Mar 29, 2025
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Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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Today I had an appointment with Cardiology. I think the Cardiologist is avoiding me bc the whole time I was under his care his attitude was I’m doing these tests bc your anxious not bc I think there’s something wrong with you and There’s nothing more we can do and it’s not going to kill you. You need to learn to live with your heart problems and be ok with that. So he was kind of flabbergasted when I came back after starting methotrexate and my blood pressure & heart rate were completely normal after years of them progressively getting worse to the point of both being in the 190-200s.
So anyways, he’s been pawning me off on his assistants which is fine with me. At multiple appointments I had mentioned how my low blood pressure was one of my most debilitating symptoms. He never wanted to put me on meds for that bc to him my low blood pressure wasn’t a problem. But it is a problem. It affects my vision. It affects my cognition. It makes it dangerous to drive and impossible to think or accomplish tasks. He literally told me to just drink more water and then talk to his assistants. For two weeks I drank so much water and electrolytes that I was vomiting it up into my mouth when I moved. I ate all the salt I could take and used compression wraps. Nothing helped. I had to set alarms to remind me to take caffeine before driving and make sure I was home before it started to wear off. A few times it wasn’t enough and I had to pull over and wait it out.
So today his assistant finally prescribed me Midodrine. Which is so laughable for anyone in the POTS community bc it’s usually one of the first things drs try (after the water & salt trick 🙄) but I’ve been going to the doctors for POTS symptoms since 2009 and have been disabled by those symptoms since 2014 and this is the first time it was ever an option. I understand that for a while my blood pressure was too high to consider taking Midodrine but I haven’t had high blood pressure since the summer of 2023 and it’s almost 2025 now? It’s ridiculous.
Anyways, I’ll let y’all know how it turns out. It’s a short acting medication that I’m supposed to take three times a day. I took my first dose an hour ago and so far my eyes feel better, I can breathe better and my blood pressure is ideal so I’m taking that as a good sign.
hey can people with POTS/orthostatic hypotension who take midodrine give me some input? i'm having trouble telling if my midodrine isn't helping, or if i need to up my dose, or even if i'm taking too high a dose and need to lower it
my prescription is for 5mg tablets and i take 1 tablet in the morning and one in the afternoon. there's definitely less incidents where i feel very light headed and get the vision static thing upon standing up. but walking/standing for extended periods sometimes gives me what feels like heart palpitations, and/or white spots in my vision that seem different from the standing up static.
what time(s) of day do you take your midodrine? if you've had to lower your dose, what symptoms prompted that/how do those differ from regular orthostatic symptoms? what does it feel like to be on the correct dose of midodrine (i.e. would you say that combined with hydration and salt eliminates or just mitigates symptoms, and to what degree)?
Ohhhh midodrine.
Maryland Weather: going up to 98F today!
Maryland Weather: no way anyone is getting chills today!
Midodrine: hold my beer
Anya is live and ready to show you everything. Watch her strip, dance, and perform exclusive shows just for you. Interact in real-time and make your fantasies come true.
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Anyone Take Midodrine?
I've only been on it for a few days and have had some weird side effects. For example, the drug makes me really really cold and puts pressure on my chest.
Do these effects lessen the longer you're on the drug?
Hey, I just found your Tumblr through imthegirlthat. I also struggle with POTS. I am curious, are you on any medication for this? I was just recently diagnosed by my family practitioner who does not know much about the illiness. She said we can educate each other but we both have to do our research. Thank you so much!
I am currently on propranalol for tremors and prozac for depression, both which seem to help POTS slightly. I have tried fludrocortisone and midodrine with no real success. Honestly, IV saline helps me the most. I also started an exercise plan with a physical therapist that we are hoping will help. I would recommend the book "The Dysautonomia Project" for any new potsies and their doctors. Hopefully you find a good treatment for you. My first doctors told me to google POTS, so thats how I found out a majority of what I know about it.
Why just have a regular ol' aura-rate migraine when you can have 2 in a row? My migraine-stacking secret skill is in having the aura and migraine on one side of your head, and then switching to the other side ᕕ( ᐛ )ᕗ For bonus fun I like to have my nausea meds do absolutely nothing because I'm hardcore like that 🤘
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Still sore and nauseated but it's essentially over now. For my next trick I will stay in bed in the dark all day slowly sipping gatorade 👍
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Question for folks who take midodrine: have you ever found it gave you migraines (or more migraines)? I went from getting them every year or two to getting 4 in the span of the last month. Which started maybe a week or two after we went up to max dose (7.5 mg 3x/day). Its been great for my bp but not so much this... and during today's migraine I kept getting bad shivers and chills and bp drops.