My Journey

People are constantly trying to tell you that you’re not trying hard enough, because you haven’t given exercise enough of a try, or you don’t drink enough water, or you don’t eat right, or you haven’t seen enough doctors or tried enough medications. 

Fibromyalgia is wanting to do something physical but then your legs turn to jelly and you can’t keep going.

Fibromyalgia is trying to wash the dishes but for some reason you can’t seem to keep your grip and everything comes crashing down out of your hands.

Fibromyalgia is wanting to do something quiet like art or writing but as soon as you start to focus on something you get dizzy and your eyes begin to feel like they’ve been sandblasted and you can’t keep them open anymore, and if you don’t lie down you think you’ll be sick.

Fibromyalgia is fever chills and night sweats and day sweats, even though there is no fever.

Fibromyalgia is finally starting to feel better and getting some momentum, only to get sick with something again, and then you stay sick. And you stay sick. And you stay sick. And you stay sick. Until the cycle repeats.

Fibromyalgia is always being tired but never being able to sleep.

Fibromyalgia is always sleeping but never feeling rested.

Fibromyalgia is not who I am, and yet… it is all I am.

"I've been walking two miles and for some reason my elbows are the ones burning"

Fatigue: