Mar 8, 2025
I'ma just leave these here for like... *Cough* Research purposes and such.
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I'ma just leave these here for like... *Cough* Research purposes and such.
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Rest in Peace to Disability Rights Activist and Author Alice Wong (51,she/her)
I woke up today to find out that Alice Wong has past away as of November 14th at the age of 51. Not only was her work deeply impactful to the disabled community, but she was only just beginning to be a disabled elder - she was younger than my mother. She was brilliant, unabashed, and dreamed of an inclusive future. If you haven't yet, please go check out her books:
Her writing reshaped how I viewed my own body and mind, and encouraged my further reading on disability, community care, intersectionality and radical love. This is a devastating loss, and I wish her family and friends well as they mourn this amazing woman.
I shouldnāt have to say this, butā do not sign anything which has important points added in goddamn pencil.
Donāt sign forms with areas left blank. Make sure those areas have ānot applicableā written in each one (or words which work where you are).
Be aware of ambush tactics like being asked to sign unrelated forms * after * a surgery, any painful therapy, while feverish ā any time when youāre unable to read and think clearly.
Donāt believe āthis form is no big deal, you donāt have to read it.ā
If youāre pressured ābecause itās more efficient to sign everything at onceā or anything like that, remember this is one more reason to be cautious, if not suspicious. Tell them to make a separate appointment.
If you are in pain, alone, or concerned for yourself and your ability to refuse to sign papers under pressure, ask someone to be there with you.
If you donāt have people to help in person, get someone to witness things with your phone, and allow them to say āwait a minute, thatās not rightā or ānoā for you. You donāt even need a smart phone to do this, OK? Iāve had to use a land line on speaker. It helps if your person has a clue whatās going on, but if youāre ambushed, just make sure they are willing to stick up for you. There are probably notes on how to be an advocate somewhere, if you know resources please add them in comments or add to this post.
Noah Wyle and Dr. Mike š©ŗāØ
š· doctor.mike IG
Dollar store employees have the biggest of balls
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Lots of non-autistic individuals know that autism itself can affect a personās mental health, personality, language abilities and sensory processing. But less of them know that autism can also directly affect gross motor skills (Walking, running, lifting things, etc.) and fine motor skills (Writing, tying shoelaces, using a spoon, etc.). Lots of people undereducated on autism think itās just a thing that has mental traits when in reality, it can greatly affect physical traits and skills too! I always look down when walking to avoid tripping on ground objects, I canāt do typical typing (On a keyboard, I peck one key at a time, my typing classes in elementary school didnāt help), Iād say my biggest concern between the 2 is my fine motor skills (I get very frustrated using my hands, I hated sewing class). I love video games like PokĆ©mon but Iām bad at quick decision making (In Legends Arceus, I couldnāt play because it was too much too fast, I prefer the turn based system of the main games). My processing is somewhat slow and being under pressure doesnāt help. Overall, Iām still looking into doing special motor exercises and activities at 23, even if I donāt get better, at least I wonāt get worse
PSA to my fellow disabled peeps
when abled people say to push yourself out of your comfort zoneā¦ yeah you can ignore that. That ācomfort zoneā they speak of is justā¦ an entirely different thing. You CAN grow without pushing yourself to your limits. You CAN grow without collapsing in a QFC parking lot sobbing uncontrollably and unable to breathe because everything is just too loud.
when they say āstep out of your comfort zoneā or tell you you need to āembrace discomfortā they are actually referring to discomfort as the feeling of āI would kinda prefer not to be doing this.ā They are NOT referring to the following:
About to have a panic attack
About to cry
About to literally faint from pain
Actually they usually assume there is no physical pain at all
Completely mute/about to go nonverbal
About to have a flashback/meltdown/other crisis
Actually crying/having a panic attack/fainting/having a crisis
It can be so hard for them to believe that āeverydayā tasks can cause the above, that they genuinely do not believe you when you advocate for yourself. If you can, ignore them and take care of yourself. But I know thatās not always possible as a disabled teenager.
