There is still power here, in this body of mine.

frequently when i’m out and about with someone walking, they can’t anticipate what path i will take and therefore they’re in my way pretty frequently. this is fine! i can politely ask them to step to the side. but it makes me think about how little non-wheelchair users understand the way wheelchair users move. as someone who used to walk everywhere, it was an adjustment period for me to figure out how to navigate the world in a chair. here are some things that didn’t occur to me so that you don’t cut off your friend right as they’re building momentum to go up a ramp 😆

for context, i use an active manual chair. the world is very different in a power chair. even among active manual chair users, there is a huge diversity in physicality and strategies for getting around. this is a general guide that i think will apply to most manual wheelchair users. i’m starting super basic and getting more complicated as i go.

———

1. manual wheelchairs are a momentum game. it is very easy to maintain speed and direction. but speeding up, slowing down, or turning, is hard. one thing this affects is if we’re on a wavy sidewalk or other twisty-turny walkway, that is a pain in the ass and i am taking as straight a path as i can.

2. wheelchair users also have to pay attention to the slope and condition of the pavement, so our path somewhere will be different than yours, even if we’re taking the same route to the same place. for example, i usually have to go down slopes straight, not diagonally, to avoid tipping over sideways. one area this affects is crosswalks. many intersections have one curb cut for both roads you could cross, which means i will go down curb cuts to a crosswalk as if i am aiming for the middle of the intersection.

your path in orange, mine in blue. to you it seems indirect, but to me it’s the path of least resistance.

i also will be building speed in the second half of the crosswalk. this is a much easier way to tackle a ramp. if i approach with momentum, i won’t have to drag myself up the slope once i get to it.

3. building momentum and maintaining it is only half of the job. the other half is stopping. manual wheelchairs cannot stop on a dime if they’re moving with any kind of speed. if i tried to stop immediately when going downhill, i would fly out of the chair. so don’t walk right into the path of a wheelchair in motion and then stop! i will have to turn to the side very quickly and hope i don’t tip. i can’t tell you how often parents pushing strollers will stop their stroller directly in my path and then get offended when i am alarmed and turn sharply to avoid hitting their child. from their perspective, i was being careless and going “too fast.” in reality, normal walking speed takes a few feet to slow down from and stop.

4. in terms of slope. see this street in san francisco?

i can’t go down this street, it’s way too steep. i would give myself friction burns on my palms trying to control my speed. if i was in a situation where there was no avoiding this street, like in an emergency, i would be breaking my straight-slope rule and zig-zagging in the middle of the road.

this would require several zig-zags back and forth, more than the four that i drew. i also could not go up this road other than with this method. up or down, i risk tipping over sideways if i’m not careful.

4. in a similar vein, consider terrain. slopes with grass or carpet take huge amounts of energy to get up. this grassy hill isn’t insurmountable, but it would take me like thirty minutes to get up there. honestly i would probably go backwards, because it’s easier to pull yourself up a slope than push yourself.

other types of terrain can be completely immobilizing, though. this decorative gravel pathway is beautiful, and inaccessible to me. my casters (front wheels) simply will not go through that.

5. in terms of walkways and obstacles. if there’s a deep gap in the pavement lined up the way i’m going, and it’s, say, an inch wide, that is an obstacle for me. my casters are one inch wide, and my back wheels are an inch and a half. i’ll get stuck in it like a train on a track.

i have to straddle this, even if it means being too close to the middle of the sidewalk and preventing us from walking side by side.

similarly, if a crack is greater than an inch high, i’m gonna wheelie over it. at two inches, i have to. a wheelie may require a change in speed, either faster or slower depending on the person.

i have 4 inch casters, so a lip as little as 2 inches will stop me in my tracks. a lip as little as one inch, hit with any speed, can knock my casters out of square. casters can get knocked out of alignment pretty easily depending on the chair. i’d rather not have to pull out an allen wrench and a level, so i’m gonna wheelie.

this happened when i hit about a 1.5” lip on a pavement crack when i was going downhill at maybe 3mph.

6. putting it all together. see how diagonal this crack is?

this is another situation where i have to go straight relative to the slope. because that crack is wide, it will probably also require a wheelie. if i tried to approach that straight relative to the sidewalk, my left caster would get up the slope, i’d wheelie, then my right caster would land in the crack. i have to go this way.

(also lol at the trash can blocking the curb cut)

Been very frustrated lately by lack of phone call accessibility as someone who lacks speech but needs a lot of resources to stay healthy.

With rise of AI, it's only getting worse and worse.

More places changing their systems to incorporate AI answering machines.

Thing is...

Whenever I hear most people ranting about this change, it's usually about how annoying it is from an abled-person perspective or environmental or ethical impact.

Which are important valid reasons to be upset. I share those sentiments too.

But feel like disability is once again forgotten about within important discussion about change.

AI creates terrible language accessibility issues.

In fact, that's why it so annoying to deal with it.

In the past, if a place didn't have a call center or desk person to answer calls, they use extentions.

That meant you had to press a few numbers to get the right person.

Now with AI, you're expected to have a full conversation with a robot.

Tell them why you're calling, who you need to speak to, verify your info so the humans don't have to later, etc.

These bots can be bad at understanding what able-people are saying, so imagine how they handle these disabled callers:

People who use AAC (speech aids/devices)

People who slur, stutter, have "strange" voice or pronunciation

People with rapid or disorganized speech

People who use poor grammar & who don't speak full words or sentences

People who mix up similar common words

People with "deaf accent"

(i don't know if there is a different preferred term for this. Im sorry if I sound offensive. Please Lmk)

People with non-communicative speech such as vocal tics, echolalia, or babbling

Anyone who uses speech or language in a way that needs a human mind to interpret

Anyone whose voice sounds notably different

Ability to understand what AI is saying can be harder too:

d/Deaf people and other hearing differences

Auditory processing disorder

Receptive language disorder

Developmental disability, especially intellectual and learning disabilities

(AI can't help people who need things explained a certain way. AI unreliable and fails to adapt a lot.)

Anyone who frequently can't make out sounds and/or speech

Anyone who frequently has trouble with meanings in conversation

The problems I often face with AI answering machines (and that I'm sure many other disabled people have faced as well):

AI slightly mishearing me/my device

AI mishearing so badly that it basically makes up a fake conversation

AI not hearing me/my device at all

AI registering tics and stims as answers

AI "explaining" an instruction by repeating the same instruction again word-for-word

AI directing me to the wrong person without trying to confirm what I said

AI sometimes just... hanging up on me right after I speak my first answer...

These are the machines being put in front of

hospitals

doctors offices

mental health centers

pharmacies

transportation and in-home care

health insurance member services

medical supply companies

government resource agencies

non-profit organizations

advocacy groups

justice centers & other legal resources

customer service lines

many other places disabled people often need to access from home

It's another example of some of the most vulnerable being pushed away from the things we need, and we're also being forgotten in these discussions about things that can affect us a lot

Next time someone is ranting about AI job interviewers, please also remember:

the AI pharmacy assistants that make it impossible for someone with a speech disorder to sort out their meds

the AI scheduler that won't allow a D/deaf person to access the right extension of the clinic to set up an appointment

the AI agent that confuses an intellectually disabled person into anger and tears

the AI answerer that hangs up on a mentally ill person seeking help in crisis because they aren't speaking coherently enough

Human beings need to be at the forefront of human resources and issues for disabled people especially. Please remember us. Please fight.

[ survey.gendercensus.com ]

The 13th annual international gender census, collecting information about the language we use to refer to ourselves and each other, is now open until 13th August 2026.

It’s short and easy, for most participants it takes 5 minutes or less.

After the survey is closed I’ll process the results and publish a spreadsheet of the data and a report summarising the main findings. Then anyone can use them for academic or business purposes, self-advocacy, tracking the popularity of language over time, and just feeling like we’re part of a huge and diverse community.

If you think you might have friends and followers who’d be interested, please do reblog this blog post, and share the survey URL by email or at AFK social groups or on other social networks. Every share is extremely helpful!

Survey URL: https://survey.gendercensus.com

The survey is open to anyone anywhere who speaks English and feels that the gender binary doesn’t fully describe their experience of themselves and their gender(s) or lack thereof.

Thank you so much!

My sycamore tree began life in the gravel at the edge of a parking lot. If trees can feel pain, that is a painful, unlucky death. I carefully dug it up and put it in a pot I made out of a disposable cup.

Hello small one. This world may be cruel, but I will not be.

I decided to take care of it, not expecting it to survive, and when my sycamore tree unfurled one tiny leaf and then another, it chiseled a tiny foothold in my terrified brain, the kind of brain that doesn't remember a world before the atomic bomb and before 9/11.

I googled the lifespans of trees. My neurons had to stretch and expand to accommodate what I learned: My sycamore tree may live five hundred years. It's hard to think something so big. In twenty years, my baby sycamore tree will be three stories tall, and the home of many creatures. In five years, my sycamore tree will be taller than I am. In one year, it will be summer.

There's this concept called sense of foreshortened future where people who have lived through trauma can't conceptualize a future for themselves because deep down they don't expect to survive, When I look forward, all I see is fire and death, melting ice and burning sky. We were raised Evangelical. All we see is Judgment Day, except there is no heaven.

But now there is a tiny gap in the wall, a crack in the door of my cell

and on the other side, I see a tree

There is, in the future, a great old sycamore tree, full of clean winds and the stir of a thousand wings. A hundred years from now. Fifty years from now. There will be forests in that world. There will be a world.

It takes courage, but we have to imagine it.

Most tree species can live in excess of three or four hundred years. I think I'm learning something. I think there are ancient voices saying hello small one, touch the dirt and the leaves, for now you are part of something that cannot die

in 2030 I will be thirty years old and the world will not have ended and there will still be hummingbirds, and we will have photos of the stars more beautiful than we can now imagine.

I planted an Eastern Redcedar; they may live nine hundred years. There will be nine hundred years. The people in that time will remember us. Maybe we will meet the aliens (hi aliens!).

I will blow out the candles on many birthday cakes in a world where there are wolves in dark forests far from home. I am learning to imagine the future. I learned recently that elk were reintroduced to the Appalachian Mountains after over a hundred years of extirpation, and that they are expanding their range.

That tiny crack I can see through now opens a tiny bit more:

Maybe elk will pass through my hometown, maybe there will be a forest where the pasture is on the high hill that I can see from my home

say it, say it, say it: ten years, thirty years, a hundred years from now

intellectual disability be singular diagnosis give to people who struggle with intellectual functioning & adaptive functioning (e.g living skills), rated from mild to profound. it affect everything every single aspect about person.

(UK: learning disability, not to be confused w specific learning disability or UK term learning difficulty. so far only find UK use this term difference.)

intellectual disability often comorbid with autism - different source n study say different things but many place say 30% or more autistic ppl have intellectual disability.

autism (& adhd, specific learning disability like dyslexia, down syndrome, cerebral palsy, etc) be part of wider umbrella called developmental disability (DD).

(technically, intellectual disability also a developmental disability. but because so many other developmental disability comorbid with ID, & ID affect everything single aspect of person, ppl often give it extra emphasis, abbreviating both of them as intellectual / developmental disability (I/DD))

intellectual disability experience & intellectual disability activism need center actual intellectually disabled people / people with intellectual disability. whenever autistic people without ID mistake autism as “an intellectual disability,” it speak over people with ID. it decenter people with ID from their own word / experience / space.

people insulting & mistreating you as autistic person without ID by confuse you with or compare you to people with intellectual disability cry, are saying you “just as bad”, n not mean you affected in same way as people with intellectual disability.

things targeting people with intellectual disability target people with intellectual disability first. they be most affected.

you can (& should) advocate for group of people you not without claim to be one of them. but most of time when people do this, they not even advocating.