The blathermouth

As someone who has epilepsy and used to have several grand mal seizures a day, I’d also like to add that “offer help” can range anywhere from keeping the person calm to explaining to them where they are and what they were doing to even just telling them they should sit and rest for a while longer (lack or coordination is common, and it can be hard to walk straight or see clearly).

It’s okay for them to take up to a half hour to fully regain their bearings and sort out what they were doing prior to the seizure. Just answer any questions calmly and be there for support.

If they come around and you start to panic or shake them or ask them what the heck is wrong with them they are going to freak out and panic too.

I cannot stress it enough that this is bad.

DO NOT CALL THE POLICE. I’m dead fucking serious. I had a grand mal in public once and the POLICE were called and imagine coming out of the seizure, feeling like you got smacked in the head with a sack full of bricks, confused, dazed, in desperate need of some sugar to boost low blood pressure and some DIPSHIT has called the police and I was being threatened with being ‘drunk and disorderly’. It took a phone call to my doctors office to get them to back off. The police cannot properly deal with sick people. 

Offer help can be:

assuring person where they are/what time it is

getting them something to drink if they can; seizure burns so much energy and does cause a blood pressure drop

getting them safely to transport or a carer

getting them some dignity like a blanket/towel [loosing control of your bladder and bowels is fucking horrifying]

ensuring they have a way to get home. Someone who has just had a seizure should NEVER DRIVE straight after

calling emergency services if you notice any of these symptoms because they may have stroked out.

Why you shouldn’t put anything in someone’s mouth: they will choke. Yes, they may bite their tongue but I can assure you it’s less traumatic than cracking your jaw on someone’s greasy wallet or choking on a spoon.

Because PNES seizures aren’t caused by the same thing as epileptic seizures, they can look similar but people can be semi-conscious during them, generally do not lose full control of their bodies (bladder/bowels and other reflexes remain), and importantly, they can last longer than 5 minutes (even hours) without causing long-term damage.

The “do not call the police” point was especially vital for them, because people with PNES are more vulnerable to medical abuse by professionals who think they are “faking” because the seizure isn’t epileptic, and a person with PNES may have medical trauma from being treated cruelly by doctors, family members, etc. while seizing in the past. This study looked at stigma around PNES (also called functional seizures; I’m using PNES because its what my coworker called it):

Literature suggests that it can take years for patients to finally get a diagnosis of FS, but once they receive the diagnosis, it is often met with negative stereotypes and perceptions that lead to stigmatisation and treatment resistance. […] Moreover, with 34 of the 70 included data sources reflecting HCP [healthcare professional] stigma, one of the main themes that arose from this review illustrated the importance of HCPs’ acknowledgement and acceptance of their role in both perpetuating and reducing FS stigma. From our review it became apparent that HCPs’ negative attitudes towards patients with FS persist in the health community, often because of a lack of knowledge, general awareness, understanding and medical training with regards to this disorder

For my coworker, they expressed that one of the most important things for them was to just not be alone, to have someone verbally saying they were with them and it would be alright, and then to be supported according to their needs once the seizure ended. Their seizures were often triggered by stress, or from trauma triggers, so being treated with compassion, having their body respected, and having a calm environment during and after the seizure were very important.

Tumblr staff HATE trans women and yes its specifically trans women because i have not seen tumblr ban or remove trans men from this platform as much as i have seen them do it to trans women.

This problem is ridiculous, the latest victim being Goosworx. FUCKING GOOSWORX. You’re telling me that a woman who made a tv show THAT WAS BROADCASTED IN THEATRES AROUND THE WORLD. Was removed from tumblr by the bigotry and corruption that is the tumblr staff. This is insane.

Please if you can complain. Make a stink. The more people who recognize this issue the more pressure those in charge of moderation will feel to change their ways.

Repost other post like this.

Make your own and dont forget to tag the staff so they see it.

What the fuck tumblr.

(Edit: this is not to start arguments about things people have done, just using some ppl as examples because usually famous people get ‘special’ treatment no matter what they do, plus tumblr hasn’t really cared about other minorities in the past and that is another problem that im not getting into on this post)

I was bulled extensively in elementary school, but 1. Mostly by my teachers and 2. Not during this, because we ALL had PBS Nature and as Deer, I was allowed to gouge, kick, bite, keep running even after being grabbed, or body-check the larger children into the picnic tables and other architecture.

You know, for realism.

Players put their backs to the wall of the school building with one person currently in charge of throwing the ball as hard as possible at someone on the wall (we all wanted to see a brief imprint of "tioV" on the skin). You could try to dodge it but you had to stay against the wall. Torso shots were an auto out. If they hit a limb, you tucked it behind your body as if you'd lost it in combat. This actually meant legs were a more fun target than going straight for the torso as then you got a few rounds were a target could take additional limb hits because dodging was so much harder. Last player standing got to be thrower next round.

Eventually it was declared by teachers that the balls could only be used for kickball, funnelball or four square.

It was like dodgeball but not really, no teams, no outs, just like 20 kids going ham throwing little puff balls (sometimes foam frisbees) at each other.

Regular people: Wait, the King has easily stolen potatoes? How do I get in on this?