When medicine is holding the migraine back but you can still kinda feel it in the distance waiting to return

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@sh1tbrain
When medicine is holding the migraine back but you can still kinda feel it in the distance waiting to return

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Also happy disability pride month to people with symptoms where even specialists for said symptoms have no idea what the fuck is going on or how to help you. People whose lives have been completely destroyed and they don't even have the privilege of naming who the enemy is. I see you and I wish more people acknowledged you
I always think of the description I saw years ago: Self-imposed deadlines don't help me, because I know the person who set them, and they're full of shit.
my life with ADHD
This is very true and a great post.
But low key makes me think about how people with adhd have been raised their whole lives to value a day based on what they accomplished vs what they experienced
I think your point is excellent. But also consider:
That list might say things like “Paint a picture. Go birdwatching. Finish that great novel I started reading. Call my grandma. Learn to bake a cake. Visit my sister. Play piano.”
For me at least, the good/fun things are harder without meds too. I can have the best intentions, but following through is hard.
This addition is so important.
The hardest part isn't actually accepting that you need help, it's convincing someone to help you when you're broke, everyone around you is either busy or struggling to keep up with their own health issues, and the government would rather campaign to be allowed to kill you than spend money helping you

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And if all you can do is survive and exist? That's enough, too.
"drug seeking" as a patient label one of the most dogshit stupid concepts of all time. fuuuck everybody look out this guy came in here expecting medical treatment. better watch out in case he goes to a restaurant and starts food seeking
Happy disability pride month to everyone with ptsd, happy disability pride month to everyone with complex ptsd, happy disability pride month to everyone who questions if their problems are big enough to count as a disability, happy disability pride month to anyone who questions if their problems count as a physical or mental disability, happy pride month to everyone who has a disability that causes people to stare, and to those whose disabilities are hidden, happy disability pride month to everyone who deals with any kind of disability physical or mental, you’re all badass and I want you to remember that this month okay
small tips for Enjoying Being Alive from someone who went from wanting to die to genuinely loving life. these won't fix your life but they'll make it a lot easier to want to live day by day. I promise.
tell yourself things you do not believe. it feels stupid at first but I've done this for years and now I believe it when I say "I'm good at this" or "I love myself" or "I deserve good shit!"
make a note of every mundane good thing that happens to you. mental or literal notes! could be as little as "the sky is a nice shade of grey, it's calming" or "I ate a piece of fruit today, I'm looking after myself" or "I talked to a friend". again, feels stupid at first, but I genuinely believe this is part of why I have so many "good days". trick your brain into storing things in your long-term memory that you wouldn't otherwise remember.
diet deficiencies can make you properly miserable. your physical health impacts your mental health more than you'd think. get some vitamins, some omega-3s and so on. whether from food or supplements. they can make quite a difference! your brain is responsible for a LOT of the way you feel, and giving it the fatty acids it needs to function at its best can go a long way.

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Direct byproduct of being neurodivergent and growing up isolated from your peergroup is having no idea when it's appropriate to define someone as your friend
Is this person I met yesterday my friend? What about this person I've been talking to every day for three months? What about this person I've known since middle school? Is friend a title I have to earn? What are the limits of friendship? Is it a static state, make-or-break, or is it some endless dance-dance-revolution style cavalcade of prompts and challenges and social cues I have to hit perfectly to keep it up? Does it bend? Does it break? I don't fucking know man I just work here.
i still remember when the dude doing my autism assessment asked me how many friends I had, and I was like "okay but how are we defining friendship?" and he just like, stared at me for a second and then wrote down some notes
happy disability pride month to mean cripples, nasty addicts, people with down syndrome who arent nice and talk constant shit, wheelchair users that WILL run you over, autists that dont care and arent about to pretend to, people who lie to their psychiatrists, people that sit on the floor in public places with no benches, amputees that lie profusely about "what happened"; to the "noncompliant", the "drug seeking", the "mean", the "difficult" and the "undeserving", and so on and so forth, i love us all and we deserve the world actually mwah mwah
I think maybe not enough people in disability spaces think about what it's like to need the assistance of a carer.
It's a different experience for different levels of need. Some of us might need only low support, or support with specific tasks. Others need higher support, and there are many disabled people who need assistance with most or all daily tasks.
Dependence is a scary thought for some people, but for many it's a part of everyday life. Some level of dependence is common for disabled people, and needing carers or support workers is not as uncommon as people think.
Disability conversations often don't discuss carers, or don't allow people to bring their carers into the conversation. Some people may need assistance from carers or support workers to be in a physical place for community. Some might need help using online spaces like tumblr. Some might need help communicating. Carers are a part of life for many and talking about carers is important.
Carers can be positive, supportive and good relationships. But can also be stifling or even abusive. Care is complicated, and people should be able to talk about it.
I can only talk about my experience of lower level care. I invite people with formal support workers and full time care to share.
This disability pride month, I think it needs to be widely acknowledged that
a fundamental principle of disability justice is being able to recognise when someone might be more disabled than you.
[plain text: a fundamental principle of disability justice is being able to recognise when someone might be more disabled than you]
It's easy to point at ableds who will refuse to acknowledge others disabilities, not notice inaccessibility, or cringe away from catheterisation, stomas, hygiene problems and all the troubles that come with disability. It's simple to recognise that that's not okay.
But sometimes within the disabled community people don't do that well. And it's hard because there are of course many people fighting the internalised ableism that demands they downplay their disability. But the answer to that is not saying "nobody is more disabled than anyone else". This is not true. This has never been true.
You will not be able to work towards disability justice if you can't recognise that not all disabilities are equal. Even two people with the same disability - two people with SCIs, two people with autism, two people with EDS, etc. - may have wildly different levels of difficulty. And if you can't recognise that, you're being ableist. I'm sorry, I know that might be hard for some people, but you cannot have any kind of real understanding of disability if you cannot acknowledge when you are more or less disabled than another person.
Bringing this back for 2026 with a reminder that when I say it's a fundamental principle of disability justice, I'm not just saying that.
Disability justice is a framework and movement that builds on the disability rights movement, and has ten core principles. The second is "leadership of those most impacted" - being led by the people of our community who most know the subject and systems at hand. You can't practice leadership of those most impacted if you don't stop to consider who they are. You can't practice it if you aren't always ready to recognise when it may not be you. You can't practice it if you don't work to uplift the disabled people around you so that their voices can be heard.
This principle is what made the disability rights and independent living movements so powerful. We remember names like Judy Heumann and Ed Roberts as figureheads of these movements (with their work not limited to the US), but one look at their work shows they deliberately and always put in the work to uplift others in their community. From community consulting to practical assistance to recognising that we all have different needs that we deserve to have met - as simple as just waiting for someone to finish their sentence if they speak slowly, and not demanding everyone meet arbitrary communication standards - they understood that there is no disability fight without a deliberately built "us" to fight together.
If you're someone who prides yourself on advocacy, being a voice for the disabled community, fighting for equity: make sure you aren't fighting alone. Make sure you're remembering the disabled people around you, and make sure you're noticing when there are people missing around you and why. This solidarity doesn't mean "shut up". It means bringing together diverse experiences so people can be heard together.

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before we start posting that july is gay wrath month let’s consider that july is disability pride month first and foremost. the “be gay do crimes” memes can wait
before this post breaches containment and people start going “why not both hehehe” i want you to seriously consider the very long history of disabled people’s existence being pushed aside and/or seen as secondary. i promise you it’s not going to hurt to hold onto the memes and give disabled people space for visibility and celebration.
i say this as a disabled trans person whose trans identity is made front-and-center to the (mainly cis) people who know i’m trans but my identity as a disabled person is brushed off by the very same people.
the us govt is poised to strip disabled people of every right we have gained in the past 27 years as we speak. not theoretically. right now. the DOJ put out a memo that says that states do not have an obligation to give us the services we need to survive unless we are institutionalized. they are trying to resegregate disabled people. they want us either dead or detained in for-profit institutions. ask yourself: have any of the pride celebrations you’ve attended this past month addressed this? made any meaningful effort to stand in solidarity with the disabled community while our rights to exist in public are being specifically targeted and systematically dismantled? have they offered any action items? words of encouragement? anything at all?
the nazis gassed disabled people first (look up aktion t-4 or watch the documentary disposable humanity.) the left’s deliberate ignorance to our plight in favor of doing molly at the physically inaccessible corporate-sponsored pride parade is not unnoticed and will not save you from meeting the same fate we are headed for. fighting for us before we are gone is your best chance for survival.
***i am a disabled trans man***