#enbrel

So anyways, he’s been pawning me off on his assistants which is fine with me. At multiple appointments I had mentioned how my low blood pressure was one of my most debilitating symptoms. He never wanted to put me on meds for that bc to him my low blood pressure wasn’t a problem. But it is a problem. It affects my vision. It affects my cognition. It makes it dangerous to drive and impossible to think or accomplish tasks. He literally told me to just drink more water and then talk to his assistants. For two weeks I drank so much water and electrolytes that I was vomiting it up into my mouth when I moved. I ate all the salt I could take and used compression wraps. Nothing helped. I had to set alarms to remind me to take caffeine before driving and make sure I was home before it started to wear off. A few times it wasn’t enough and I had to pull over and wait it out.

So today his assistant finally prescribed me Midodrine. Which is so laughable for anyone in the POTS community bc it’s usually one of the first things drs try (after the water & salt trick 🙄) but I’ve been going to the doctors for POTS symptoms since 2009 and have been disabled by those symptoms since 2014 and this is the first time it was ever an option. I understand that for a while my blood pressure was too high to consider taking Midodrine but I haven’t had high blood pressure since the summer of 2023 and it’s almost 2025 now? It’s ridiculous.

Yes even trillionaires. Especially trillionaires. Freeze their fucking bank accounts and monitor them like you do real people usuing these (in the us they monitor both your ssn and bank accts and no its not optional).

Someone mentioned in med school a professor friend of theirs makes students apply for welfare so they know how hard it is cuz these are rich people kids.

Anyway if this was done...every country would be a fucking utopia.

Then I'd go one farther. Live a month as the poorest nearest country from which you get immigrants. I live in Mexico. If your a citizen you get state healthcare but if you need specialized meds (ie your disabled) the copay is high and they often run out of stock which means you'll be in agony til its back. Yeah $300 is better than $12000 a month for enbrel (arthritis med) but uh mexicos min wage is $3 an hour solo not really.

Nvm they until June this year worked 6 days a week 8 hrs a day. $6 is about the most your gonna get an hour. Even they get a week (usually paid) off for vacation. Oh and programs that help give u meds if ur poor? First world countries only! Looking at you enbrel you fuckers.

This is a question I get in my support groups a lot!

Why do I feel so tired after taking my biologic?

A very fair question. We call it the "Humira Hangover" (even if you aren't using Humira, the alliteration is important)

It can be different for everyone, but typically, when starting out with a new biologic treatment (Humira, Enbrel, Cosentyx, etc.) you will feel a bit tired to freaking exhausted a day or two after.

Usually this will only last the first few months after starting. Maybe longer or shorter, but it seems to happen to everyone.

For me, I'm exhausted the day of injection, so I try to do my shot at night so it will help me sleep.

Started Enbrel, a new injection for my Psoriasis and Psoriatic Arthritis, yesterday. I wanted to take some kind of a "before" picture in case it turns out to be a miracle drug that actually clears me up and justifies an "after", so here's a really bad selfie of my resting depression face as I apparently stare into the void.

Hey guys,

I created my personal tumblr over 10 years ago, unfortunately I don’t remember my password. The email I made my account with has since been closed due to hacking.

I’ve been posting via my phone which needs replacing, soon. I’m afraid I won’t be able to log in once I get a new phone due to the fact that I don’t know my password & can’t reset it.

I am going to be making a new blog in the next few days & I’ll share the name here. I will continue to post here until I get a new phone, but this way once that happens, you’ll all know where to find me☺️

P.S. - I started this blog 7 years ago as a newly diagnosed young adult with RA. I was scared and I needed to vent to people who didn’t know me personally, I never expected this blog to grow past 10 followers, let alone to be asked for questions about my life. I know I’m not a hugely popular blog but just know I’ve noticed everyone who follows me & im greatful for you.

UPDATE: my new account is: Diariesofanexballerina2

Thanks for joining me on my journey!