I need to get this out of my system. And this is gonna be so fucking whiny and annoying. But I’m so exhausted at this point.
Being disabled as a teenager feels like the hardest thing I’ll ever have to make it through.
My health has literally been getting progressively worse since I turned 13. Like yeah I always knew I was genetically at risk for EDS, and I’ve gotten pretty used to having MCAS because the earliest flare of that I can remember happened when I was 4. I got used to my skin feeling uncomfortable. And just being uncomfortable in my body in general.
But I genuinely wasn’t fucking ready for the way that POTS and Fibromyalgia and Adenomyosis would literally take me out in my teenage years.
I’ve had constant, sometimes debilitating pain in my ribs for over 3 years that we still haven’t found a cause for. It feels like my ribcage is splintering and curling in on my body and compressing me. Pain meds don’t do anything for me anymore. I can’t be prescribed anything too strong as a minor. So I just have to live with it.
Until I was almost 15, I thought that when period pain that made walking almost impossible, it was just normal. I’m turning 17 in a month. I went through 4 years of irregular, extremely heavy, extremely painful periods before getting any intervention. And birth control only helps a little bit. But they changed mine when we moved. And it doesn’t feel like it’s helping anymore. I was barely able to walk on for the last 2 days.
Fibromyalgia is a diagnosis I wasn’t even told I had for a few months. And my new doctor thinks they should switch my meds for it even though it’s one of the only things that has helped with my fatigue.
I’m so tired all the time. I’m in so much pain all the time. I’m so fucking sick of this. I find myself depending on my cane more and more. I want to ask for crutches but I know we probably don’t have the money.
I just want all this to stop.
I’m gonna be in pain for the rest of my life.











