#jpouch

The hospital may keep me an extra day because my hemoglobin levels are dropping and that’s apparently a bad thing to happen.

My #Ostomy gave me life. For that, I am grateful 💜

For ostomates in US, Canada, UK, Australia and New Zealand only.

I hope this doesn’t mean they will start keeping the Imodium with the Sudafed 🤦‍♀️

Hey everyone Sorry TMI warning ⚠️ But crohns and chronic illnesses plus period = disaster of a week. I'm in agony and my period has flared my crohns and arthritis in my back so bad. I'm literally bed bound. I don't think I'm fit to do anything but I have to pick my Dad up from work and I could literally just cry instead. He has been so good to me so I'm just going to do it. I'm trying to prepare for my graduation too. Which is hard as I know it will be a really long day for me. I'll be up around 7am and probably not home until the early hours of the morning. Instead of being excited I'm just nervous but I'm sure adrenaline will get me through the day along with strong painkillers, Imodium and antisickness tablets. What a glamorous life!!! I have picked a pale dress so here is hoping I don't have any accidents! My Dad and my sister will be attending with me and not my mum as she completely screwed me over when I was in hospital last. She went on holidays while I was nearly dying and when I asked to be washed etc when she came home from holidays she refused me. There is a lot of other personal things she did which I won't go into but they cut deep. I don't want to feel sad on the day about this but I'm not ready to talk to her yet. It has made my life a lot easier to cut out negative people. The weather in my country is unusually warm for us and it has also zapped my energy. I personally always find the summer months more difficult than winter for some reason and always have a flare up of my IBD. I don't think my IBD is managed very well and I'm considering a new doctor. I've literally changed my doctor 3 times. So I'm a bit apprehensive about changing again. I'm also reapplying for disability allowance as I'm not fit to work. However I've be declined twice and I detest the system here. Not that I'm putting anyone down but people with alcohol and drug dependence have more of a chance of receiving it than people who are sick. Plus going through your medical history and current situation is horrible and horrible highlights just how sick I am. So I'm hoping and praying I get some financial support as I'm broke. I hope you all are as well as can be and once again thank you for following me and supporting me through everything. I love you guys. Crohns girl in pain Xox

HERE WE GO. Surgery 5 : July 27, 2017 (today) Current diagnosis: Crohn's Disease, in remission thanks to Xeljanz. Current weight : 146 lbs (WHOAH BUDDY WHERE'D THAT COME FROM) Procedure : I don't know the technical name but my surgeon referred to it as "Popping out that Jpouch." Having an ileostomy - even though it was intended to be temporary- has allowed me to live again. In the last year I've done more than the five prior combined. I'm not willing to go back to that quality of life so today my Jpouch will be removed and my diverting ileostomy will be transitioned to a more manageable, more permanent end ileostomy. I was planning on waiting another year or so, but my surgeon is moving across the country and I don't trust anyone else to do this. I'm going into surgery healthy and happy for the first time. After everything that happened a year ago I'm still terrified and anxious but I just have to keep reminding myself this situation is not the same and everything is going to be okay. #crohnsdisease #crohnie #ulcerativecolitis #inflammatoryboweldisease #jpouch #ileostomy #ostomy #ostomate

Big thanks to Amber Tresca from About IBD for letting me talk about Parenting with IBD with on her Podcast. 

You can probably find me walking around Anaheim in dresses that cost less than $10. ∞