technically if we listen to “Classic Genetics” only those who have the GENES can get sick?  Right?

How can this be?

Well they forget to consider the “external triggers” STRESS … ie their Environment? https://www.celiac.com/articles/23149/1/Gliadin-Triggers-Innate-Immune-Reaction-in-Celiac-and-Non-celiac-Individuals/Page1.html

See this information is reported on Celiac.com now almost over 3 years ago this month of earlier research reported 15 + years ago.

Researchers have known for some time that as they (genetic researchers) call it Adaptive Immunity can and does trigger Celiac disease in those without the GENES for it ie Epigenetics.

I will quote here again from Celiac.com  “research that suggests that gluten proteins might trigger an immune response in people who do not have Celiac disease, and  (THOSE ) my words added for emphasis) who do not carry the HLA-DQ2 or HLA-DQ8 genetic markers that predispose them to developing Celiac disease.

Such a response is part of a process called innate immunity, and is far less understood than the adaptive immunity process.” In case you missed it or didn’t read my link from earlier tumblr post spouses of Celiac’s at higher risk.

https://celiacposterboy.tumblr.com/post/123410867299/spouses-of-celiac-disease-at-higher-risk-new shows of developing Celiac Disease themselves.

Again on Celiac.com (they are actually reporting this information) but don’t well understand 

https://celiacposterboy.wordpress.com/2014/08/21/stress-kills-but-it-maims-us-first/ STRESS is the trigger.

See https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

STRESS is common before a Celiac Diagnosis.

I am trying to educate here.

https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/

The reason it is not well understood why Celiac develops at any age by researchers today is they don’t well understand what they are reporting. How is this possible? It doesn’t fit there (genetic) paradigm.

They admit as much in their research.  They don’t know Pellagra presenting as Celiac Disease or NCGS explains a seronegative Celiac diagnosis going as far as to call it “guesswork”!  Not high praise for the Medical community or something to have a lot of confidence in.

https://www.celiac.com/articles/24894/1/Can-Science-Take-the-Guesswork-Out-of-Diagnosing-Seronegative-Celiac-Disease/Page1.html

The way we see things simply stated is our “world view”.  IF genetics in our world view eliminates us from ever possibly developing Celiac disease then Spouses (those STRESSED) would not/COULD not ever develop Celiac disease which simply is not the cause.

Vitamins are a/the very definition of Epigenetics.  At least this researcher is looking for “an external trigger” realizing his world view (of Celiac) is if not wrong imperfectly explains why only 2 to 5 percent of those pre-genetically disposed to develop it actually does? Not even to mention the 2/3 of people who will never be tested for it? See above (spouses at higher risk/stress (epigenetics) common (triggers) Celiac diagnosis.

Where does this leave us?

If I am right and epigenetics (STRESS) as reported on Celiac.com triggered your Celiac diagnosis then Epigenetics is reversible – genetics is not at least if you believe “classic genetics” where your gene’s is your destiny.

But what if we are both right?  1/3 of the population has a higher genetic propensity for a Vitamin (Niacinamide) that helps us regulate stress (it makes us itch as an example) in the body and precisely why when people are stressed do not flush when taking Niacin an example of cause and affect proving that Niacin helps us deal  with stress in the body. Then what if we supplement with this missing vital (life giving) nutrient (Vitamin) in a minimum amount (Epigenetics).

Is this not TRUE for all Vitamins?

In the early 20th Century what could be rightly called the “Vitamin Age” we begin to find out this very basic concept that Vitamin’s make us healthy.

I’ve touched on this elsewhere in this blog and why we enrich our foods (folic acid any one) or Iodized Salt are great examples that are with us today.

Do we really need to relearn (educate ourselves) what we learned a 100 years ago that Vitamin’s keep us healthy?

If you have not heard of Pellagra you are not alone. Read Dr. Heaney’s blog post about how it has been forgotten and we are repeating the mistakes of history again over and over by denying how Vitamins make us healthy.

http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

See my Celiac Posterboy blog entry “Is NCGS and or Celiac Disease really Pellagra in disguise in the 21st Century” for more information on that subject.

https://celiacposterboy.wordpress.com/2015/05/21/is-non-celiac-gluten-sensitivity-andor-celiac-disease-really-pellagra-in-disguise-in-the-21st-century/

They answer is yes by the way in the majority of Celiac’s and they don’t know to look for it and don’t see it as Pellagra today!

Take the Niacinamide Challenge   https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/  for YOURSELF and see if you don’t begin BURPING in  4 to 6 months (or less) of taking Niacinamide 3 times a day (with each meal).

Then tell other’s is all I ask. Vitamins can make us healthy when we are low!  See my https://celiacposterboy.wordpress.com/2015/12/04/whos-afraid-of-a-b-vitamin/ In this “genetic age” today we live in it is not well understood anymore that Vitamins can reverse many complex diseases (beriberi, rickets, anemia, pylouria, scurvy, pellagra etc) that are not well understood nutritional deficiencies today masquerading as genetic diseases in this age of modern medicine (a pill/drug for everything) if Prousky and many Functional Medicine doctors who know Niacin treats digestive disorder are right! see this link http://www.yourhealthbase.com/database/a124b.htm

See how I conquered Celiac disease in my life and learn from me if you will. https://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/  

And how you can too! If you are being STRESSED out!

https://celiacposterboy.wordpress.com/2014/08/21/stress-kills-but-it-maims-us-first/

****this is not medical advice and should not be considered such it is only my personal experience with taking Vitamin B-3 as Niacinamide to help my digestive issues.  YOUR experience might be different but I have found when people take Niacinamide 3/day for 3 to 4 months most GI issues go into remission.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

The Celiac Posterboy by the Grace of God,

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Start spreading the NEWS  Celiac is not a genetic disease but AN Epigenetic disease; OR Pellagra Commonly Misdiganosed in this Genetic Age!

Learn about how this/the ONE Vitamin Niainciamide can help GI diseases of all stripes and kinds.

Let’s take the Vitamin road back to health.

Or the Road NOT Taken (Today too often)  (The Vitamin Road)) can make all the difference when you’ve found the way back to health.

It’s not a Long Way back if you know the way – the Vitamin Way!

Let’s walk it together!  Epigenetics’ found as the cause of Pellagra AKA as Celiac disease TODAY instead.

How do we know these things??

Or can we?? New research every day (seemingly) comes out about how Niacin helps us with STRESS in our lives.

And can even help with seemingly GENETIC conditions.

See this latest research on Niacin helping previously thought as genetic conditions that Niacinamide helps treat and prevent.

Vitamin B3 (may) prevent some miscarriages birth defects new study says

http://www.cnn.com/2017/08/10/health/vitamin-b3-birth-defects-miscarriage-study/index.html  

What was (or traditionally) considered a genetic  problem like birth defects are now being proved to be just a Vitamin deficiency all along!

What great breaking research!

This is because quoting the article “The body needs B3 to make a protein known as nicotinamide adenine dinucleotide, or NAD. It is found in all living cells and is essential for them to make energy, repair genes and communicate with other cells.”  

And genetic defects (genetic sounding disease’s occur) when there is not enough Niacinamide in the body to protect us from STRESS!

Because we can’t make enough energy to repair our genes!

Continuing to quote the article

“Each of the families had children with birth abnormalities, affecting in particular the vertebrae, heart, kidney, anus, esophagus and trachea, or limbs.

The team detected gene mutations in some of the mothers associated with a deficiency of B3 and an inability to synthesize enough NAD. . . . However, once vitamin B3 was introduced into the diet of the pregnant mice, the miscarriages and birth defects ended, and all the pups were born healthy. “

The March of Dimes agrees this is very exciting research.

Quoting again

"This is exciting and very encouraging research," said Dr. Lisa Waddell, deputy medical officer at the March of Dimes, which funds research and programs to end premature birth, birth defects and infant mortality.  

Yet they still caution don’t take a  Vitamin for your child’s health even in the face of mounting evidence that a Vitamin keeps these horrendous (once) thought genetic conditions at bay.

Stop the Madness!

How many more people must get sick of genetic conditions caused by a Vitamin deficiency (epigenetics) for Doctor’ to listen!

Vitamins make and KEEP us healthy.

Praise bee to God!

Yet people don’t know today that Niacin(amide) helps treat digestive problems even though medical research confirmed that low Niacin (15+ years ago) leads to low stomach acid all too often being diagnosed as HIGH stomach acid today instead.  

See this link to the abstract proving/showing how low stomach acid (and most GI problems) can be put in remission by taking Niacin as Niacinamide UNTIL burping without bloating is your new normal! http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm  

I have not updated my blog lately because I have spent most of my time guest posting on another popular celiac forum trying to educate people of this fact!!!!!! But few seem to have ears to hear!

I will elaborate more on this in my next post part 2 of how Celiac/NCGS is not a genetic disease but an Epigenetic disease (I.E,) Vitamin deficiency commonly misdiagnosed today!

And as long as you get the wrong disease (NCGS/IBS) etc. you get the wrong outcomes because the underlying condition does not go away . . .. it just goes underground for a while.

Only to resurface as something more severe latter . . .  Oozing under the radar until it becomes an official diagnosis of Celiac disease.

Don’t let be the last to hear Gluten Juneteenth has been declared! https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/

*****Note: I have been blogging pretty consistently for 3+years and only one or two a year (at least that I hear from) hear and are helped!

Who knows how many haven’t contacted me.  Let’s hope it is in the thousand’s.  Because too many people are suffering unnecessarily because they have not heard of Gluten Juneteenth yet!

quoting the Celiac Posterboy

“Juneteenth 06-20-14

(Look up Juneteenth (historically) if you don’t know what it means) Don’t be the last to hear.

NCGS masquerading as Pellagra has been cured. Ye need not be a slave to gluten any longer.

The cause of remission has been found.

You have a vitamin deficiency. Tell those you know. They need not be a slave any more to gluten and its ravages.

You have been enslaved by ignorance. Through off this lie and learn how the Celiac Posterboy discovered for himself how to be free from the ravages of gluten – once and for all.

Hidden in the medical text books is the real cause of your gluten bondage. You have a vitamin deficiency/dependency responsible for poor carbohydrate digestion i.e, gluten.

Take this vitamin and be free of gluten from hence forth never to be enslaved again. How do I know this? Well I have been able to eat gluten again . . . and not be glutenized by accidental exposure.

I am not afraid of gluten shackling me again to a gluten free life. I have been able to eat gluten again for 7 + years now after being gluten free for 4 years – a slave to its ravages.

You too can be free! I am 90 percent confident in as little as 6 months. (It will be another 6 months before you have confidence in this fact but that is another story) If you will take Niacinamide 3/day for 4 to 6 months.

If you follow the Celiac Posterboy’s protocol for Celiac/NCGS remission.

I am not selling a cure.

You can/could be enslaved again by gluten if you don’t know the signs of its hideous insidious eating away at/of your insides.

But I will teach you — if you will/want to learn “How to Fight Gluten and Win” What are these symptoms so that you need not fear gluten again.”

Read also this celiac posterboy blog post/link how researchers-have-not-been-able-to-explain-why-celiac-disease-develops-until-now-part-2-epigenetics-stress-discovered-as-the-cause-of-celiac-diseasencgs-by-the-celiac-posterboy/

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

Remember:  *** This is NOT medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But my doctor has healed himself of digestive stress (GERD/Heartburn/IBS/Constipation/Diarrhea) with a Vitamin and you could too I believe if he/she/YOU reader of this Celiac Posterboy blog post  would take a Vitamin for your GI health.

SADLY! Few to few have listened.  But some (Celiac’s) have heard (listened to) the good news that Pellagra today is being diagnosed as Celiac disease and is reversible and (many) have gotten better.  Don’t be the Last!

The Celiac Posterboy by God’s grace.  

2 Timothy 2:7  “Consider what I say; and the Lord give thee understanding in all things” this included

Is it NCGS or low stomach acid mis-diagnosed  

Low Stomach Acid and Celiac Disease

I had written a smaller shorter post previously that seem to resonate with people and am now including updated post(s) that include more of the things I have learned since then.

Here is the link if you want a “cliff notes” version of this longer more technical post. https://celiacposterboy.wordpress.com/2014/07/16/is-it-ncgscd-or-low-stomach-acid-mis-diagnosed/  

This will be a two part post as this post became too long to manage as one post.  I hope this is helpful.

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

Dear Gluten Intolerant,

Low stomach acid has now been linked to a probable cause of damage to the Small Intestine before and/or occurring with a Non-Celiac Gluten Sensitivity (NCGS) or Celiac diagnosis.

See this research as reported on celiac.com that discusses the increased risk of/for someone to develop celiac disease after taking PPI’s.

http://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html

Note how the article starts quoting

“Rates of celiac disease and the use of drugs to inhibit the secretion of stomach acid have both increased in recent decades. A research team recently set out to explore the association between anti-secretory medication exposure and subsequent development of celiac disease.”

If these medicine are lowering stomach acid what cause effect relationship does/ could this have on Celaic/NCGS diagnosis is what he is postulating.

He goes on to say without being very technical (read the whole article for yourself) that

“The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines.

The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship”.

If even after a year OFF these medicines your chances of developing Celiac Disease (CD) not to mention even NCGS which is much more prominent surely the researcher is correct in postulating that there is a cause and effect relationship between low stomach acid and NCGS and/or Celiac disease.  

Surely there is something we can learn here.

I now postulate some homework for the reader of this blog post.

Do some research for yourself and see if achlorhydia or hypochlorhydia symptoms don’t at least resemble in some manner all of the GI symptoms you have been having. (I note some of the many symptom’s low stomach acid can present with below as referenced from Dr. Myatt’s online article “What’s Burning You” for easy reference (It might not be what you think (my words))

It is important to note here that “some” symptoms does not mean all but many or several.

It is called a differential diagnosis.

It is an important diagnostic tool in medicine. Think of the tv show “House” where they spend the whole hour/over a week times going through the ‘differential diagnosis’ in short any one symptom can/have many different causes.

The trick is how to quickly eliminate possible outcomes as symptoms (many) go up.

All is usually never meet because that would make the disease in full outbreak and obvious even to the layman a condition described as “frank” or “classic” Scurvy or Rickets as an example.

Sadly too often after 8 to 10+ years of testing after all the differential diagnosis’s are ruled out you are said by process of elimination to have Celiac Disease if you are lucky or maybe NCGS and not some other acronym GI disease as I like to refer to them as a group.

GERD,IBS,UC, Chrons etc because if they turned down that street … . you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s).

So in summary if 3 or 4 or 5 or 6 of these symptoms overlap “many of’ these symptoms could be Low Stomach Acid related.

IF that is the cause/case for you then there is hope! For remission!

From Dr. Myatts’ Online article what’s burning you? http://healthbeatnews.com/whats-burning-you/  

Diseases Associated with Low Gastric Function

Low stomach acid is associated with the following conditions:

* Acne rosacea

* Addison’s disease

* Allergic reactions

* Candidiasis (chronic)

* Cardiac arrhythmias

* Celiac disease

* Childhood asthma

* Chronic autoimmune hepatitis

* Chronic cough

* Dermatitis herpeteformis

* Diabetes (type I)

* Eczema

* Gallbladder disease

* GERD

* Graves disease (hyperthyroid)

* Iron deficiency anemia

* Laryngitis (chronic)

* Lupus erythromatosis

* Macular degeneration

* Multiple sclerosis

* Muscle Cramps

* Myasthenia gravis

* Mycobacterium avium complex (MAC)

* Osteoporosis

* Pernicious anemia

* Polymyalgia rheumatica

* Reynaud’s syndrome

* Rheumatoid arthritis

* Scleroderma

* Sjogren’s syndrome

* Stomach cancer

* Ulcerative colitis

* Vitiligo 

When low in stomach acid we become low in essential nutrients

Quoting from Dr. Myatts “what’s burning you” article

“Our bodies need 60 or so essential nutrients. “Essential” means that the body MUST have this nutrient or death will eventually ensue, and the nutrient must be obtained from diet because the body cannot manufacture it. Many of these essential nutrients require stomach acid for their assimilation. When stomach acid production declines, nutrient deficiencies begin.

Calcium, for example, requires vigorous stomach acid in order to be assimilated. Interestingly, the rate of hip replacement surgery is much higher in people who routinely use antacids and acid-blocking drugs. We know that people who have “acid stomach” were already having trouble assimilating calcium from food and nutritional supplements due to lack of normal stomach acid production. When these symptoms are “band-aided” with drugs which decrease stomach acid even more, calcium assimilation can come to a near-halt. The result? Weak bones, hip fractures and joint complaints resulting in major surgery.

Jonathan Wright, M.D., well-known and respected holistic physician, states that “Although research in this area is entirely inadequate, its been my clinical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12.”

Remember, these are essential nutrients. Deficiencies of any single one of them can cause serious health problems over time. Weak bones, diminish immune function, failing memory, loss of eyesight and many other “diseases of aging” are often the result of decreased stomach function.”

 It is me again reader.

So low stomach acid is the triggering agent (often) for low nutrients.

Make too much sense!

Now don’t take Vitamin’s for this condition where low Vitamins/Minerals are known to be low in patients who have this condition because . . . . (if you do you won’t need to keep coming back to the doctor) I can almost hear the doctor say now.

Of course he/she doesn’t say that . . . just that the “average person” doesn’t need to take Vitamins.

Well I hate to break it too you . . . . but if you are having GI problems and reading this blog post on the celiac posterboy’s blog then you are not the “average” person.  You my friend or a sufferer or a friend of a sufferer still looking for answers.

If that is you then consider taking either powdered stomach acid – Betaine HCL or taking Niacinamide to help you reset your stress clock.

A Canadian researcher wrote about this connection 15+ years ago but still most doctors’ don’t understand this connection between about how “Niacin treats digestive Problems”

Here is the full link so you can research it more yourself. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml 

And you might not after a first reading.

I didn’t believe it myself for over a year .  . . but every time I thought about it – it (Low Stomach Acid) made/makes the most sense to me. 

**** Note: research this yourself.  Here is a link about how to take Betaine HCL (powdered stomach) for maximum effectiveness. http://20somethingallergies.com/how-much-hcl-do-i-take-learn-to-test-for-your-correct-dose/  

Don’t take my blog post as medical advice.  It is only what I did . . . it might not work for you but I think it is worth a try especially if you are not now taking an acid reducer. (see notes below about why this might) be more difficult if you are already taking an acid reducer . . . because the rebound wall (see/google chris kresser  what everybody should know about stomach but doesn’t) keeps us locked in . . . sometimes for years.

Since I was not taking acid reducers at the time I took Betaine HCL my stomach problems improved and I am sharing this now in the hopes it might help yours too!

Now back to (really) LOW stomach acid being diagnosed as HIGH stomach acid these days.

How can we know if it truly high or low?  You’ve heard the phrase timing is everything well it is here too!

Timeline is important in any diagnosis.

IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor aka acid reducer’s for heartburn/GERD (medical name for heartburn) then eating food (carbs, greasy things) wouldn’t bother you.

The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.

BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn.

Leading in time to Non-Celiac disease first and with enough injury (and time) to Marsh lesions qualifying you for diagnosis as a Celiac candidate/ patient.  See above link between/about PPI’s in the year preceding a Celiac diagnosis.

If you (can) be that patient and weight the xx number of years for all this damage to occur, there is a better way it is called digestion!

A virtuous cycle can replace the vicious cycle you are now in – it is caused digestion.

Digest your food with healthy stomach acid and your body will thank you for it with the God given burp.

A healthy child burps (at 6 months of age normally) and a healthy adult should too and you will again after taken Niacinamide 3/day for 6 months or this is not the right diagnosis.

*********Note this is not medical advice only my experience with Niacinamide and my many years researching this topic as a fellow (now former) sufferer.

Let me make these disclaimer(s).

If you are a) experiencing heartburn that causing vomiting (with unintended weight loss) you may have a special case of heartburn that feels like heartburn (on steroids) that is really Bile Reflux and taking Stomach is not something you should do without medical advice and supervision.

See this NYtimes article that discusses the many complications often seen with Bile Reflux patients and why it is treated as Heartburn often and why Bile Reflux is especially hard to recover from.

http://www.nytimes.com/2009/06/30/health/30brod.html  

b) you are already taking an acid reducer then the chance you will get better (off of acid reducers completely) is only 50/50 on your first try but going low CARB can help your transition.

Otherwise most people will get better when taking BetaineHCL for gastric support and Niacinamide to help them/you reset your digestive processes.

See this online article about how Jo Lynne Shane got off Nexium for good. http://www.jolynneshane.com/how-i-got-off-nexium-for-good.html  

and her Epilogue http://www.jolynneshane.com/epilogue.html  

You will see she still struggles some but is much better when she let her natural digestive juices do their job.  I call it the “Natural Order of Things”.

See this article about the digestion process being a North South Affair from the bodywisdom website http://bodywisdomnutrition.com/digestion-a-north-to-south-process/  

Also see these posts by the Celiac Posterboy that explain in more detail how to get off of Nexium/Prilosec for good and why this (low stomach) is happening and/or how LOW stomach acid is mimicking IBS, GERD, NCGS and/or Celiac disease in its’ most advanced state is happening and what you can do get off of Nexium or Prilosec for good.

https://celiacposterboy.wordpress.com/2014/10/15/way-back-from-nexium/ 

https://celiacposterboy.wordpress.com/2016/07/08/why-burping-is-good-and-bloating-is-bad-by-the-celiac-posterboy-and-how-to-begin-to-burp-without-being-bloated-a-healthy-state-of-good-digestion/ 

Taking it (Niacinamide) (or any B-Vitamin) should be taken 2 to 3/day (too keep up serum levels) for 3 to 4 months (the time you can store B-Vitamins) in the liver mostly.

Once you have a distinctive BURP that displaces the bloating and sense of “I am going to explode” if I eat another bite (though you haven’t eaten half your meal) then normal digestion is occurring again.

If you stool did not sink before this process (of taking Niacinamide begun) and burping became your “new normal” then it (your stool) will begin to sink too!

Burping without bloating is the “Natural Order” of good digestion.

This (low stomach acid) thing is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle.

All heartburn is not equal. IF your stomach acid is truly high then it WILL occur between meals when there is no food to tamp down the fire (occurring in your stomach) not your esophagus. 

The excess pressure from fermented carbs push open the trap door allowing the low acid you have to burn the lining of your uncoated esophagus.  (More on that later) in the next post.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

But I think you will find in 3 to 4 months of taking Niacinamide 3/daily that  as a healthy child burps at 6 months? right that is how we know it’s digestive system is strong enough to digest real food.  That it it’ true for adult’s as well.

See my the “Way Back” http://www.celiacposterboy.com/Epilogue-Way-Back-002.htm Celiac Posterboy.com page about the process you have to go through with your mind to convenience your brain what your body already knows when you begin BURPING for the first time in years and year that something knew and wonderful is now happening – Digestion in all its beautiful glory! and Gluten and Lactose need not be(e) a problem for you any longer.

But it will take probably a year to convenience your MIND what your body already knows that is why the “2 proofs” are so important to understanding that something NEW different and WONDERFUL is now happening to you – DIGESTION as it was meant to happen.   The “Natural Order” of things.

You are/will bee BURPING in 4 to 6 months Praise/Thanks be(e) to God!

After 6 months of no flareups or “accidental” glutening’s even when your friends still suffer from “good” compliance/control from background gluten or gluten cross contamination issues  18 to 20 hours after the “glutening” you will be once a day regular.

Your mind will slowly catch up. To what your body already knows. Niacin treats digestive problems http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm  

This research is 15+ years old and doctors have not caught up to this fact either.  You needn’t suffer any longer if your LOW stomach acid is being misdiagnosed as NCGS, GERD, Heartburn, IBS, and yes even Celiac Disease then remission from LOW stomach is possible.

It worth noting again with the same emphasis I started this blog post with that Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

For I have found if people finds success in other non-traditional ways i.e, Vitamins etc..  .. people get frustrated by this and will often attack people who are saying different things.

You don’t need a Vitamin etc?  

WELL if you are reading this blog post either you or a friend is still suffering and I can’t say for 100% percent certainty this will help you the way it did me.  I can say for 100% certainty it helped me!

And I pray to God it helps you too!

I really believe God helped me to understand these things for myself 2 Tim 2:7 and I am just trying to help others’ as I have received help of God 2 Cor 1: 3,4 .

Tell someone (share) is all I ask Are You a Starfish (Part 2 – of a Former Sufferer’s Journey) tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about the/this Celiac Posterboy blog post

Or my book  “How to Fight Gluten/GERD and Win” is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who STILL need help.  

And maybe you are one of them!   Starfish/reader If you are one of those one who is still suffering from a medical misdiagnosis if so remission is possible!  I did not say “cure” but remission is possible.

This is longer than I planned as most of my posts seem to be but when you are trying to fight error and confusion it takes a lot of (un)learning to educate ourselves.

(Digestive) Peace is possible but it takes works to educate ourselves to the real cause.

As I have said elsewhere in this blog.  It not a long way back if you know the way.  Let me be your guide way back for God being my help I have found digestive peace.  Praise bee to God!

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

The Celiac Posterboy by the Grace of God,

It doesn’t work that way sadly . . . but it should… How Niacin and/or Niacin as the Amide form of Niacin aka Niacinamide treats the Skin issues associated with Pellagra now commonly confused for the DH of a Celiac diagnosis today by the Celiac Posterboy

This is a summary of a thread of fellow sufferer from a former sufferer

When I first started blogging on my Celiac Posterboy blog.  I thought those who need to hear it most (if I was right and it could help Celiac's) then they would want to know.  

It doesn’t work that way sadly . . . but it should…

Sadly it doesn't work that way often . . . despite giving away 500+ books and  probably 100+ bottles of Niacinamide to people I still get it given back to me instead of people trying a vitamin.

Education is hard . . . and it doesn’t happen overnight sadly it takes a generation (often) for people to relearn what the generations that knew these things (Vitamins help people stay healthy) for the current generation to learn. I say https://celiacposterboy.wordpress.com/2016/02/06/time-for-a-vitamin-reformation/ if we take back our cornerstone's (vitamins and minerals) then our health will correct itself.

My way is not the only way.  It is the only way that helped me.  It is actually a contrarian opinion that in this genetic age often falls on death ears way more often than I could imagine 5+ years ago when I thought if I wrote a book about my experience then people would listen and be helped.  But I find the longer someone suffers the less they are apt to listen because   "everybody is right" in their own mind.

see this post are you a starfish quoting the poem by Loren Eisley https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey

The Starfish Story Original Story by: Loren Eisley

“One day a man was walking along the beach when he noticed a boy picking something up and gently throwing it into the ocean (world wide web) . . .

Son, the man said, don’t you realize there are miles and miles of beach and hundreds of starfish?

You can’t make a difference!

After listening politely, the boy bent down, picked up another starfish, and threw it back into the surf. Then, smiling at the man, he said I made a difference for that one.” .  .  .

People hear so much in this day and time that Celiac is genetic that when they hear a vitamin could help them . . . they often don’t believe it.

Want you listen? A vitamin can help us when we are STRESSED out. https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html  

And why my blog is/has mostly been about GI problems so far it (Niacin) does help skin issues as well.  I regularly give a bottle to friends with Acne and they all get better.

People get “locked in” and people lose hope because if it is genetic then why/how could a vitamin help, right?

See this link about the Pike Syndrome and how people get “locked in” often without realizing even most of the time. http://joshlinkner.com/2010/the-pike-syndrome/  

People stop believing there is hope anymore.

But they have to believe it will help before they take it/use it.

But more and more evidence is surfacing that epigenetics (environment) plays a role in a celiac diagnosis.

See this new research as reported in Popular Science how it is thought a virus (environment) can trigger a gluten reaction. http://www.popsci.com/virus-triggers-celiac-disease  

Lifestyle/environment is a risk factor for Celiac disease and the doctor’s haven’t figured it out yet.

The very definition of a Vitamin – something we need in a minimum amount without which we become sick.

It (GI issues) is just one of three 3 D's of a Niacin deficiency.  When it was first diagnosed in the mid 1700's it was skin disease today it mostly is associate with GI issues and hence my focus up until now.   Pellagra in Italian where it was first described means “Rough/Sour Skin” who knows that today anymore?

But I have seen it work for other's and wanted to give you hope that it could work for you by calling out people on the Celiac.com board/forum who had been helped in the same way.

See this thread on celiac.com https://www.celiac.com/gluten-free/topic/114082-at-my-wits-end-with-this-rash/ and this longer thread where sbatson has lost hope that links the above topic about how Niacin can help DH (because presumably) Pellagra is being diagnosed as DH today instead. https://www.celiac.com/gluten-free/topic/116368-dh-maybequestionsrash-is-driving-me-nuts/ But if you will notice not one Celiac/DH commenter actually tried it because they don't believe and the one who did try it from the forum thread "at wits end" did not comment on her experience with it because presumably her (DH) got better . . . mostly people on this board never find the answer they are looking for and if they do they go away just like Knitty Kitty who hasn't commented in 6 months because she/her DH got better using Niacin.

And note from the thread knitty kitty did not find it (her answer about Niacin) here either she was just reporting in the forums she found it after reading a book about it.

I didn't come to this conclusion for my self until 3+ years of study and the Lord being my help I have not looked back.

Reader Good luck on your journey. YOU will have to find the answer for yourself the way knitty kitty did. She didn't find out it from me. I just commented/messaged her that if Niacin helped then she had Pellagra Co-Morbid with her gluten problems.

The International Journal of Celiac Disease reports this http://pubs.sciepub.com/ijcd/3/1/6/

"Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite that Pellagra has been described in a Celiac Disease diagnosis.

I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac diagnosis it stands to reason that medical science is identifying the wrong disease."

from my post https://celiacposterboy.wordpress.com/2016/09/19/how-pellagra-is-often-confused-with-many-gi-diseases-like-uc-gerd-ibs-chrons-ncgs-and-even-celiac-disease-or-other-digestive-problems-in-its-late-stages-part-2-the-science-of-pellagra-a-hidden/

but they don't see it though their own research bears it out. Here is why it happened https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/

This is the only time I know this conclusion has been reached and I could be wrong. I am not afraid to say it.

But what if I am right? and a Vitamin will help you can you afford to wait another couple years till the doctor's figure it.

It took 35+ years for me to get a Celia diagnosis. And quoting Knitty Kitty again "Trying to get a diagnosis is frustrating.  I didn't get one for years" and it is even worse today for Pellagra because nobody knows today to look for it!

And not until her research matched up did/was she willing to try the Niacin for her DH.

Again good luck on your journey I hope it doesn't take too long.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

The Celiac Posterboy by the Grace of God,

Joe “Rock” Pen Name

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

I include these keywords for search purposes only but since I don’t have any support or marketing to support the knowledge of the difference one Vitamin – the right Vitamin can make when it is found can make even putting these key words in my blog post will hardly make a blip of a difference . . . in the number of people who will read this blog post or the number of people it reaches but alas . . . but it only takes one – to make a difference I hope for YOU (reader) that is you.  Praise bee to God!

But the Truth of the right diagnosis has freed me (us) and hopefully will fee YOU (reader) from the error of the wrong diagnosis.

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.

Get the correct diagnosis and get better! Praise bee to God!

THEN tell others is all I ask – however that is (post on facebook, twitter, comment on my blog,  post it on you tumblr account, email a friend this link or link this blog to yours, or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book is all I ask but don’t let the chain break with you.

Or your Acne, Psoriasis, Eczema and//or other GI problems are better than they have been in years and years and Acne is in permanent time out (remission) and your “skin” flares have gone away even though you still eat your trigger foods.

It usually takes 6 months of taking it (Niacinamide) 3/day to get rid of most of the symptom’s of Pellagra.  The GI problems, Skin Issues etc.

There a lot of starfish (sufferers’) who STILL need help and haven’t heard because the doctor’s don’t see Pellagra anymore even when it is staring back (Acne, Psoriasis, Eczema, DH etc.) at them in your faces.

A Differential Diagnosis: How Pellagra Can be Confused /is confused with Celiac Disease Today by the Celiac Posterboy

* Published 01/17/2017 * Journal of Gluten Sensitivity Winter 2017 Issue , Additional Celiac Disease Concerns

Rating:  ****** Five Stars

As Published in the International Journal of Gluten Sensitivity originally appearing on Celiac.com 01/17/2017  See this Link https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html  

A diagnosis of Pellagra will likely have many other disease presentations, not limited to acne, rosacea (dermatitis) skin rashes, depression, anxiety, dementia, etc., as well. Seventy-five or more years ago the symptoms of Pellagra were commonly diagnosed as separate diseases that were known to be of a common cause. Similarly celiac disease today is often referred to as the "tip of the iceberg," not only because of the large number of undiagnosed people, but also due to the vast range of symptoms and associated diseases and disorders that can be caused by untreated celiac disease. I assert that Pellagra could be, in some cases, related to Celiac disease, and might even cause it.

Today Pellagra has mainly been reserved for subgroups of people like alcoholics or disadvantaged groups like the homeless, who lack good protein sources in their diet to stave it off. Quoting Niki Frost from the Pellagra Disease Blog: "Since pellagra is such a rare disease today, few people recognize it based on their symptoms alone (any of the three D's: dementia, dermatitis, and diarrhea). Pellagra patients are consequently referred to specialists in fields that are ultimately unrelated to the underlying nutritional deficiency and metabolic nature of the disease." (1)

Dr. Heaney, Professor of Medicine at Creighton University, actually echo this fact when he says "In the United States, at least, Pellagra is a disease of the past, fortunately, and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention." (2) Why is this? Because, as mentioned above, doctor's don't recognized it today unless they are a specialist, and even then, according to Nicki Frost: "specialists (are) in fields that are ultimately unrelated to the underlying nutritional deficiency and metabolic nature of the disease." (3) So the cycle repeats.

Since these specialists might not consider people with celiac disease/Non-Celiac Gluten Sensitivity (NCGS) to be in a subgroup which is prone Pellagra, is it possible that some people are misdiagnosed? Skin conditions like acne, dermatitis, eczema, psoriasis, skin lesions, and mouth ulcers can be related to both Pellagra and celiac disease or NCGS. Some of the other signs of Pellagra, other than digestive distress, are dementia related symptoms such as depression, anxiety, brain fog, mental confusion, etc., which are also present in 40 percent of celiac patients. What if doctors haven't made the right diagnosis in some cases? Many people who might be misdiagnosed with celiac disease but who actually have Pellagra might not get better because they are not treating the right disease.

Pellagra and its associated skin and GI problems are totally reversible with supplementation, which is one of the reasons that many foods are enriched with niacin. Glutenfree Works covers this topic well by noting a casual relationship, but not a causal relationship. They even note that a niacin deficiency itself can cause some of these symptoms. According to Glutenfree Works:

"Intriguing animal research by Sandhur et. al. has shown that niacin deficiency itself sensitizes the intestinal mucosa of rats to gluten in wheat, barley, rye, oats and corn and induces susceptibility to gluten toxicity by means of cellular dysfunction. Human research needs to investigate this effect of niacin deficiency in human celiac disease." (4)

But no one else seems to take note of this amazing fact. The research by Sandhur et. al. is 30+ years old, but is it possible that people are suffering from all kinds of GI problems, possibly even celiac disease, because they are ignorant of this fact?

Around 15 years ago Prousky did follow up human research (5) that supports the idea that Niacinamide can indeed treat different digestive problems. It was this initial research which I read 10+ years ago that lead me to the hypothesis that Pellagra today is might be misdiagnosed as Celiac disease, because doctors are no longer able to recognize Pellagra in a clinical setting, having not seen it 75+ years.

From Dr. Heaney's blog: "2014 marks the 100th anniversary of the war on pellagra, a war that lasted nearly 25 of those years before victory could finally be declared. You have not heard of the war on pellagra? The celebration is not on your calendar? You're not alone. Why did it take so long? Was the science so intractable, like the current "war" on cancer? No. It was politics and pigheadedness that were the obstacles." Dr. Heaney says: "Nutritional deficiency was not an accepted category of disease when Goldberger started work" on his cause/cure for Pellagra, and I must also mention that it is not looked at today in those diagnosed with celiac disease. (6)

Let's look into this more if we can. Let's see what other expert's say about this. If we look at back issues of The International Journal of Celiac Disease we see a casual link that indicates a co-morbidity of Pellagra in celiac patients of 58%. (7) Note they the International Journal of Celiac Disease is not looking for a causal link but they only report casual association. In the article entitled "Two Exceptional Complications Revealing Celiac Pellagra" the author notes: "pellagra is essentially affecting tissues with a high rate of cell turnover, such as the digestive tract and the skin, and tissues with high energy needs, such as the brain". (8) If the symptoms are so similar, it might be easy to confuse one disease for the other.

How is this possible? The International Journal of Celiac Disease muses on this point too. When discussing the "exceptional" and not well understood reasons why Pellagra might show up in a celiac diagnosis, they say "Little progress has been made in our knowledge of pellagra...since Goldberger discovered that nicotinamide was a preventive factor in 1926...(P)roof of this is that there have been no changes in treatment or diagnostic criteria in the last 90 years." The International Journal of Celiac Disease summarizes this case of "Exceptional complications revealing celiac disease and Pellagra illustrates...rare complication revealing celiac disease". (8)

Since up to 58 percent of celiac patients might be co-morbid with Pellagra, could it be possible that Pellagra is the "parent disease," and the those diagnosed with celiac disease have symptoms derived from Pellagra? If we follow most normal paths for adoption it will take another 20 years (a generation) for the medical community to accept Pellagra as perhaps the proper diagnosis in some cases. So there is some evidence to suggest that medical science is, perhaps in many cases, identifying the wrong disease. If one is critically low in niacin, the 3 D's of Pellagra (Dementias, Dermatitis's, and Digestive Issues) show up.

Take the "Niacin (Niacinamide) Challenge" and see if taking it three times a day for six months don't cause a healthy GI pattern, including a once per day bowel movement that sinks and healthy burping without bloating. Taking the niacinamide Challenge may put co-morbid cases of Pellagra, including its digestive symptoms, into remission, and provide relief for many who do not recover on a gluten-free diet alone. The number one mistake people make when taking niacinamide is they don't take it for long enough. It takes 4 to 6 months to overcome a serious deficiency of this vitamin, and for your mucus membranes (GI lining) to heal itself.

Once you recover you can maintain your health, barring some future stress/trauma that depletes your reserves, at which time heartburn/GERD/IBS/diarrhea/constipation symptoms will return, and you will lose your ability to burp easily again. And the cycle repeats and the Pellagra symptoms come back with a vengeance.

Read more at https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/

References:

1. https://pellagradisease.wordpress.com/

2. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

3. https://pellagradisease.wordpress.com/

4. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/

5. Prousky, Jonathan E. Is Vitamin B3 Dependency a Causal Factor in the Development of Hypochlorhydria and Achlorhydria? Journal of Orthomolecular Medicine, Vol. 16, No. 4, 4th quarter 2001, pp. 225-37. http://www.orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml

6. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

7. International Journal of Celiac Disease. Celiac Disease: Intestinal, Heart and Skin Interconnections. 2015, 3(1), 28-30 doi:10.12691/ijcd-3-1-6 http://pubs.sciepub.com/ijcd/3/1/6/

8. International Journal of Celiac Disease. Two Exceptional Complications Revealing Celiac Disease: Ischemic Cardiomyopathy and Pellagra. International Journal of Celiac Disease. 2015, 3(1), 31-32 doi:10.12691/ijcd-3-1-5. http://pubs.sciepub.com/ijcd/3/1/5/

One reviewer/forum member on Celiac.com gave it Five Stars.  

Knitty Kitty

Rating:  Five Stars

said this on  

18 Jan 2017 1:56:09 PM PST

Hurrah! Wonderful informative article. Should be required reading in the Newbie section. Thanks!

It should be noted that the forum member had already treated her DH with Niacin and already knew of its power to help Dermatitis problems.

Soon after the is article appeared on Celiac.com someone on my Celiac Posterboy blog began taking Niacinamide for her GI problems associated with her Celiac disease that were still having Constipation and Diarrhea problems despite being gluten free and got better (her C&D settled down) shortly after beginning the Niacinamide.

I will let her speak for herself.

1. Mairllyn February 7, 2017 at 3:18 am  

I have Celiac and have been having a terrible time with “D” these past 3 months. Read Celiac. com and your article about the Niacinamide was very interesting. Due to the problems with the GI tract, I was using a BRAT diet more often than I should have. While I do take a multi with niacin in it, probably need a lot more. Added the Niacin and Niacinamide and already things are slowing down. Yea! Just had colonoscopy today and EGD to r/o any problems, Doc said that things looked good but he took biopsies to r/o SBIO and/or another type of colitis. Once I added the niacin things started to improve. I am going to take your article to his office when I do my follow up visit. Thanks for writing it.

Link provided below “To Educate is to Free Part 2: A Physician’s Guide where she enthusiastically comments and says thank you.  Be sure to read to the end of the thread/blog post to read her comments for your-self.

https://celiacposterboy.wordpress.com/2016/01/23/to-educate-is-to-free-part-two/

This reminds of a quote from a friend of mine J. Dan Gill who wrote the Theologic book for Laymen “The ONE: In Defense of God” that definitively describes The ONE God of Israel and his Son Jesus Christ (the Anointed “one”) as truly the good news of the Gospel.  In fact John 17:3 describes it as life Eternal.  “And this is life eternal, that they might know thee the only true God, and Jesus Christ, whom thou hast sent.”

Where/when he (Dan) talks about the difference between Truth and Error.

“The Truth is Always Better

The Truth, whatever it is,

Is always better than error,

Whatever it is.”

By J. Dan Gill

The Truth that there is  the FATHER who is the ONE God who had one begotten Son Jesus Christ/Messiah our Lord is truly good news for us. Because He (God) has raised that one man from the dead giving us assurance he someday raise us too if we are in Christ (The Anointed Jesus)

 Acts 17:31 Because he hath appointed a day, in the which he will judge the world in righteousness by that man whom he hath ordained (anointed); whereof he hath given assurance unto all men, in that he hath raised him from the dead.

While this issue of error of getting a wrong diagnosis does not raise to this error of being dead forever (the opposite of eternal life) it can lead to an early grave if you continue to have Pellagra and are not treated for it properly -- the 4th D of Pellagra.

The knowledge (truth) that a Vitamin can help us is greater than the error of being misdiagnosed with the wrong disease.

If the International Journal of Celiac Disease is correct there is better than a 50/50 chance you will get better the way Knitty Kitty, Mairllyn, and the Celiac Posterboy has.

Won’t you be the next Celiac to get better (I speak as a man) i.e. come back from the Celiac grave you now find yourself in.

Gluten Juneteenth has been declared (look it up if you don’t know what it means)

https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/

Because Pellagra is progressive you will die from the 4th D of Pellagra in time.  

Someone can be said to “die before their time” don’t let Pellagra steal your time away from you any longer.  You needn’t die before your time if you take the Niacinamide and get better from it.

Taking it and getting better is considered sufficient proof that a Niacin(amide) deficiency was causing the 3 D’s of Pellagra.

See this link from mdguidelines webite http://www.mdguidelines.com/pellagra  

A simple urine test is all that is needed to determine if you have Pellagra and the doctors’ have not recognized it in a clinical setting.

They summarize it very well why Pellagra is not being diagnosed today in Doctor’s offices’ across the land.

Pellagra in Italian (the language it was first described in 250+ years ago) meaning “Rough/Sour Skin”

In their diagnosis section quoting  “The diagnosis of pellagra is straightforward when the classic rash is present but may be elusive if there are only gastrointestinal and/or neurological manifestations.”

Today if you fail to get the “classic symmetrical” sun (photosensitive) rash then you fail to get diagnosed as a Pellagrin in the first place then the other Ds’ of Pellagra present such as the Gastrointestinal issues associated with a Celiac diagnois and/or neurological problems like the 40% of those who are get a Celiac diagnosis and are depressed but are diagnosed with it as part of a separate diagnosis from  that of a Celiac diagnosis.

Or if you quoting again don’t have what they (according medical doctor’s diagnosing guidelines)  consider  “Poor dietary habits, such as those found among chronic alcoholics, individuals with severe eating disorders (e.g., anorexia nervosa and bulimia nervosa), and the malnourished also increase the risk of pellagra” then you are not diagnosed today as having Pellagra.  Today you will be diagnosed as a Celiac.

Since you are not one who consumes/relies on a quoting again “a diet high in corn products” then you the wheat consuming Pellagrin are diagnosed as having Celiac today instead.

See my celiac posterboy blog link that explains why this is today.

https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/  

But if you don’t get the correct diagnosis/disease in the beginning then you don’t get better.

Oh you cope, manage, continue to have flares get more sensitive to other proteins lactose, soy, corn (there is that corn thing again) etc.

You are said to be a Celiac who is supersensitive?

There is no hope for you now?  The doctor’s don’t know why you continue to have problems.

You have removed gluten from your diet. . . you should get better.

But you never do . .. . you just get more sensitive and more sensitive to more food allergens (proteins) that your body can no longer digest.

Stop the Madness!!!!! (Errors)

Get the right disease Pellagra and get better the way other Celiac’s have!

Like myself and Mairllyn and Knitty Kitty has done by taking the Niacinamide Challenge

https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/

And have gotten better.

And my doctor’s IBS patients who have not yet received a NCGS diagnosis or a Celiac diagnosis in time because Pellagra is progressive and the conditions continue to get worse and worse . . .

Your flare up’s continue (think Chron’s) and the doctor’s don’t know why.  But you do my friend because you have been reading the Celiac Posterboy’s blog and have gotten better from Celiacs’ evil twin – Pellagra.  

Please don’t be trapped by  error of  a misdiagnosis any longer!  

Bee Freed by the Truth of a correct diagnosis!

Praise bee to God!

See my Celiac Posterboy blog post dedication about the Bee’s Story that I included in my “How to Fight Gluten and Win; Or How the Doctor’s Almost Killed Me” ebook  available on Amazon if this post isn’t enough to convenience you that ignorance might be killing you too maybe if you have been stung by their ignorance of Pellagra today and you are reading this blog.

https://celiacposterboy.wordpress.com/2016/02/13/dedication-the-bees-hive-story-to-the-book-how-to-fight-glutengerd-and-win/

Where I say quoting the Celiac Posterboy  

“Learn from my mistakes.  

No man is so dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad (lack of knowledge) health will not sting your quality of life.

Is it any wonder God’s promised’ land was described as a land flowing with milk and honey?

Where knowledge (truth) flows there is health of mind and body.”

Don’t be trapped by this error (Medical Myth) any longer.

See my post about why/this is /came to be to our harm.

Linked again here for your convenience of how the Celiac Posterboy freed himself (God being his help) of Pellagra being diagnosed as Celiac Disease today of this medical myth! 

https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/

Or as I have entitled this post “A Differential Diagnosis: How Pellagra can/is confused with/as Celiac Disease today!  

SADLY! Few listen.  But some (Celiac’s) have heard (listened to) the good news that Pellagra is reversible and have gotten better.  Don’t be the Last!

Praise bee to God!

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly. See my Celiac Posterboy WordPress blog entry

https://celiacposterboy.wordpress.com/2016/01/23/to-educate-is-to-free-part-two/

If you want to try and educate your doctor and think he will listen.

Truth of the right diagnosis has freed us from the error of the wrong diagnosis.

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken the  Niacinamide Challenge

https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and his digestive/GI problems are in remission.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

The Celiac Posterboy by the Grace of God,

Joe “Rock” Pen Name

Part 2 Who wants (will listen) to a slightly bruised Celiac Prophet AKA Pellagra today? (I speak as a man) by the Celiac Posterboy

Would you try a Vitamin and bee helped!

In the early 20th Century what could be rightly called the “Vitamin Age” we begin to find out this very basic concept that Vitamin’s make us healthy.

How have we forgot this in the last 75+ years?

As I say in the foreword to my book “How to Fight Gluten and Win” the Bee’s (Hive) story

“This book/blog is just that storehouse of knowledge learned from life experiences.  The book’s author has been stung so you don’t have to be.

Learn from my mistakes.

No man is soooo dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.

Feel free to ladle and dollop your life with the sweet stickiness of the truth found inside.  For honey like truth stick to you once in contact and you can’t just wash it away.

Would you try a Vitamin? And bee helped? I ask again.

The longer or more deficient (lower) you are in this cornerstone nutrient (Vitamin) the more of your body stop functioning.

Yet few people are willing to believe (take) a Vitamin that might help their bodies function better?

Here is the Epilogue to this conversation!

“Posterboy - you seem to like to "research" on the internet.  Certainly you have read about Celiac disease.  Even the most basic reading will tell you that you always have Celiac and must always eat gluten free.  It will tell you that there are more than just GI symptoms and damage that can be caused by untreated Celiac.  You will read that you could be damaging yourself when eating gluten, even if you do not feel it right away.  

I think you may be spending too much time chasing rare diseases and not enough time trying to take care of the one you are actually diagnosed with.”  

And my reply to  

Karen*,

Your are probably right.  

But the same could be said about Celiac disease 15 or 20 years ago.  Rare enough to not be diagnosed nearly as common as it is today.  

Thanks to education doctor's now know to look for it today. Sadly though often patients often still have to educate our physician's Celiac is a lot more common than it is diagnosed.  

In any good diagnosis there is a qualified differential diagnosis process.  

You have heartburn ok? Is it IBS that is the cause.  One poster on this site said had IBS for 10 or 12 years now he has Celiac disease.  

10 or 12 years ago they didn't know to look for Celiac maybe with a IBS diagnosis.  

And it may be Pellagra is 10 to 12  years behind Celiac disease in the awareness it (celiac/gluten) thankfully now deserves and receives.  

Dr. Heaney summarizes why this is so very well why doctor's don't even look for Pellagra today.

 http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

Quoting  

"In the United States, at least, pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention."  

If the International Journal of Celiac disease notes it then it is probably worth at least considering it as part of a reputable diagnosis though  it is not today as Dr. Heaney notes.  see this link again http://pubs.sciepub.com/ijcd/3/1/6/ 

quoting from the article  

"3. Pellagra and celiac disease  

The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]."  

It is me again.  

If we all want to help the people and each other on this board then I would be remiss not to mention that Pellagra and Celiac Disease or celiac disease as it is commonly known can/do occur together.  

I say that Karen* to say this.  as I said in previous post.  I am in a medical no man's land.  

You do not have to be.  I have taken Niacinamide as I noted and shown clinical improvement but admit I might be in a silent phase of the disease.  

I will never know and can not know if I was one of the possible 58% of pellagrins who might be being diagnosed as Celiac's instead.  

but you Karen* can go to your doctor's and like me and maybe others like when I/was first diagnosed doctor "please test for celiac disease" and how I received my board name.  The nurse saying well you are "Posterboy" for Celiac in our office.  

"How did you know you could of had celiac disease?"  Research. 

I could of had IBS or UC or Chron's if the test was not done and so I am medically because their is no other valid diagnosis today.  

I didn't know I had celiac disease but I suspected through research I could have.  And medical science agreed.  

Now 10 years later medical science is now finding Pellagra in Celiac's.  I am naive enough to believe if one celiac could have pellagra undiagnosed other might could too.  

That is all am trying to do is to educate.  

So that set me off again.  I know I will never know for a certainty whether my co-morbid pellagra is/was causing my celiac symptom's but you can/could test to see if you or others on this site could have pellagra too.  

We all fumble the ball forward.  And I admit I have Karen*.  

I know I had poor gastric function.  Many on this site do and take or  have taken betaineHCL to help with that poor function.  

But it always felt like a symptom to me and not the cause.  

Many have flare up on this site when stress is higher and that made sense to me.  

Since celiac disease is a genetic disease I had to look elsewhere if indeed my environment/stress was causing my GI symptom's to get worse.  

and now I find where in medical journals the same conclusions have been made not only is it possible for celiac and pellagra to occur together in the same person they do so at a surprising staggering rate in 58% of Celiac’s.  

What does this look like in human beings?  

If one is critically low in Niacin(amide) the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up.  Which to me make the best sense if I also had pellagra some of my celiac symptom's got better or at least stopped complicated my celiac symptom's.  

I know I am rambling but I am trying to get to the point that the Merck Manual has a simple test for Pellagra.   http://www.merckmanuals.com/professional/nutritional-disorders/vitamin-deficiency,-dependency,-and-toxicity/niacin

The Merck manual is commonly used as desk reference for physicians and it could be accomplished as given a urine sample the next time your at your doctor's or  your specialist.  

I am always trying to learn as much as I can and especially if it can help people/others or myself and this is what I learned since my last post.  

I did not even know you test for a Niacin deficiency/pellagra and with the doctor's not even looking for it today you will have to  bring it up the way some (I would dare say) most have brought up or potential Celiac diagnosis to our doctor's when we first received or diagnosis.  

Quoting from the Merck Manual when doctor's are considering whether a Pellagra diagnosis is warranted.  

"A favorable response to treatment with niacin can usually confirm it.  

If available, laboratory testing can help confirm the diagnosis, particularly when the diagnosis is otherwise unclear. Urinary excretion of N1-methylnicotinamide (NMN) is decreased; < 0.8 mg/day (< 5.8 mcmol/day) suggests a niacin deficiency."  

but the doctor has to be looking for it to find it the same way with Celiac disease 15 or 20 years ago.  

They would  not find it in me now I don't believe because quoting the Merck Manual again my "A favorable response to treatment with niacin(amide) can usually confirm it."  

But unless you or anyone reading this forum/thread still suffering 5 or 10 years later still struggling with good control or are super sensitive to gluten doesn't think about or bring it up with their doctor's (like I didn't know to do) then the chance for it to be documented in the medical record is lost.  

The other case report of celiac and pellagra notes the same thing.  Linked here again http://pubs.sciepub.com/ijcd/3/1/5/ where they say "Although B3 vitamin and tryptophan dosage were not performed, the diagnosis of pellagra complicating celiac disease was retained." and the other article says the same thing.  But without the test for pellagra my experience is anecdotal the same way me and knitty kitty reported better control from itching.  

IF we don't test we don't know.  

It doesn't mean treating pellagra would help your celiac disease but it does mean you have a better chance for improvement because having both complicates your celiac disease. . .

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.  

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.  

I wish us all good luck on finding a solution that works for us all.  

posterboy,  

And I say this to all those who stumble across the Celiac Posterboy blog may God richly bless your health and your journey to truth whatever it might be.

If Pellagra is the true diagnosis then this will help you praise bee to God!

Don’t ever believe something I say without researching it for yourself.  But my friends have found it is true.  They had a Niacin deficiency that got better after taking Niacinamide 2 or 3/day for 3 or 4 months and the doctor’s are not catching it today in its early stages.

These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.”

The earlier you can catch any disease the better the prognosis.  Or you could do as I did -- take the Vitamin now and ask questions later.

Or like me a lot latter help educate/tell others’ about your experience by sharing on your blog.  As is the motto for social networking “Sharing is Caring”.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

Celiac Posterboy by the Grace of God,

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Part 1 This was getting long so I broke it into two posts but both are still kinda long

Who wants (will listen) to a slightly bruised Pellagra Prophet AKA Celiac Disease today?

(I speak as a man)

I have taken a break from my Tumblr blog for a while because I have blogging/commenting on Celiac.com lately  .  . ..  but I find I am often not wanted or my opinions anyway are looked on as suspect.

One commenter said it was dangerous to recommend a Vitamin for their health.

Quoting

“its not just those specific examples its the bigger picture no one is saying that Vitamin B3 is not important or that B3 deficiency doesn't exist.  

The point is you may think that you are helping people but in reality you are giving people dangerous advice based on inaccurate information you have quoted from unreliable / questionable sources. then trying to present this information to us as facts by writing in an somewhat academic style when you clearly havn't even fully researched what you are repeating or who these crazy doctors making these claims are.  

im not trying to be mean but it reads like you want to believe Niacinamide can magically cure celiac disease so much that you have convinced yourself its true.  

taking high does of vitamin B3 can be toxic and cause serious side effects like liver damage or stomach ulcers.  

your blog is on tumblr which is primarily used by teenagers, what if someone sees your posts (who isn't as informed as the people on this forum) and starts taking high doses of Niacinamide for celiac, DH, or acid reflux and gets seriously ill. you probably wouldn't ever find out about it or be held accountable.”

Note this is after I had quoted (unknowingly) a doctor who was being reviewed by their medical board (not in the US) for giving too much credit to Vitamins for their ability to heal/help our health issues.

This is known as quackery in the medical field or at least they would like you to think a Vitamin can’t help you.

But they have a rebellion in their ranks.  Functional Medicine doctor’s first rely on Vitamins to restore your bodies functions before prescribing medicine when a Vitamin would do as well.

She might be considered (this type of doctor) who saw the “emperor” had no clothes if you will -- meaning giving medicines for a life time and more medicine when that medicine doesn’t work as failing her patients.

She got in trouble in part because she gave too much credit in (their minds of other doctor’s) who were prescribing the same medicines she had rejected or at least called in to question their effectiveness.

So it is no wonder they attacked her out of fear others too would stop using their medicines that would only lead to more medicines to mask the other/more symptom’s that would continue to develop because the underlying cause had not been identified – often a Vitamin.

Now I know there is a lot of confusion about this topic because it has not been seen in the U.S.A. for three quarters of a century  (75+ years) but Pellagra THEN and NOW are causing people heartburn and in its advanced stages their life the fourth D of Pellagra.

I had written a book that might could help them . . .. so naturally they don’t want to hear about it (competition) that might unlock/freeze up their profit from medicines.

I don’t know if it (Niacinamide) will help you or not but I know it  won’t you help if you don’t try it.

Here is the thread I am talking about if you want to read it for yourself (it is kind of long) so don’t link to it if you don’t want to spend the whole time reading the thread. https://www.celiac.com/gluten-free/topic/115445-relief-and-it-isnt-dapsone/?page=2

The dispute came to a head on the 2nd page so I have linked the 2nd page here.

So this prophet (I speak as a man) is not wanted by those who could use this information the most.

Sadly it doesn’t work that way.  The people who could be helped most.   Celiac’s or Chron’s etc that could be helped by the knowledge that Niacin treats digestive problems

http://www.yourhealthbase.com/database/a124b.htm

See my summary of how it could be Pellagra and the doctors have not figured it out yet in a clinical setting.

Quoting

“I was serology confirmed as a Celiac. It is true I was not "biospy proven" but there are others on this site like Gemini and I think Ironictruth who were only blood test confirmed but we are no less Celiac's. Than those who have had a biopsy proven diagnosis I believe.  

we had a gluten antibody response while consuming gluten and our antibodies when down when I/we stopped consuming gluten.  

I think Gemini said hers are still slowly coming down.  

And why this considered controversial by some . . . the ideal that biopsy is required for a "positive" not false positive indication of celiac disease is beginning to take hold among research and experts in the field.  

A noted author and I would say expert Dr. Rodney Ford of New Zealand the author of the "Gluten Syndrome" notes like squirmingitch that he believes celiac is actually a "Neurological disease" just as squirmingitch noted she had "neurologic aspects" and "psychosomatic reactions" and is what Dr. Ford says.  

I have had these same reaction of clinical depression I believe tied to my gluten consumption in addition the GI symptom's and most doctor's today don't connect the two diseases in these aspects.  

but my "gluten brain fog" got better when I went gluten free but most doctor's won't agree they are connected even to this day.  

Dr. Ford summarizes well what he calls the "Unmasking of Celiac" as reported in the Journal of Gluten Sensitivity.  Link provided herehttps://www.celiac.com/articles/23853/1/The-Masking-of-Celiac-Do-Not-Ignore-the-Smoking-Gun/Page1.html 

Please read the whole article for yourself but my point is the same as his.  

quoting dr. ford  "What an odd thing to say: “Do not mask the appearance of celiac disease.” Inferring that you keep on eating gluten, despite early signs of celiac disease, until you get enough damage to your intestines that it can be seen under a microscope. I (He) totally disagree with this concept—but this is still a common belief of medical practitioners.  

I am actually glad my doctor was educated enough about the topic to diagnose me as a Celiac without a biopsy.  

Dr. Ford goes on to say 

"Have you ever heard of a doctor “masking” the diagnosis of heart disease by failing to treat high blood pressure or high cholesterol until the patient has a heart attack? Ridiculous! Have you ever heard of a doctor “masking” the diagnosis of depression so that the person is suicidal before given help? Ridiculous!" He says!  

He admits it is contentious but I think it is high time we admit serology is enough to diagnose someone as a celiac before a biopsy can prove "well the blood test was right about you having celiac and not NCGI/NCGS  phase of the disease where a biopsy proves what the blood test told us" my words.  

Then dr. ford goes on to mention 12 different points about why only blood exams are rejected as proven celiac disease in the absence of a biopsy.  

I will note two or three points that I think as he terms it is a "smoking gun" for a serology proven diagnosis.  

Quoting Dr. ford  

* 7) "The “masking” concept originated a few decades ago when biopsy was the only way to diagnose celiac disease;"  

According to Dr. Ford but  

8) "now, the blood tests for celiac disease (EMA, tTG, DGP) are more accurate than the biopsy, and can turn positive BEFORE there is any histologic evidence of gut damage;"  

He capitalizes this fact but we still want people to use an archaic standard when no other method was available to "Prove" a celiac diagnosis.  

Dr. Ford goes on to note  

* 1) "Celiac disease is a progressive condition—it slowly gets worse the longer you eat gluten;"  

*  2)"In the early stages of celiac disease, it cannot be diagnosed by endoscopy biopsy;"  

* 3) "The biopsy test is inaccurate and relies on experts to recognize early disease;"  

So I think it is high time like my doctor does and more enlightened researchers/practitioner's like Dr. ford and demand serology confirm a celiac diagnosis and stop demanding older more unreliable methods.  

He (Dr. Ford)  notes summarizing  

quoting

"a) a Gluten challenge is detrimental to your health; 

 "b) A gluten challenge (to create serious bowel damage) can take years, during which time ongoing body damage (brain, skin and bowel) is ongoing;"

 Now it should be noted I am not saying this I am just quoting what an expert in the field says about a "biopsy proven" celiac diagnosis. 

Though I do agree with it because other dr's like dr. Mark Hyman said as much 5+ years ago in the Huffington Post 

http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html

quoting Dr. Hyman 

"Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. 

We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease "

 Quoting Dr. Hyman again for emphasis "If your antibodies are elevated" . . .  Positive is Positive 

according to Dr. Hyman and now the the noted author who was the first I know of to link neurological aspect  i.e, gluten ataxia as a real component of the "gluten syndrome" Dr. Ford says blood serology is better quoting Dr. Ford again and "more accurate than the biopsy, and can turn positive BEFORE there is any histologic evidence of gut damage;" 

He Dr. Ford thinks and I agree this day can not come soon enough for the Celiac's still suffering waiting on a "biopsy proven" celiac diagnosis that "Biopsy is not the Gold Standard" and he even dedicates' a page of his practice to educate people of this fact.  It is very informative and should be read by anyone who has a positive blood test for celiac disease.

 Here is the link

 http://drrodneyford.com/extra/documents/236-no-gold-standard.html

IN summary he believes there will be quoting an "Ending of Endoscopy . ..  to diagnose Celiac disease" 

"Ending of endoscopy

 In the next few years, blood tests (particularly the DGP tests) (Dr. Ford says) will take over the endoscopy and we will see the end of the endoscopy to diagnose celiac disease." 

I just hope it comes soon before more people have to "ridiculously" endure eating gluten sometimes for years according to what 5+ years ago dr. Hyman concluded a "positive (blood) test is positive" for a Celiac diagnosis.  

So please don't say I didn't have celiac disease. I had 30+ years of horrible GI problems from the time I was a very small kid.  I developed Celiac disease no to mention the many IBS, constipation, diarrhea issues that go with such a diagnosis including early onset Arthritis in my late 20’s with a formal diagnosis in my early 30s by blood serology.  I could not of survived as other on this site have said a "biopsy proven" celiac diagnosis.  

I will be glad when other get it.  "Positive is Positive".  

I actually think I was as Knitty Kitty said on this site "I was/am a Celiac who developed Pellagra" and why I think Niacin helped her the way it did me.  

The International Journal of Celiac disease notes this possibility concerning being a Celiac and a Pellagra sufferer Co-Morbid. 

See this link http://pubs.sciepub.com/ijcd/3/1/6/ 

Note what they say about Celiac and Pellagra being Co-Morbid in 58% of Celiac's in paragraph  

3. Celiac and Pellagra.  

This is because it is not YET well understood that 58 percent of Celiac patients are Co-Morbid with Pellagra and it it might take years for people/doctor's to understand this.  

See this link where Dr. Haney's discusses why this is so.  

http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/  

Where quoting Dr. Heaney he correctly states “it is doubtful today that most health professionals would not recognize it (Pellagra) if a case happened to come to their attention” Today!  

If you can believe the research in the International Journal of Celiac disease then "Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!” in the majority of Celiac's quoting the Celiac Posterboy.  

And why I keep trying to educate people of this fact before more people sufferer unnecessarily.  

*** Remember as always this is not medical advice and should not be considered such. Always consult your doctor before making any changes to your medical regimen. But mine has taken/uses The Niacinamide Challenge /protocol in his practice and his  patients digestive/GI problems are in remission i.e, they burp, their stool sinks and and they go once a day without distress after taking Niacin/Niacinamide 500mg 3/day  for 6 months proving at least in the majority of his patients they are also Co-Morbid Pellagrins among his IBS patients at least and according to the International Journal of Celiac disease their is at least  50/50 chance a Celiac or/and I believe a Non-Celiac Gluten Sensitivity  (NCGS) patient might be too or as cyclyinglady terms it talking about me Non-Celiac Gluten Intolerant - NCGI.  

Your results might vary.  

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.  

Posterboy by the Grace of God,  

I was posting (trying to help) someone who has DH and telling them someone else on celiac.com used Niacin to help their intense itching associated with a Celiac diagnosis and  after I pointed out in the above referenced thread that Niacin helps dermatitis/skin issues too I was promptly run out of town and told to in their words  . . .  

“I will make this perfectly clear . . . GO AWAY!” and the thread ends soon after because I went away.

Will you tell me to go away too?  Listen if you will Pellagra can and does in most people cases makes more sense.

If you get the correct diagnosis then you get better.

I summarize these things/findings in my post looked beyond celiac to Pellagra linked below.  

https://celiacposterboy.wordpress.com/2016/02/16/look-beyond-celiac-to-pellagra-for-your-gi-issuesproblems/

I wrote Celiac Central too now “Beyond Celiac” and they too will not listen or have not heard the Celiac Prophet (I speak as a man) that Gluten Juneteenth has been proclaimed. https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/

For over two year now and 200+ pages latter on my blog and still I have not convenience one Celiac they could have been diagnosed with Pellagra instead.

Quoting the Celiac Posterboy “Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!”

And their own prophets agree see citation above in quote from celiac.com blog thread  http://pubs.sciepub.com/ijcd/3/1/6/

Quoting the International Journal of Celiac Disease

“The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in CD [38]

58% percent people that is a MAJORITY!

A majority of the people reading this blog could get better if you have been diagnosed with the wrong disease as I was.

As I said above to celiac.com  quoting “This is because it is not YET well understood that 58 percent of Celiac patients are Co-Morbid with Pellagra and it might take years for people/doctor's to understand this.”  

Do you have the time to wait?

Some people discredit or question the good news when they hear it.

What have you got to loose (other than your bowels and your mind) it is just a Vitamin.

I do not have a USP (Unique Selling Position).  You don’t have to buy my Vitamins.  

I don’t sell Vitamins.  I did write a book call “How to Fight GERD/Gluten and Win or How the Doctor’s Almost Killed Me”  that summarizes this research but you needn’t buy it either.

Almost any blog post I write tells you what you can do and should do if you are experiencing undiagnosed or misdiagnosed Pellagra.

It is now up to you (class/reader) to believe it could help and take the Vitamin or not and continue suffering why the doctor’s keep giving more medicine to hide/mask the symptom’s.

If it is indeed the “Elegant” solution I propose/theorize it is you will get better in 6 months of taking Niacinamide 3/day UNTIL burping and your stool SINKS (where today it still probably floats) and your GI symptom’s go into remission.  Or I was wrong.  Then tell me and other’s so but I don’t see the point of criticizing what you won’t try?

But the test of a prophet/theory is what does it/they do or say come true!  If you take the Niacinamide and you BURP then the Celiac Posterboy prophet has the right disease.

A witness of two is true!  Did you begin burping and your stool sink after 3 to 4 months of taking the Niacianmide 3/day THEN it is true you have had Pellagra and the doctors have not diagnosed it correctly.

I don’t know what else to write any more.

I will include the key words for reference and easy search results.  The blog comes up better on Bing but use whatever search engine you are most comfortable with.

As I have said before in this blog. A healthy child burps at 6 months of age and you can too in six months by taking the Niacinamide Challenge putting your Co-Morbid Pellagra (digestive) symptom’s into remission if indeed we can believe the International Journal of Celiac Disease  and your Celiac Disease is presenting as Pellagra the majority of the time.

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping and I might add burping without bloating.   Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily — ie with each meal.

It takes 3 to 4 months to overcome your dependency on this Vitamin for your mucus membranes (GI lining) to heal itself.

Once repaired you can maintain them barring some future stress/trauma depleting your reserves at which time Heartburn/GERD/IBS symptoms will return and you will lose your burp again.

And the cycle repeats and the Pellagra symptoms come back with a vengeance.

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

Then tell someone (share) is all I ask https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book is all I ask but don’t let the chain break with you.

Stop the Madness!  Once you have the Correct diagnosis you get better!

I say admit it IJCD (International Journal of Celiac Disease (Pellagra my words)) (YOUR own research bares this out but you don’t believe it)   (58% of Celiac’s at least) (and probably more) because they are not even looking for Pellagra they just note the Co-Morbidity as an oddity) 58% is not rare it is the (MAJORITY) can and will show improvement when taking Niaciamide UNTIL burping is induced (occurs) like Prousky proved scientifically 15 years ago that “Niacin treats digestive problems” and yet we (most of us  Celiacs’) still are looking for a cure for our disease.  Maybe as high as 90+ percent (I would say higher) are being misdiagnosed as NCGS/Celiac’s (or some other GI disease) because one disease has been confused for the other.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/ and once free from error tell others there is hope!

Tell your doctor even so he/she can have you tested for a Vitamin deficiency.

https://celiacposterboy.wordpress.com/2016/01/23/to-educate-is-to-free-part-two/

And you think they will listen and want to learn how to help their other patients still suffering.

The Celiac Posterboy (Prophet) by the Grace of God, if what I say is true and you get better and you burp like a baby in six months.

It will take courage and conviction on your part to take a Vitamin when all you hear these days’ that the “average” person doesn’t need a Vitamin. Or put another way why ‘all the hate” for Vitamins? these days”  So much so the “average Joe” won’t take a Vitamin for their health?

Do some of the research of I have listed here and if you still feel the same way. I get it. But the power to change (knowledge) is now yours’ the question remains now what will do with it.

If I am right then I will be able to predict your GI future in a way (medically speaking) you will BURP!

When you start burping these other things go away as if by magic.

Either we have found the cure?/remission has occurred or CD/NCGS is the same disease by a different name aka one has been confused for the other Pellagra a Niacin deficiency is being diagnosed today as Celiac disease.

Quoting the Celiac  Posterboy ““I hope my words and experience will be enough to convenience you that medical science has discovered the cause of most digestive disorder(s) but medical practice (clinicians/practitioner’s) has not (does not) digested/recognized it (Pellagra) (yet) in a clinical setting.”

And I can hear you now.  

So let me verbalize it for you.

“NO that is not possible.”  The doctor’s took 5 or 6 years (if you are lucky and not more) diagnosing me.  They ruled out Lactose Intolerance, IBS, GERD, UC, Chron’s Disease and Non-Celiac Gluten Sensitivty etc.

Long before the vitamin age of the early 20th century.  Smart people figured out Citrus fruits protected us from scurvy and why the British Navy were loving called Limey’s.

Several symptoms are as follows:

•Easy bleeding or bruising

• Fatigue • Frequent infections

• Frequent nosebleeds

• Inflamed and bleeding gums

• Painful, swollen joints

• Poor development of tooth enamel

• Slow healing wounds or bruises • Vasomotor instability

Taken together all very complex symptom’s but had ONE single source of disease –

Vitamin C

Let me say it another way the The Scurvy Syndrome had according the medical dictionary “a combination of symptoms resulting from a single cause or so commonly occurring together as to constitute a distinct clinical picture”

But you can’t compare Scurvy to Celiac Disease.

But you can Pellagra a Vitamin deficiency/dependency which the majority of times presents’ as NCGS/Celiac Disease.

That is too Elegant to theorize/propose/diagnose Vitamins’ (more correctly the lack thereof) as the cause of (Celiac) disease/GI/digestive problem’s?

Vitamins are the very definition of ‘elegant’ a nutrient needed in a minimum amount without which we become sick and develop malaise, disease and syndromes (like Pellagra presenting as Celiac Disease and Scurvy develop and Beriberi etc).

The question is why hasn’t the medical community hit upon this simple and elegant solution or more appropriately does no longer support or encourage the use of vitamins in their patient’s as practitioners of medical science seeking a simple (elegant) cause of why the body is not functioning properly.

As I noted above in the quotation from the introduction to my ebook  “How to Fight Gluten and Win” The newly developing field of Functional Medicine doctor’s is the practitioner’s most familiar with the science of vitamins/nutrition.

These are doctors whom have questioned maybe all these messes I found my patient’s health in are not answered by drugs but a Vitamin instead.

Is this not TRUE for all Vitamins?

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

I wish us all good luck on finding a solution that works for us all.

posterboy,

And I say this to all those who stumble across the Celiac Posterboy blog may God richly bless your health and your journey to truth whatever it might be.

If Pellagra is the true diagnosis then this will help you praise bee to God!

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

Celiac Posterboy by the Grace of God,

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

I had Celiac Disease and developed Pellagra

I blog a lot about how Pellagra can be confused for Celiac disease and/or GI problems like IBS, GERD, Ulcer’s, UC etc.

And almost without fail people do not see the connection.  They say but I have . . . . fill in the blank.

They don’t see the connection.

But if I say it this way maybe it will help you “I am a Celiac who developed Pellagra” or fill in the blank . . . . heartburn, IBS, UC, Chron’s etc.

What we fail to understand often with any diagnosis there is continuum of disease/symptoms.

Since this happens gradually you develop heartburn first then you have IBS, and Constipation and diarrhea then maybe an ulcer etc we don’t often see the connection.

But all along it was the same disease in a more pronounced condition.

If we catch it early enough say at IBS then the ulcer or UC might not develop.

When we think spectrum of disease it helps us to understand these diseases’ can be and are more related that we often understand.

They are all bound by STRESS.   Do not all these conditions worsen when you are stressed does not the heartburn turn into IBS i.e. your constipation and diarrhea flare up?

Yet we think of them as separate diseases Right?

No there is a continuum of disease bound by STRESS and TIME.

The longer the stress the more your symptom’s Right!  

You just haven’t stopped to think about the relationship.

Relationship and time is important to a proper diagnosis.

So how are these related?  

Our mucus membranes are always in a constant state of repair either of repairing or rebuilding what is broken or maintaining our bodies defenses.

This takes energy and lots of it and one is not able to make enough energy to repair the lining of our stomach without enough Niacin and Pellagra develops.

I am not even saying I have been cured of Celiac disease.  I say my GI symptoms are in remission which leads me to Pellagra as a cause and effect relationship of stress and our environment  — Epigenetics.

I am saying I am/was a Celiac who developed Pellagra.

Which also explains why a Genetic disease can increase in two or three generations because our stress changes our genes.

There is a trigger.  Stress — it is not your day to day stress.  We can handle all that kind of stuff but TRAUMA lasting 3 or 4 more months at a time.  Think when Celiac disease was first studied as a Disease?   It was during and directly after WWII and I dare say a stressful time to say the least.

Not to mention all the energy needed day to day to just survive.  Europe almost starved after the war.

So much so we (the US government) had to step in and help deliver/air drop humanitarian aid to Europe.

It was called the Marshall Plan named after the man who devised the relief plan and it is credited with keeping Europe alive after WWII and averting another possible world war because of the infighting that would have developed from a starving Europe.

3 to 4 months is approx. the exact time we can store B Vitamins.   Anything that triggers the fight or flight high energy response (TRAUMA) that depletes our bodies reserve’s.  

Stress is coincidently what Niacin helps us control. It (Niacin) helps control our stress response’s in the body without which cellular disfunction happens.  Like the alternating constipation and diarrhea you have had for years if you have developed Celiac disease.

Things like a Car Accident, difficult divorce, injury to our kids, extended care giving, surgery etc.  can and often does trigger GI problem’s.  And yes the stress of pregnancy.

And it (STRESS) is common with with/before a pregnant lady gives birth triggering heartburn .

A good example is pregnant women in their 3rd trimester often develop heartburn that’s goes away when the child is born.  Those who are predisposed continue to have heartburn and GI problems because their body couldn’t meet their need.

Think of Heartburn as infant Celiac disease if it helps you to think in these terms.  The older/longer the heartburn persists or the more GI symptom’s (heartburn/gerd/IBS, Constipation, diarrhea, ulcer etc) reoccur the more serious the conditions and diagnosis becomes.

The genetic component is that 1/3 are predispose to high Niacin consumption when stressed.

It is those1/3 of us who had Pellagra and Celiac disease developed is who I am trying to help.

But it should be noted up and until your Celiac diagnosis thing like the Ulcer, UC, IBS etc can/could be helped also if Pellagra is the Parent diseases and all these other diseases are its children.

Co-Morbidity is the term.  

A B-Vitamin deficiency can be inherited but does not have to be permanent.  It is a reversible condition.  

See this new research that ties eczema in babies to low Niacinamide in the mother during pregnancy.  Nicotinamide is usually the way Europeans spell Niacinamide.

http://www.dailyrxnews.com/higher-vitamin-b3-nicotinamide-levels-during-pregnancy-reduce-eczema-newborns 

The very definition of a Vitamin (especially in the case of B vitamins) a vital (life giving) nutrient/substance needed in a minimum amount with out which we become sick.

Your continuum of diseases are completely reversible if your symptom’s look like Pellagra (digestive, dermatitis and dementia’s) in nature and your respond (BURP in 3 to 4 months) to Niacinamide you might have Pellagra and the doctor’s have not figured it out in a clinical setting (sub-clinical) yet or at least you have Pellagra and Celiac Diseases Co-Morbid.

If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up.

The International Journal of Celiac Disease notes this co-morbidity when they note in 58% of Celiac Pellagra ALSO occurs.

See this link http://pubs.sciepub.com/ijcd/3/1/6/ 

Quoting their paragraph 3 on the Co-Morbidity of Celiac and Pellagra together

3. Pellagra and Celiac Disease 

“The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in CD [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in CD. The following nutritional deficiencies inducing skin rashes, were describe in CD: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]. “

58% of the time (that is a majority folks) Celiac’s go on to develop Pellagra too!

Or is it really the other way around?  Have you had Pellagra all along and now you have developed Celiac from it (Pellagra) undiagnosed.

The later may be more true than you know.

Ask your friends if they have ever heard of Pellagra.  I dare say it a low percentage that knows Pellagra a once rampant disease especially in the rural south can cause many of the GI problems you are now experiencing as a Celiac disease patient or even the Non-Celiac Gluten Sensitivity (NCGS) patients that have not yet received a Celiac diagnosis.

Think beri beri, rickets, scurvy etc all complex diseases completely forgotten about today that were/are completely reversible conditions.

You just have to take a Vitamin.

The knowledge of Pellagra (if  you have ever heard of it) is in that same state of forgotten diseases now thought relegated to the history books.

Who’s with me?

Who’s willing to try a Vitamin for their Gut health?

Then let’s take the https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and see if your Co-Morbid Celiac disease doesn’t go into remission along with your Pellagra symptom’s.

Please don’t ever eat gluten on my advice.  Research until it seems clear to you.

This is a summary of my 10 year journey and my 6 plus years I’ve been able to eat gluten without distress.  I researched these things for 3 to 4 year (2 Tim 2:7) before I had the courage in my conviction to try gluten again.

And yes 90% of my success has come with heartburn patients.  And that’s ok I will help those who will listen.

But I think most people would rather hear from some who has suffered like them and has been able to help themselves.  This is not theory anymore for me.  It is my story.  

I am eating gluten occasionally (ok most days) and lactose regularly without an unsteady movement or heartburn or constipation or diarrhea, IBS etc., I had for 35+ years prior to finding out (the Lord being my help) that I was someone who had Pellagra that also developed Celiac disease in that time.

Again I say, 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

For 6 + years I have been able to set the clock by my movements -- once a day and they (my stools) sink to the bottom of the bowl – a sign of completed digestion.

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide 500mg is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping.  Most people will burp when taking Niacinamide 500mg in 4 to 5 months or less taking it 3/daily — ie with each meal.

What do I mean by burping? This confuses some people sometimes.

I don’t mean the little burp you get with drink some carbonated beverage or burp a little in the first 20 minutes after eating but also are bloated.

But your new normal BURPING the natural order of things burping -- The burp will come later after the meal the longer you take the vitamin. Burping will occur the more frequently the less you eat.   Soon water will cause you to burp.

When your stool begin sinking your body is digesting the carbs and proteins that were causing you the backwash (heartburn/GERD) before when you only burped a little.

Now BURPING will occur two hours after you ate something.  Long after you have finished your meal you will burp if you have taken the Niacinamide 500mg 3/day for 3 to 4 months at a minimum.

Dr. Prousky proved this 15 years ago this month that Niacinamide treats digestive problems.

http://www.yourhealthbase.com/database/a124b.htm

Yet 15 years later people still are bemused when you mention Pellagra let alone that Pellagra could be causing your Co-Morbid Celiac disease.

I for one will tell those will listen.  I am a Celiac who developed Pellagra.

As I have said in this blog before learn from my mistakes so you don’t have to repeat them  as I say in my dedication to the book “How to Fight Gluten/GERD and Win or How the Doctor’s Almost Killed Me.”

https://celiacposterboy.wordpress.com/2016/02/13/dedication-the-bees-hive-story-to-the-book-how-to-fight-glutengerd-and-win/ 

Pellagra once rampant early in the 20th Century is now known TODAY as Celiac disease in the 21st Century.

To paraphrase William Shakespeare “Disease by another name hurts just as much” and maybe more because if you get the right disease you can get better!

You know have the power to help yourself reader (because knowledge is power) the question is what will you do about it?  Will you/are you willing to try a Vitamin for your health?

Quoting the Celiac  Posterboy from his foreword

“This book/blog “How to Fight Gluten/GERD/Celiac and Win or How the Doctor’s Almost Killed Me” is just that storehouse of knowledge learned from life experiences.  The blog’s author has been stung so you don’t have to be.

Learn from my mistakes.  

No man is so dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.

Is it any wonder God’s promised land was described as a land flowing with milk and honey?

Where knowledge flows there is health of mind and body.

Feel free to ladle and dollop your life with the sweet stickiness of the truth found inside.  For honey like truth stick to you once in contact and you can’t just wash it away.”

Don’t let them (the doctor’ who told you had Celiac disease) almost kill you before you are willing to take a Vitamin to see if it is really the Co-Morbid Pellagra according to the International Journal of Celiac Disease that is causing your Celiac symptom’s in the MAJORITY of Celiac patients.

Stop the madness!  Admit the MAJORITY  of Celiac Patients today are Co-Morbid with Pellagra and if you treat the correct disease you can get better.

I might say “(Unfortunately) for most patients it (Pellagra) is not recognized as Disease TODAY!  By their admission (a professor of medicine/health professionals/doctors) Pellagra is OMITTED as a disease in most doctor’s differential diagnosis TODAY!”

If you have (a) Celiac disease diagnosis then you have been stung with/by this ignorance. That as Creighton’s Dr. Heaney says “In the United States, at least, Pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention.”  See Dr. Heaney’s Professor of Medicine post here at this link

http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

This blog “How to Fight Gluten/GERD and Win” is about the ignorance (of) Pellagra cost’s you when the doctor’s diagnose you with Celiac Diease/NCGS when 58% of their patients is/are Co-Morbid with Pellagra and they get the wrong “key” diagnosis.

**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found (and my doctor and friends have found) if you take it (Niacinamide 500mg) like an antibiotic (UNTIL BURPING) then 95% of your GI stress will be in remission.

As always please go to Amazon key word “Fight Gluten Win”, “Fight GERD Win”, “Celiac Posterboy”, or Celiac Poster Boy” to download the FULL ebook if you want to read more about “How to Fight Gluten and Win or How the Doctor’s Almost Killed Me” free to Amazon Prime members by the Celiac Posterboy. Or go to Bing or Google and put in the same key words to read the whole blog to Educate yourself and free yourself from sub-clinical Pellagra.

For to Educate is to Free!

https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/

The Celiac Posterboy by God’s Grace!

Joe “Rock”  Pen Name

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

P.S. See this link if you want to know what a Starfish has to do with being a Celiac means.

https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/

Then tell someone (share) is all I ask tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book is all I ask but don’t let the chain break with you.

Tell them Gluten Juneteenth has been proclaimed.

https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/

Co-Morbidity in Celiac Disease and why correctly diagnosing it as Pellagra today can lead to symptom relief.

************** As always say this is not medical advice, it should not be considered such. Always talk to your doctor before changing your regimen.

This information should not be used to diagnose your-self. But it has been my experience and the experience of my friends who take Niacinamide 3/day for 6 months that their “gluten allergy” goes into remission after they begin BURPING without bloating indicating Co-Morbid Pellagra.

Here is what happened and why Pellagra today is confused for NCGS/ Celiac disease or other GI problems like IBS, etc.

https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/

And here is why you should look beyond Celiac to Pellagra for your GI problems.

https://celiacposterboy.wordpress.com/2016/02/16/look-beyond-celiac-to-pellagra-for-your-gi-issuesproblems/

So now I try to educate as best I can that if people look beyond Celiac to Pellagra they often get better.

I have written a similar post to this one but people don’t seem to get it.  Entitled Can Pellagra and Celiac Disease be present in the same person; ie, Co-Morbidity: A fellow sufferer’s story by the Celiac Posterboy and can be found at this link

http://celiacposterboy.tumblr.com/post/149534004319/can-pellagra-and-celiac-disease-be-present-in-the?is_related_post=1  

Co-Morbidity is difficult to recognize but not hard to prove.   You just have to take Niacinamide 500 mg for 6 months to see if there is a cause and effect i.e., it induces burping where it did not occur before.

The website Gluten free works recognizes a Niacin deficiency in Celiac’s but like identical twins has trouble diagnosing the correct twin.

This article is 5+ years old but they argue for a Niacin deficiency in Celiac’s and not the Co-Morbid “evil twin” of Pellagra in the same person.

I am quoting from  Cleo Libonati, RN, BSN is CEO and co-Founder of Gluten Free Works, Inc. and Glutenfreeworks.com. She is the author and publisher of the highly recommended celiac disease reference guide, Recognizing Celiac Disease where she summarizes the difficulty very well of identifying one twin from the other and her work entitled “A Niacin Deficiency in Celiac Disease which can be found at this link  

https://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/

Niacin Vitamin B3 deficiency in celiac disease gluten free works

“Niacin, also called vitamin B3, is required by all the cells of our body making it essential for vitality and life itself.

Niacin is essential for keeping our skin and digestive tract healthy, our brain and nervous system  functioning normally, certain key cell processes repaired, our adrenal glands producing steroid hormones at demand levels, sex glands producing the hormones estrogen, progesterone and testosterone and, most especially, for producing energy to keep our body alive.1

When absorbed from the small intestinal tract, niacin becomes part of a process including more than 200 enzymes involved in metabolism of carbohydrates, proteins and fatty acids, that is, chemical reactions that maintain life.1 Niacin is stored by the liver.2

Niacin must be digested to release its absorbable forms, nicotinamide and nicotinic acid. These molecules are absorbed across the intestinal lining at low concentrations by sodium-dependent facilitated diffusion, meaning they need help to get into the bloodstream.1 Niacin is absorbed at higher concentrations by passive diffusion, meaning the niacin molecules simply cross through the lining.2 That said, absorption is hampered by the swelling and thickening of the intestinal lining that occurs in celiac disease.  Removing gluten reduces the inflammation and allows the lining to heal, facilitating passage of niacin through the lining into the bloodstream.

Intriguing animal research by Sandhur et. al. has shown that niacin deficiency itself sensitizes the intestinal mucosa of rats to gluten in wheat, barley, rye, oats and corn and induces susceptibility to gluten toxicity by means of cellular dysfunction.3 Human research needs to investigate this effect of niacin deficiency in human celiac disease.

Niacin Deficiency

Niacin deficiency due to malabsorption is common in celiac disease before gluten is removed from the diet.1 Niacin deficit can be aggravated by a lack of niacin, or the amino acid tryptophan, in the diet. Our body uses tryptophan to make niacin as a back up mechanism.  Smoking also impairs absorption of niacin.2

Lack of niacin in the diet comes from choosing foods that are low in niacin. An example of how this can happen is if we used plain corn flour rather than masa flour for baking gluten-free recipes and purchased tortilla chips, tacos and snack foods made from plain corn flour.  Plain corn flour is low in niacin and its niacin cannot be digested. Whereas, the niacin in masa flour is made digestible.  Masa is the result of soaking corn in lime, a strong alkali that releases the bound niacin so that it can be digested.2 Lime would be listed as an ingredient on the product’s nutrition label.

Lack of tryptophan in the diet is due to choosing foods that lack this amino acid and avoiding those that are rich in tryptophan, such as eggs and meat. Conversion of tryptophan to niacin requires adequate levels of tryptophan and adequate levels of iron,

riboflavin, or vitamin B6.2 Tryptophan-to-niacin conversion can easily be subverted if tryptophan itself, or the co-factors iron, riboflavin or vitamin B6, are deficient.

Deficiency Symptoms

Inadequate levels of niacin slows metabolism and impairs functioning of the brain and nervous system, digestion, skin, DNA repair and other key cell processes, and steroid and sex hormone production. Severe deficiency of niacin causes the disease pellagra.2

Mild Niacin Deficiency Symptoms:

1. Problems with metabolism: muscle weakness, lack of energy, weight loss, decreased tolerance to cold.

2. Problems with the nervous system: irritability, dizziness, fatigue, poor concentration, poor memory, anxiety, apathy, depression, headache, neuritis (numbness, burning in various parts), tremors, restlessness and hyperactivity in children.

3. Problems in the digestive tract: anorexia, distorted taste, indigestion, scarlet colored tongue, burning of the mouth, throat, and esophagus, abdominal discomfort and distention, nausea, diarrhea or constipation.

4. Problems with the skin and mucous membranes: sensitivity of skin exposed to sunlight causing a red, itchy, scaly rash that resembles mild sunburn, and inflammation of mucous membranes of vagina and urethra.1

Severe Niacin Deficiency Symptoms (Pellagra):

Severe niacin deficiency is called pellagra. Pellagra is characterized by the classic 4 “Ds”…watery Diarrhea, severe Dermatitis, advancing Dementia and Death.

1. Diarrhea can be bloody and other digestive disturbances worsen with vomiting.

2. Dermatitis develops symmetrically in areas exposed to sunlight with hyperpigmentation (dark color), thickening and cracking of the skin, itchy red wet areas from chafing, and “necklace” sores on the lower neck.2 Subcutaneous fibrosis and scarring within the skin may be seen in late stages. A bright red swollen tongue which in chronic stage is fissured and is similar to raw meat.4 Inflammation of other mucous membranes worsens with increasing deficit.

3. Dementia is due to neuronal loss (death of nerve cells) with development of amnesia, disorientation, confabulation, and delirium.

4. Death ensues eventually if the niacin deficiency is left untreated.2,3 “

It is me again reader.

She gets it well but she doesn’t know what twin it is she is identifying. If she got the wrong one (disease) then the suffering continues’ often for years but if the Co-Morbidity is treated then improvement can be shown in as little as 6 months’ time. . .

Quoting the Celiac Posterboy in another post “Now if the symptoms’ are similar it is easy to confuse one disease for the other and if not well understood they might be considered “exceptional” or, i.e., not well understood.

How do we know this? The Journal of Celiac in another issue entitled Celiac Disease Intestinal Heart and Skin Interconnections http://pubs.sciepub.com/ijcd/3/1/6/ when listing common aspects of both diseases’ says and I quote “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in CD.”

Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite that Pellagra has been described in a Celiac Disease diagnosis.

I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac diagnosis it stands to reason that medical science is identifying the wrong disease.  

I ask again “if you have the wrong disease would you get better!”

See this link to Creighton University where they cover why Doctors are not even looking for Pellagra anymore in their patients.

http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

And therefore doesn’t find it!  But find Celiac disease instead.

I summarize this information at this wordpress blog post

https://celiacposterboy.wordpress.com/2016/03/25/pellagra-a-nutritional-deficiency-disorder-50-years-ago-and-in-its-late-stages-today-commonly-misdiagnosed-as-celiacncgs-or-other-gi-problems-today-confused-for-a-genetic-disease-a-differential-d/

Where quoting Dr. Heaney he correctly states “it is doubtful today that most health professionals would not recognize it (Pellagra) if a case happened to come to their attention” Today!

Pellagra is not a disease of the past as Dr. Heaney say but a disease that is not being diagnosed today!

And why I keep trying to educate people of this fact.

These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.”  

Quoting the Celiac Posterboy again “Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!” in the majority of Celiac, NCGS, IBS, and I believe UC and Chron’s patients too!

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things”

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping and I might add burping without bloating.  Most people will burp when taking Niacinamide in 5 to 6 months or less of taking it (Niacinamide) 3/daily — ie with each meal.

It takes 5 to 6 months to overcome your dependency on this Vitamin for your mucus membranes (GI lining) to heal itself.

Once repaired you can maintain them barring some future stress/trauma depleting your reserves at which time Heartburn/GERD/IBS symptoms will return and you will lose your burp again.

And the cycle repeats and the Pellagra symptoms come back with a vengeance.

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

I don’t know what to more to say that I haven’t said already.

Stop the Madness!  Once you have the Correct diagnosis you get better! Don’t let the “evil twin” of Pellagra make you sick any longer while the doctor’s figure out they have identical symptoms.

Cleo Libonati, RN, BSN,  CEO and co-Founder of Gluten Free Works, Inc  says  “Severe niacin deficiency is called Pellagra” but Mild Niacin deficiency is Pellagra too! Even when it being misdiagnosed as Celiac disease . . .. and the symptom’s continue to worsen until Pellagra is now being  described but not recognized  in the MAJORITY of Celiac patients today without the doctor’s recognizing the same symptom’s.

It is called a Differential Diagnosis and since nothing is differentiating them TODAY they are being diagnosed interchangeably but the suffering is the same UNTIL or UNLESS you treat the Co-Morbidity.

The problem is they have the wrong disease!

Don’t suffer in the meantime! If the International Journal of Celiac Disease is right and Pellagra is Co-Morbid revealing as Celiac disease the majority of the time?

Then treat the Pellagra with Niacinamide 500mg 3/day for 6 months to see if your GI symptom’s get better!

Either we have found the cure?/remission has occurred or Celic Disease/NCGS is the same disease by a different name aka one has been confused for the other Pellagra a Niacin deficiency is being diagnosed today as Celiac disease.

I repeat for emphasis “Either we have found the cure?/remission has occurred or CD/NCGS/IBS is the same disease by a different name aka one has been confused for the other or Pellagra a Niacin deficiency is being diagnosed today as Celiac disease.

Note: Again I must say this because I am not a doctor ************* This is not medical advice.  I am not diagnosing, treating or recommending  you change your routine before consulting your doctor but my doctor has taken https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ himself and agrees it does’ work even though he did not recognize his keys in a clinical setting. But now that he has been educated as to what are the signs of undiagnosed Pellagra he is using the same keys to now help his remaining patients.

The symptoms’ are subclinical as I say in my book “How to Fight Gluten/GERD and Win or How the Doctor’s Almost Killed Me” (see below the 4th D of Pellagra) and more appropriately often confused for the wrong disease.

It should be briefly noted for those unfamiliar with Pellagra is call the 4 D’s disease (or who have not read my other blog posts’) From my Celiac Posterboy wordpress blog post https://celiacposterboy.wordpress.com/2015/01/24/how-pellagra-can-be-confused-with-celiac-diseasegluten-sensitivitygerdheartburn-etc/

“Acute Pellagra is defined as suffering the 3 D’s (4 if you count death) of life.

Dementia (anxiety, depression, panic attacks, etc) Dermatitis (rosea, Psorsias, acne, ezcema etc) and digestive disorder such as (GERD, IBS, Gluten Sensitivity, Celiac Disease, Leaky Gut etc.)

Get the right disease and you will get better! Or suffer the consequences until the doctor’s finds the right keys to diagnose you with Pellagra helping you to recover from your GI problems caused by Co-Morbid Pellagra in as little as 6 months of/by taking 3/day Niacinamide (one 300 count bottle of Niacinamide 500mg is usually enough) until you (begin BURPING)!  Like a healthy baby!

As always’ I hope this helpful and if you want to read the whole blog search for  the “Celiac Posterboy” or “Fight GERD Win” better on Bing.  Good luck on your journey/way back to digestive peace the way  I have found it by God’s Grace for myself and my friend’s and my doctor for

 https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/

Quoting the Celiac Posterboy “I hope my words and experience will be enough to convenience you that medical science has discovered the cause of most digestive disorder(s) but medical practice (clinicians/practitioner’s) has not (does not) digested/recognized it (Pellagra) (yet) in a clinical setting” Today.

The problem with Celiac disease today is there are many “keys” than can fit in the door and seemingly all the keys work.  200 symptom’s all least by some estimates

INSTEAD of 15 minutes it might take 5 to 10 years until a doctor/practitioner/clinician makes sense of all his or her keys.

The fact that the problem is chronic “of an illness persisting for a long time or constantly relapsing” tells him/her (Doctor) that she/he has not found the right key yet.

Is there a better way more Elegant way?  Yes it called Co-Morbidity.

Quoting the Celiac Posterboy again “Disease need not be CHRONIC when one understands the underlying cause.”

Will you suffer another 5 or 10 years until the practitioner’s figure out their keys?  As I say in my Celiac Posterboy youtube video “this information is not well distributed” or understood today! 

Or are you willing to try the https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ to see if your potentially/probable Co-Morbid Pellagra doesn’t get better (go into remission) in 6 months as evidenced by the God given BURP that you haven’t had in years or ever depending on how long you have had Pellagra and the Doctor’s haven’t figured it out yet in a clinical setting.

2 Timothy 2:7  Consider what I say; and the Lord give thee understanding in all things.

The Celiac Posterboy by the Grace of God!

I never know where my blog post will lead me.  And this deserves its own separate blog and not just one post and who knows there might be more posts on this subject but I will start with one.

I pivoted in my last blog to talk about the Dementias of Pellagra http://celiacposterboy.tumblr.com/post/151768076419/3-headed-pellagra-and-its-many-faces-and-why-gi see this link if you have not read it already but it talked about how depression is common in 40 percent of Celiac’s.

And why I do not know the number (percentage) of Skin problems that occurs in Celiac’s or other GI problems I will for easy math assign them one third (1/3) each for each D of Pellagra. Though I think it has as much to do with the depth of the deficiency since all 3 D’s will present themselves in advanced Pellagra cases.

Just Google some images of Pellagra patients and almost all them will show with “rough/sour” skin conditions (see below for how Pellagra originally got its name)

Why more than one condition often exist in many GI patients like depression and dermatitis issues.

The doctor’s don’t often understand they have common origins today.

I will summarize quickly if this is the only blog post you read of mine.

Pellagra has 3 faces that often confuse doctors today but 75 years ago they were able to diagnose this disease with only 3 symptoms the D’s of Pellagra.

Dementia’s, Digestive Disorder and Dermatitis issues.  Are You starting to see a pattern here?

If it starts with a D then Pellagra a Niacin deficiency is involved. Quoting the Celia Posterboy

“These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.”

And brings me to the reason for my post today, I see this a lot and thought a post on why dermatitis issues presenting with GI problems are related and why doctor’s often don’t recognize these connections today was needed.

“You in the back of the class, yeah you reading this blog” Do any of you know what Pellagra means?

Probably not, I guess unless you know a little Italian or Latin.   When Pellagra first came on the scene as a diagnosable disease medicine was really just getting its start as science.

According to a quick search on wikipedia and Pellagra page pops up as a search result

https://en.wikipedia.org/wiki/Pellagra  

Quoting wikipedia “Pellagra was first described for its dermatological effect in Spain in 1735 by Gaspar Casal. He explained that the disease causes dermatitis in exposed skin areas such as hands, feet and neck and that the origin of the disease is poor diet and atmospheric influences.[24] His work published in 1762 by his friend Juan Sevillano was titled ‘Historia Natural y Medicina del Principado de Asturias’ or Natural and Medical History of the Principality of Asturias (1762). This led to the disease being known as "Asturian leprosy", and it is recognized as the first modern pathological description of a syndrome.[25] It was an endemic disease in northern Italy, where it was named pelle agra (pelle = skin; agra = sour) by Francesco Frapolli of Milan.[26] With pellagra affecting over 100,000 people in Italy by the 1880s, debates raged as to how to classify the disease (as a form of scurvy, elephantiasis or as something new), and over its causation.”

Pellagra was first diagnosed as a SKIN disease, Class.  I bet none of you knew that – that your “rough/sour skin” was diagnosed as a disease 250+ years ago and cured by a Vitamin 75+years ago yet still doctors’ today struggle with diagnosing it today as a Niacin deficiency.

Continuing the Wikipedia citation “ Pellagra was studied mostly in Europe until the late 19th century when it became an epidemic especially in the southern United States.[29] In the early 1900s, pellagra reached epidemic proportions in the American South. Between 1906 and 1940 more than 3 million Americans were affected by pellagra with more than 100,000 deaths, yet the epidemic resolved itself right after dietary niacin fortification.[30]  “

The point is not to make you Pellagra experts here but to educate.

Let’s look at the last sentence in this wikipedia citation “Between 1906 and 1940 more than 3 million Americans were affected by Pellagra with more than 100,000 deaths, yet the epidemic resolved itself right after dietary niacin fortification.”

YET the ( Rosacea, Psoriasis, Eczema my words) ie, Pellagra epidemic resolved itself right after dietary niacin fortification.

Just take a look at images on Google when you google for Pellagra link provided for easy viewing

https://www.google.com/search?safe=active&hl=en&site=imghp&tbm=isch&source=hp&biw=1119&bih=929&q=pellagra&oq=pellagra&gs_l=img.3..0l10.2591.7312.0.7687.19.13.5.1.1.0.177.986.11j2.13.0....0...1ac.1.64.img..0.17.981.wck_t2labBE

And you wonder how they could ever forget?  That Pellagra means rough skin.

Did you now a Vitamin could help your Acne?  Well it can the way it did 75+ years ago when it first discovered.

It is often one of the early signs of someone with undiagnosed Pellagra today.  I see it a lot and why I am writing about it today.  I give them my card “How to Fight Gluten/GERD and Win or How the Doctor’s Almost Killed Me” but people never make the connection.  

They look at me with a blank stare on their face not realizing that even something as simple as a Vitamin can help their inflamed skin.

Yes Acne is inflammation and Vitamin B-3 in the Niacinamide form when put into someone’s face cream often helps people with Acne.  At my local vitamin store Niacinamide is on standing orders from the local Dr.’s of Dermatitis because they know it helps 10 to 15 percent better than prescription medicine.

They don’t recognize it as Pellagra mind YOU they just know it helps.

See this link about why this is so http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ 

Where quoting Dr. Heaney he correctly states “it is doubtful today that most health professionals would not recognize it (Pellagra) if a case happened to come to their attention” Today!

Pellagra is not a disease of the past as Dr. Heaney say but a disease that is not diagnosed today! 

And often diagnosed as Dermatitis issues instead! Like acne, Eczema, Rosacea, Psoriasis etc.

Not to mention the Dementia’s of Pellagra see this link where I talk about it

http://celiacposterboy.tumblr.com/post/151768076419/3-headed-pellagra-and-its-many-faces-and-why-gi  

Or IBS, Heartburn/GERD, Constipation and Diarrhea etc of NCGS /Celiac disease.

And why I am trying to educate people of this fact. For as I am fond of saying “To Educate is to Free Truly” see this blog post where I talk the importance of education of this fact.

https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/  

Why is this possible?  What is the connection and how can one Vitamin be responsible for so much misery and suffering? When we are dependent on it? It begins to make a lot more sense.

Well we all need energy to survive no doubt we would agree.  Niacinamide plays a special role in the Mitochondria of every Cell in our body to make energy.

This is most pronounced in area where there is high cell division.  Think the energy needed for pregnancy/to have a child.  And the cell division that goes on when we are constantly replacing (shedding) old skin and replacing it with new skin and you begin to see how this could affect so many body systems/organs in the body.

Note: This is the same reason pregnant people get Acne and develop heartburn late in the pregnancy. 

Webmd says as many as 1 in 2 ladies will get Acne during their pregnancy.

http://www.webmd.com/skin-problems-and-treatments/acne/acne-during-pregnancy-treatments-causes#1

Yet they don’t know you have become low in a Vitamin due to your high stress (energy) needs.

The same is so for the GI system.  Our body replaces the mucus linings of our stomach approximately once a quarter or every 3 to 4 months.

I talk about why this so in this blog post by the Celiac Posterboy linked here

https://celiacposterboy.wordpress.com/2016/05/26/gestational-pellagra-how-to-now-if-you-have-it-and-reverse-its-effect-the-case-of-gerd-in-pregnant-women-and-why-it-is-commonly-confused-today-for-heartburn-instead-of-sub-clinical-pellagra/

Heartburn/GERD in pregnant people really is Gestational Pellagra and the Doctor’s haven’t understood the increased need by your bodies for Niacinamide when we are stressed by pregnancy.  And they need more Niacinamide to make the energy necessary to prevent the destruction of the lining of the stomach and skin layers.

The replacement of these cells (epithelial) according to the Oxford University Press definition

“relating to or denoting the thin tissue forming the outer layer of a body's surface and lining the alimentary canal and other hollow structures: ie "the epithelial cells lining the gut" · 

The stomach can be a harsh place so these cells are constantly replacing themselves as well as the tough outer layer of epidermis which takes the brunt of the damage for your body because they are the first layer of tissues (skin) etc that invaders/bacteria, viruses etc come in contact with.

So without knowing it your body is constantly using a lot of energy to maintain itself.  This constant energy drain on our system can make us low in time (usually 3 to 4 months) the exact time/amount you can store Niacinamide in our liver.

When you get below a critical level you can no longer maintain or repair the lining of the stomach or your skin and it breaks down and you develop acne, psoriasis and other dermatitis issues etc.

So if you want to get rid of your sour/rough skin ie Pellagra then topically apply some Niacinamide to work from the outside in (hydrating) and the inside out (rebuilding) your epithelial layers (skin and GI linings) so it can continue to protect you.

And once repaired your skin condition should get better.

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping and I might add burping without bloating.  Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily — ie with each meal.

It takes 4 to 6 months to overcome your dependency on this Vitamin for your epithelial layers (GI lining/tissue/Skin/epidermis) to heal itself. And maybe longer depending on how deficient you are but these should be expected outcomes for most people who try both a topical treatment of Niacinamide in their skin lotions and oral in gestation by pill/capsule.  

What is the sign that your body is healing from the inside out.  From the outside in you will see improved dermatitis conditions like better acne control probably in the first few months.  From the inside out once your GI is healed itself because it has enough Niacinamide to repair itself you will begin BURPING for the first time in years if ever depending on how long you have had your deficiency.

This should be an/your “Aha” moment when your skin flare ups begin to go into remission because if it is able to repair the Mucus lining of the stomach it is able to do the same to the epithelial cell/layers of your epidermis/skin/acne/Rosacea, Psoriasis etc.

I could write more but this is enough to give you the tools needed to help yourself.  You now know enough to change.  I don’t know if you will only you can decide that for yourself but I routinely help my friends who will listen with Acne usually when they are stressed who no longer need expensive medicine’s that they need to continue to take year after year.

Amazed that something soooo simple as a Vitamin has helped them control their Acne/ inflammation that always seems to “break out” at the worst times.  When they are stressed out their Acne always seems to get worse (or have eaten a lot of gluten triggering an auto immune reaction in their body triggering inflammation).

Well if you want to put the “brake outs” in time out then take the Niacinamide Challenge by Celiac Posterboy

https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/  and see for yourself if in 6 months your Acne is not in permanent time out?

You will only know if you are willing to try it.  What have you got to lose the Dermatologist already uses it with his patients topically.

But it keeps coming back because you are not supplementing with it orally.

Heal you skin from the inside out and it won’t/shouldn’t come back.

It takes 4 to 6 months to overcome your dependency on this Vitamin for your mucus membranes (GI lining/skin epidermis/acne) to heal itself.   (These are meant to be conservative times you might experience relief before this time but do not stop taking the Vitamin for at least 6 months because you need a reserve against future stresses/trauma).

Once repaired you can maintain them barring some future stress/trauma depleting your reserves at which time Heartburn/GERD/IBS, Acne, symptoms will return and you will lose your burp again.

And the cycle repeats and the Pellagra symptoms come back with a vengeance.

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

By The Celiac Posterboy who writes/blogs about the digestive disorders that Pellagra causes today often presenting as other diseases such as GERD, IBS, UC, Chrons or other GI problems and even NCGS and in Time Celiac Disease. And now the other D’s of Pellagra like Depression and Dermatitis issues like Acne, and Psoriasis.

Yes I have written a book on the GI problems of Pellagra aka Celiac disease today but you needn’t buy the book just read my blog and tell others when you are better is all I ask.

Search for it if you are interested by using the below key words or don’t that is ok too just tell other Starfish (fellow sufferer’s)

https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ like yourself that need to hear that when we get the correct diagnosis there is “hope for those still searching”.

Get the correct diagnosis and you get better! Praise bee to God!

THEN tell others is all I ask – however that is (post on facebook, twitter, comment on my blog,  post it on you tumblr account, email a friend this link or link this blog to yours, or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who STILL need help and haven’t heard because the doctor’s don’t see Pellagra anymore even when it is staring back at them in your faces.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.  

The Celiac Posterboy by the Grace of God,

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

3 headed Pellagra and its many faces and why GI problems often are only the tip of the Iceberg.

The Celiac Posterboy who writes/blogs about the digestive disorders that Pellagra causes today often presenting as other diseases such as GERD, IBS, UC, Chrons or other GI problems and even NCGS and in Time Celiac Disease.

And now I want to pivot and include other disease presentations so called extraintestinal (out side the GI) as the term is used that occur in other parts of the body.  

Too often the 20+ associated diseases of Celiac disease have other non GI related disorders commonly diagnosed as separate diseases of a common origin.

Quoting the International Journal of Celiac Disease (from here on out IJCD) article Celiac Disease: Intestinal, Heart and Skin Interconnections http://pubs.sciepub.com/ijcd/3/1/6/ 

“It has been shown that the classic intestinal clinical picture of malnutrition, chronic diarrhea and nutritional deficiencies are disappearing and extraintestinal presentations are emerging.  Skin, cardiological, endocrine, skeletal, hepatic, hematological, thrombophilic, gynecological, fertility, dental and behavioral abnormalities are often described [1, 2, 3, 4, 5].” And I would add dementia related conditions should be included in the differential diagnosis process.

Quoting the IJCD again “All these extraintestinal presentations make the diagnosis of the disease more difficult and the reliance on the typical symptomatology more remote. These are some of the reasons why serological screening and diagnosis of CD have achieved prime importance and the high-risk CD populations were expanded to other conditions and to extraintestinal target(s) organs symptomatologies [6, 7].”

And should be expanded to the brain and its many symptomtaologies (their word) like the 3rd D of Pellagra: Digestive, Dermatitis and DEMENTIA’s like anxiety, depression etc.

It is commonly known as gluten ataxia if associated with a Celiac diagnosis today.

The problem today is Pellagra is no longer being diagnosed as the cause of these Dementia’s.

Hindwai (a medical reference website notes this)  

“subpellagrous nicotinamide deficiency may have lifetime roles in a range of behavioral traits, neuropsychiatric diseases, and dementias.”   https://www.hindawi.com/journals/cggr/2012/302875/  

The healtybynaturehwc blog notes the same thing by Susan Hughes who asks( Is it) Dementia or Pellagra? Niacin Deficiency in the 21st Century

http://blog.healthybynaturehwc.com/niacin-deficiency/

Note: Dementia is stand in here for a range of mind/brain conditions that can occur with gluten allergies.  50 percent of MS, and Cerebral Palsy patients have gluten antibodies in their systems at the time of diagnosis and 40 percent of Celiac are depressed.

Susan is much kinder than Dr. Mercola who she references in her blog where Dr. Mercola notes violent tendency in patients/inmates in psyche wards and prisons who when given Niacin went into remission at a rate as high as 50 percent with low grades supplementation and at rates as high as 80 percent with high dose supplementation when Dr. Hoffer in the 1950’s first discovered Niacin treats the Dementia’s of Pellagra.

And it was not just mild mental symptomtaologies  like  being sad that were cured either but even schizophrenia.

Dr. Mercola asks?

What about the people that had a little bit of niacin, but didn't get better? ... [H]e Dr. Hoffer started giving what at the time were preposterously high doses of niacin: 3,000 milligrams a day. And he was curing schizophrenia in 80 percent of the cases

(It should be noted for clarity the 3,000mg was in divided doses or multiple times a day.)

See his blog here http://articles.mercola.com/sites/articles/archive/2012/10/21/pellagra-causes-violent-crimes.aspx

This explains well the violent tendency of advanced Parkinson disease patients.  

A noted characteristic of the disease advancing to its end state: death the 4th D of Pellagra.

More on that in another post.

From the same article Dr. Mercola notes other researchers have confirmed Dr. Hoffers’ earlier findings.

Quoting “According to Dr. Saul, other researchers have since confirmed Dr. Hoffer's findings, and found that niacin can also be successfully used in the treatment of other mental disorders, such as:

* Attention deficit disorder  

* General psychosis  

* Anxiety  

* Depression  

* Obsessive-compulsive disorder  

* Bipolar disorder 

Pellagra is an extreme or total niacin deficiency and Pellagrins have GI problems and many other things – including have mental illness symptoms.  

That Doctor’s 75 years ago diagnosed as Pellagra but since our bread has been enriched with Niacin depressed people no long receive this diagnosis.

The Hindwai article notes in their Pellagra clinical presentations sections that “Mental symptoms were wider than dementia, in that depression, fatigue, psychomotor retardation, mania, obsessions, and a whole range of psychoses with auditory and visual hallucinations were well described, along with personality change and sociopathic and drug and alcohol addictive behaviors. Panic disorders were seen as was a general inability to deal with physical or mental stress.” Very similar to the six different dementias of Pellagra that Dr. Saul other doctors have linked to a Niacin dependency.

Not stopping there they even mention MS and Parkinson Disease as Niacin deficiency.

Quoting “The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants.”

Yet people still search 75 years later for cures for these apparently new diseases while all along science confirmed them as DEMENTIA’s of Pellagra.

The hindawi journal goes on to note “Pellagra without dermatitis was well accepted and a frequently overlooked diagnosis. Young men from affected states had inordinate difficulty in passing the intellectual tests that involved reading, writing and numeracy skills and the physical fitness tests required by the military, suggesting that subclinical disease was rife.

Link provided here again for reference but I warn you it is a very technical read so I have summarized.   https://www.hindawi.com/journals/cggr/2012/302875/

And still is today.

It just goes by other names today instead of Pellagra.  Mostly Celiac disease.  58% of Pellagrins today are diagnosed as having Celiac disease according to the International Journal of Celiac Disease (IJCD).

Link provided here again for easy referencehttp://pubs.sciepub.com/ijcd/3/1/6/note their third paragraph “Pellagra and Celiac Disease”.

Try it for yourself and see.

Take the Niacinamide Challenge taking Niacinamide 500 mg 3/day for 6 months and see if you don’t begin burping in 3 to 4 months and your moods get better in the first 6 months of taking it.

I am writing this for a new follower of my Celiac Posterboy blog who very aptly states “We are all Fixable” because I was them 5+ years ago before I found (God being my help) that indeed all subclinical Pellagrins were indeed fixable when we got the right diagnosis.

SADLY few do today.

*** Remember as always this is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.  

But I think if you take Niacinamide the way I did 2 to 3 times a day for a year your mood disorders will be greatly in remission.

I have not taken the Niacinamide in over 5+ years and my clinical depression of 30+ years has been in remission since.

I am just trying to help the other Starfish still out there. https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ 

The Starfish Story Original Story by: Loren Eisley

“One day a man was walking along the beach when he noticed a boy picking something up and gently throwing it into the ocean (world wide web) . . .

Son, the man said, don’t you realize there are miles and miles of beach and hundreds of starfish?

You can’t make a difference!

After listening politely, the boy bent down, picked up another starfish, and threw it back into the surf. Then, smiling at the man, he said I made a difference for that one.” .  .  .

Want you listen? Or have you heard? A vitamin can help us when we are STRESSED out.  See the The Niacin (Niacinamide) Challenge

SADLY few do get a correct diagnosis.  “Snap out of it” we are told. When all along our bodies are not able to function properly.  When that function is restored with some what I like to call some TNT (Targeted Nutrition Therapy) then many illness can be blasted away.

The key here this is a cycle of supplementation.  You won’t always need to take Niacinamide FOREVER like a pill (a pill for everything) common in medical practice today.

Now the cycle might be a year or two depending on how often you take and how low you are in it but It is a cycle and then you can cycle off it the way I have.

Though most people will benefit from a cycle of taking it (Niacinamide)  2/day for a year if you are low enough to have DEMENTIA’s of Pellagra.  

But as long as you give yourself  two hours between dosages then you can take another Vitamin because this is a water soluble Vitamin your body will not store more than it needs at that particular moment.

It will take 6 months of 3/day before your body refills the small reserves it is able to store in the Liver mostly.

The difference in fat soluble Vitamins (A,E,D,K) can be stored for years in your fat cells.

After your limited storage site is full your body will now be able to restore normal functioning and many of the D’s of Pellagra will improve like Dermatitis issue’s (roseaca, eczema, acne, psoriasis etc) and Digestive Disorder’s  like GERD, IBS, Constipation, Diarrhea etc. and your moods (Dementias of Pellagra) will improve dramatically.

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping and I might add burping without bloating.  Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily — ie with each meal. They will become once a day regular if you are not already (for those who are already gluten free) and your stool will sink to the bottom of the bowl a sign of completed digestion.

*** Remember as always this is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But what you got to lose it is just a Vitamin as I said in my book “How to Fight GERD/Gluten and Win or How the Doctor’s Almost Killed Me” referring to the 4th D of Pellagra you have already lost your bowels and probably your mind if you are reading this blog don’t lose your life before the doctor’s figure out that Pellagra still exist today.

And it has 3 faces that often confuse doctors today but 75 years ago they were able to diagnose this disease with only 3 symptoms the D’s of Pellagra.

Dementia’s, Digestive, Disorder and Dermatitis issues.  Are You starting to see a pattern here?

And because you are not in subgroup like an alcoholic then the doctor’s aren’t even looking today for these symptom’s so when they see you with them they don’t even consider Pellagra today as a possible diagnosis.

Good luck on your journey but I am afraid, very afraid the doctor’s wont’ find the correct diagnosis in time and unless you are willing to take the Vitamin Niacinamide (UNTIL BURPING is your new normal) believing against all hope “we are fixable” then you too won’t get better.

But there is hope one like yourself has been helped (found hope God being his help) and is better and I wanted you to know “we are all fixable” if/when we get the correct diagnosis.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

The Celiac Posterboy by the Grace of God,

Why and How Pellagra is (often) Confused with Celiac Disease and/or Digestive Problems Part 2; The Science of Pellagra a Hidden Epidemic in the 21st Century  

When I was gluten intolerant following a Gluten Free diet religiously and newly diagnosed as a Celiac I began studying to see if there was a “cure” for this disease.

About 4 years into my study of Celiac disease I begin to match up/cross reference symptoms of Low Stomach acid – Hypochlorhydria. It seemed obvious my symptoms were the same. 

It was on that day the seed was planted on the book “How to Fight Gluten/GERD and Win”. It would take another year before I had the courage of my conviction to actually try gluten again knowing the five alarm bathroom visit I would set off if I was wrong . . . but the research was clear the doctor’s had the wrong disease.

So with faith in myself and God that He had led me to this wisdom (2 Timothy 2:7) I began my journey back to peace with Gluten and GI health I had not known in over three decades. And after a year of being able to eat gluten again (no accident poisoning’s when dining out) and an occasional cheating with gluten – my mortal enemy I began to write my opus “How to Fight Gluten/GERD and Win”.

That was ten years ago and I haven’t looked back.  I have been eating gluten again with no constipation, diarrhea, IBS, GERD, gas, distension or GI pain in 5+ years.

See this blog post where I talk about how I obtained Gluten Independence if you want to know more about the Celiac Posterboy’s Story

https://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/

Someone who I was explaining this too (or trying to explain this to) asked me but “why does this happen” and I didn’t have an answer for them.

So that set me off again. If I could figure out by God’s Grace why this was happening then imagine all the suffering that could be avoided by people?

Well after much study and the Grace of God – I did. STRESS!

What happens when we are stressed – we burn energy and a lot of it? Fight or Flight right?

All this fighting takes energy and lots of it to survive the body takes our energy reserves from other parts’ of the body when it does this too much or too often over a 3 to 4 month period our body becomes STRESSED out.

This is the same amount of time our body can store B Vitamins usually in the Liver. Is there anything we can do to help with this STRESS we are experiencing or is it hopeless.

No it/we are not helpless or hopeless if we will supplement (or feed our cravings) of the missing ingredient/nutrient then we can meet our need and remission from too much stress is obtained. Hence the Niacinamide Challenge I have mentioned elsewhere in this blog.

How do we know this? We can’t for sure unless we are willing to take the missing nutrient according to Prousky “a vitamin B3 deficiency occurs when the intake of the vitamin is below a known minimal amount that guards against pellagra. A vitamin B3 dependency occurs when there is an increased metabolic need for the vitamin requiring treatment with megadose amounts”.

A deficiency is why we enrich/fortify are bread with Niacin our milk with Vitamin D and our salt with Iodine. A dependency is when are bodies don’t function properly due to high stress levels requiring high or increased metabolic need as quoted by Prousky above.

What does this look like in human beings?

If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up.

As cited in the International Journal of Celia Disease http://pubs.sciepub.com/ijcd/3/1/5/ from the article “Two Exceptional Complications Revealing Celiac Pellagra and Ischemic Cardiomyopathy … “pellagra is essentially affecting tissues with a high rate of cell turnover, such as the digestive tract and the skin, and tissues with high energy needs, such as the brain”.

Now if the symptoms’ are similar it is easy to confuse one disease for the other and if not well understood they might be considered “exceptional” or, i.e., not well understood.

How do we know this? The same Journal of Celiac in another issue entitled Celiac Disease Intestinal Heart and Skin Interconnections http://pubs.sciepub.com/ijcd/3/1/6/ when listing common aspects of both diseases’ says and I quote “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in CD.”

Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite that Pellagra has been described in a Celiac Disease diagnosis.

I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac diagnosis it stands to reason that medical science is identifying the wrong disease.

I ask again if you have the wrong disease would you get better!

See earlier post  https://celiacposterboy.wordpress.com/2015/10/09/is-non-celiac-gluten-sensitivity-andor-celiac-disease-really-pellagra-in-disguise-in-the-21st-century-2/

Why is this? Or how is this possible?  

The International Journal of Celiac Disease muses on this point too? when discussing the “exceptional” (not well understood) reason why Pellagra shows up in a Celiac Diagnosis. They say “Little progress has been made in our knowledge of pellagra . . . since Goldberger discovered that nicotinamide was a preventive factor in 1926” of Pellagra.

Continuing the citation “Proof of this is that there have been no changes’ in treatment or diagnostic criteria in the last 90 years” for Pellagra. As the International Journal of Celiac Disease summarizes this case of “Exceptional Complications Revealing Celiac Disease and Pellagra “illustrates . . . rare (I would say common) complication revealing celiac disease”.

Because it is not YET well understood that 58 percent of Celiac patients are Co-Morbid with Pellagra. Common enough I believe to declare Pellagra as the Parent disease and the subsequent Celiac patient the child meaning every one (95 plus percent probably) of those diagnosed with Celiac disease has symptoms derived from Pellagra though it is not now commonly understood in the medical community.

Also see this posthttps://celiacposterboy.wordpress.com/2015/09/22/many-ibs-patients-found-to-be-sensitive-to-gluten/ where I hilight the fact that 84% of IBS patients have been found to be Sensitive to Gluten (ie undiagnosed Pellagra patient).

If we follow most normal paths’ for adoption it will take another 20 years (a generation) for the medical community to accept Pellagra as the proper diagnosis.  It is even higher for NCGS patients.

According Celiac.com 90+ percent of NCGS patients will show Celiac symptom’s on a Gluten Challenge.

http://www.celiac.com/articles/24448/1/Gluten-Definitely-Triggers-Symptoms-in-Some-NCGS-Patients/Page1.html  

They call NCGS patients a subgroup quoting “This study shows that gluten is definitely the trigger for symptoms in a subgroup of patients with clinical NCGS.”

The problem is they have the wrong disease!

Don’t suffer in the meantime! If the International Journal of Celiac Disease is right and Pellagra is Co-Morbid revealing as Celiac disease the majority of the time?

Then take the “Niacinamide Challenge”

https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ (earlier post) and find out for yourself and see if you don’t begin burping in 6 months or less depending on how many times a day you take it and potentially put your GERD/IBS/UC/Chrons/ NCGS/Celiac Disease in remission along with your Co-Morbid Pellagra symptoms aka (the 3 D’s).

See this link to Creighton University where they cover why Doctors are not even looking for Pellagra anymore in their patients.

http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

And therefore doesn’t find it!  But find Celiac disease instead.

I summarize this information at this wordpress blog post

https://celiacposterboy.wordpress.com/2016/03/25/pellagra-a-nutritional-deficiency-disorder-50-years-ago-and-in-its-late-stages-today-commonly-misdiagnosed-as-celiacncgs-or-other-gi-problems-today-confused-for-a-genetic-disease-a-differential-d/

Where quoting Dr. Heaney he correctly states “it is doubtful today that most health professionals would not recognize it (Pellagra) if a case happened to come to their attention” Today!

Pellagra is not a disease of the past as Dr. Heaney say but a disease that is not diagnosed today!

And why I keep trying to educate people of this fact.  

These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.”

Quoting the Celiac Posterboy again “Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!” in the majority of Celiac, NCGS, IBS, and I believe UC and Chron’s patients too!

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things”

As I have said before in this blog. A healthy child burps at 6 months of age and you can too in six months by taking the Niacinamide Challenge putting your Co-Morbid Pellagra (digestive) symptom’s into remission if indeed we can believe the International Journal of Celiac Disease  and your Celiac Disease is presenting as Pellagra the majority of the time.

In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping and I might add burping without bloating.  Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily — ie with each meal.

It takes 3 to 4 months to overcome your dependency on this Vitamin for your mucus membranes (GI lining) to heal itself.

Once repaired you can maintain them barring some future stress/trauma depleting your reserves at which time Heartburn/GERD/IBS symptoms will return and you will lose your burp again.

And the cycle repeats and the Pellagra symptoms come back with a vengeance. 

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

Then tell someone (share) is all I ask https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book is all I ask but don’t let the chain break with you.  

There a lot of starfish (sufferers’) out there (on the world wide web) who need help.  

Praise bee to God they need you to tell them!

Stop the Madness!  Once you have the Correct diagnosis you get better!

Stop the Madness!  I say again for emphasis.

I say admit it IJCD (International Journal of Celiac Disease (Pellagra my words)) (YOUR own research bares this out but you don’t believe it)  (58% of Celiac’s at least) (and probably more) because they are not even looking for Pellagra they just note the Co-Morbidity as an oddity) 58% is not rare it is the (MAJORITY) can and will show improvement when taking Niaciamide UNTIL burping is induced (occurs) like Prousky proved scientifically 15 years ago that “Niacin treats digestive problems” and yet we (most of us  Celiacs’) still are looking for a cure for our disease.  Maybe as high as 90+ percent (I would say higher) are being misdiagnosed as NCGS/Celiac’s (or some other GI disease) because one disease has been confused for the other.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

The Celiac Posterboy by the Grace of God,

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.    

Being a tumblr blogger, tumblr will often recommend other people’s blog too you that might be germane (related) to the topic you are blogging about often.

So as a way to connect I sometime do just that – reach out – and while some respond in kindness.

Very often people have vitriol for your attempted kind deed and even hate.

I know it is not directed at me per se, it is just their pain talking so to speak.

I have encountered this before on a personal level but though I am not surprised when it happens now I always amazed that someone who is trying to help (by reaching out) is attacked as someone who is mean and bitter.

See response to me trying to reach out to another fellow sufferer.  Sufferer is the key word here.

She is still suffering but when someone try’s reaching out to them they lash out in response.

My outreach

I think I can help you in about six months if I am right.  Please read my blog for more information.  I am right you might have Pellagra and the doctor's haven't figured it out yet.  Search for Fight Gerd/Gluten and Win or the Celiacposterboy and I should come up in Google.  The Celiacposterboy

Correspondence below edited with ellipsis for brevity and to leave out the most hateful parts.

tierranical response

“Hi, I have a few things to tell you. While I appreciate you reaching out, kinda, I guess, -  . . . You attempting to diagnose other blogs, especially people who have a medical diagnosis, is unethical and just increases the stress factor on others. I have ulcerative colitis. Not a gluten allergy, not gerd, and not Pellagra. Especially not the last. Telling people they may have a deadly disease in order to sell yourself is . . .  a fear tactic, and I would suggest you immensely change how you are wording this to others. Tell them what you’re actually doing, which is promoting purchases of your own book. . . You told me - a girl who is currently undergoing effective treatment for an illness - that this is not correct, and I should instead invest in your “magical cure” to a disease that has absolutely nothing to do with a gluten-free diet.

Please consider how f***g insensitive this is before you message another patient. .. this is shameful, as it instills fear, misdiagnoses, and belittles my illness. This was probably not your intent, but seriously, look at what you’re doing before you do it. And think of the effect it may have on others.”

Now we both could be wrong and in the wrong in this case.   Maybe my methods seem insensitive to those who are sick of anything other than a Celiac diagnosis.  Those too won’t listen but if it could help why wouldn’t you try it?

Such is the ignorance of the disease Pellagra today that when an elegant solution (a vitamin) is proposed no one believes you today.

I have written about this in other posts. And is one my most searched for posts.

 https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ 

Quoting the Celiac Posterboy “Are You one of the 50 Percent of Celiacs still Struggling on a Gluten Free Diet (Part 2 A Former Sufferer’s Journey back to peace with food (gluten)

If you are a Celiac, NCGS, UC or IBS or Heartburn patient you are in a food fight and you are not winning then the book “How to Fight Gluten and Win Or How the Doctor’s Almost Killed Me” may be for you. Search for the “Celiac Posterboy” or “Celiac Poster Boy” Bing seems to work better than Google if you want to read all my posts.

This blog is about education. If you are a fellow sufferer (starfish) then I might can help you if you will consider what I say  (2 Timothy 2:7).   Since I started this blog I have added twice the material online that I put in my original self-published (tome) book. I probably should just reprint the book with this added information but I don’t’ think Amazon would now let me – since they would consider this copyright infringement because I published it online before listing it to be published with them.

Nonetheless having no big organization behind me the way I see it “I am just a boy walking down the beach throwing the starfish back in the ocean helping those who will listen”  

“. . . Then, smiling at the man, he said I made a difference for that one.”

Want you listen? A vitamin can help us when we are STRESSED out. See https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/

Back to my personal journey to peace with gluten and I hope yours in 4 to 6 months.

See this link if you are not familiar with the “Starfish story”

http://www.starrbrite.com/starfish.html

And though it might seem insensitive to some and maybe most to those who are misdiagnosed often with the wrong disease I am just trying to make a difference in the only way I know . . . . Education . . . one starfish at a time.

Whether thy be a Celiac sufferer, IBS, UC, NCGS or GERD suffererer.

See this link where people “get it”.  IBS, NCGS etc (and probably) UC and Chron’s too is part of the/ on the Pellagra spectrum of GI disease caused not by food per se but a Vitamin deficiency.

https://celiacposterboy.wordpress.com/2015/09/22/many-ibs-patients-found-to-be-sensitive-to-gluten/

Quoting “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS / (UC) might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in (IBS/UC) ie gluten sensitive patients”.

(Parentheses) added by me because I believe this one Parent disease with many presentations (children) are not separate diseases as the “cynical” UC sufferer believes it is.  But one disease quoting the Celiac Posterboy “(Unfortunately) for most patients it (Pellagra) is not recognized as Disease TODAY I am not a doctor but I realized there is a lot of ignorance about this topic even among doctors because Pellagra having not been seen in most doctor’s office’s since at least the 1940’s and now are ignorant of how it present’s in a Clinical setting.”

**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found (and my doctor and friends have found) if you take it (Niacinamide) like an antibiotic (UNTIL BURPING) then 95% of your GI stress will be in remission.

As I say in the foreward/dedication of my book “The Bees’ Story” and reprinted in part below learn from my MISTAKES.  This blog is about education. Not the FEAR you now feel.

If you prefer to read the whole post you find it here at this link  

https://celiacposterboy.wordpress.com/2016/02/13/dedication-the-bees-hive-story-to-the-book-how-to-fight-glutengerd-and-win/

“Dedication The Bee’s (Hive) Story

(To the book “How To Fight Gluten/GERD and Win”

To those who follow this blog “How to Fight GERD/Gluten and Win” know I have been talking about B(ee) Vitamins and B(ee) the example your doctor/clinician needs to see to not have his other patient’s stung by stress. This is what has been the unifying factor now get out there and buzz your doctor. Bee the change!

People have been raiding bee hives for eons.

Honey is a store house. Ignorant people get stung when they try to rob the honey but smart people find the right way to extract the energy without paying too high a price.

This book/blog “How to Fight Gluten/GERD and Win” is just that storehouse of knowledge learned from life experiences. The book’s author has been stung so you don’t have to be.

Learn from my mistakes.

No man is so dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.

Is it any wonder God’s promised land was described as a land flowing with milk and honey?

Where knowledge flows there is health of mind and body.

Feel free to ladle and dollop your life with the sweet stickiness of the truth found inside.  For honey like truth stick to you once in contact and you can’t just wash it away.

Think of something else sticky – Gravy.

It sticks to your ribs where joint and marrow does increase one’s health and vitality.

Gravy is a highly refined flour product – the product of toil and strife by the farmer who tills the land.

This book is the same fruit of life.  It is my opus.  My burden is light because I give to you to take and do as you will with it.”

For to Educate is to Free https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/

I want to say at this point I have put an ebook online at Amazon the “Cynical UC” patient mentions but it is for Education mostly.  It is a resource

You needn’t buy the book.  Read the blog and you will be educated to what you need to do to get better.  As I said in my dedication/foreword above quoting the Celiac Posterboy “This book/blog “How to Fight Gluten/GERD and Win” is just the storehouse of knowledge learned from life experiences.  The book’s author has been stung so you don’t have to be.” Subtitled “How the Doctor’s Almost Killed Me” you don’t have to sufferer any longer if you don’t want too!

If fear is too much for you!  I understand that.  YOU can be like the “cynical UC” and go on hurting or try the https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and  stop the madness and see if you don’t get better in 6 months of taking Niacinamide 3/day  UNTIL burping (without bloating) is your new normal.

From my “Doctor’s Get a “D” for diagnosing Non Celiac Gluten Sensitivity (UC/IBS/NCGS) ( ) added to post for emphasis

  https://celiacposterboy.wordpress.com/2015/09/22/doctors-get-a-d-for-diagnosing-non-celiac-gluten-sensitivity/

I have said this before on my blog in different places but it is a spectrum of disease that is our concern here.  Not individual disease(s) here but the “Correct” disease. These are not all different disease’s but ONE disease in different states of suffering – Pellagra!

The longer the damage goes on … the more severe the condition.  Think GERD/Heartburn/IBS/NCGS/ (UC, Chrons etc) Celiac Disease as I have linked in several other posts.

Until usually the fear of change, any change no matter how beneficial (like the cynical UC) is more than you can bear.

Quoting the Celiac Posterboy “The key word here is “correctly” diagnosed. If the doctor stop’s as they often do (apparently in 84% of the time) at an IBS diagnosis then it could be another 6 to 10 years of suffering for the “average” Celiac Patient. Or 90+ percent in NCGS patients who show poor control when challenged with Gluten.

Or worse UC or Chron’s Why is (can) that be worse. More on that in a minute. It is true I don’t know how to win people’s heart.  I am not a marketing person but I do have a heart for Fellow Sufferer’s like myself who can’t or don’t get a correct diagnosis from doctor’s.

Quoting my earlier post https://celiacposterboy.wordpress.com/2015/09/22/doctors-get-a-d-for-diagnosing-non-celiac-gluten-sensitivity/ by the Celiac Poterboy again

“As I say in an earlier blog post “Sadly too often after 8 to 10+ years of testing after all the differential diagnosis’s are ruled out you are said by process of elimination to have Celiac Disease if you are lucky and not some other acronym GI disease as I like to refer to them as a group.

GERD,IBS,UC, Chrons etc because if they turned down that street … . you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s).”

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

But Unfortunately for UC and Chron’s patients’ (and IBS see above) gluten is not even identified as the trigger and they never have the option to get a diagnosis that improves their condition (not really).

The medical definition is “flares”.  We still don’t know what “heck” is going on with you but let’s give you yet another medicine to control your “flares” when your UC or Chron’s, IBS, or GERD flares back up.

The fire (gluten) is still burning your insides up but keep taking this medicine and everything will be ok?

Don’t mind your flares.  They are common in your case!

Stop the Madness!

Get the right diagnosis and get better!

See more about my storyhttps://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/ if you want to learn how “I was one of those people five years ago plus (7 years now) with +++ other disease(s) (symptom’s really) of one parent disease with many “associated” children as the medical community likes to call it when multiple diseases are more likely to occur when someone has type A disease then type B disease is more common.”

Celiac/NCGS/GERD/IBS/UC etc and most other GI acronyms I believe (it has been my experience) that lay on a similar correct diagnosis of Pellagra being the Parent disease.

I could go on and on but will close for now only to summarize that after 35+ years of general digestive upset (NCGS, Celiac Disease/IBS, GERD, Constipation, Diarrhea, Heartburn, pain, dissention, excess gas etc) and after 4 years of being gluten free I have now been able to consume gluten for 7 years now without any of the above symptoms.

And I try to Educate one Starfish at a time those who will listen.

LIKE I am doing now in this blog post and I am trying to do with the 500+ books I have given to friends.

Reply to this blog or reblog or share this link with your friends when you are BURPING so others’ will know/understand and be helped like so many of my friends and YOU if you take the Niacinamide Challenge – Praise be to God!

If you/your GI problems improve and you begin burping again for this time in years or maybe ever then surely you had sub-clinical Pellagra a Niacin deficiency and the doctor’s haven’t understood/realized it yet in a clinical setting.

See my Ihttps://celiacposterboy.wordpress.com/2015/05/21/is-non-celiac-gluten-sensitivity-andor-celiac-disease-really-pellagra-in-disguise-in-the-21st-century/? WordPress Blog entry for more information where I ask “What If you have the wrong disease? Would you get better?” like UC or Chon’s or Celiac Disease?

Is Non-Celiac Gluten Sensitivity (NCGS) and/or Celiac Disease really Pellagra in disguise in the 21st Century?

If your symptoms go away after taking Niacinamide 3/day for six months then you have Pellagra and UC/Chrons/IBS/NCGS/CD is Co-Morbid and the doctor’s don’t understand the role stress plays in Epigenetics.

That is why I wrote my book “How to Fight GERD/Gluten and Win” and this blog to tell people who will believe a Vitamin can make are GI system healthy. It did 75+ years ago and can now today!

Quoting the Celiac Posterboy again from his Gluten Independence – A Former Sufferer’s Story blog post referenced here again for convenience. 

https://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/

“Let me be clear when I say Celiac here it means not only CD but Non-Celiac Gluten Sensitivity (NCGS), Heartburn/GERD, IBS and most other alphabet GI disease(s) you can think about here like UC, (Chrons) Ulcers etc.” if Pellagra is Co-Morbid and the doctors have not recognized it in a clinical setting and learn doctors have not recognized it in a clinical setting and learn how for yourself how https://celiacposterboy.wordpress.com/2016/03/25/pellagra-a-nutritional-deficiency-disorder-50-years-ago-and-in-its-late-stages-today-commonly-misdiagnosed-as-celiacncgs-or-other-gi-problems-today-confused-for-a-genetic-disease-a-differential-d/

Quoting from this post “Of course if it is Pellagra you will also most likely have other disease presentations not limited to acne, rosacea (dermatitis) skin rashes etc, or depression, anxiety, etc (dementia) symptom’s as well because they are the other D’s of Pellagra commonly diagnosed as separate diseases disease today known to be of a common cause 50+ years . . . And why Celiac Disease today is commonly known as the “Iceberg disease” because the diagnosis is just the “tip of the iceberg” of the other 20 commonly associated disease occurring with or alongside a Celiac diagnosis.”

“Now the disease of Pellagra today has mainly been reserved for subgroups of people like alcoholics.”

“Why is this? . . . because Doctor’s don’t recognized it today UNLESS they are a specialist and EVEN then to quote Nicki Frost from the Pellagra Disease Blog these “specialists (are) in fields that are ultimately unrelated to the underlying nutritional deficiency and metabolic nature of the disease.”

Quoting the Celiac Posterboy “So the cycle repeats Since these specialists don’t consider you in a subgroup that is prone to be diagnosed with Pellagra then Celiac/NCGS disease is diagnosed if you are lucky and not some other GI problem like Chrons, IBS, UC etc because in these cases the GI specialists is not even looking for Gluten as a possible trigger.”

“This is not to even mention the other D’s of Pellagra today being diagnosed as various degrees’ of Dermatitis like ezcema, psorsias, Dermatitis Herpetiformis (DH) etc which are related to skin presentations of Pellagra. Or the dementia’s of Pellagra like depression (40 percent of Celiac’s are depressed) or the “brain fog” a Celiac develops after being “glutened” I could go on and on but you get the idea.”

 I should stop now.  I never can write a short post because there is so much to cover in one post.

But if you print out this blog in its entirety there are over 150+ pages to read with no cost to anyone but the cost to buy the Vitamin.  About the length of the book that I have updated with some of the same information so it would be convenient to read it all in one place/post.

The purpose is not to sell books but to Educate or I wouldn’t be also including this information in a blog. I have no “magic cure” as Cynical UC mentioned.  Only the correct diagnosis if you take the Vitamin and get better.  

I don’t benefit in any way monetarily from writing this blog.  It certainly doesn’t sell books.  AS the Cynical UC mentioned it just invites Vitriol to those who don’t believe but those who read this blog are educated by it and it helps it makes all the difference!  And that is why I do it.

My luck in helping people come mostly with those who have suffered the least.  Like GERD/Heartburn/IBS but those who have received a “definitive diagnosis” like the Cynical UC or a Chrons or Celiac sufferer then it is a bridge to far for them to cross.

But for the 60 Million Americans who have heartburn/GERD once a month.  It could (does) really change their life for the better.

https://celiacposterboy.wordpress.com/2014/10/15/way-back-from-nexium/

I know because I often try and give Niacinamide to people who it could help and at least half the time they won’t take a Vitamin for their health even heartburn sufferers often won’t take a Vitamin.

See this post where I talk about why people won’t take a Vitamin for their health.

https://celiacposterboy.wordpress.com/2016/02/06/time-for-a-vitamin-reformation/

Are you afraid of a B Vitamin more than you are afraid of the medicine doctor’s are giving you for your UC, Chron’s, IBS etc.

You needn’t be my doctor himself now uses Niacinamide instead of Linzess to treat his hard to control IBS patients with amazing results!  (and I have helped my friends) those who listen with UC too! The same way!   Unless you are a Cynical UC patient who won’t/  wouldn’t try a Vitamin! It won’t hurt to try.

How can you know this is true? You/We can’t really UNLESS you are willing to try https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and see if your digestive problems don’t’ go into remission as Prousky proved almost 15 years ago this year that Niacinamide treats digestive problems.  

See this link http://www.yourhealthbase.com/database/a124b.htm

More people should know this.  To Educate is to Free Truly!

Quoting the Celiac Posterboy “That is why I wrote my book “How to Fight GERD/Gluten and Win” and this blog to tell people who will believe a Vitamin can make are GI system healthy. It did 75+ years ago and can now today if Prousky is right?

**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.

And In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it long enough.  It should as I have said elsewhere in this blog it should be taken UNTIL you are burping.  Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily — ie with each meal.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.

Then Tell someone (share) is all I ask https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog “How to Gluten/GERD and Win” is all I ask but don’t let the chain break with you. There a lot of starfish/ Cynical UC (sufferers’) who need help.  And maybe you are one yourself.

*** Remember as always this is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken

https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and his digestive/GI problems are in remission.

I wish you much peace and the God given BURP! For

https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/ has been proclaimed don’t bee the last to hear!

Praise be to God! To those who hear and listen!

The “Cynical UC” did not listen and hear will you? 

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

The Celiac Posterboy by the Grace of God,

Can Pellagra and Celiac Disease be present in the same person; ie, Co-Morbid: A fellow sufferer’s story  

Subtitle Story of the shortest book or rarest book in the world by the Celiac Posterboy depending on whether you believe Pellagra today is being confused for Celiac Disease or if you believe that it is not possible to ever get better from Celiac Disease even when in 58% of Pellagra patients aka Celiac Disease patients today are Co-Morbid with a very curable disease, often forgotten but very curable Pellagra.

This is an old joke of things that never happened.  Usually considered not possible or against ones character like when Pigs fly I will eat gluten again if you are a Celiac Patient.

But the Celiac Posterboy has written the rarest book in the world on how “How Pellagra can be Confused with Celiac Disease” and there are not many/any Celiac’s  who have  believed him and NOT ONE Celiac has believed him making it the shortest book on how “Pellagra A Nutritional Deficiency Disorder (50+ years ago) and in its late stages Today commonly (mis)diagnosed as Celiac Diseases/NCGS or other GI Problems Today confused for a genetic disease; A Differential Diagnosis the Case/Role/Vitamins/Epigenetics (STRESS) plays in (GI) Health.” The rarest of book ONE that could help Celiac’s everywhere but they won’t believe him.

He has included many more chapters about “Why and How Pellagra is (often) Confused with Celiac Disease.”  The Celiac Posterboy even explains how this “Myth became Medical Fact: The Case of Mistaken Identity: How Pellagra now thought to a rare disease become known as Celiac Disease – A White Paper” yet people won’t look beyond Celiac to see Pellagra as the cause in the majority of Celiac Patients of their GI problems in his ground breaking book “How to Fight Gluten/GERD and Win” or How the Doctor’s Almost Killed Him.”

Celiac’s and GI sufferer’s the world over are left Believing a Vitamin can’t help them anyway since doctor’s are always’ saying you don’t need to take Vitamins if you’re the average person.   Well the average person doesn’t have heartburn, constipation, diarrhea etc.  

The average person BURPS or should anyway.  

Think about it -- a healthy child burps at 6 months usually as a sign they can digest whole foods . . .  well it is true for healthy adults too! Otherwise the child is Colically and you have to burp them to help with the buildup of pressure in their hurting little tummy’s.

You too can begin BURPING again for the first time in years if ever and put your GI/Celiac disease symptoms’ in remission.

Yes remission if you are like the majority of those who have received a Celiac diagnosis instead of Pellagra diagnosis today unlike 75+ years ago when the war on Pellagra was declared over.

See this link by Dr. Heaney who teaches doctor’s the same thing http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/  where he say’s correctly “In the United States, at least, pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention.”

In fact the International Journal of Celiac Disease http://pubs.sciepub.com/ijcd/3/1/6/   (I would say Pellagra) notes this fact when they say “The two diseases (Pellagra and Celiac Disease) can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in CD [38 “

According to Dr. Heaney this explains Celiac Disease today very well where he notes Pellagra was characterized by the “four Ds” – dermatitis, diarrhea, dementia, and death. It is a perfect example of a point made in earlier posts in this blog that most tissues need most nutrients, and that a deficiency of virtually any nutrient impairs virtually every function of the body. This is in contrast to the popular belief that one nutrient may be good for the skin, another for memory, another for the eyes, another for the immune system – on and on – which is simply not accurate.

The International Journal of Celiac Disease ie Pellagra misdiagnosed notes the same thing.

“It has been shown that the classic intestinal clinical picture of malnutrition, chronic diarrhea and nutritional deficiencies are disappearing and extraintestinal presentations are emerging. Skin, cardiological, endocrine, skeletal, hepatic, hematological, thrombophilic, gynecological, fertility, dental and behavioral abnormalities are often described [1, 2, 3, 4, 5].” Today in Celiac’s.

IJCD Concluding

Thus, because of their deficiency, pellagra is essentially affecting tissues with a high rate of cell turnover, such as the digestive tract and the skin, and tissues with high energy needs, such as the brain [9, 10, 11].  Which incidently is the same place Celiac disease now shows up in patients diagnosis as they call it in “extraintestinal presentations” because these cells need Niacinamide to make the energy to divide.

We can’t repair our mucus lining with enough Niacinamide.

According to the Orthomolecular website http://www.orthomolecular.com/?ctr=supplement&act=show&id=15   “Skin develops a cracked scaly surface, the brain does not function properly leading to confusion and dementia and diarrhea results from the impaired manufacture of the mucus lining of the gastrointestinal tract”  Agreeing with sandhur etal.

Quoting the Celiac Posterboy blog   “Intriguing animal research by Sandhur et. al. has shown that niacin deficiency itself sensitizes the intestinal mucosa of rats to gluten in wheat, barley, rye, oats and corn and induces susceptibility to gluten toxicity by means of cellular dysfunction.3 Human research needs to investigate this effect of niacin deficiency in human celiac disease.”

And this cellular dysfunction leads to “leaky gut” syndrome because the gluten no longer stays in the intestine but wreaks havoc wherever and whatever organ the protein lodges.  This agrees with new research by Columbia University Medical Center that says “these individuals have a weakened intestinal barrier, which leads to a body-wide inflammatory immune response.”  

According to new research from Columbia medical center if the body has already developed gluten antibodies already ie you have become a Celiac Patient   http://www.eurekalert.org/pub_releases/2016-07/cumc-crf072616.php  

Otherwise you have NCGS or what they term Non-Celic Wheat Sensitivity (NCWS).

But this intestinal tight junction is closed in those people who have enough Niacin(amide) to produce enough stomach acid and repair their mucus lining  thus defusing gluten before it has had a chance to destroy the small intestine and in turn other body organs it lodges in.

See my are you a starfish part 2 a Former Sufferer’s Journey blog post about how this works in the body or how the natural healthy state of good digestion when it occurs protects the body from damaging proteins.

https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/

I could go on but this is a lot to digest in one post.  It can be confusing (and angering) to be told you have one disease for 20 years and then find out it might be an easily curable (or greatly controlled) disease with only a Vitamin (albeit in what is termed Megadoses by the medical community today) but really is a only Vitamin dependency.

Your body depends on Niacinamide to repair itself’ and when it is not available in sufficient quantities it lets your mucus lining break down leading to autoimmune reactions to common food proteins like gluten and lactose among others.  Note the 8 most common food allergens are all proteins which the body has to fight off or else it could mistakenly let in more harmful proteins like Viruses so it has no choice but to fight off ALL proteins or else it knows bad things will happen and does even if/when it is only a food protein it still attacks like it was a virus.

See this link from Science 2.0 that explains why this is so

http://www.science20.com/news_article/some_celiac_disease_may_be_due_to_viruses-174924  

quoting the science 2.0 website “This can result in the transmission of incorrect information and the T lymphocytes react with an inflammatory response, which is aimed not only at the virus but also at the gluten . . . The timing could result in a long-term loss of oral tolerance to gluten in the 20 percent of the population with the genetic predisposition for celiac disease, and particularly in patients who respond more strongly to virus infections.”

But when strong stomach acid is present the gluten is fully hydrolyzed into harmless peptides.

See my are you  a Starfish blog post where I go into more details on this topic https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/

Which by the way the body can‘t make it (stomach acid) without enough Niacin(amide) which is why Pellagra is often confused for Celiac Disease today. 

Pellagra is the parent disease Celiac is its evil child or sure seems like it on the surface but is really just the wrong diagnosis in the first place. I ask again What If you have the wrong disease? Would you get better? See my Celiac Posterboy tumblr post 

http://celiacposterboy.tumblr.com/post/119630974909/what-if-you-have-been-diagnosed-with-the-wrong subtitled Is Celiac Disease really Pellagra in disguise in the 21st Century?

I believe it is! Now the greater question is what do you think? Will you take the Niacinamide for your GI problems?

I am better and you could be in 6 months if you would take the Niacinamide for yourself. See my blog post for a summary

https://celiacposterboy.wordpress.com/2015/07/02/gluten-independence-or-the-5th-anniversary-of-ncgsceliac-heartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/

As I said in another blog post I want you to have a BURP anniversary.  You can if you are willing to be convinced and try it for yourself for 6 months taking it (Niacinamide) 3/days with each meal allowing your mucus ling (gut) to repair itself.

If you your GI problems improve and you begin burping again for this time in years (and your stool sinks) or maybe ever then surely you had sub-clinical Pellagra a Niacin deficiency and the doctor’s haven’t understood/realized it yet in a clinical setting.

**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.

And once you are burping tell others LIKE I am doing now in this blog post and I am trying to do with the 500+ books I have given to friends.

Then Tell someone (share) is all I ask Are You a Starfish (Part 2 – of a Former Sufferer’s Journey) tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book  “How to Gluten/GERD and Win” is all I ask but don’t let the chain break with you.

There a lot of starfish/sufferers’) looking for an answer who need help if you can believe the many websites who tell you how to cope with this issue by eating gluten (protein) free the rest of your life’s.

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly. See my Celiac Posterboy WordPress blog entry

https://celiacposterboy.wordpress.com/2016/01/23/to-educate-is-to-free-part-two/

If you want to try and educate your doctor and think he will listen.

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and his digestive/GI problems are in remission.

Praise be to God! To those who hear and listen 

The Celiac Posterboy by the Grace of God,

Joe “Rock” Pen Name

I have written a similar open letter before to the “Gluten Intolerant” but wanted to update it now to include the other GI problems that develop in time.  Because as I am fond of saying To Educate is to Free  

Since I have now updated my ebook on Amazon with many more chapters that may help explain this parent/child/infant relationship bound by time.

It should be noted there are formatting issues with this version because I have no organization to help me do better.  Please do not be put off by the formatting.  It looked fine in the version I loaded to Amazon.  Without loading it multiple times I do not know how to correct this when the e-version I loaded looked visually fine.  It has almost an additional 100 pages not included in the original e-book “How to Fight Gluten/GERD and Win or How the Doctor’s Almost Killed Me.” This is how I would write it now if and when I self-print another copy to give to friends but until then .  . . you can download it now.  

The advantage of downloading the e-book is you get “all in one place” the experience of someone who has learned for himself (God being his help 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included) and all the knowledge I have absorbed in 10 years of researching this topic for myself (God being my help) how I discovered this forgotten medical fact after 4 years  of research (see below) and have been helping people for over 6 years (those who will listen) and who better to learn from than someone who has done it himself and not only for himself but 1,000s of his friend too!

In this ebook you get the benefit of not only my first 4 years of research but the 6 additional years I have done since then counting for 10 years of experience and research.

New chapters like Why and How ****** is (often) Confused with Celiac Disease or the Chapter about how When Medical Myth becomes Medical Fact People suffer unnecessarily; The Case of Mistaken Identity How ****** now thought to be rare became known as Celiac Disease – A White Paper

Notice this is not only a new chapter in the book but a White Paper.  Quoting wikipedia  

“A white paper is an authoritative report or guide that informs readers concisely about a complex issue and presents the issuing body's philosophy on the matter. It is meant to help readers understand an issue, solve a problem, or make a decision.”

By reading the ebooks new chapters I think you will be convinced yourself that in layman terms (I am not a professional, I am self-taught) that like another new chapter in the book  

********  A Nutritional   Deficiency Disorder 50+ years ago is commonly (mis) diagnosed as Celiac/NCGS and/or other GI problems like GERD, IBS etc; A differential Diagnosis

A differential diagnosis is one of  the best standard of medicine rarely practiced today and how specialists decide between competing diseases like UC or Chron’s or IBS or Celiac Disease and if I am right Co-Morbid Pellagra now forgotten for 75+ years since the “War on Pellagra” is now over according to medical professionals’ but sadly the battle rages on for at least the 60 Million American’s alone who get (Infant) Heartburn  once month not counting the heartburn that grows up to be IBS, UC, Chron’s or Celiac disease. 

See link below from Creighton University that mention’s this medical fact.  Pellagra is not a disease of TODAY.  Celiac is the disease of Choice today!  But in 58% of those diagnosed with Celiac TODAY 58% are Co-Morbid with Pellagra as I was and most ALL my friends because they ALL get better when they take the Niacinamide.

I now it works. I have seen it work for too many people. And I believe it can/could work for you too!  See end of this blog posts and my doctor does too.  He now uses this method in his practice with great success!  And it can work for you too!  Lord willing if you do as I suggest and take Niacinamide 3/day for 6 months (see below).

I now describe my Celiac Posterboy blog as a “Former Celiac sufferer who blogs about digestive disorders that Co-Morbid Pellagra causes often presenting as other GI diseases like IBS, UC, Chons, NCGS and GERD”

This IS NOT medical advice only my personal experience of how through deep research (and the Grace of God) after 4 years of study I found what the doctors have always known but overlook in treating the many symptoms of Celiac Disease. The true cause as recorded in medical textbooks the world over the cause of 90+ percent of Digestive disorders is because of one Vitamin Deficiency/Dependency.

This ebook (and Celiac Posterboy blog) is about that ONE nutrient/vitamin/mineral that is lacking and the causative agent for most Digestive Disorder(s) presenting as the Iceberg Disease(s) of Gluten Insensitivity aka Celiac Disease in its most advanced stage (with enough time).

When Celiac Disease points it head out of the water 20+ symptoms have already presented themselves in various malady's. When only 3 symptoms  where need 75 years ago to diagnose the condition once considered cured but is rampant in today's society because we are more STRESSED than ever.

 Digestive disorders, dermatitis syndromes, and dementia disorders – known then as Pellagra 75+ years ago but now is known mostly as various GI diseases depending on how long or low you are in Pellagra Preventive Factor as it was called in the day.

We will not count the 4th D of death if you are reading this blog.

Explained here well http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

To quote Dr. Heaney a Past Professor of Medicine at Creighton University “2014 marks the 100th anniversary of the war on Pellagra, a war that lasted nearly 25 of those years before victory could finally be declared. You have not heard of the war on Pellagra? The celebration is not on your calendar? You’re not alone.” 

Read it (the ebook  “How to Fight Gluten and Win or How the Doctor’s Almost Killed Me”)  for yourself and help yourself as I have myself when you understand what the doctors have not. Remission is possible!

I have been in remission now for 6+ years after suffering 35+ years.

The Celiac Posterboy is a fellow (now former) sufferer who seeks digestive harmony for the 60 million sufferers of heartburn once a month the way he has found it for himself. Read the Celiac Posterboy’s’ e-book on Amazon.com Key Words “Fight Gluten Win” or “Celiac Posterboy” or "Fight GERD Win" and learn like he has how to put your NCGS/GERD/Heartburn/IBS, frequent diarrhea and constipation  in remission.  

Epigenetics has been discovered as the cause for Non-Celiac Gluten Sensitivity (NCGS) and Celiac disease when NCGS in time grows up to become your Celiac Diagnosis.

Learn how Lifestyle (STRESS) is a risk factor for Celiac Disease.

https://celiacposterboy.wordpress.com/2015/12/18/lifestyle-is-risk-factor-for-celiac-disease/ 

Quoting an article that appears on Celiac.com

http://www.celiac.com/articles/24166/1/Could-Changing-Gut-Bacteria-Prevent-Celiac-Disease/Page1.html

“According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which we’ve never understood…[t]here is an environmental trigger.“ i,e.  STRESS

Have you been stressed of late?  Stress is said to kill you well it also maims you.  NCGS is that maiming of people who have eaten wheat without resetting their stress clock.  

Find out how you can reset your stress clock. The Celiac Posterboy has learned how to manage the stress from wheat gluten.  

The Celiac Posterboy is now stress free from gluten. He no longer has digestive upset no longer suffering the NCGS/GERD/Heartburn GI symptoms he had for over 35+ years.   If only more people knew the Celiac Posterboy’s discovery of how to reset one’s stress clock in the body. Digestive stress would/could be a thing of the past.

Join his friends who no longer suffer from heartburn, gas, constipation, diarrhea, IBS , UC, Chron’s and Ulcer’s etc. of NCGS/GERD. You too can be in remission in as little as six months if you follow this ground breaking discovery hidden in medical text books now brought to light about how to manage digestive stress.  

When he (God being his help) rediscovered Pellagra as a disease of TODAY now often Diagnosed as Celiac disease instead of one conquered 75+ years ago as the doctors teach. 

Learn for yourself go to Amazon.com and down load the Celiac Posterboy’s e-book “How to Fight Gluten and Win” or "How to Fight GERD and Win" and you too can put the stress of NCGS/GERD/Heartburn/IBS and other GI digestive symptoms in your past.  

A brief history: I began writing the book “How to Fight Gluten and Win” over 5+ years ago after being able to eat gluten again after being Gluten Free for 4 years and suffering 35+ years before I received a diagnosis.

So now I speak about it freely and blog about it regularly with only modest success and why I am updating my ebook to include more chapters to better explain how Pellagra is often confused for many GI issues up to and including Celiac Disease in time -- usually 10 years or more.  

Fellow sufferer’s good luck and God speed on your journey to become a former sufferer’s Praise BEE to God!

To everyone who buys this book. May you be blessed to know you have not suffered alone and God has heard your cry!  

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your diet or your prescribed medical regimen.

After 4 years of research and 6 years of GI symptom remission I am convinced more than ever that 90+ percent of the most common GERD/Gluten issues are related to sub-clinical presentation of Pellagra unrecognized in a clinical setting.

So much so that I have or will soon have self-printed and given away a 1,000+ books and counting to fellow sufferers that they may become former suffers like myself.

As I say in the foreword to my book “How to Fight Gluten and Win” the Bee’s (Hive) story

“This book/blog is just that storehouse of knowledge learned from life experiences.  The book’s author has been stung so you don’t have to be.

Learn from my mistakes.

No man is so dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.

Feel free to ladle and dollop your life with the sweet stickiness of the truth found inside.  For honey like truth stick to you once in contact and you can’t just wash it away.”

This blog is about my struggle to reach people yet only about 10 percent believe and are helped when they read these things though 95+ percent are helped when they treat their Pellagra symptoms with Niacinamide taking it 3 times/daily for 4 to 6 months.

Education (this blog) is about raising the conversion rate so people don’t have to suffer any longer.

I will go on telling those who will listen. How can they hear if no one tells’ them?

Tell others about this blog and this ebook if you decide to buy one for yourself or tell other’s If it helps you.  

Take the Niacinamide and get/be better in 6 months (begin BURPING) for the first time in years IF EVER.

No one seems to believe (or at least not many) becoming deficient in (a) vitamin or vitamin(s)/minerals will/can make us sick.

What a novel concept. You would not think I would need to write a blog/book to tell people that!

Maybe it is not true in your case. But you won’t know if you don’t try The Niacinamide Challenge

All I know it has been true in my life! and Hundreds’ and hundreds’ of my friends.

Thanks bee to God who helped me to see these things.

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

Tell someone (share) is all I ask http://celiacposterboy.tumblr.com/post/130784831849/are-you-a-starfish-part-2-of-a-former Sufferer’s Journey tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about this blog or my book “How to Gluten/GERD and Win” is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who need help.

I always say the number one mistake people make with Niacinamide is not taking it long enough (3 to 6 months 3/day in divided doses) but now I am going to amend that.  The number one mistake people make with GI problems is the mistake of not taking the Vitamin in the first place.  The 2nd biggest mistake is they don’t take it long enough!

As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly. 

See my Celiac Posterboy WordPress blog entry To Educate is to Free Part Two: A Physician’s Guide

If you want to try and educate your doctor and think he will listen.

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.

But mine has taken The Niacinamide Challenge and his digestive/GI problems are in remission.  And his difficult to help/treat patients who don’t respond to “popular” medicine’s like Linzess etc. are better. And have stopped the medicine because their symptoms are in remission.

They (drugs) are popular because they have drug companies who have the money to advertise them.

I do not.  I do not have a Unique Selling Position (USP).  Nor do Vitamins these days!

No body profits if you get better in 6 months or a year and you no longer need the Vitamin!

See the link  Who’s Afraid of a Vitamin? where I discuss this in more detail.

Are you Afraid of a Vitamin? You needn’t bee! Praise bee to God!

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

The Celiac Posterboy by God’s Grace!

A healthy state of digestion and how to know when it is occurring: Why Burping is good and Bloating is bad by the Celiac Posterboy

According to the Mayo Clinic Bloating maybe related to “eating fatty foods, which can delay stomach emptying and make you feel uncomfortably full .  .  . With bloating, you may also have abdominal pain that can vary from mild and dull to sharp and intense”

Sometimes bloating and burping can occur together and it is usually when a lot fatty foods together with a high carb meal allows the high fat foods to delay stomach emptying causing the carbs to ferment.  See mayo clinic above.

We want to eliminate the bloating but encourage the burping.

See the article Gluten Sick in the Hudson Valley article where the author blamed bloating on gluten when consuming a rice rich meal.   http://blogs.poughkeepsiejournal.com/glutenfreeinthehudsonvalley/2016/02/15/gluten-sick/

How is this possible? By increasing our stomach acid see my blog post https://celiacposterboy.wordpress.com/2016/02/07/put-your-gi-symptoms-in-remission-do-you-burp-the-north-south-process-of-digestion/

When they occur together our stomach acid has become so low our fats become rancid (spoil), our carbs ferment and our proteins putrefy.  

Think that fish oil supplement you took that caused you to burp that fishy smell.  Well I hate to tell your fish oil capsules had gone bad on you.  They (the fats in oil) had already rancidified.

Or possibly your stomach acid was so low you couldn’t properly digest them either way rancidification was the result.

I study nutrition a lot and there is always more to learn and soon as you think you “know it all” you learn something new.

I mention this to mention this most people even those who are gluten intolerant (as far as I know) have an enzyme in their mouth http://www.examiner.com/article/gluten-degrading-enzyme-found-saliva  

That begins degrading gluten in the mouth.  Why is this important? Because digestion begins there!  

But if our stomach acid is low then digestion stops (cleaving of proteins into harmless peptides) and inflammation begins (gluten allergy). 

Why is this so?

Well our body doesn’t know how to deal with proteins.  The (proteins) are like knifes stabbing/ guns/colt 45 exploding/ at our insides.

But peptides are relatively speaking the lego’s of proteins much more easily broken into amino acids the individual tongue and grooves  that allow legos’ to be built into almost any structure if you have enough of them.

So too are amino acids in the body allowing us to transfer these nutrients into any part of our body rebuilding that colt 45 (first interchangeable gun) into a quite a pistol (energy) source Excuse my crude analogies. 

I am just trying to get you understand in any way I can. Proteins are bad for us when they are not digested properly.   We specifically have pepsin to denature (unfold) meat proteins but these enzymes typically only work when there is a strong acid (hydrolysis) to drive this reaction (catalysis)  “The medial dictionary  describes  proteolytic as: Able to split protein molecules into polypeptides and amino acids, as of enzymes”

So now we have an enzyme that is able to break the protein (gluten) in to harmless peptides (building blocks of proteins) that stops when the body’s stomach acid becomes too low.  See my blog post Is it NCGS/CD or Low stomach acid mis-diagnosed and my blog post When a Food Fight Becomes a Food Land Mine where I say quoting the Celiac Posterboy see below for the whole post in its entirety.

https://celiacposterboy.wordpress.com/2014/10/01/when-a-food-fight-becomes-a-food-lande-mine/

Who avoids fat rich food or high CARB meals?

Subconsciously maybe or consciously because they cause you to feel like you have just stepped on a land mine (become bloated and cause distension (pain).

You are in a food fight and don’t know why?

Or maybe it’s fried foods for you or peppery foods or lactose for those who are lactose intolerant.  Or gluten anyone? I have been on that battle field and it isn’t pretty.

The question remains why?

Heartburn anyone?

IF you stomach acid was HIGH as you often hear (everywhere) you hear an acid for acid reducer’s then eating food (carbs, greasy things) wouldn’t bother you.

The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.

BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn.

Timeline is important in any diagnosis.

All heartburn is not equal. IF you stomach acid is truly high then it WILL occur between meals when there is no food to tamp down the fire (occurring in your stomach) not your esophagus. The excess pressure from fermented carbs push open the trap door allowing the low acid you have burn the lining of your uncoated esophagus.

If you won’t to break that cycle and win this food fight I can help.

This is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle.

Now food benefits you because low acid not only causes heartburn it limits your body’s absorptive ability by limiting its ability to cut up your food into digestible peptides and amino acid which are no longer harmful to your Small Intestine but helpful to your overall health because nutrients can now be absorbed because the food particles are now small enough to not cause harm to your villi.

Leading in time to Non-Celiac disease first and with enough injury to Marsh lesions qualifying you for diagnosis as a Celiac candidate/ patient. See my blog post http://celiacposterboy.tumblr.com/post/142047575594/gestational-pellagra-how-to-now-if-you-have-it- and reverse its effects where I say quoting the Celiac Posterboy  

“Think of Heartburn as infant Celiac disease if it helps you to think in these terms.  The older/longer the heartburn persists or the more GI symptom’s (heartburn/gerd etc) reoccur the more serious the conditions and diagnosis becomes.

The infant Heartburn grows into IBS with constipation/diarrhea or maybe at 5 years of persistence into full blown Ulcerative Colitis  or an Ulcer or worse Chron’s in 10 years because they (the doctor’s) have stopped looking for the trigger – Gluten.” (Truly a symptom of low stomach acid).

If you (can) be that patient and weight the 6 to 8 years for all this damage to occur, there is a better way (see my book “How the Doctor’s Almost Killed Me or How to Fight Gluten/GERD and Win” key words Fight Gerd/Fight Gluten for more info Better on Bing).

A virtuous cycle can replace the vicious cycle you are now in – it is called digestion.

Digest your food with healthy stomach acid and your body will thank you for it with the God given burp.

A healthy child burps a healthy adult should!

The Celiac Posterboy by the Grace of God

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Joe “Rock” Pen Name

It is me again reader

Why do we know this is so I point you to this article “Gluten Sick in the Hudson Valley” http://blogs.poughkeepsiejournal.com/glutenfreeinthehudsonvalley/2016/02/15/gluten-sick/

But today when these conditions occur (bloating) we have so universally associated these conditions with certain foods (gluten) when all along it is more appropriate to associate these actions with classes of food (stuffs) carbs, proteins, fats etc. See Chris Kresser http://chriskresser.com/the-hidden-causes-of-heartburn-and-gerd/ where he says Low stomach acid causes maldigestion of carbohydrates not gluten specifically and why Ann Byrne’s story is so fitting.

She knew she had eliminated all gluten from her diet but still bloating was occurring and still she keep blaming only ONE carbohydrate for her problem when all along it was ANY carbohydrate (when her stomach acid was too low) that continued to cause the problem (read her whole article) of bloating when too much carbs (rice) and fats (chocolate) were consumed in the same meal.

It is worth noting here that this was a RICE based meal. High carb meal YES but not a high gluten meal. If you think it is truly gluten in your diet then try spelt it a low gluten alternative that is low in fructans that are known to cause some of the same symptoms see this article about the topic.  http://health.usnews.com/health-news/blogs/eat-run/articles/2016-03-24/do-you-have-a-gluten-intolerance-or-not-try-the-spelt-litmus-test

 I also recommend a good sourdough (hydrolyzed) bread or Ezekiel bread if you think spelt might have too much gluten in it for you for the same reason’s these breads uses natural processes that can safely break down the gluten content of these breads even before they are consumed by humans much like the Novel Enzyme in our saliva (this article discusses) does the same for us now when we begin chewing and partially why it is important to slow down and chew our foods slowly. To see how fodmaps can trigger some of the same symptom’s confused for a gluten allergy this website has a good list of what a fodmap is

http://www.gidoctor.net/fodmap.php and where fructans fit in a low fodmap diet.   It should be noted wheat is the number one source of most people’s fructan content making it easy to confuse gluten and a fructan problem and note this person was not consuming a high gluten containing meal but only a high CARB meal and by her own admission and a high fat meal with it -- A double whammy for low stomach acid. And bloating and distension (pain) associated with it commonly attributed to gluten these days but really it is a characteristic of CARBS in general. 

As I said in another blog post CARBS are key to your discomfort.  And why going Low CARB often eliminates heartburn/GERD and in this case when you add a lot of fat -- bloating too! Also it might be some medicine or dietary fibers you are taking see my blog post https://celiacposterboy.wordpress.com/2016/01/18/could-medicine-your-taking-be-causing-you-to-flare-up-when-cross-contamination-sources-have-been-eliminated/

(because fibers) by their very nature are resistive to digestion. 

Dietary fiber is known to cause many people gas especially when supplemental (not contained in the diet) fiber is added to ones routine. See above link Could Medicine your taking be causing you to flare up when cross contamination sources have been eliminated where I discuss common medicine know to mimic “Celiac like” conditions or general IBS like symptoms and how some bad (allergic really think Psyllium) reactions to fiber can cause similar symptoms that can/does often cause confusion about gluten being the trigger.

So in summary not ALL bloating, diarrhea, constipation etc can be traced to gluten though much can be but ALL Carbs when maldigested (poorly) hydrolyzed (broken into harmless peptides) can cause fermentation and bloating (especially when combined with a lot of fat in the same meal). But WELL digested (hydrolyzed) carbs are cut up into harmless peptides allowing the God given burp to occur without bloating, pain and distension.

A toast to the God given Burp and good digestion as evidence that the “natural order of things” has been achieved and food no longer digest’s you but you digest it. (see analogy earlier about how undigested proteins cut at our insides causing our GI/Gut to leak and leaky gut syndrome).

But once BURPING without bloating then the “natural order” of good digestion is allowing your carbohydrates to be digested into harmless building blocks of good nutrition.

The vicious cycle is now a virtuous cycle!  Healthy digestion is a wonderful thing when it happens!

Quoting the Celiac Posterboy again “Now food benefits you because low acid not only causes heartburn with bloating it limits your body’s absorptive ability by limiting its ability to cut up your food into digestible peptides and amino acid which are no longer harmful to your Small Intestine but helpful to your overall health because nutrients can now be absorbed because the food particles are now small enough to not cause harm to your villi.”

Tell someone (share) is all I ask http://celiacposterboy.tumblr.com/post/130784831849/are-you-a-starfish-part-2-of-a-former tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon tell a friend about this blog or my book  “How to Fight Gluten/GERD and Win” when you begin burping alone (and bloating stops )and the “Natural Order of  Things” is restored is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who need help.

Search for the “Celiac Posterboy” or “Celiac Poster boy” Better on Bing and you should find other posts that discuss why these things are often confusing and how to find your way back to digestive peace. Let me teach you if you will listen and want to learn for https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/ “If you won’t to break that (vicious) cycle (of food being a Land Mine) and win this food fight I can help”

As I have said elsewhere in this blog.  It not a long way back if you know the way.  Let me be your guide for God being my help I have found digestive peace.  Praise bee to God!

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

Peace is possible but it takes works to educate ourselves to the real cause.

Remember As I often say **************************  this is not medical advice – just one (former) sufferer sharing his experience with other sufferer’s (Starfishes) the world over.

This is longer than I planned as most of my posts seem to be but when you are trying to fight error and confusion it takes a lot of (un)learning to educate ourselves.

See my post When Myth becomes Medical Fact People suffer unnecessarily; https://celiacposterboy.wordpress.com/2016/02/19/when-myth-becomes-medical-fact-people-suffer-unnecessarily-the-case-of-mistaken-identity-how-pellagra-now-thought-to-be-rare-became-known-as-celiac-disease-a-white-paper/ where I discuss how the medical community switched one disease for another where I try and educate fellow sufferers to help them become former sufferers like myself and realize how Pellagra A Nutritional Deficiency Disorder 50+ years ago and in its late stages Today commonly (mis)diagnosed as Celiac/NCGS or other GI problems TODAY confused for a genetic disease; A Differential Diagnosis the Case/Role/Vitamin/Epigenetics (STRESS) plays in (GI) health is causing many people unnecessary suffering.

But even when I give people a bottle of Vitamins that can help them see my Celiac Posterboy blog post Time for a Vitamin Reformation

They give it back to me. I look forward to the day people won’t give me  vitamin’s back and instead realize/understand are freed to believe that the Vitamin Niacin(amide) treats digestive problems.  

And tell other starfish (fellow sufferers) like themselves.  Praise bee to God! As evidenced by the God given burp!  without Bloating! See my post Gluten Independence or The 5th Anniversary of a NCGS/IBS/Celiac/Heartburn/GERD Sufferer eating GLUTEN again — A Former Sufferer’s Story

For Gluten Juneteenth has been proclaimed don’t bee the last to hear!

I wish you much peace and the God given BURP! without BLOATING.

I want you too to have a BURP anniversary when you learned too “How to fight GERD/Gluten/CARBS and Win”

*** Remember as always this is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken The Niacinamide Challenge and his digestive/GI problems are in remission.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”

The Celiac Posterboy by the Grace of God,