autistic & adhd creature studying autism & adhd

maybe i never was what i want to be, what i thought i was, what was important to me

frankly i think a LOT of "picky eaters" have some kind of sensory problems– autistic or allistic– and shame is never useful. i don't fucking care how annoying you think we are. if you've never lived through the humiliation of being the only one not eating at a dinner table, or having to choke down something disgusting you already know you hate because other people insist you don't know your own body, or getting a hunger migraine in a house full of food because none of its edible to you? you don't understand how awful it is to have food issues.

whenever i see people draw this distinction between being "just a picky eater" and "having a real problem" all i think is, who does this serve? most people don't even know ARFID exists. there are so many undiagnosed autistics, or just people with a variety of issues that aren't officially diagnosed. why do we need a medical label in order to be treated with respect and compassion? why did i need to be diagnosed as autistic for my family to realize the abuse they put me through for years because of my eating habits?

it's such an easy habit for neglected groups to fall into– the idea that a medical diagnosis can save us. that by appealing to the medical/psychiatric industry, we can be protected from abuse and given basic respect and resources. but the truth is that it should never have come to this in the first place. dignity doesn't come from an abled doctor telling you that there's a medical reason for your symptoms. it comes from being a person. once you accept that you need a Good Reason to have your needs respected, you doom yourself to neglecting and abusing those who have your same struggles because they aren't lucky enough to access medical recognition.

Someone may have a special interest in a show, but instead of that meaning that they will talk about that show often, it may mean they watch that show extremely frequently.

it took me asking three more times before she finally told me she wanted me to leave the fans where they are instead of moving them to my room or something. and I said oh! I had no intention of doing so but thank you for letting me know what the expectation is.

"You left your dish in the sink." > the hidden request is "please clean your dish, preferably right now." since it's phrased as an observation, I don't immediately intuit the request and instead think my housemate thinks I forgot about it. so I reply "oh, I know." housemate thinks i'm sassing her and gets annoyed with me. only then do I realize she was asking me to do something about the dish in the sink.

"There's hot soup on the stove." > said to me while I was preparing a sandwich. the hidden request is "please eat the soup." since it's phrased as a statement of fact, I don't immediately intuit the request and instead think my mom thinks I didn't see the soup. I did see it, but I wanted a sandwich instead. so I reply, "I saw it, thank you." mother thinks I'm being rude and gets annoyed with me. only then do I realize she was asking me to do something about the soup (and furthermore is offended I am eating a sandwich instead).

"Your bread is on the counter." > the hidden request is "please remove your sliced bread from the counter and store it elsewhere." since it's phrased as an observation, I don't immediately intuit the request and think my roommate thinks I meant to store the bread elsewhere and forgot. when I reassure her I know it's there, she gets annoyed. only then do I realize she wants me to do something about the bread on the counter.

"You can turn up the heat, you know." > said to me while I was scrambling eggs slowly over low heat. this one really confused me because of course I knew I could turn up the heat, but I had no reason to as I was only cooking for myself. when I ignored the statement because I was focused on my task and had nothing to say, my mother added, "the eggs will cook faster if you do." sure, I'm aware of this too, but I don't want to cook them faster. I won't get the texture I want. when I reply, "I don't want to, though," mom thinks I'm being rude and gets irritated, then asks me how long I'm going to take. only then do I realize she was telling me to cook faster (because she wanted the stove), instead of simply informing me I could.

"There are donuts in the break room." > a more benign example, but similar outcome. once again I hear this as a piece of information being given to me, and thank my coworker for telling me. when I don't immediately leave my desk to get donuts because I'm finishing a task, my coworker hovers and says, "well? aren't you getting some?" only then do I realize there was actually a hidden invitation, and I was supposed to respond to the hidden part and say, "I'll come get them in a minute," or "no thank you I don't want any."

as I said, I've learned over time this is something many allistic (non-autistic) people do (as well as high masking autistic folks who have learned the social rules and wear themselves out following them rigidly). despite what I've learned, my default autistic response is pretty much always to take the words at face value (especially when I'm distracted or multitasking), before remembering I have to translate them. and while I can make a decent educated guess in most cases, sometimes I just cannot and simply ask, "what are you asking me?"

unfortunately, many allistic people suffer from an inability to take words literally just as much as they struggle to speak literally, which can further obfuscate communication. this is why I emphasize gentle reassurance that you are not criticizing them, but asking them to help you, a person in need, by clarifying their intent. people generally like to be helpful and I have had moderate success with this approach.