Fuck Lyme

things that make life easier, whether explicitly a disability aid, like crutches and wheelchairs, or not, like dishwashers and dryers, should not be luxuries. people should be able to live life with ease without great expense and for many disabled people these items are not a case of being comfortable but of just being able to live at all.

they should make cutesey medicine containers for baddies that take large portions of medicine 5-7 times a day , i deserve a cute case too that doesnt have a max of 3 tiny slots

not awake not dead but a secret third thing (sleepy)

i got diagnosed with chronic fatigue syndrome so that makes this even funnier

see my problem is if i “listen to my body” it literally only wants to lie down and take naps, all the time

damn people rly hate type 2 diabetics don't they

also worth saying diabetes is a complex reaction to a not-yet-fully-understood set of factors and environmental pressures and genetics and it's reductive and fatphobic to say fat=diabetes BUT EVEN SO no matter if someone did incontrovertibly "give themself diabetes" that's not a free pass for dehumanization. shut upppp

disability aids are essential devices that help manage issues or symptoms that are otherwise unmanageable or very difficult for disabled people. but it does feel like a scam that disability aids themselves become another thing to manage and maintain, because they are objects. and if you're already disabled, being able to clean them, replace broken parts, charge them regularly, swap out single use components, manage medical waste etc. becomes so much harder. it's like yeah i am glad that this thing is helping me but unfortunately i now have another thing to do that i simply cannot

nobody talks about how humiliating it is to have chronic fatigue before you know what fatigue is 😭 just going through life constantly miserable & feeling like you are failing everything but you can never explain why beyond saying "i'm too tired" which just sounds pathetic & like you don't care (it shouldn't but it does). tired is what healthy people feel after a long productive day & they restore it with sleep. fatigue is your body never making the energy in the first place

it's strange that there's talk about disabled people as if we are either diagnosed or undiagnosed when both groups and indeed all disabled people are on the whole underdiagnosed. like yay you spent 6+ years fighting for an answer. they gave you one that doesn't cover even half the problems you have, was poorly explained to you (if they explained it at all) and with no followup treatment. you're close to right where you started but now there's a little word on your medical files that you can bring out to fail at getting people to take you seriously or other people can bring out to dismiss and mock you.

if you’re disabled or chronically ill and need help from others in daily life, the world may shame you or make you feel like you’re weird, but i promise you are not. people need people; this has always been true throughout history. one of the earliest signs of civilisation is evidence that injured and disabled people were well taken care of. disabled people receiving long term care from others is a sign that human civilisation is functioning as it should. needing care is normal, sacred, and special.

The Lancet link about shift to PMOS. Spread this to everyone who works in health care now. People with uteruses and ovaries are in agony - yes, the whole body suffers a crisis every fkn month - and health care should help

body positivity can be so hard when ur chronically ill like ‘your body loves you and is doing its best to care for you ❤️’ NO THE FUCK IT IS NOT

You all need to understand that autonomy and especially bodily autonomy NEEDS to include being allowed to do things that are bad for you. True bodily autonomy includes being allowed to do things that are risky, drugs, cosmetic procedures and the like. Bodily autonomy needs to include being allowed to get high or smoke or get a BBL. The important part is education about the risks