This might come across as harsh but if you are perisex and assigned male at birth you do not FUCKING have endometriosis! No matter how validated it would make you feel you donât fucking have it and lying to claim to have a condition that causes nearly unmanageable pain for a quarter of your life or more is disgusting. You donât have it. I donât care that you can pull up a bare handful of barely substantiated cases from a study you didnât read you. Donât. Have. It. You might have Crohns disease or IBS or something like that and Iâm sorry that doesnât feel affirming enough to you but get over it
Incorrect
People often categorize endometriosis as a âwomen's healthâ issue, leading many to think it's a disease of the female reproductive organs â
In perisex people AMAB, endometriosis is an extremely rare (but it can still happen, and SOMEBODY has to have it) response to estrogen therapy (due to prostate cancer albeit but I'm 100% sure it can happen from estrogen as Trans HRT). True, there were under 20 reported cases as of when the article was written but the number is likely to be higher because doctors already are terrible about endo in people AFAB so naturally they would also dismiss the prospect of it in those AMAB as it is much rarer
Please do not spread misinformation, I'm inclined to believe that anyone AMAB who believes that they have endo has already ruled out Crohns or IBS
Wow 20 whole cases thatâs so crazy! Anyways you donât fucking have endometriosis
I never claimed to...?
Op, what's this stolen valor grade bullshit? Even if someone misdiagnosed themself with a condition they don't actually have, what's in it for you?
The fact that itâs a condition with no cure and no real treatment other than âidk have a major surgery or get pregnant a lotâ that is understudied and that most people refuse to take seriously because periods are painful for everyone so why are you whining so much. The fact that itâs a condition that causes your internal organs to be physically glued to each other and to your abdominal walls and causes internal bleeding. The fact that it takes most people around a decade to be diagnosed and even then the only diagnostic tools available are an ultrasound wand shoved into your vagina followed by surgery. Because nobody gives a shit unless it hampers your ability to be breeding stock. Because instead of trying to help us scientists are trying to figure out if it makes us sexier.
I donât believe that youâre stupid enough to not understand this. I know you know it would be wrong to claim you have fibromyalgia or EDS or asthma or seizures or fucking whatever that you donât have and try to get sympathy and resources that you donât need.
You donât care because itâs about menstruation. You donât see whatâs the big deal because society has ingrained in you that diseases related to the uterus are inconsequential at best and something you deserve at worst.
It's underresearched according to your own admission, but you're just so solid certain that a bit less than a half of the population is ontologically incapable of having it? And you keep dismissing the evidence people show you because the number of discovered cases doesn't satisfy you? That's unserious.
Don't start shit with people about what disabilities they have or don't have. Everyone knows their own body better. And no, severity of a disability does not mean you gotta double down on sniffing out "fakers". Just don't do that crap, to anyone.
Your anger seems, to me, to be coming from the idea that if people assigned male can have endometriosis, then somehow the immense medical misogyny experienced by people assigned female who have endo doesn't exist or doesn't matter and you aren't allowed to talk about it at all. Which just is not true. All of the points you've made about the medical misogyny targeted at those with endometriosis and vaginas/uteri can be true and important, and people assigned male who aren't intersex can have endometriosis.
Plenty of cis women act the exact same way about trans women having hormonal menstrual cycles, insisting that its impossible and everyone who claims they do is lying or mistaking IBS symptoms, and that its stolen valor to claim that its possible. And yet it is possible. The body does not care about maintaining very clear distinctions between sexes for the sake of making political points more black-and-white. Men in pink collar jobs earn less than men in blue collar jobs. That doesn't mean that the devaluing of pink collar jobs isn't misogynistic, or that people seen as women aren't primarily being affected.
I did read one of the studies listed in that article, which is both a case report and a literature review. They surgically removed a mass from a man's abdomen and that is how they diagnosed it as endometriosis. That seems... pretty credible to me?
Gross exam of the mass in the operating room revealed a central cystic cavity with cloudy brown fluid. Further, the results from immunological stains performed by pathology revealed a highly unexpected diagnosis with an immunoprofile consistent with endometriosis. The H&E stain (Figure 2) displayed a layer of endometrial epithelium with underlying stroma. The cells lining the cystic mass stained strongly positive for CK7 (Figure 3(c)) and estrogen receptors (Figure 3(a)). CD10 stains were positive (Figure 3(e)) and CD15 staining was focally positive (Figure 3(d)) in the underlying stromal-like tissue. GATA-3 stain was negative. The patient was discharged on postoperative day two. In a two-week followup appointment, he had complete resolution of abdominal pain. [...] A comprehensive review of risk factors, location, immunohistochemistry, and outcome of prior documented cases of endometriosis in males has been accomplished for comparison (Table 1). Most of the cases involve increased estrogen in men with liver cirrhosis [2, 6] or prostate cancer treated with long-term estrogen therapy [1, 3, 5, 7â9, 11, 13, 15]. Although this patient did not have the aforementioned risk factors, it is possible that his obesity with a BMI of 35.7 caused increased systemic estrogen levels. In the case reported by Zamecnik and Hostakova, the only identifiable risk factor was obesity as well [14]. Several studies have identified a clear, positive association between increased obesity in men and increased estrogen production [17]. This phenomenon is likely associated with increased aromatization activity of adipose tissue, overexpression of proinflammatory cytokines, insulin resistance, and hyperactivation of insulin-like growth factor pathways [17]. In relation to male endometriosis, it could be theorized that this increase in aromatization could provide pathologically elevated estrogen levels to drive the growth of endometriosis from remnant embryological cells in a male.
& Its notable to me that they use such definite language, because PCOS/PMOS is also believed to occur in people assigned male without uteri/ovaries, but from what I've seen that hasn't been treated by the medical community as a definite reality (i.e that article says "PCOS might affect men" even while saying brothers of women with PMOS have symptoms suggestive of it). So even if there are only 20 cases, that these are treated as sure cases of endometriosis is telling to me. And why would they lie or overemphasize certainty about this, when there's no gain I can imagine by doing so?
Once again, everything you've said about the profound impact of misogyny on people with endometriosis can be true and important and real, and perisex men can have it. These do not contradict each in other in any way, a person assigned male claiming to have endometriosis does not mean you are not allowed to talk about any of that or that it doesn't genuinely affect people or that it isn't misogynistic or anything at all.
If your advocacy for people with endometriosis, people who menstruate, people with uteri, is so easily hampered by the reality that sometimes things which impact us also impact people with penises and testicles and no uteri or vagina, I think that's a weak spot for you in your ability to advocate on these issues. I see no reason why this being a reality should impact your ability to talk about these things in any way. If someone claimed that they are a perisex person assigned male with endometriosis and so the misogyny doesn't matter, or that because people assigned male can have endometriosis it means you aren't allowed to talk about the things you've discussed above, they are wrong.
If it is true that perisex people assigned male can get PMOS or endometriosis, it changes nothing about how medical misogyny shapes the lives of those seen as women with PMOS or endometriosis, and the importance of talking about that.
To be entirely honest, I'm not convinced... well. Okay, OP. Bear with me here. I know what this sounds like. But you must understand that I'm very well read and well invested in the state of intersex research, and have been for decades. I have been deeply invested in the struggles of the intersex community as a part of the queer community since long before discovering my own infancy diagnosis and surgeries. It was this which dramatically recontextualized what I had assumed to be pointless rape-by-tool abuse from malicious doctors when I was an adolescent. It turned out those were additional corrective procedures done with neither explanation, anaesthetic, nor consent. As a result of that heavy personal history, I have spent the last 14 years of my life as a proudly intersex advocate rather than just a proud ally.
So when I say this, I do not mean it blithely or without consideration.
How the actual fuck are we unironically ignoring that having uterine tissue in your "otherwise AMAB" body would make you intersex automatically anyway?
To say that someone who has been proven to have uterine-like tissues growing in their body is "not intersex" because they were otherwise AMAB, had androgenizing puberty, etc is... pretty fundamentally missing the reality of what defines intersex people as a class. It's not just a bunch of scattershot diagnoses. It's specifically the ones that cause us to be seen as breaking gendered binaries by existing.
So, OP, I have to ask you. Why do you just? Hate intersex people that much?
Or are you one of those extremists who likes to carve exceptions in our community? Because this happens every 10 years, and it's the exact same thing every time, like clockwork. ~oh hypospadius isn't intersex; PMOS isn't intersex! You can't know what it's really like to be intersex~
Well I know.
I know what it's like to be the hermaphrodite who got mutilated so badly that it can't orgasm and can barely piss just so it would look pretty to a plastic surgeon worried about its future husband. I know what it's like to live in pain every single day from the reality of my underlying condition, too, not just the way I was mangled to hide it.
And you know what's interesting?
So do the people AMAB who are suffering from a notoriously under-diagnosed, under-researched disease whose causes are famously unknown but appear to be tied to estrogen dominance.
The fact that you think our AMAB siblings, many of them women, are somehow more likely to be taken serious when seeking a diagnosis that would by definition render them intersex is laughable at best.
The fact that you think it benefits us as intersex people to start gatekeeping diagnosis even further in response?
Well.
That's hard to justify with simple ignorance. That borders on anti-intersex malice.
See, it's already almost impossible for intersex people to get a diagnosis of anything other than symptoms. Gynecomastia "isn't really intersex" because it's a symptom, and doctors have every motivation in the world to bury the cause. Many of them even think they're being kind to hide something so "shameful" from us.
To pretend that an AMAB person spontaneously generating uterine tissue in their body is perisex is... simply not realistic.

















