No (Good) Deed Goes Unpunished or Why I wrote my book âHow to Fight GERD/Gluten and Winâ and this blog to tell people who will believe a Vitamin can make are GI systems healthy
Being a tumblr blogger, tumblr will often recommend other peopleâs blog too you that might be germane (related) to the topic you are blogging about often.
So as a way to connect I sometime do just that â reach out â and while some respond in kindness.
Very often people have vitriol for your attempted kind deed and even hate.
I know it is not directed at me per se, it is just their pain talking so to speak.
I have encountered this before on a personal level but though I am not surprised when it happens now I always amazed that someone who is trying to help (by reaching out) is attacked as someone who is mean and bitter.
See response to me trying to reach out to another fellow sufferer. Â Sufferer is the key word here.
She is still suffering but when someone tryâs reaching out to them they lash out in response.
I think I can help you in about six months if I am right. Â Please read my blog for more information. Â I am right you might have Pellagra and the doctor's haven't figured it out yet. Â Search for Fight Gerd/Gluten and Win or the Celiacposterboy and I should come up in Google. Â The Celiacposterboy
Correspondence below edited with ellipsis for brevity and to leave out the most hateful parts.
âHi, I have a few things to tell you. While I appreciate you reaching out, kinda, I guess, - Â . . . You attempting to diagnose other blogs, especially people who have a medical diagnosis, is unethical and just increases the stress factor on others. I have ulcerative colitis. Not a gluten allergy, not gerd, and not Pellagra. Especially not the last. Telling people they may have a deadly disease in order to sell yourself is . . . Â a fear tactic, and I would suggest you immensely change how you are wording this to others. Tell them what youâre actually doing, which is promoting purchases of your own book. . . You told me - a girl who is currently undergoing effective treatment for an illness - that this is not correct, and I should instead invest in your âmagical cureâ to a disease that has absolutely nothing to do with a gluten-free diet.
Please consider how f***g insensitive this is before you message another patient. .. this is shameful, as it instills fear, misdiagnoses, and belittles my illness. This was probably not your intent, but seriously, look at what youâre doing before you do it. And think of the effect it may have on others.â
Now we both could be wrong and in the wrong in this case. Â Maybe my methods seem insensitive to those who are sick of anything other than a Celiac diagnosis. Â Those too wonât listen but if it could help why wouldnât you try it?
Such is the ignorance of the disease Pellagra today that when an elegant solution (a vitamin) is proposed no one believes you today.
I have written about this in other posts. And is one my most searched for posts.
 https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/Â
Quoting the Celiac Posterboy âAre You one of the 50 Percent of Celiacs still Struggling on a Gluten Free Diet (Part 2 A Former Suffererâs Journey back to peace with food (gluten)
If you are a Celiac, NCGS, UC or IBS or Heartburn patient you are in a food fight and you are not winning then the book âHow to Fight Gluten and Win Or How the Doctorâs Almost Killed Meâ may be for you. Search for the âCeliac Posterboyâ or âCeliac Poster Boyâ Bing seems to work better than Google if you want to read all my posts.
This blog is about education. If you are a fellow sufferer (starfish) then I might can help you if you will consider what I say  (2 Timothy 2:7).  Since I started this blog I have added twice the material online that I put in my original self-published (tome) book. I probably should just reprint the book with this added information but I donâtâ think Amazon would now let me â since they would consider this copyright infringement because I published it online before listing it to be published with them.
Nonetheless having no big organization behind me the way I see it âI am just a boy walking down the beach throwing the starfish back in the ocean helping those who will listenâ Â
â. . . Then, smiling at the man, he said I made a difference for that one.â
Want you listen? A vitamin can help us when we are STRESSED out. See https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/
Back to my personal journey to peace with gluten and I hope yours in 4 to 6 months.
See this link if you are not familiar with the âStarfish storyâ
http://www.starrbrite.com/starfish.html
And though it might seem insensitive to some and maybe most to those who are misdiagnosed often with the wrong disease I am just trying to make a difference in the only way I know . . . . Education . . . one starfish at a time.
Whether thy be a Celiac sufferer, IBS, UC, NCGS or GERD suffererer.
See this link where people âget itâ. Â IBS, NCGS etc (and probably) UC and Chronâs too is part of the/ on the Pellagra spectrum of GI disease caused not by food per se but a Vitamin deficiency.
https://celiacposterboy.wordpress.com/2015/09/22/many-ibs-patients-found-to-be-sensitive-to-gluten/
Quoting ânearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group. Â This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten. Â The team (of doctors) suggest that the term of IBS / (UC) might be misleading (you think) and may change or delay an âeffective and well-targeted treatment strategy in (IBS/UC) ie gluten sensitive patientsâ.
(Parentheses) added by me because I believe this one Parent disease with many presentations (children) are not separate diseases as the âcynicalâ UC sufferer believes it is. Â But one disease quoting the Celiac Posterboy â(Unfortunately) for most patients it (Pellagra) is not recognized as Disease TODAY I am not a doctor but I realized there is a lot of ignorance about this topic even among doctors because Pellagra having not been seen in most doctorâs officeâs since at least the 1940âs and now are ignorant of how it presentâs in a Clinical setting.â
**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found (and my doctor and friends have found) if you take it (Niacinamide) like an antibiotic (UNTIL BURPING) then 95% of your GI stress will be in remission.
As I say in the foreward/dedication of my book âThe Beesâ Storyâ and reprinted in part below learn from my MISTAKES. Â This blog is about education. Not the FEAR you now feel.
If you prefer to read the whole post you find it here at this link Â
https://celiacposterboy.wordpress.com/2016/02/13/dedication-the-bees-hive-story-to-the-book-how-to-fight-glutengerd-and-win/
âDedication The Beeâs (Hive) Story
(To the book âHow To Fight Gluten/GERD and Winâ
To those who follow this blog âHow to Fight GERD/Gluten and Winâ know I have been talking about B(ee) Vitamins and B(ee) the example your doctor/clinician needs to see to not have his other patientâs stung by stress. This is what has been the unifying factor now get out there and buzz your doctor. Bee the change!
People have been raiding bee hives for eons.
Honey is a store house. Ignorant people get stung when they try to rob the honey but smart people find the right way to extract the energy without paying too high a price.
This book/blog âHow to Fight Gluten/GERD and Winâ is just that storehouse of knowledge learned from life experiences. The bookâs author has been stung so you donât have to be.
No man is so dumb as the man who wonât learn from other peopleâs mistakes.
Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.
Is it any wonder Godâs promised land was described as a land flowing with milk and honey?
Where knowledge flows there is health of mind and body.
Feel free to ladle and dollop your life with the sweet stickiness of the truth found inside. Â For honey like truth stick to you once in contact and you canât just wash it away.
Think of something else sticky â Gravy.
It sticks to your ribs where joint and marrow does increase oneâs health and vitality.
Gravy is a highly refined flour product â the product of toil and strife by the farmer who tills the land.
This book is the same fruit of life. Â It is my opus. Â My burden is light because I give to you to take and do as you will with it.â
For to Educate is to Free https://celiacposterboy.wordpress.com/2014/09/11/to-educates-is-to-free/
I want to say at this point I have put an ebook online at Amazon the âCynical UCâ patient mentions but it is for Education mostly. Â It is a resource
You neednât buy the book. Â Read the blog and you will be educated to what you need to do to get better. Â As I said in my dedication/foreword above quoting the Celiac Posterboy âThis book/blog âHow to Fight Gluten/GERD and Winâ is just the storehouse of knowledge learned from life experiences. Â The bookâs author has been stung so you donât have to be.â Subtitled âHow the Doctorâs Almost Killed Meâ you donât have to sufferer any longer if you donât want too!
If fear is too much for you!  I understand that.  YOU can be like the âcynical UCâ and go on hurting or try the https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and  stop the madness and see if you donât get better in 6 months of taking Niacinamide 3/day  UNTIL burping (without bloating) is your new normal.
From my âDoctorâs Get a âDâ for diagnosing Non Celiac Gluten Sensitivity (UC/IBS/NCGS) ( ) added to post for emphasis
 https://celiacposterboy.wordpress.com/2015/09/22/doctors-get-a-d-for-diagnosing-non-celiac-gluten-sensitivity/
I have said this before on my blog in different places but it is a spectrum of disease that is our concern here. Â Not individual disease(s) here but the âCorrectâ disease. These are not all different diseaseâs but ONE disease in different states of suffering â Pellagra!
The longer the damage goes on ⌠the more severe the condition.  Think GERD/Heartburn/IBS/NCGS/ (UC, Chrons etc) Celiac Disease as I have linked in several other posts.
Until usually the fear of change, any change no matter how beneficial (like the cynical UC) is more than you can bear.
Quoting the Celiac Posterboy âThe key word here is âcorrectlyâ diagnosed. If the doctor stopâs as they often do (apparently in 84% of the time) at an IBS diagnosis then it could be another 6 to 10 years of suffering for the âaverageâ Celiac Patient. Or 90+ percent in NCGS patients who show poor control when challenged with Gluten.
Or worse UC or Chronâs Why is (can) that be worse. More on that in a minute. It is true I donât know how to win peopleâs heart. Â I am not a marketing person but I do have a heart for Fellow Suffererâs like myself who canât or donât get a correct diagnosis from doctorâs.
Quoting my earlier post https://celiacposterboy.wordpress.com/2015/09/22/doctors-get-a-d-for-diagnosing-non-celiac-gluten-sensitivity/Â by the Celiac Poterboy again
âAs I say in an earlier blog post âSadly too often after 8 to 10+ years of testing after all the differential diagnosisâs are ruled out you are said by process of elimination to have Celiac Disease if you are lucky and not some other acronym GI disease as I like to refer to them as a group.
GERD,IBS,UC, Chrons etc because if they turned down that street ⌠. you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s).â
Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.
But Unfortunately for UC and Chronâs patientsâ (and IBS see above) gluten is not even identified as the trigger and they never have the option to get a diagnosis that improves their condition (not really).
The medical definition is âflaresâ. Â We still donât know what âheckâ is going on with you but letâs give you yet another medicine to control your âflaresâ when your UC or Chronâs, IBS, or GERD flares back up.
The fire (gluten) is still burning your insides up but keep taking this medicine and everything will be ok?
Donât mind your flares. Â They are common in your case!
Get the right diagnosis and get better!
See more about my storyhttps://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/ if you want to learn how âI was one of those people five years ago plus (7 years now) with +++ other disease(s) (symptomâs really) of one parent disease with many âassociatedâ children as the medical community likes to call it when multiple diseases are more likely to occur when someone has type A disease then type B disease is more common.â
Celiac/NCGS/GERD/IBS/UC etc and most other GI acronyms I believe (it has been my experience) that lay on a similar correct diagnosis of Pellagra being the Parent disease.
I could go on and on but will close for now only to summarize that after 35+ years of general digestive upset (NCGS, Celiac Disease/IBS, GERD, Constipation, Diarrhea, Heartburn, pain, dissention, excess gas etc) and after 4 years of being gluten free I have now been able to consume gluten for 7 years now without any of the above symptoms.
And I try to Educate one Starfish at a time those who will listen.
LIKE I am doing now in this blog post and I am trying to do with the 500+ books I have given to friends.
Reply to this blog or reblog or share this link with your friends when you are BURPING so othersâ will know/understand and be helped like so many of my friends and YOU if you take the Niacinamide Challenge â Praise be to God!
If you/your GI problems improve and you begin burping again for this time in years or maybe ever then surely you had sub-clinical Pellagra a Niacin deficiency and the doctorâs havenât understood/realized it yet in a clinical setting.
See my Ihttps://celiacposterboy.wordpress.com/2015/05/21/is-non-celiac-gluten-sensitivity-andor-celiac-disease-really-pellagra-in-disguise-in-the-21st-century/? WordPress Blog entry for more information where I ask âWhat If you have the wrong disease? Would you get better?â like UC or Chonâs or Celiac Disease?
Is Non-Celiac Gluten Sensitivity (NCGS) and/or Celiac Disease really Pellagra in disguise in the 21st Century?
If your symptoms go away after taking Niacinamide 3/day for six months then you have Pellagra and UC/Chrons/IBS/NCGS/CD is Co-Morbid and the doctorâs donât understand the role stress plays in Epigenetics.
That is why I wrote my book âHow to Fight GERD/Gluten and Winâ and this blog to tell people who will believe a Vitamin can make are GI system healthy. It did 75+ years ago and can now today!
Quoting the Celiac Posterboy again from his Gluten Independence â A Former Suffererâs Story blog post referenced here again for convenience.Â
https://celiacposterboy.wordpress.com/2015/08/21/gluten-independence-or-the-5th-anniversary-of-a-ncgsibsceliacheartburngerd-sufferer-eating-gluten-again-a-former-sufferers-story/
âLet me be clear when I say Celiac here it means not only CD but Non-Celiac Gluten Sensitivity (NCGS), Heartburn/GERD, IBS and most other alphabet GI disease(s) you can think about here like UC, (Chrons) Ulcers etc.â if Pellagra is Co-Morbid and the doctors have not recognized it in a clinical setting and learn doctors have not recognized it in a clinical setting and learn how for yourself how https://celiacposterboy.wordpress.com/2016/03/25/pellagra-a-nutritional-deficiency-disorder-50-years-ago-and-in-its-late-stages-today-commonly-misdiagnosed-as-celiacncgs-or-other-gi-problems-today-confused-for-a-genetic-disease-a-differential-d/
Quoting from this post âOf course if it is Pellagra you will also most likely have other disease presentations not limited to acne, rosacea (dermatitis) skin rashes etc, or depression, anxiety, etc (dementia) symptomâs as well because they are the other Dâs of Pellagra commonly diagnosed as separate diseases disease today known to be of a common cause 50+ years . . . And why Celiac Disease today is commonly known as the âIceberg diseaseâ because the diagnosis is just the âtip of the icebergâ of the other 20 commonly associated disease occurring with or alongside a Celiac diagnosis.â
âNow the disease of Pellagra today has mainly been reserved for subgroups of people like alcoholics.â
âWhy is this? . . . because Doctorâs donât recognized it today UNLESS they are a specialist and EVEN then to quote Nicki Frost from the Pellagra Disease Blog these âspecialists (are) in fields that are ultimately unrelated to the underlying nutritional deficiency and metabolic nature of the disease.â
Quoting the Celiac Posterboy âSo the cycle repeats Since these specialists donât consider you in a subgroup that is prone to be diagnosed with Pellagra then Celiac/NCGS disease is diagnosed if you are lucky and not some other GI problem like Chrons, IBS, UC etc because in these cases the GI specialists is not even looking for Gluten as a possible trigger.â
âThis is not to even mention the other Dâs of Pellagra today being diagnosed as various degreesâ of Dermatitis like ezcema, psorsias, Dermatitis Herpetiformis (DH) etc which are related to skin presentations of Pellagra. Or the dementiaâs of Pellagra like depression (40 percent of Celiacâs are depressed) or the âbrain fogâ a Celiac develops after being âglutenedâ I could go on and on but you get the idea.â
 I should stop now.  I never can write a short post because there is so much to cover in one post.
But if you print out this blog in its entirety there are over 150+ pages to read with no cost to anyone but the cost to buy the Vitamin. Â About the length of the book that I have updated with some of the same information so it would be convenient to read it all in one place/post.
The purpose is not to sell books but to Educate or I wouldnât be also including this information in a blog. I have no âmagic cureâ as Cynical UC mentioned. Â Only the correct diagnosis if you take the Vitamin and get better. Â
I donât benefit in any way monetarily from writing this blog. Â It certainly doesnât sell books. Â AS the Cynical UC mentioned it just invites Vitriol to those who donât believe but those who read this blog are educated by it and it helps it makes all the difference! Â And that is why I do it.
My luck in helping people come mostly with those who have suffered the least. Â Like GERD/Heartburn/IBS but those who have received a âdefinitive diagnosisâ like the Cynical UC or a Chrons or Celiac sufferer then it is a bridge to far for them to cross.
But for the 60 Million Americans who have heartburn/GERD once a month. Â It could (does) really change their life for the better.
https://celiacposterboy.wordpress.com/2014/10/15/way-back-from-nexium/
I know because I often try and give Niacinamide to people who it could help and at least half the time they wonât take a Vitamin for their health even heartburn sufferers often wonât take a Vitamin.
See this post where I talk about why people wonât take a Vitamin for their health.
https://celiacposterboy.wordpress.com/2016/02/06/time-for-a-vitamin-reformation/
Are you afraid of a B Vitamin more than you are afraid of the medicine doctorâs are giving you for your UC, Chronâs, IBS etc.
You neednât be my doctor himself now uses Niacinamide instead of Linzess to treat his hard to control IBS patients with amazing results! Â (and I have helped my friends) those who listen with UC too! The same way! Â Unless you are a Cynical UC patient who wonât/ Â wouldnât try a Vitamin! It wonât hurt to try.
How can you know this is true? You/We canât really UNLESS you are willing to try https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and see if your digestive problems donâtâ go into remission as Prousky proved almost 15 years ago this year that Niacinamide treats digestive problems. Â
See this link http://www.yourhealthbase.com/database/a124b.htm
More people should know this. Â To Educate is to Free Truly!
Quoting the Celiac Posterboy âThat is why I wrote my book âHow to Fight GERD/Gluten and Winâ and this blog to tell people who will believe a Vitamin can make are GI system healthy. It did 75+ years ago and can now today if Prousky is right?
**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.
And In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they donât take it long enough. Â It should as I have said elsewhere in this blog it should be taken UNTIL you are burping. Â Most people will burp when taking Niacinamide in 4 to 5 months or less taking it 3/daily â ie with each meal.
As always search for the âCeliac Posterboyâ or âCeliac Poster boyâ or âFight Gluten Winâ or âFight GERD Winâ if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating âTo Educate is to Freeâ Truly.
Then Tell someone (share) is all I ask https://celiacposterboy.wordpress.com/2015/12/28/are-you-a-starfish-part-2-of-a-former-sufferers-journey/ tell others is all I ask â however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) â tell a friend about this blog âHow to Gluten/GERD and Winâ is all I ask but donât let the chain break with you. There a lot of starfish/ Cynical UC (sufferersâ) who need help. Â And maybe you are one yourself.
*** Remember as always this is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken
https://celiacposterboy.wordpress.com/2014/12/03/the-niacin-niacinamide-challenge/ and his digestive/GI problems are in remission.
I wish you much peace and the God given BURP! For
https://celiacposterboy.wordpress.com/2014/07/16/gluten-juneteenth/ has been proclaimed donât bee the last to hear!
Praise be to God! To those who hear and listen!
The âCynical UCâ did not listen and hear will you?Â
2 Tim 2:7 âConsider what I say; and the Lord give thee understanding in all thingsâ this included.
The Celiac Posterboy by the Grace of God,