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I’m serious though. When your life reaches a degree of suckage, you find yourself having to look elsewhere for anything at all to talk about. The things going on in your life are trauma dumping. Your past is probably also trauma dumping. So you have to get really weird about specific things or hope that others want to talk to you, because very quickly people are going to develop an aversion to you and the way your life sucks. Unless you just don’t talk about it
It’s socially isolating, which is dangerous—when you’re in this sort of situation, community is the difference between life and death, housing and homelessness.
I think the collective prioritization of comfort first is hurting people in a real and material sense
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I think they add an important element of randomness to the environment. My father in law bought 6 or 7 boxes of the Selena Gomez Oreos so he could set a Selena Gomez Oreo alarm to go off mid workday and then say to his coworkers, "Oh, my Selena Gomez Oreo alarm is going off!" and unearth from his locker his 6 or 7 boxes of Selena Gomez Oreos so he and his coworkers could distribute them around the neonatal ICU ward where they work. He said it livened up an otherwise extremely dreary day.
My favorite firework video on the internet is this one, where 45 minutes worth of fireworks are accidentally detonated all at once on July 4th 2012 in San Diego. The sound is magnificent. It's the end of days. Infinitely better than the show they planned.
Looking back on 2020, I think it's hilarious that Wellerman of all shanties is the one that blew up online. It's not a song about life on the high seas or adventuring
For those of you who aren't familiar, I live in an exceptionally flammable part of the United States, and despite the fact that every goddamn year multiple parts of my state catch fire, destroy homes and kill people, the local assholes insist on getting drunk and setting fire to a bunch of illegal explosives anyway.
In 2023, God granted me a Miracle that prevented my house from burning down.
Last year, I had to resort to Psychological and Chemical Warfare to keep the patriotic arsonists at bay.
This year is apparently An Important Birthday for the clusterfuck we have the nerve to call a nation, so despite the fact there is so much smoke in the air that the sun has literally been blood red for the last week, the pyrotechnic fetishists are out in force.
Last year, I hit upon the concept that if my neighbors were going to act like problem animals, it would make sense to use the management techniques on them that you might use on say, a Bear that was doing serious property damage. Thusly, I created The Stench, a nontoxic but FOUL smelling concoction that I could discretely spray around the flammable gatherings and render the area extremely uncomfortable to occupy for the rest of the night, forcing them to give up or move on.
If this seems harsh:
There is no story from 2024 because a grass fire was started by fireworks less than 12 miles from me and the high winds put me in the evacuation zone in under an hour.
Over fifty people lost their homes.
Errant fireworks burning my house down is a very real possibility, and I pay the price in anxiety and insurance premiums.
The Stench is noxious but harmless, and also very effective at building a buffer zone around my home. But sneaking up to parties on foot in this heat is both exhausting and nerve-wracking. There have to be more effective ways to do this
-And there is!
It involves Weeds and Business Cards :)
All of this spring, I've been battling Bindweed and my City Code Enforcement Officers.
The city code people have been professional, but the truth is that one of my neighbors is calling them on use because one of my housemates is transgender. It's extremely grating to get these notices, having to explain repeatedly that I *AM* working on the weed situation, I just have a heart condition and No Money. It's also deeply paranoia-inducing to know that the city is regularly coming by and photographing my house.
The Solution to the Bindweed is 1 gallon of high-concentration vinegar, half a cup of Borax, a quarter cup of salt, and a couple tablespoons of dish soap. Get one of those weed sprayers from a hardware store and mix it up in there. Spray it on your thistles, bindweed, kudzu, garlic mustard or whatever your local herbaceous invasive is on a day with bright sunlight, and in a few hours the entire part of the plant above the soil is Deceased. It's non-toxic to insects, pets and wildlife (just wait a few months before trying to plant anything in the area for the traces to wash out).
The only real downside to this stuff is that it smells HEINOUS.
Sure, The Stench is nauseating, but WeedFucker 5000 is genuinely painful to inhale. Again, it wont hurt people- even my asthmatic housemates can use the stuff- but boy howdy it sure smells toxic. I've got the ingredients for about 40 gallons of WeedFucker 5000 prepared and ready to go.
I've also got a disposable hazmat suit, rubber boots and gloves, respirator, goggles and a shitty little golf cart from the free section of craigslist to haul my shit around in.
I also have Business Cards!
See, the very nice officers from the City Code department left some Very Nice business cards so that I may contact them about "the fucking bindweed is gone, get off my back".
So I scanned the business card into my computer, fired up Clip Studio, and made my own business cards. I've turned my City's Abstract Triangle Logo into an Eye of Providence and the slogan of "E Pluribus Unum" to "E Plurbis Anus", Changed my city's name to a dumb pun, and stated the card originates from "The Department Of Public Nuisances".
Crucially, where the name and contact information of the real city employee has been replaced with the name and business email of the neighbor who has been bragging on facebook about calling the city code department on my home because he hates my housemate :)
It looks, at a glance, very much like the business cards of city employees. If you look at it for like 5 seconds though, there's no way it could be mistaken for the real thing.
I've printed out 500 of these bad boys and will have them on hand as I, a put-upon employee, am forced to work overtime on a national holiday doing weed mitigation, because my boss can't manage deadlines for shit.
You're mad about it? I've been out here since 5 AM! But if we don't finish by the deadline we lose the contract and I could get fired. You know what the economy is.
Here, this is my Boss's Business card- how about you send him an email about how this has ruined your barbecue?
It's golden hour now, so I'm Suiting Up and preparing to embark on some civil service in the form of Noxious Weed Eradication, and by coincidence, Fire Mitigation.
I'll report back later Tonight🫡
(If you'd like to support your local disabled storyteller in their Acts Of Public Service, please consider donating to my Ko-Fi or supporting me on Patreon)
Well.
It's not quite an hour into July 5th.
I am very tired, may have destroyed my sense of smell, and am not sure if I'm proud of or VERY disappointed in my fellow citizens.
On one hand: FAR fewer fireworks parties this year!
- Only nine to last year's thirteen
- three of them had the good sense to be firing their recreational explosives out over the local reservoir
- That's far from foolproof
- and really bad for the fish
- also y'all are RIGHT NEXT to where the Bald Eagles are nesting
- but congratulations on at least attempting some risk mitigation!
On the other hand.
Absolutely NOBODY questioned why the hell I was out spraying weeds.
- In a Hazmat Suit (technically it's a coverall for painting rooms, which is much more breathable, but looks the part)
- In a Residential Area
- After Dark
- On a Federal Holiday
Like I'm glad I didn't get into a fight or something, but like.
I was Ready.
I had that conversation locked and loaded.
I MADE BUSINESS CARDS.
...But instead of Very Reasonably asking What The Fuck I Was Doing, the crowds at these parties saw me (5'0" flat, potato-shaped, sweating profusely) trundling up on the slowest and least-intimidating motor vehicle in the county*, hanging a bit out the side to spray thistles and bindweed on the streets and sidewalks**, and instead of raising a rival stink, I was instead greeted by some derisive muttering and a couple of "OH COME ON!"s, but the groups dispersed and retreated indoors or at least away from the general direction of my home.
*Like genuinely, I think Barbie's Dream Car has more horsepower than this golf cart. This thing doesn't have horsepower. It doesn't even have ponypower. It's running on duckpower. It waddles, something I didn't know a wheeled vehicle could do.
**Actually completely legal and a welcome community service in my city. Thank you Neighbor Barbara for telling me the exact part of city code that details what civilians are allowed to do about weeds on public roads, which is apparently "LOTS". Theoretically I could bill the city for my time tonight.
Do people not know how to Make A Scene anymore?
I was absolutely sure I was going to get filmed and shit thrown at me, or someone would call the cops. My beloved was terrified I was going to get shot. I at least had ONE woman shout "YOU'RE RUINING EVERYTHING!" at me, which isn't quite as good as being told I'm ruining Christmas, but she said it with a genuinely heartwarming anguish while gesturing to a homemade "HAPPY BIRTHDAY AMERICA!!" banner, with an attempt at rendering The Evil Orange that as so enthusiastically yet talentlessly executed I almost stopped to get a picture of it. He looked like he'd been put in a wafflemaker.
I promised my beloved that I would turn around and come home at midnight, and I did, having eliminated every fireworks party and Scottish thistle in a five-block radius despite the lackadaisical maximum speed of my Steel Steed.
The complete lack of protest is honestly shocking to me. My flabbers are completely gasted. I waddled home on the golf cart in a sort of stunned silence that this HAS worked so well. The whole world is almost eerily quiet, and reeking of vinegar.
...Which is maybe why I didn't notice the cop pulling up beside me at a red light until he rolled down his window and leaned out at me.
"WHAT'RE YOU DOIN'?" He asked, in a voice that could be used as a foghorn in emergencies.
I probably would have jumped were I not currently melting into a semblance of the Chernobyl Elephant's Foot in the heat, which was the first thing that saved me.
The second was the voice of my Grandfather, coming to my aid through decades of generational memory, to tell me his words of wisdom, usually spoken right before doing something wildly inadvisable:
The Age Of Miracles Is Not Yet Over.
"Weed Mitigation!" I called back.
"CHRIST ON A BIKE, THEY GOT YOU GUYS WORKING THE HOLIDAY TOO?" He said, in the same fontissimo as before. Apparently Officer Foghorn just talks like this.
"Yep." I nodded.
"SHIT." He blared in solidarity. "WHEN DO YOU GET OFF?"
"Just finished."
"MOTHERFUCKER. THEY GOT ME OUT HERE UNTIL GODDAMN 5 AM." Officer Foghorn whined in THX.
"Shit." I commiserated.
The light turned green.
"ALRIGHT YOU GET HOME SAFE! GOD BLESS!" He waved, and drove off at something significantly above the speed limit, and I trundled on home.
I must have still looked shocked when I came in, because My Beloved immediately got up to hug me and ask if I was alright.
"The Age Of Miracles Is Not Yet Over." I nodded slowly as the animals all battered me about the legs for attention. "...For real though, absolutely nothing happened."
"What?" he squints, wobbling slightly as Charlie tries to shove him aside for better access to me. "That's... Is it weird to say I'm almost disappointed?"
"I mean, I confirmed that I inherited my Grandfather's supernatural ability to get out of trouble for no good reason, but we knew that from the code enforcement people." I shrugged. Selene finally noticed the smell of vinegar and retched in disapproval.
"How about a shower and some Ice cream?" My Beloved suggests.
So now it is July the 5th.
- My house is not ablaze
- There are four medium-sized carnivores sleeping on me
- I am freshly bathed
- and I have a pint of Americone Dream all to myself
Here's to you, your health and your happiness, and a reminder to go make good trouble. Goodnight all.
---
(If you enjoy reading about my adventures (and the occasional curious non-adventure) I'd appreciate it if you could tip me on Ko-Fi. Apparently my Patreon link is fucked but it's basically 1 in the morning and I can't be arsed.)
white people appropriating aave is always irritating but specifically the use of "-ahh" like "goofy-ahh" "stupid-ahh" bro if you are not black just say ass. ass belongs to everyone, dumbass. are you afraid of cursing?? youre stealing the language of black americans cos you don't want to be caught saying a bad word like ASS ?
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The thing about Nanna and the gun is it's hilarious but it's not just hilarious. There's a whole story it evokes, one where Nanna has been through some shit. And where Nanna and her generation wanted to make a more peaceful world and they succeeded so hard that Nana is just a little out of step with this new place she made. It's a story with pain behind it and hope in front of it.
one time I told my therapist "I tend to have issues with people who think of themselves as authority figures" and she burst out laughing and then said "I think we need to pause and reflect on how you phrased that"
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all i want is to get hellsitegeneticsed. i want to know what kind of creature my post is. god i want it to be something cool sooooooooo bad do you think they have the genetic code for werewolves
i think we should be talking about the semi-recent advancements in cystic fibrosis treatment like all the time every day. there hasn’t been a drug like this since AZT medications for HIV infection it is truly fucking miraculous and very important
basically: cystic fibrosis is a genetic disease which makes the mucous a person generates extra sticky. it used to kill people in infancy, then with advancements in medical tech it killed people in young childhood, and until very recently cystic fibrosis patients could expect to live until about thirty years old with consistent painful lung infections and complications.
in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.
people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.
like isn’t that insane. isn’t that amazing. doesn’t that give you hope for the future of medical advancements and treatment. fuck. i think about it all the time……
For the people asking "well how do we know people are living that long if it's so new????" Here's a page from the CF foundation about life expectancy.
Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.
But the fact remains that the odds are better now than they have ever ever been before, by leaps and bounds. It isn't cured, and many patients still need significant treatment in addition to Trikafta, but it is so much better than anyone could have dreamed of twenty years ago, and that is a triumph.
Yes! My sister has a serious form of cf and finally is living a more comfortable and active life. She was also part of many of the clinical trials leading to these breakthroughs due to the nature of her cf. It's been very exciting to see.
That's absolutely incredible. Don't get me wrong. It's miraculous from a clinical standpoint. But, uhh. Not to be a downer but I need people to see this so they stay angry and stay real about what medical breakthroughs actually mean for patients. When I call something "survival gatekeeping", this is what I mean:
That is per month with the most common coupon people are likely to use.
But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.
NEVER look at something like this and navigate away feeling better about things without asking how much it costs and who can get it. NEVER. It isn't revolutionary until poor people can access it without a struggle.
Vertex doesn't just charge a ton of money. They actively block generics and decline to make it available in developing nations.
Reshma Kewalramani, the current CEO of Vertex Pharmaceuticals, makes $20.6 million a year. The prior CEO, Jeffrey Leiden, is still on the board and makes $8.6 million a year.
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