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@chronic-tea

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Some people donβt want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesnβt mean everyone else can.
Today in australia they started senate hearings on the bill the government hopes will make enough disabled people die or disappear to make us all less irritatingly expensive for them. We had two weeks to submit feedback on over 400 pages of complicated legal terms. They don't care what we have to say and they donβt care that this will kill people and disenfranchise disabled people across the country.
There are 760,000 Australians on the National Disability Insurance Scheme, the system that - if they feel like it and your personalised plan says you get to have it - provides funding for everything from personal hygiene care to support workers to therapies to assistive technology. It's already very hard for disabled people to get on the NDIS, regardless of your disability. It's near impossible to access most support and equipment without being on the NDIS. And the government has announced that they want that number to drop to 600,000 in four years. 160,000 of us cut off the Scheme - and countless more denied access. This will cause deaths. People will die and people will suffer because there is no safety net. The NDIS is the only option for most of us. Even private health insurance doesn't cover most of these things. Nobody will swoop in to save us.
The bill wants to give the (non disabled!) NDIS minister basically unlimited power to cut our funding. They're already planning what they'd do with that power. What rights they'll strip from us. What dignity and freedom they'll remove to make their budget look better.
The bill wants to force people to try every treatment out there before they're allowed to be on the NDIS. Including if the treatment is literally impossible to access. Thereβs a lot of us living in regional areas or out bush who can't just pop to the capital cities for specialists. This will especially hurt disabled First Nations people in regional and remote communities, who already experience limited access to healthcare. Oh, and it includes chemical restraint, too. The government has directly refused to exclude chemical restraint from the required process, calling it "trialling medication".
If you're australian and worried, the ABC did a good breakdown of the proposed changes.
I know australia stuff doesn't really pop up on the radar on this site, but I want everyone to know what's going on. What we're fighting for here. Your australian disabled friends might be NDIS participants fearing for their life, rights, and freedom. They might not be a participant and afraid these changes mean they never will have access. We deserve better. The government built a system with no backup plan, and now they want hundreds of thousands of disabled people to pay the price for their bad planning.
Sorry we're too expensive to have rights, I guess.
imo the term "walkable" in "walkable cities" should be understood to mean "wheelchair accessible" as well, not just literally "possible to walk in". the act of walking in a city doesn't automatically make it walkable
me/cfs is fucked what do you mean I was competing in my sport, top of my class, and now if I have a really good day I can go for a walk outside.

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nooo youre so sexy please donβt speak as though chronic fatigue and ME/CFS are the same entity. nooo please ur falling prey to a common misunderstanding. the generalised symptom of chronic fatigue can occur in anybody for many varied reasons from burnout to cancer to vitamin deficiency and is different to the distinct condition of ME/CFS which is a specific organic entity featuring the hallmark symptom of post-exertionsl malaise and complex additional symptoms and requires a totally different treatment approach compared to other types of chronic fatigue unless you want to risk causing long-term damage noooo lol
sexism in medicine kills people. racism in medicine kills people. fatphobia in medicine kills people. queerphobia in medicine kills people. classism in medicine kills people. ableism in medicine kills people.
do not downplay peopleβs fears about being mistreated because they are a part of a marginalised group. it is a matter of life and death and you should be angry about it.
Springing off of my addiction post once more, I am also skeptical at best of 12-step programs, because their framework has just never remotely aligned with my actual experience.
The substance I was addicted to was heroin. While I was actively addicted, it absolutely came before everything else. My life shrank around it. I kept using despite very real, very obvious negative consequences. If youβre looking for something that fits the βcompulsion + harm + loss of controlβ model, that was it.
But whatβs always sat strangely with me is what happened when that context changed.
Once my abusive relationship ended and I was no longer in an environment where it was readily available, it was shockingly easy to stop. Iβm not saying it was physically comfortable. My body was pretty pissed off for a while. But psychologically, it just didnβt have the same hold anymore. I wasnβt spending my days white-knuckling cravings or constantly thinking about it. It dropped out of my life in a way that, according to the 12-step model, is not really supposed to happen.
And thatβs where my issue with that framework starts.
Because 12-step ideology tends to assume that if you have ever had that kind of relationship with one substance, it reveals something fundamental and permanent about you. That you now have a generalized βaddictive natureβ that will attach itself to other substances or behaviors if youβre not constantly managing it. That you are, in some essential way, always on the verge of transferring that pattern onto something else.
And that just hasnβt been true for me.
I was a near-daily cannabis user for years. When it started consistently making me feel physically uncomfortable instead of good, I stopped. No drawn-out battle, no existential crisis, just βthis isnβt giving me what I liked about it anymoreβ and I moved on.
I drink occasionally, in social or celebratory contexts, and I genuinely find alcohol kind of boring outside of that. It doesnβt have much pull for me.
I tried gambling once, got annoyed at how tedious and overstimulating it felt, and left the casino in under an hour. I have not felt remotely compelled to revisit that experience.
I use the internet a lot, and I play a handful of video games, but I can also go on a camping trip with no signal and be completely fine, unless you want to try and find something pathological about nature photography, in which case you can blow it out your ass. If anything, I generally enjoy the change of pace. Thereβs no sense of panic or withdrawal or βI need to get back to my computer/consoles immediately.β
So when I hear the idea that addiction is this broad, transferable trait that will latch onto anything with quick reward or low friction, I just donβt see it reflected in my own life.
What does make sense, looking back, is context.
When I was using heroin, I was in an abusive relationship. My environment was unstable, stressful, and honestly pretty bleak. The substance didnβt just exist in a vacuum. It fit into a specific set of conditions where it functioned as relief, escape, and regulation.
When those conditions changed, the behavior changed with them.
That doesnβt mean there was no dependency. There obviously was. It doesnβt mean there were no consequences. There very much were. My grades suffered. I dropped out of college. I lost my apartment because staying out of withdrawal and numbing out from the abuse felt more important than paying rent.
But it does suggest that what we call βaddictionβ might not always be this permanent, identity-level trait that needs to be managed forever. Sometimes it looks a lot more like a relationship between a person, a substance, and a specific environment.
When thatβs the case, then a framework that assumes universality - βif this happened once, it will always be waiting to happen again, with anythingβ - is going to miss a lot of variation.
Iβm not saying 12-step programs canβt help people. Clearly they can, or they likely wouldnβt exist in the way they do. But I do think theyβre often treated as the model of addiction rather than a model that fits some people and not others, and when your experience doesnβt match that model, many people who swear by them will assume that you are misunderstanding yourself, in denial, or βnot taking it seriously enough.β This paternalistic attitude only serves to make me even more skeptical of the framework.
For me, what mattered wasnβt declaring myself permanently βaddictiveβ or treating every pleasurable behavior as a potential threat.
What mattered was getting out of the environment where that pattern made sense in the first place.
Rat Park, people. Stop forgetting about Rat Park.
βaddictionβ might not always be this permanent, identity-level trait... Sometimes it looks a lot more like a relationship between a person, a substance, and a specific environment.
I have helped change more individual behavior by changing the environment around them than I have by working on their behavior.
things that make life easier, whether explicitly a disability aid, like crutches and wheelchairs, or not, like dishwashers and dryers, should not be luxuries. people should be able to live life with ease without great expense and for many disabled people these items are not a case of being comfortable but of just being able to live at all.

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honest to god we've got to start naming the elderly as a vulnerable group & calling their disabilities, disabilities. we sugarcoat and distance these things by only calling them "elderly," "old & frail," etc. most of them are disabled.
too many people completely separate disability from themselves in their mind. it's something that happens to other people. other sad people i don't want to think about. are they really even people, it's too much to bear thinking about that happening to a person... those background characters over there. it would never be me, i can't cope with thinking about that possibility.
this mass denialism of the fragility of the human body (YOUR human body) has created a whole category separate from the disabled - the "elderly." since anyone can join it if they live long enough.. no they can't be disabled. that's scary, and worse it's political. so they are just "old." so what they lost their hearing, their mobility, their heart function? that's just how it goes for old people. as if that's not a person as real as you. as if you wouldn't be devastated if that happened to you today (and it can btw). as if you won't be when it's your turn to be old, and disabled.
simultaneously the disabled are dehumanized as not people, and the elderly are dehumanized as not disabled. so the illusion of disability as separate can be upheld.
they should make standing up that doesnβt want to kill you
aw nuts my chronic physical disability is once again physically disabling me :( who couldve seen that coming
"But what if people will pretend to need this accessibility option so they can be lazy! People who don't need it will use it!!" I don't actually care
I dont care if 9/10 of the people who use the wheelchair ramp arent actually in wheelchairs. As long as the 1 person who needs it has access to it.
I dont care if 9/10 people who use the automatic push button on the library door can actually push the door open themselves. As long as the 1 person who the door is too heavy for gets to use it.
I dont care if 9/10 people who buy the can tab opener, or the little guitar clamp that holds the chords for you, or the hand grip that helps you hold chop sticks, don't need any of it and just get it to "be lazy". As long as the one disabled person who needs it gets access to it.
I do not care. Oh my GOD I do not care. As long as there's a disabled person on this planet who the accessibility device will benefit, the accessibility device is necessary.
Also, if you're so worried about people being "lazy" by using accessibility devices, MORE worried than you are about disabled (visibly or not) people not having access to them, you have unchecked ableism you need to work through.
wheelchair users deserve a minimum of three wheelchairs to meet different needs. like, bare minimum of indoor chair, outdoor chair, and off road chair. chairs that meet different needs for transport, activity, positioning needs, energy levels, etc.
there is not "one chair" that can meet every need. wheelchair users deserve to have multiple chairs that meet specific needs, no matter how complex their seating/positioning needs. we deserve to at least have a backup if our chair breaks that is just as suited to our needs.
wow this blew up
for anyone who doesn't know, wheelchairs are very expensive and insurance will usually only cover one every five years or only cover a new one if your needs have changed significantly. the expense is especially true for anyone who has complex positioning needs (i.e. requiring tilt/recline/elevation in power wheelchairs, general group 3 power wheelchair needs, one arm drive for manual wheelchairs, etc.). as with so many disability related issues, those most impacted by their disability are most at risk of harm when adequate support is out of reach.
this post isn't a joke about how we deserve more for being disabled. this is a very real issue for many wheelchair users, for whom using a wheelchair not suited to their needs can cause very real harm. access to multiple wheelchairs that meet your needs can save lives, and the financial limits placed on disabled people (through insurance, through savings caps, through limited income) prevent that from being our reality!

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saw this on twitter and wanted to save it here
Image transcript:
Thriving: "I got this"
Calm and steady with minor mood fluctuations
Able to take things in stride
Consistent performance
Able to take feedback and to adjust to changes or plans
Able to focus
Able to communicate effectively
Normal sleep patterns and appetite
Surviving: "Something isn't right"
Nervousness, sadness, increased mood fluctuations
Inconsistent performance
More easily overwhelmed or irritated
Increased need for control and difficulty adjusting to changes
Trouble sleeping or eating
Activities and relationships you used to enjoy seem less interesting or even stressful
Muscle tension, low energy, headaches
Struggling: "I can't keep this up"
Persistent fear, panic, anxiety, anger, pervasive sadness, hopelessness
Exhaustion
Poor performance and difficulty making decisions or concentrating
Avoiding interaction with coworkers, family and friends
Fatigue, aches and pains
Restless, disturbed sleep
Self-medicating with substances, food, or other numbing activities
In Crisis: "I can't survive this"
Disabling distress and loss of function
Panic attacks
Nightmares or flashbacks
Unable to fall or stay asleep
Intrusive thoughts
Thoughts of self-harm or suicide
Easily enraged or aggressive
Careless mistakes and inability to focus
Feeling numb, lost, or out of control
Withdrawal from relationships
Dependence on substances, food, or other numbing activities to cope
End transcript.
The thing you have to understand is that addiction is not just stigmatised, it is an actively marginalised positionality.
this cant be separated from racism, ableism, or saneism btw.
Ableism and saneism, in particular, similarly cannot be separated from addiction and the marginalization thereof.
i speak to way too many disabled people who can grasp that its bad when a doctor denies them necessary medication or even just care because they are stereotyped as addicts and "drug seeking", but who then fail to connect that to any critical understanding of the fact that its not bad because the label of "addict" was misapplied to them, but because it's bad, full stop.
It will keep happening to you until something changes in how ADDICTS are treated, btw. Throwing us under the bus will not save you. Addressing this as a disability issue wholly separate from addiction (as if those things can ever be meaningfully separated) will not help you !!!!