there's a dream i have in which i love the world

$329/$600 raised

Edit: I got bad news about my appointment for getting better/cheaper pain meds regarding the fees, it will be another $300, please help me if you can

Edit 2: I am quickly running out of narcolepsy meds

Venmo: AGIEF

Paypal: [email protected]

Ko-fi:

My family now lives in a tent with no stable shelter, my sister Jana has no school, and I have no steady job. My brother Kamal carries the burden of the entire family, working every day to secure just enough food, while I search for any work, no matter how difficult or dangerous, just to survive.

My mother, the beautiful dream we once cherished, wished for a calm and happy life for us, but the war tore us apart and shattered our hopes. As for Jana, my innocent sister, she lost her school, her books, and even her sense of hope, yet she still writes her dreams on small pieces of paper, hiding them in her torn clothes so they won’t get lost like everything else.

We are not asking for the impossible, only what keeps us alive with dignity and gives us a chance to rebuild our lives. Every donation, no matter how small, means so much to us. Your support will give us hope to keep going and try again. 🙏❤️

£333 / £20,000

Hisham's message:

1. see this so many times, a lower support needs autistic / adhd person who expected live normal among Ableds talk about struggle w day to day n be so exhausted every day n so many (so many!!!!) similar lower support needs autistic / adhd ppl in notes n comments etc talk abt be similar & feel so broken n failure n alone etc bc no one talk abt it. honestly so heartbreaking n frustrating for me knowing it common LrSN experience

it so common!! so many people struggle with it! but despite be so common, ppl not really talk about it abled ppl don’t n many LrSN ppl also don’t bc embarrassed / don’t know to / been shut down n shamed before / don’t realize not everyone like this. no one know how common of experience it be. despite be so common no one rly have good easily accessible solution to it

2.

n bc am higher support needs person n this be higher support needs blog inevitably going talk about how this impact higher support needs people bc it absolutely does

bc ppl not talk abt this experience n so not realize how common this be among LrSN ppl, AND ppl talk even less abt more severely disabled people & ppl w mid n high support needs, the General Nondisabled World (which many LrSN ppl made to exist in) kick us to our own separate lil contained hidden place to point no one realize we exist or should be put in your world view. so some LrSN (autistic/adhd) ppl inevitably think they higher support needs than they actually be

ppl see struggle w these things n auto label it / themselves who struggle / other ppl as mid or often even high support needs,

bc compare to General Nondisabled World it feel very big n the distress feel very big n the struggle feel very big n it is (!), it be higher than what General Nondisabled World demand them to be. but bc that General Nondisabled World on purpose hide the rest of us who cannot even pretend to blend into n fake it until we make it there no comparison to the whole disability spectrum.

so us mid & high support needs ppl get pushed out even further, where words for us no longer recognizable for us, we forgotten even further.

try seek community using our own terms n words n experiences n descriptions n quick shorthands bc don’t want to / too invasive to / too long to / shouldn’t have to list out every single thing we need support on n be essentially told hi now you too much too high too difficult for even high support needs

low support need get push to mid support needs, mid support needs to adapt get push to high support needs, n high support needs people left no where to go once again

it not about compare to nondisabled ppl bc to them we all too much. it about overall disabled people

n it not just abt you yourself. it about wider it about all

have heard many low support needs ppl come to me n say they been listening to me & other ppl w high support needs & advocating with us centering us in their advocacy n believe we deserve support n through that. they recognize & get more okay n comfy with admit & accommodate their own support needs n deserve support too

support the most marginalized n entire community will feel good effect it trickle up

so

tldr like

low support needs not mean no support needs, unfortunately low support needs not mean no struggle it can often mean immense struggle just like mid n high support needs ppl. struggle with clean house laundry cooking shopping n forget to eat until suddenly it end of day n can’t keep job n constant in burn out all the time n severe depression anxiety ocd etc all be really really common lower support needs autistic / adhd experience in current world unfortunately n deserve more recognition n support n be talk abt more than it be getting right now but it cant just be solely from high support needs people.

No matter how injured. If a parent doesn't deem it necessary to see a doctor, it doesn't happen. Teachers can suggest a doctor visit, but unless it's a very acute injury (and even then), it's ultimately up to the parents.

You can be 13. Twisted, maybe broken ankle. You teacher lets you sit out in PE. She's concerned, and tells you to rest when you go home, and see a doctor. You get home, ur parents fill a bath and add some Epsom salts, and then laugh at you for using it moms old colorguard stick as a cane. Take some ibuprofen they say. It's just a little sprain, ur a kid.

You go to school the next day, go to ur office assistant time. Office calls ur mom to come get you, because you're clearly in too much pain for school. Your mom laughs when she gets you, says you just were so determined not to miss school. Scolds you for making the office ladies worry.

You never see a doctor for the injury.

Your parents come into the exam room at every visit. This does not stop with age, except for gynecologist. But your parents are on the medical release forms. They fill them out for you, with you. You do not get to take them off.

You never get to tell s doctor about the ankle. Even though it never quote healed right, and it hurts every day.

Then your 18. In college. Still on your parents insurance, and have no car. The on campus clinic only does std testing. You fall down some stairs. Same injury. You call your parents, crying from the pain. You are using a mop as a cane. They console you and say to have a bath, take some meds, and let them know how it feels in a few days. You end up borrowing your roommates rolling chair to get around for the weekend.

By Monday, you can walk again. You walk miles to class every day. You ask to see a doctor, but your parents won't drive the hour to come take you, and you don't have the insurance card. You are still at their mercy for medical care. The ankle tries to heal again. This time worse than before. The tendons click with every step.

Now you're in your twenties. Finally have your own healthcare. You see a doctor. You get to mention the ankle! They say it's been too long to really even know what was damaged. That you have arthritis now. It healed wrong but it can no longer be fixed.