Autism Speaks (AS) is not a ableist organization, and here's why!
Hi! I am a autistic person who has studied autism and our community for years. I have noticed that most autistic people have a negative view on autism speaks, and i don't understand why. I personally think autism speaks is very helpful, and they definitely brought me further in my knowledge about autism. I have heard many explanations from autistic people on why autism speaks is a ableist organization, but most of it was outdated information.
I've had many arguments about why autism speaks is a ableist organization, and i had to explain myself over and over again, so i decided to make this post about why autism speaks is not a ableist organization. This post will include debunking arguments on why autism speaks is a ableist organization and a explanation of what autism speaks is. I wrote this when i was sick and very tired, so please ignore any bad grammar!
Autism speaks (AS) is a american awareness organization of the condition autism spectrum disorder (ASD). It is the largest autism research organization in the united states, founded in febuary 2005 by Bob and Suzanne Wright, after their grandson was diagnosed with autism. Over the years AS has gotten alot of criticism from the autism community due to some horrible mistakes they have made, such as the "i am autism" ad, promoting a cure and supporting eugenics. Fortunately, they have listened to the criticism, and they have improved alot.
Debunking arguments on why autism speaks is a ableist organization.
There are many arguments on why AS is a ableist organization, or a hate group against autistic people. Here are some of the reasons. When i hear more reasons, this list will get updated.
Only 1% of the money donated to AS goes to the autism community.
They don't listen to the autism community.
AS has made a horrible ad that treat autism as a disease that should be feared.
I will be going over these reasons and explain why these are outdated information.
Reason 1: AS does not promote a cure anymore. They have removed the word "cure" from their mission years ago, and they have improved alot. (Proof).
Reason 2: AS does not support eugenics. This is outdated information, and they have improved alot. (Proof).
Reason 3: This is not true at all. Only 7% of the money donated to AS goes to fundraising, only 3% of the money donated to AS goes to management & general, and 90% of the money donated to AS goes to research, services, advocacy and programs, including the autism community. (Proof).
Reason 4: AS does listen to autistic people. Infact, AS has autistic people on their board of directors in leadership positions. They work with many autistic people, and try their best to listen to autistic people. (Proof).
Reason 5: AS has deleted their "i am autism" video from all of their channels when they realized that it offended the autism community, and they apologized multiple times. (Proof).
All of this is out dated information. It is important to remember that AS has improved alot, and they apologized multiple times for their mistakes.
The improvement of autism speaks.
AS was founded in 2005, a time with extreme lack of knowledge about autism. Due to this lack of knowledge, AS has done some terrible mistakes, such as promoting a cure and making harmful ads. They have received alot of criticism from the autism community, and fortunately they listened to the criticism. Throughout the years they improved alot. They have deleted their harmful ads, they have apologized for their mistakes, they changed their logo into a welcoming and inclusive logo, they have changed their mission from trying to find the causes of autism and a possible cure to trying to create a inclusive world for all autistic people through advocacy, services, supports, research and innovation, and advances in care for autistic individuals and their families, they have introduced a new AS in 2020, 90% of the money donated to AS goes to the autism community, they work with many autistic people and they listen to the autism community.
Does autism speaks help the autism community?
It's AS their mission to help autistic people, and they can be very helpful to the autism community. On their website, there are many tool kits that can help autistic people, such as the ATN/AIR-P medication aid, the adult autism diagnosis tool kit, the 100 day kit for school age children, the 100 day kit for young children, a parent's guide to autism first concern to action tool kit, and much more. (Proof).
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I think it's your own choice if you do not want to forgive AS despite their improvement and apologies. Your opinion does not give you the right to hate on those who disagree. AS can actually be very helpful to alot of autistic people and their families, and trying to take this away from them is disrespectful.
I deeply apologize for any bad grammar! Like i've said before, i wrote this when i was sick and very tired. I hope this post was helpful for some people!