#ctfdq

well, given the choice, i'd rather use my medical equipment that strengthens more of my body than walking, prevents constant injury, and makes my leg muscles atrophy a tiny bit than put all my eggs in the walking basket and accelerate the deterioration of my leg joints until one or both legs are non-weight bearing and i become fully reliant on mobility aids i do not have the upper body strength or practice to use.

it is normal and okay that it’s hard to change your bedsheets. it’s okay that it’s hard to fold blankets and tablecloths. maybe even impossible for you.

it’s not shameful to ask for help, and not shameful to have unchanged sheets. hygiene isn’t morality. sometimes you can only change them when they get dirty, or less, and that’s okay. you’re doing your best.

people don’t really talk about it, but changing sheets is one of the most common impossible tasks for arm and shoulder disabilities. it’s often easier to lift weights than pull up just one corner of a sheet.

you’re not lazy. you’re not weird (unless you want to be). you’re not alone.

you’re doing your best, even if you don’t think you’re trying. you and your disabled body deserve compassion.

.🌻

it was never about drugs. it was always about murdering two majority BIPOC groups seen as “weak links” of society, and then dividing us so that we’d perpetuate oppression for them.

if it was a war on drugs, they’d have stopped making the drugs. instead they planted even more drugs, and imprisoned, abused, harassed, denied healthcare, and murdered the addicted and disabled—which caused even more drug deaths, and killed so many off us. it’s still killing us.

it hasn’t stopped, and i refuse to call it “won.” we’re still here, and we’re still denied life saving drug access and treatment.

this, btw, is why “stop calling [x things people do to get medicated] drug seeking!” is always gonna fall flat, because it’s blatantly false—meds are drugs—and misses the point entirely.

the issue isn’t acknowledging drug seeking. drug seeking is not inherently good or bad, and often necessary to survive. most people with untreated health conditions are drug seeking, and that’s okay. i am in fact seeking drugs because i need painkillers to live. it doesn’t stop being drug seeking because i have a “good reason.” it’s not more moral than an addict trying to access supply in a safer way.

you’re not helping us by saying we’re totally not drug seekers. work on destigmatizing drug seeking, addiction, painkillers, recreational drugs, mind altering pain medication. that’s how you help us.

we have a right to seek life saving care.

the anti addict and anti drug seeking implications of “people seeking needed pain meds aren’t drug seeking” is not cute. a ton of addicts have untreated health issues, and addiction rates are lowered when there is more free access to drugs/medication!

how fucking funny would it be to see a kink-free pride

like it’s tiny and everyone there is a teen, tween, or middle class parent

literally none of the usual parade members are there so it’s just like 20 guys with rainbow flags

they get hit with counter protestors and are just like “you just called a MINOR a faggot”

honestly can we do one year where we just let them have it?

we can have our own party somewhere else while they’re walking around with their shipcourse pins and lesbian flag no. 38392 to convey that they hate lesboys, talking about how mean the dykes, fags, butches, sissies, bears, femmes, twinks, and fucking queers are for not letting them in our party. maybe they can even have an extra hour in their kink-free ballpit

hEDS specifically is a checklist diagnosis; there is no testing beyond the beighton scale. unlike other types of EDS, we literally have no idea what the gene is for it.

i would definitely still try to see an EDS specialist when possible in case it's one of the types of EDS that can be tested for and is especially dangerous--namely cEDS--but if it's another type other than hEDS, it's not like you can do anything about that now, so incorrectly classifying the type in the meantime is no harm no foul. you could also just say EDS.

i would also say, like, look into marfan syndrome, but again, can't do anything about that anyway without a specialist. (also: people with hEDS do not need to have especially stretchy skin, though we can! hEDS is probably actually like 5 kinds of EDS that have not been identified).

most folks with EDS had to self dx to access healthcare or self manage symptoms. especially without the privilege/access to obtain a professional diagnosis, you're still experiencing the EDS symptoms. at worst, you're a non-EDS disabled person with a ridiculously similar experience to people with EDS, in which case no one's going to be/should be mad about it!

to which we interjected, “gay people who’ve ‘grown up don’t talk about’ other queers like that”

are dead people disabled? don’t they technically count as every type?