Just Another Spoonie Blog @chronicallyjessica - Tumblr Blog

Me when I get another diagnosis to add to my list

[ID: Gif of a woman, Margaery Tyrell from Game of Thrones, smiling and saying “I must be cursed.”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #hypermobility spectrum disorder #hsd #hypermobile #hypermobility #eds #ehlers danlos #ehlers danlos syndrome #postural orthostatic tachycardia syndrome #pots #mcas #mcad #mast cell activation syndrome

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When someone sees me dislocate and then relocate any joint for the first time

[ID: a gif Rylan, a bearded man, looking confused saying “I don’t know what I’ve just watched”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #dislocation #dislocate #subluxation #sublux #hypermobility spectrum disorder #hsd #ehlers danlos #ehlers danlos syndrome #eds

“Don’t you think the doctors are probably fed up of seeing you so often?”

[ID: gif of a middle aged man holding a mug saying “They may resent me. I don’t care.”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic pain #chronic fatigue #undiagnosed #hsd #hypermobility spectrum disorder #hypermobility #eds #ehlers danlos #pots #potsie #postural orthostatic tachycardia syndrome #mast cell activation syndrome #mcas

When you’re autistic but your therapist uses metaphors to help you understand

[ID: a gif of a man in a tuxedo with a microphone looking confused and saying “but I don’t get it.”]

#actually autistic #autistic #autism #autistic communication #metaphor #actually neurodiverse #actually neurodivergent #neurodivergent #neuroatypical #female autistic

What most doctors are probably thinking when you ask them to reconsider your symptoms not being caused by anxiety

[ID: A man saying “I heard you. I was just choosing to ignore you”]

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When you first start your physiotherapy program

[ID: Gif of Samwell Tarly saying “I’m not cut out for this start of work”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #physiotherapy #physio #physical therapy #PT #hypermobility spectrum disorder #hypermobile #hypermobility #ehlers danlos #ehlers danlos syndrome #subluxation #sublux #dislocation #dislocations

Uniformed and ignorant people when you tell them you’re too fatigued or in pain to carry on

[ID: A gif of an animated woman saying “but you’re going to power through it.”]

chronicallyjessica

I don’t think that abled bodied people appreciate how a shower can be relaxing and refreshing for them.

I can’t remember the last time showering felt like that for me.

I takes so much energy to shower and I often dread showering because I know how exhausting it will make me feel during and afterwards.

That’s one thing I really hate about my chronic illness.

It’s little things like having a refreshing shower that have been taken away from me that I miss.

Most doctors when you ask them what could be causing your symptoms when the blood tests come back as normal

[ID: A gif of a woman, Lucille from Arrested Development saying “I don’t understand the question and I won’t respond to it”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #dysautonomia #pots #potsie #postural orthostatic tachycardia syndrome #hsd #heds #ehler danlos syndrome #ehlers danlos #hypermobile #hypermobility spectrum disorder #hypermobility #MCAS #mast cell activation syndrome

What it’s like when a flare hits you out of nowhere

[ID: a gif of a man opening his door to find another man there with a bin says “surprise, bitch!” then chucks it in his face so hard he falls down]

#chronic illness #spoonie #chronically ill #invisible illness #chronic pain #chronic fatigue #hsd #hypermobile #hypermobility #hypermobility spectrum disorder #ehlers danlos syndrome #ehler danlos syndrome #eds #pots #postural orthostatic tachycardia syndrome #dysautonomia

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When you ate the food you’re intolerant to and now regret your decision

[ID: A gif of a man, Bryan Cranston, in a suit shouting “I’m bloated as hell and I can’t take it anymore!”]

#spoonie #chronic illness #chronically ill #invisible illness #irritable bowel syndrome #actually irritable #ibs #food intolerance #fructose intolerance

“You’re too young to be this ill”

[ID: Gif of a man saying “we can’t all be as blessed as you”]

When the doctor doesn’t know what could be causing your symptoms but refuses to refer you to someone else

[ID: A gif of Noel Fielding, wearing a hat and black and white shirt, shaking his hands whilst saying “that’s not acceptable”]

When your medication starts melting on your tongue before you can swallow it

[ID: Gif of Leslie Knope, a woman with blonde hair, grimacing and sticking her tongue out in disgust]

“Who could have that many conditions”

[ID: Gif of a man smiling slightly shaking his hands]

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When you have POTs and need to eat lots of salty food but hate it with a passion

[ID: A gif of a man with a look of disgust on his face after eating something]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #dysautonomia #pots #potsie #postural orthostatic tachycardia syndrome #salt

Doctor: I’ll refer you but he’ll probably not do anything to help ease your symptoms

Me:

[ID: gif of Sandwell Tarly saying ‘he can bloody well try.”]

#spoonie #chronic illness #chronic fatigue #chronic pain #chronically ill #invisible illness #undiagnosed #hsd #hypermobility spectrum disorder #hypermobility #ehlers danlos #ehlers danlos syndrome #pots #postural orthostatic tachycardia syndrome

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